Guest guest Posted March 25, 1999 Report Share Posted March 25, 1999 , My daughter Jillian, 1 year old, gets OT and PT. She's quite bright as far as fine motor skills but not gross motor.They say that she seems to be learning backwards because " most " kids develop the gross then the fine follow. I am always asking them if she is so smart, why can;t her brain tell her arms and legs to move together and crawl? I know she doesn't have the muscles but thew only way to get the muscles is to put it in action.They say she's not at a " cognitive level " to put that together yet. But when she drops something in her car seat, she will grasp it between her feet and flip it up to her hands. I personally think that is a good cognitve thinking level. But then again, I'm not the OT Foley, Mom to 3 1/2, ( died w/ CHARGE) and Jillian 1 w/cHaRgE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 1999 Report Share Posted March 25, 1999 , I was reading your e-mail to about KK fliping up items with her feet to get them to her hands. Madison used to do the SAME thing!!!!How weird!!! Madison is almost walking now. She has taken 1 step on her own, and has done this several times. I would think that picking things up with your feet would give you great stomach muscles!! Our PT said it showed good problem-solving teechniques!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 1999 Report Share Posted March 25, 1999 , My daughter is involved with OT, she is just about 14 months old. Her OT is doing things like getting her to pick up small objects with a pincer grasp, as opposed to the palmer, as well as monitoring her play for bringing toys midline, passing back and forth between hands etc. IT would probably help your quest to mention the age of the child you are involved with, we have parents here I'm sure of most all ages of CHARGE kiddies. As for cognitive deficits, I think that they have yet to be fully identified as most of them have some level of deaf-blindess and alot of what is probably termed " cognitive deficits " could actually just be due to the d/b thing. Good luck with your quest! It's nice to see so many instructors/professionals/other interested folks in here asking for help lately! I think this is great! Mom to Kennedy 13 mos old CHARGEr, 9, 7 and wife to Graeme New Brunswick, Canada > I would like to know if anyone else's child is involved in OT and > what their therapist does during a session. I would also like to know if > anyone is aware of cognitive deficits involved with CHARGE. I am not > knowledgable on this subject and would appreciate any information that I > could get. Thank you- > > ckayrob@... -- Graeme & Weir gweir@... http://www.geocities.com/SunsetStrip/Palms/5716 *ICQ* UIN:1426476 *AOL Buddy* - Kawfolks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 1999 Report Share Posted March 25, 1999 who is 9 gets OT. Most of it is working on getting him to take food in his mouth and tolerate it. From our OT we also learned brushing and joint compression. The autistic like behaviors are common in children with multi-sensory impairments, and have to be considered in terms of their communicative value. You might want to get someone to do a functional assessment on some of the behaviors. Most school psychologists should be able to do that. In terms of the cognitive deficits, while many children with CHARGE are delayed, those delays are most likely due to the sensory and medical involvement, not due to faulty brains. Take away the sensory and medical problems, and children with CHARGE would likely resemble most other healthy children in terms of intelligence. My wife is conducting research on this right now. Tim Hartshorne, father of (CHARGE) and , , , , Seth, and . wrote: > > > Hi, I am an occupational therapy student in Louisiana. I am currently > > following a therapist who is seeing a child with CHARGE. The > therapist is > wonderful, but she has run into walls trying to figure out just what > is > going on with the child. Because this child displays Autistic like > qualities, interaction is minimal so the therapist has to guess most > of the > time. I would like to know if anyone else's child is involved in OT > and > what their therapist does during a session. I would also like to know > if > anyone is aware of cognitive deficits involved with CHARGE. I am not > knowledgable on this subject and would appreciate any information that > I > could get. Thank you- > > ckayrob@... > > ---------------- > ------------------------------------------------------- > New hobbies? New curiosities? New enthusiasms? > http://www.onelist.com > Sign up for a new email list today > ---------------------------------- > ------------------------------------- > 4th International CHARGE Syndrome Conference, Houston, Texas, July > 23-25, 1999. > For information about the CHARGE Syndrome Foundation or to become a > member please contact marion@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 1999 Report Share Posted March 26, 1999 - I am in IL. My father-in-law is in Philadelphia so I've talked about the possibility of taking Aubrie there for Seaside's feeding program. I just read about your niece. Sounds like quite a responsibility to take on, but I understand your dilemma at not wanting to let her down. Too bad there's no easy answers. Let us know how your spring break goes with her visit. Michele Aubrie's mom Quote Link to comment Share on other sites More sharing options...
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