Guest guest Posted February 8, 2004 Report Share Posted February 8, 2004 Barb, Trigger points and tender points are two different species. The 18 tender points are what are used to diagnose FMS. Trigger points are points which send out pain, usually to somewhere else, when they are irritated. My husband is a Massage Therapist and I frequently want to smack him when he is working on me. He doesn't take it personally.<grin> Sorry to say this, but you will never get your life back. That's OK. Build a new one. We all have, to some degree or another. It isn't easy. But giving up is not an option. I always say, "Any day above ground is a good one." When the time comes that is no longer true, I end it. But, so far, it is still true. in Jax <><><><><> I NEED HOPE My name is Barb and I was just diagnosed with fms. I have been in pain for over a year and finaly the doctor tells me i have fms. I am so happy to find a support group. I feel my pain is geeting worse not better. I have terrible pain. I have not worked for over a year and the doctors kept telling me in the beginning that i had pain from doing repetious work and that eventually the pain would go away sometimes one year but not loner than 2 years. So when this new doctor did some more tests (touching all trigger points of Fms) I thought i was going to smack him and told him he is squezing to hard and that is why it hurts so bad. He assured me he was only squezing lightly.In the beginning it started with my arms then my hands then my neck, then my feet then my legs then my face. I want my life back. Please give me hope.thank you all for listeningBarb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Right now I have anger and denial, thinking it will go away and I tell myself I will be free of pain when I wake up but I'm not. How did you feel in the beginning? I cry a lot. I'm 52 years old and the thought of having this much pain for the rest of my life makes me angry and depressed. How do you get pass this stage of anger self pity? Thank you so much for being there. If I don't post its because my pain is very bad. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Barb, I've been diagnosed for over 20 years, had a physical breakdown 11 years ago, and I'm STILL in denial. Every day I try to do something I used to do. If my DH doesn't yell at me for being stupid, my body yells at me and THEN he does. It is very difficult to get used to. I cried, felt sorry for myself and blamed everyone, including the world at large. Still do sometimes. My 16-yr-old daughter has grown up with her mom not being able to do things. Very little volunteering at school. Until recently, no after school activities because I couldn't be sure of being able to pick her up. Never remembering what she told me yesterday she needed for school today. Anger and crying jags (her and me both). It hasn't been pretty, but we have survived. One of the things I found helpful was to find out all the information possible. Being an information junkie, I need to know as much as possible about a subject. Of course, I don't remember much, but just having found it out helped. Another thing was finding an email list of people who understood because they had gone through/were going through the same things. At the time it was the only one, I think. On it I 'met' Devin Starlanyl, who has written books on it. She is a med dr who came down with FMS. I also 'met' another dr who was in Eau (sp?) WI. His name escapes me, and that hard drive is dead, but he was treating patients with FMS and had lots of good ideas. If you have a spiritual path, lean into it. If you don't, now may be a good time to explore. My present hubby finally got through to me that, although I professed a certain belief system, I didn't really have faith, that's why I had so much anger and uncertainty. He was right (boy, did it hurt to admit that!) and I have since been working on that. Try to pamper yourself here and there. A hot bath, some aromatherapy, a good massage, can all help you feel not quite so depressed. I have struggled with lifelong Chronic Depression as well, so fighting it is hard for me. Possibly harder than fighting the FMS. You can't always fight FMS, sometimes you need to let it win the small battle so you can regroup. It's OK. A little long-winded and I'll probably think of other things along the way, but I hope this helps. <><><><><> Re: I NEED HOPE Right now I have anger and denial, thinking it will go away and I tell myself I will be free of pain when I wake up but I'm not. How did you feel in the beginning? I cry a lot. I'm 52 years old and the thought of having this much pain for the rest of my life makes me angry and depressed. How do you get pass this stage of anger self pity?Thank you so much for being there. If I don't post its because my pain is very bad.Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Right now I have anger and denial, thinking it will go away and I tell myself I will be free of pain when I wake up but I'm not. How did you feel in the beginning? I cry a lot. I'm 52 years old and the thought of having this much pain for the rest of my life makes me angry and depressed. How do you get pass this stage of anger self pity I'm back in the denial stage because I'm feeling worse lately. I know how you feel and I just hate to wake up sometimes. S. Quote Link to comment Share on other sites More sharing options...
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