Re: question about test results

[Guest guest]

Hi,. I'm not sure I can help, but I was curious about something - what exactly do you mean the RF and ANA were normal? Those should either be positive or negative. If it is positive, then that is an easier way for the dr to identify that the disease is there. For example, my son is RF neg. but ANA pos. The ANA means that he is more susceptible to eye problems. Did they say your daughter was negative for both? Even if she is, many children with this disease are. It just seems to make diagnosis more difficult. Sorry I can't help about the large platelets. I really don't understand all the test results myself. Sorry if I sound nosy, I just want to be sure that you understand about the RF and ANA. I guess what I mean is, there really doesn't seem to be, in my opinion, a normal for those in kids with jra. Hope I didn't offend, Michele (mom to 15,pauci & spondy)

-----Original Message-----From: mchristinad [mailto:mchristinad@...] Sent: Wednesday, October 09, 2002 10:29 PM Subject: Question about test resultsHi all, I have a question about test results. My daughter is waiting for her appointment with a rheumatologist. She had a CBC, RF and ANA that all came up normal. Her sed rate was elevated and on the bottom of that report, it stated that she had large platelets. I looked that up on the internet and only came up with listings for various kinds of bleeding disorders but she doesn't show any signs of those and the rest of her blood tests were normal. Have any of you had any experience with this kind of result? I am wondering if she is having some type of reaction to the Motrin she is taking. in NM with Natalia, 5mchristinad@...

[Guest guest]

Hi ,

I am afraid that I don't have much to add - except that most of Robbie's CBC was

out of whack when he was in his " flare " state, and the platelets were one of the

tests that was abnormal. I can't remember specifically what it said, but will

check at home this weekend in my notes to see if I can provide any more info.

When do you see the rheumatologist? Continue to watch for bruising, and other

signs of bleeding. How is Natalia doing overall right now? That can be more

telling than a lab result - though the lab tests are very important. They are

going to look at all of it together - often one test isn't all that significant

if the other tests don't support a problem. (Kind of hard for us Mom's to

accept - we want to know what every detail tells us so we can better help our

child.) As a couple of examples - when

Robbie was in the hospital before the diagnosis was confirmed,one of the

residents told me Robbie had " immature blood cells " So I said What does that

mean? The response was the bone marrow is thowing out cells before their ready.

Again, my response was What does that mean? Then the reply was, it could be

leukemia, it could be the inflammation, it could be the steriods, it could be

any number or things. I was none to pleased with that result - I wanted

answers! They do further testing to rule out all of the possibilities, and

come up with all the things that it isn't - thankfully not leukemia. More

recently the head of the pediatric rheumatology team was upset with my rheumy

because he didn't order a fibrin d-dimer test along with Rob's other routine

tests. That is apparently a test that is elevate with Macrophage Activation

Syndrome. It was elevated when Rob was in the hospital, but had not been

elevated since they started the cyclosporine. The next round of tests, he added

it to the others, and this time it was elevated again. I, of course, was very

concerned - but the rheumy reassured me, telling me that Robbie was running

around like a child without arthritis, and all of his other tests were normal,

or nearly so. The test by itself really isn't conclusive if all of the other

pieces aren't in place to indicate a problem. The platelets also show something

with MAS - but I can't remember what - but again the platelet result on it's own

isn't an indicator. Another sign with MAS would be bruising - a lot of bruising

all over, and bruising easier than normal.

This has been a very long, rambling post providing little help I am afraid. I

would certainly ask the rheumy when you see them, and if she is very

symptomatic, (lots of fevers, lethargy, little to no activity, no appetite,

abdominal discomfort, lots of pain) then I would push to get her seen quickly.

Sorry to be so little help!

Val

Rob's Mom (5,systemic)

In a message dated 10/9/2002 10:28:32 PM Eastern Standard Time,

mchristinad@... writes:

>

>

> Hi all,

>

> I have a question about test results. My daughter is waiting for

> her appointment with a rheumatologist. She had a CBC, RF and ANA

> that all came up normal. Her sed rate was elevated and on the bottom

> of that report, it stated that she had large platelets. I looked

> that up on the internet and only came up with listings for various

> kinds of bleeding disorders but she doesn't show any signs of those

> and the rest of her blood tests were normal. Have any of you had

> any experience with this kind of result? I am wondering if she is

> having some type of reaction to the Motrin she is taking.

>

> in NM with Natalia, 5

> mchristinad@...

>

>

>

>

[Guest guest]

Hi !

I had an elevated ANA years ago, along with elevated liver enzymes. In my

case, detoxing and a resulting pancreatitis/gallbladder attack, brought my

counts back into normal range. I stay on detox supplements permanently to

keep these counts from going up again. I wouldn't worry about it, if you

aren't actively detoxing, I'd start. It took over a year of detoxing to get

my counts to stay in the normal range. My gastro wanted to take out my

gallbladder after my attack but I refused to let him. Our theory is that

all of the detoxing I did caused sludge and stones to dump (a good thing)

and cause the attack. I spent many hours researching protocols for

pancreatitis and gallbladder problems and learned that there is no reason to

have your gallbladder removed. If you are interested in the details of

supplements I take, I'd be happy to share them with you.

Kenda

> Hi All,

> I was hoping some of you could answer some questions for me. I just talked to

> my new primary care about blood work she had done. She said my ANA was

> borderline, but suspects that it was higher 8 months ago when I was explanted.

> Also, I have elevated liver enzyme and she wants me to see a

> gastroenterologist for an ultrasound of my liver, possible congestion of

> biliary ducts. Has anyone of you had similar test results? Or could know

> what elevated liver enzyme could be from? Of course I got right on line and

> looked it up and came up with Primary Biliary Cirrhosis, yet another

> autoimmune disease. Now I am very worried. I see the rheumatologist for the

> first time next week and don't even have an appointment with the

> gastroenterologist yet. I was hoping some of you had some insight.

> Thanks,

>

>

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Hi Kenda,

I would love to know what supplements you are taking. I am already taking so many supplements, maybe some are the same. As far as detoxing, I have been trying since explant to eat healthier, as much organic produce and fruit as I can find, juicing occasionally, tons of pure water with Willard water added, lots of supplements from naturophathic Dr., and just finished a series of 12 colonic. What else should I be doing do you think? I would really appreciate any advice, I am just so nervous, Just when I think things are getting better something else pops up.

Thanks again,

Kenda Skaggs <skaggs@...> wrote:

Hi !I had an elevated ANA years ago, along with elevated liver enzymes. In mycase, detoxing and a resulting pancreatitis/gallbladder attack, brought mycounts back into normal range. I stay on detox supplements permanently tokeep these counts from going up again. I wouldn't worry about it, if youaren't actively detoxing, I'd start. It took over a year of detoxing to getmy counts to stay in the normal range. My gastro wanted to take out mygallbladder after my attack but I refused to let him. Our theory is thatall of the detoxing I did caused sludge and stones to dump (a good thing)and cause the attack. I spent many hours researching protocols forpancreatitis and gallbladder problems and learned that there is no reason tohave your gallbladder removed. If you are interested in the

details ofsupplements I take, I'd be happy to share them with you.Kenda> Hi All,> I was hoping some of you could answer some questions for me. I just talked to> my new primary care about blood work she had done. She said my ANA was> borderline, but suspects that it was higher 8 months ago when I was explanted.> Also, I have elevated liver enzyme and she wants me to see a> gastroenterologist for an ultrasound of my liver, possible congestion of> biliary ducts. Has anyone of you had similar test results? Or could know> what elevated liver enzyme could be from? Of course I got right on line and> looked it up and came up with Primary Biliary Cirrhosis, yet another> autoimmune disease. Now I am very worried. I see the rheumatologist for the> first time next week and don't even have an appointment with the> gastroenterologist

yet. I was hoping some of you had some insight.> Thanks,> > > > > ---------------------------------> Music Unlimited - Access over 1 million songs. Try it free.

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Hi ,

I take high levels of antioxidants, plus a lot of other supplements. All of

the information I found suggested bile salts, enzymes and antioxidant

therapy to avoid surgery. Unfortunately the bile salts and enzymes are both

prescription. If you have a doctor and can get a script, I take Lipram CR

10, 1 with each meal and 1 at bedtime. I also take Urso 250 mg tablets

twice per day. My ND considers both of these to be extremely safe drugs.

Ask your ND for high levels of antioxidants (see links below) and for a

liver supplement with the following: Alpha Lipoic acid 200 mg, Silymarin

210 mg, Selenium 100 mcg, N-Acetyl-L-Cysteine 200 mg. I take 6 of these per

day. When I first started on them I would herx at 4 per day but now

tolerate 6 without any problems at all.

My computer crashed since I did all of the research but I found a few of the

articles.

http://www.aegis.com/pubs/atu/1995/ATU2803.html

http://www.jr2.ox.ac.uk/bandolier/band5/b5-4.html

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & dopt=Ab

stract & list_uids=92064207

I hope these help! Really, I don't think you have anything to worry about.

Your labwork is telling you that you have some liver/pancreas/gallbladder

issues. Detoxing should work your way through them. It can take some time

though, so be patient.

Kenda

> Hi Kenda,

> I would love to know what supplements you are taking. I am already taking so

> many supplements, maybe some are the same. As far as detoxing, I have been

> trying since explant to eat healthier, as much organic produce and fruit as I

> can find, juicing occasionally, tons of pure water with Willard water added,

> lots of supplements from naturophathic Dr., and just finished a series of 12

> colonic. What else should I be doing do you think? I would really appreciate

> any advice, I am just so nervous, Just when I think things are getting better

> something else pops up.

> Thanks again,

>

>

> Kenda Skaggs <skaggs@...> wrote:

> Hi !

>

> I had an elevated ANA years ago, along with elevated liver enzymes. In my

> case, detoxing and a resulting pancreatitis/gallbladder attack, brought my

> counts back into normal range. I stay on detox supplements permanently to

> keep these counts from going up again. I wouldn't worry about it, if you

> aren't actively detoxing, I'd start. It took over a year of detoxing to get

> my counts to stay in the normal range. My gastro wanted to take out my

> gallbladder after my attack but I refused to let him. Our theory is that

> all of the detoxing I did caused sludge and stones to dump (a good thing)

> and cause the attack. I spent many hours researching protocols for

> pancreatitis and gallbladder problems and learned that there is no reason to

> have your gallbladder removed. If you are interested in the details of

> supplements I take, I'd be happy to share them with you.

>

> Kenda

>

>

>> Hi All,

>> I was hoping some of you could answer some questions for me. I just talked

>> to

>> my new primary care about blood work she had done. She said my ANA was

>> borderline, but suspects that it was higher 8 months ago when I was

>> explanted.

>> Also, I have elevated liver enzyme and she wants me to see a

>> gastroenterologist for an ultrasound of my liver, possible congestion of

>> biliary ducts. Has anyone of you had similar test results? Or could know

>> what elevated liver enzyme could be from? Of course I got right on line and

>> looked it up and came up with Primary Biliary Cirrhosis, yet another

>> autoimmune disease. Now I am very worried. I see the rheumatologist for the

>> first time next week and don't even have an appointment with the

>> gastroenterologist yet. I was hoping some of you had some insight.

>> Thanks,

>>

>>

>>

>>

>> ---------------------------------

>> Music Unlimited - Access over 1 million songs. Try it free.

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given by licensed

> health care professionals. Consult your physician or licensed health care

> professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

> Find out what the facts are, and make your own decisions about how to live a

> happy life and how to work for a better world. " - Linus ing, two-time

> Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>

[Guest guest]

I think you are jumping the gun on this one. How elevated are your

liver enzymes? Please try not to worry. I think lots of things can

cause elevated enzymes. My son had them while he was on accutane.

Several meds can cause them. Most likely whatever caused the

elevation can be remedied. Take care

hugs, kathy

>

> Hi All,

> I was hoping some of you could answer some questions for me. I

just talked to my new primary care about blood work she had done.

She said my ANA was borderline, but suspects that it was higher 8

months ago when I was explanted. Also, I have elevated liver enzyme

and she wants me to see a gastroenterologist for an ultrasound of my

liver, possible congestion of biliary ducts. Has anyone of you had

similar test results? Or could know what elevated liver enzyme

could be from? Of course I got right on line and looked it up and

came up with Primary Biliary Cirrhosis, yet another autoimmune

disease. Now I am very worried. I see the rheumatologist for the

first time next week and don't even have an appointment with the

gastroenterologist yet. I was hoping some of you had some insight.

> Thanks,

>

>

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million songs. Try it free.

>

[Guest guest]

I had very high liver enzymes (over 500) just before my explant, .

In fact, the anesthesiologist canceled surgery just as I was being wheeled in,

saying she

didn't want me to go into hepatic crisis. I ended up having surgery a month

later.

I also had a liver ultrasound, and my liver is fine. My liver enzymes are also

normal now.

All drugs and toxins have to go through either the liver or kidneys.

Dr. Kolb told me to take high doses of milk thistle, which I did. And drink

lots of water.

> >

> > Hi All,

> > I was hoping some of you could answer some questions for me. I

> just talked to my new primary care about blood work she had done.

> She said my ANA was borderline, but suspects that it was higher 8

> months ago when I was explanted. Also, I have elevated liver enzyme

> and she wants me to see a gastroenterologist for an ultrasound of my

> liver, possible congestion of biliary ducts. Has anyone of you had

> similar test results? Or could know what elevated liver enzyme

> could be from? Of course I got right on line and looked it up and

> came up with Primary Biliary Cirrhosis, yet another autoimmune

> disease. Now I am very worried. I see the rheumatologist for the

> first time next week and don't even have an appointment with the

> gastroenterologist yet. I was hoping some of you had some insight.

> > Thanks,

> >

> >

> >

> >

> > ---------------------------------

> > Music Unlimited - Access over 1 million songs. Try it free.

> >

>

[Guest guest]

Hi Molly,

Thank you so much. It is good to hear that there is something that works to bring these levels down. How long ago was your explant and how long did it take to get the levels down?Molly Bloom <mollyb54@...> wrote:

I had very high liver enzymes (over 500) just before my explant, .In fact, the anesthesiologist canceled surgery just as I was being wheeled in, saying she didn't want me to go into hepatic crisis. I ended up having surgery a month later.I also had a liver ultrasound, and my liver is fine. My liver enzymes are also normal now.All drugs and toxins have to go through either the liver or kidneys. Dr. Kolb told me to take high doses of milk thistle, which I did. And drink lots of water.> >> > Hi All,> > I was hoping some of you could answer some questions for me. I > just talked to my new primary care about blood work she had done. > She said my ANA was borderline, but suspects that it was higher 8 > months ago when I was explanted. Also, I have elevated liver enzyme > and she wants me to see a gastroenterologist for an ultrasound of my > liver, possible congestion of biliary ducts. Has anyone of you had > similar test results? Or could know what elevated liver enzyme > could be from? Of course I got right on line and looked it up

and > came up with Primary Biliary Cirrhosis, yet another autoimmune > disease. Now I am very worried. I see the rheumatologist for the > first time next week and don't even have an appointment with the > gastroenterologist yet. I was hoping some of you had some insight.> > Thanks,> > > > > > > > > > ---------------------------------> > Music Unlimited - Access over 1 million songs. Try it free.> >>

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Thanks so much Kenda. I will look into these.

Kenda Skaggs <skaggs@...> wrote:

Hi ,I take high levels of antioxidants, plus a lot of other supplements. All ofthe information I found suggested bile salts, enzymes and antioxidanttherapy to avoid surgery. Unfortunately the bile salts and enzymes are bothprescription. If you have a doctor and can get a script, I take Lipram CR10, 1 with each meal and 1 at bedtime. I also take Urso 250 mg tabletstwice per day. My ND considers both of these to be extremely safe drugs.Ask your ND for high levels of antioxidants (see links below) and for aliver supplement with the following: Alpha Lipoic acid 200 mg, Silymarin210 mg, Selenium 100 mcg, N-Acetyl-L-Cysteine 200 mg. I take 6 of these perday. When I first started on them I would herx at 4 per day but nowtolerate 6 without any problems at all.My computer crashed

since I did all of the research but I found a few of thearticles.http://www.aegis.com/pubs/atu/1995/ATU2803.htmlhttp://www.jr2.ox.ac.uk/bandolier/band5/b5-4.htmlhttp://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & dopt=Abstract & list_uids=92064207I hope these help! Really, I don't think you have anything to worry about.Your labwork is telling you that you have some liver/pancreas/gallbladderissues. Detoxing should work your way through them. It can take some timethough, so be patient.Kenda> Hi Kenda,> I would love to know what supplements you are taking. I am already taking so> many supplements, maybe some are the same. As far

as detoxing, I have been> trying since explant to eat healthier, as much organic produce and fruit as I> can find, juicing occasionally, tons of pure water with Willard water added,> lots of supplements from naturophathic Dr., and just finished a series of 12> colonic. What else should I be doing do you think? I would really appreciate> any advice, I am just so nervous, Just when I think things are getting better> something else pops up.> Thanks again,> > > Kenda Skaggs <skaggs@...> wrote:> Hi !> > I had an elevated ANA years ago, along with elevated liver enzymes. In my> case, detoxing and a resulting pancreatitis/gallbladder attack, brought my> counts back into normal range. I stay on detox supplements permanently to> keep these counts from going up again. I wouldn't worry about it, if you> aren't

actively detoxing, I'd start. It took over a year of detoxing to get> my counts to stay in the normal range. My gastro wanted to take out my> gallbladder after my attack but I refused to let him. Our theory is that> all of the detoxing I did caused sludge and stones to dump (a good thing)> and cause the attack. I spent many hours researching protocols for> pancreatitis and gallbladder problems and learned that there is no reason to> have your gallbladder removed. If you are interested in the details of> supplements I take, I'd be happy to share them with you.> > Kenda> > >> Hi All,>> I was hoping some of you could answer some questions for me. I just talked>> to>> my new primary care about blood work she had done. She said my ANA was>> borderline, but suspects that it was higher 8 months ago when I was>>

explanted.>> Also, I have elevated liver enzyme and she wants me to see a>> gastroenterologist for an ultrasound of my liver, possible congestion of>> biliary ducts. Has anyone of you had similar test results? Or could know>> what elevated liver enzyme could be from? Of course I got right on line and>> looked it up and came up with Primary Biliary Cirrhosis, yet another>> autoimmune disease. Now I am very worried. I see the rheumatologist for the>> first time next week and don't even have an appointment with the>> gastroenterologist yet. I was hoping some of you had some insight.>> Thanks,>> >> >> >> >> --------------------------------->> Music Unlimited - Access over 1 million songs. Try it free.> > > > > Opinions expressed are NOT

meant to take the place of advice given by licensed> health care professionals. Consult your physician or licensed health care> professional before commencing any medical treatment.> > "Do not let either the medical authorities or the politicians mislead you.> Find out what the facts are, and make your own decisions about how to live a> happy life and how to work for a better world." - Linus ing, two-time> Nobel Prize Winner (1954, Chemistry; 1963, Peace)> >

[Guest guest]

Hi!

My levels came down considerably in just a month....I also quit taking some

anti-

inflammatories that may have contributed to the high levels. You need to check

all your

meds. I had another test maybe 6 months after explant, and my levels were

normal.

> > >

> > > Hi All,

> > > I was hoping some of you could answer some questions for me. I

> > just talked to my new primary care about blood work she had done.

> > She said my ANA was borderline, but suspects that it was higher 8

> > months ago when I was explanted. Also, I have elevated liver enzyme

> > and she wants me to see a gastroenterologist for an ultrasound of my

> > liver, possible congestion of biliary ducts. Has anyone of you had

> > similar test results? Or could know what elevated liver enzyme

> > could be from? Of course I got right on line and looked it up and

> > came up with Primary Biliary Cirrhosis, yet another autoimmune

> > disease. Now I am very worried. I see the rheumatologist for the

> > first time next week and don't even have an appointment with the

> > gastroenterologist yet. I was hoping some of you had some insight.

> > > Thanks,

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Music Unlimited - Access over 1 million songs. Try it free.

> > >

> >

>

>

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given by licensed

health

care professionals. Consult your physician or licensed health care professional

before

commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

Find out what

the facts are, and make your own decisions about how to live a happy life and

how to work

for a better world. " - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963,

Peace)

>

>

[Guest guest]

You are very welcome! You may not need to go to the extent that I did for

detoxing but it's good information in case you do. Let me know if you ever

need any help with it.

Kenda

> Thanks so much Kenda. I will look into these.

>

>

> Kenda Skaggs <skaggs@...> wrote:

> Hi ,

>

> I take high levels of antioxidants, plus a lot of other supplements. All of

> the information I found suggested bile salts, enzymes and antioxidant

> therapy to avoid surgery. Unfortunately the bile salts and enzymes are both

> prescription. If you have a doctor and can get a script, I take Lipram CR

> 10, 1 with each meal and 1 at bedtime. I also take Urso 250 mg tablets

> twice per day. My ND considers both of these to be extremely safe drugs.

> Ask your ND for high levels of antioxidants (see links below) and for a

> liver supplement with the following: Alpha Lipoic acid 200 mg, Silymarin

> 210 mg, Selenium 100 mcg, N-Acetyl-L-Cysteine 200 mg. I take 6 of these per

> day. When I first started on them I would herx at 4 per day but now

> tolerate 6 without any problems at all.

>

> My computer crashed since I did all of the research but I found a few of the

> articles.

>

> http://www.aegis.com/pubs/atu/1995/ATU2803.html

> http://www.jr2.ox.ac.uk/bandolier/band5/b5-4.html

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & dopt=Ab

> stract & list_uids=92064207

>

> I hope these help! Really, I don't think you have anything to worry about.

> Your labwork is telling you that you have some liver/pancreas/gallbladder

> issues. Detoxing should work your way through them. It can take some time

> though, so be patient.

>

> Kenda

>

>

>> Hi Kenda,

>> I would love to know what supplements you are taking. I am already taking so

>> many supplements, maybe some are the same. As far as detoxing, I have been

>> trying since explant to eat healthier, as much organic produce and fruit as I

>> can find, juicing occasionally, tons of pure water with Willard water added,

>> lots of supplements from naturophathic Dr., and just finished a series of 12

>> colonic. What else should I be doing do you think? I would really

>> appreciate

>> any advice, I am just so nervous, Just when I think things are getting better

>> something else pops up.

>> Thanks again,

>>

>>

>> Kenda Skaggs <skaggs@...> wrote:

>> Hi !

>>

>> I had an elevated ANA years ago, along with elevated liver enzymes. In my

>> case, detoxing and a resulting pancreatitis/gallbladder attack, brought my

>> counts back into normal range. I stay on detox supplements permanently to

>> keep these counts from going up again. I wouldn't worry about it, if you

>> aren't actively detoxing, I'd start. It took over a year of detoxing to get

>> my counts to stay in the normal range. My gastro wanted to take out my

>> gallbladder after my attack but I refused to let him. Our theory is that

>> all of the detoxing I did caused sludge and stones to dump (a good thing)

>> and cause the attack. I spent many hours researching protocols for

>> pancreatitis and gallbladder problems and learned that there is no reason to

>> have your gallbladder removed. If you are interested in the details of

>> supplements I take, I'd be happy to share them with you.

>>

>> Kenda

>>

>>

>>> Hi All,

>>> I was hoping some of you could answer some questions for me. I just talked

>>> to

>>> my new primary care about blood work she had done. She said my ANA was

>>> borderline, but suspects that it was higher 8 months ago when I was

>>> explanted.

>>> Also, I have elevated liver enzyme and she wants me to see a

>>> gastroenterologist for an ultrasound of my liver, possible congestion of

>>> biliary ducts. Has anyone of you had similar test results? Or could know

>>> what elevated liver enzyme could be from? Of course I got right on line and

>>> looked it up and came up with Primary Biliary Cirrhosis, yet another

>>> autoimmune disease. Now I am very worried. I see the rheumatologist for

>>> the

>>> first time next week and don't even have an appointment with the

>>> gastroenterologist yet. I was hoping some of you had some insight.

>>> Thanks,

>>>

>>>

>>>

>>>

>>> ---------------------------------

>>> Music Unlimited - Access over 1 million songs. Try it free.

>>

>>

>>

>>

>> Opinions expressed are NOT meant to take the place of advice given by

>> licensed

>> health care professionals. Consult your physician or licensed health care

>> professional before commencing any medical treatment.

>>

>> " Do not let either the medical authorities or the politicians mislead you.

>> Find out what the facts are, and make your own decisions about how to live a

>> happy life and how to work for a better world. " - Linus ing, two-time

>> Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>>

>>

[Guest guest]

,

I'm sorry I can't keep up with the detoxing everyone

is doing . . . What are you doing? . . .

Treating for systemic fungal problems can raise liver

enzymes, but those will decrease with time. . . The

trick is to eat healthy and drink plenty of water.

Also learn to manage stress and anger! . . . They both

are very detrimental to healing.

I'd give yourself a year after explant of healthy

eating and taking care of yourself before getting

concerned about any test results.

By all means see your doctor if you have a problem

that needs treatment. But, women with breast implants

test positive for so many things they later test

negative for, it's not worth the expense and stress of

doing a bunch of tests.

It may help if you keep a daily journal of what you

are doing and how you feel so you can look back and

see how far you've come.

Hugs and prayers,

Rogene

--- G <karengup@...> wrote:

> Hi All,

> I was hoping some of you could answer some questions

> for me. I just talked to my new primary care about

> blood work she had done. She said my ANA was

> borderline, but suspects that it was higher 8 months

> ago when I was explanted. Also, I have elevated

> liver enzyme and she wants me to see a

> gastroenterologist for an ultrasound of my liver,

> possible congestion of biliary ducts. Has anyone of

> you had similar test results? Or could know what

> elevated liver enzyme could be from? Of course I

> got right on line and looked it up and came up with

> Primary Biliary Cirrhosis, yet another autoimmune

> disease. Now I am very worried. I see the

> rheumatologist for the first time next week and

> don't even have an appointment with the

> gastroenterologist yet. I was hoping some of you

> had some insight.

> Thanks,

>

>

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million

> songs. Try it free.

[Guest guest]

. . .

Forgot to tell you that, after my implants had been

gone for a while, the doctor's office called

(following a checkup) telling me, with amazement that

I " no longer had Hepatitis " .

They hadn't told me I had it in the first place.

I'm glad they didn't!

Rogene

[Guest guest]

Hi Rogene,

Thank you for your reply. As far as detoxing I have been trying to eat healthy, organic fruit, veggies, dairy, and no-steroid meat and chicken as much as possible. I drink tons of water, and have been working with a Naturophathic Dr for 9 months so I take lots of supplements. I really do feel SO much better than I did 8 months ago, but my fear is what is still going on inside me. I don't know if you remember, but I was the one who used Dr Darrow in Boston for my explant. I made it very clear to him that I wanted ALL of my scar capsule removed and he said he would. After showing up 2 hour late for surgery and not even being there to talk to me when I woke up, I found out that he only removed " about 1/3 of the scar tissue". He said it was tissue thin and the more he scrapped the more bleeding it caused, but I know that this is a lie because Dr Blaise told me that my scar tissue from the left side was unusually thick for the amount of time

that I had the implants. Now I wonder if it is this remaining tissue that is causing the abnormal test results. And will I ever get back to the way I felt pre-implants.

I really feel strongly that Dr Darrow should be removed from your reference list. He was so arrogant towards me and basically lied to me and I would hate for him to do this to any of the other women who come here looking for help.Rogene S <saxony01@...> wrote:

,I'm sorry I can't keep up with the detoxing everyoneis doing . . . What are you doing? . . . Treating for systemic fungal problems can raise liverenzymes, but those will decrease with time. . . Thetrick is to eat healthy and drink plenty of water. Also learn to manage stress and anger! . . . They bothare very detrimental to healing.I'd give yourself a year after explant of healthyeating and taking care of yourself before gettingconcerned about any test results. By all means see your doctor if you have a problemthat needs treatment. But, women with breast implantstest positive for so many things they later testnegative for, it's not worth the expense and stress ofdoing a bunch of tests. It may help if you keep a daily journal of what youare doing and how you feel so you can look back

andsee how far you've come.Hugs and prayers,Rogene--- G <karengup@...> wrote:> Hi All,> I was hoping some of you could answer some questions> for me. I just talked to my new primary care about> blood work she had done. She said my ANA was> borderline, but suspects that it was higher 8 months> ago when I was explanted. Also, I have elevated> liver enzyme and she wants me to see a> gastroenterologist for an ultrasound of my liver, > possible congestion of biliary ducts. Has anyone of> you had similar test results? Or could know what> elevated liver enzyme could be from? Of course I> got right on line and looked it up and came up with> Primary Biliary Cirrhosis, yet another autoimmune> disease. Now I am very worried. I see the> rheumatologist for the first time next

week and> don't even have an appointment with the> gastroenterologist yet. I was hoping some of you> had some insight.> Thanks,> > > > > ---------------------------------> Music Unlimited - Access over 1 million> songs. Try it free.

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Hi ,

I do remember you going to Dr. Darrow and telling us about your

experiences and how unhappy you were with him. I am really sorry

that you went through all that, and that you are still struggling

with the whole capsule issue. It is a difficult position to be in,

and unfortunately, one that happens more than I'd like to see. I

know Pam in Virginia went to Dr. Darrow and said that her experience

was good, so it just goes to show that we cannot always predict how

well each patient will be treated.

Finding a good plastic surgeon is a real problem. It takes

searching, and asking questions, and doing what you can to find the

right one. That is probably why there are only a few doctors that we

can fully recommend with complete confidence. There are so many of

these plastic surgeons who waffle and say things out of both sides

of their mouth. My explanting surgeon was very good to me and did

the explant totally right (en bloc removal), and then the next time

I heard someone talk about him, he sounded like a complete jerk!

It makes you wonder whether or not you can even recommend them

anymore.

We can put a note on our list to suggest that the women really

question the doctors on the list carefully and not to assume that

they are going to all have good bedside manners or be completely

willing to do what we are asking. I wish it were a different story.

It really is a tragedy and injustice that women are in this position

in this country. After all, it is OUR body. These doctors can put

implants in so fast without blinking an eye, they should be as

equally willing to take them out, and take them out right without

giving us a bunch of crap about it. It makes me really angry!!!

Just who do they think they are?????

Argh!

Thanks for writing .

I wish you healing....don't be overly concerned about the liver

enzymes, but do take steps to help support the liver. I think Kenda

gave you some great advice.

Patty

>

> > Hi All,

> > I was hoping some of you could answer some questions

> > for me. I just talked to my new primary care about

> > blood work she had done. She said my ANA was

> > borderline, but suspects that it was higher 8 months

> > ago when I was explanted. Also, I have elevated

> > liver enzyme and she wants me to see a

> > gastroenterologist for an ultrasound of my liver,

> > possible congestion of biliary ducts. Has anyone of

> > you had similar test results? Or could know what

> > elevated liver enzyme could be from? Of course I

> > got right on line and looked it up and came up with

> > Primary Biliary Cirrhosis, yet another autoimmune

> > disease. Now I am very worried. I see the

> > rheumatologist for the first time next week and

> > don't even have an appointment with the

> > gastroenterologist yet. I was hoping some of you

> > had some insight.

> > Thanks,

> >

> >

> >

> >

> > ---------------------------------

> > Music Unlimited - Access over 1 million

> > songs. Try it free.

>

>

>

> Opinions expressed are NOT meant to take the place of advice given

by licensed health care professionals. Consult your physician or

licensed health care professional before commencing any medical

treatment.

>

> " Do not let either the medical authorities or the politicians

mislead you. Find out what the facts are, and make your own

decisions about how to live a happy life and how to work for a

better world. " - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963, Peace)

>

>