Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Hi Cheryl, how wonderful that you are both doing well...I imagine it was very difficult though right after surgery. I appreciate your input on work..I really have not been up to it, but I felt as though my doctors were pushing me. I feel relatively normal now (things seem to have settled down in May) and at the end of September I will begin part-time. It is good to hear that someone was advised to stay home a year if possible - that way I dont feel as if I've been lazy. I agree, you really do need to take your time, and go through the whole process, emotionally and physically.And you are doing well too? Does your husband feel guilty about your donation, I do...though maybe this goes away in time? Daily, I take 2000mg cellcept, 3 mg prograf, 3mg rapamune, 10mg prednisone along with a whole bunch of other things, but those are my immunosuppressants - hopefully they will get reduced soon, but I have other autoimmune issues as well. Thanks again Ilena > Dear Ilena, > > Congrats on your transplant. I was my husband's donor in 12/99 and he is > doing just wonderful. We were advised by the tx team if we could afford it to > let him mend for a year before going back to work. I know right after tx > everyone seems to have all this energy and think they can do anything. I guess > after being sick for so long, you do feel just wonderful. I know Randy continued > to get better and better each month and we saw him hit sort of a plateau at 6 > months and another one at 9 months. He decided to go back to work part time > (2 days/week) during the 11th month post tx. I can honestly say his recovery > has been one with very few and minor hiccups. We strongly believe it was > because we allowed him to heal. For the next 6 months after going back to work, > he went to 3 days/week, then 4days and finally full time. He has never looked > back since then. He loves what he does and sometimes I just have to tell him > to slow down. Often he goes to work at 6am and gets off at 4:30pm. I made > a deal with him... he can go in as early as he wants but please be home for > supper and time in the evening with the family. He is an electronics engineer > and designs new technology stuff. He is like a kid in a candy store at > work--lol. > > He was fortunate that they were able to stablize his medications early on and > by 8 weeks post tx his meds havent changed. He takes 1/mg prograf twice a > day, 5mg prednisone once a day, magnesium because of the prograf, a > multivitamin, calcium because of the prednisone and bactrim 3times a week. He takes > morning meds with breakfast and evening meds with dinner. The tx is almost an > afterthought for us. We have both done very well. We chose living donor because > we wanted to get on with our lives and also get Randy tx'd before he got too > emanciated. The healthier you are going into the surgery, the quicker and > healthier you are after it. > > Let us know how you are doing and welcome to the group! > > Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 I am trying to get in touch with Ilena Rosenthal....if she reads here maybe she will see this and get in touch with me. Thanks Quote Link to comment Share on other sites More sharing options...
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