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Tiena

I too have only took the majority of what the doctors where saying to be

true. Buy like you said. Everyone has opened your eyes. Mine too! I

too want to know just what may be in the future for KK and I.

Korey mom to Kayla 3yrs old(almost)

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I know when KK was an infant she too had some trouble burping. They told

us to feed her an ounce then burp and so on. I just wish she would burp

now cuz it looks like when she gags that it hurts her. Right now that is

the only way we've heard her burp is by accident also. Maybe in time.

She's a fighter so if she really wants too, she will. Thanks..

Korey mom the KK(almost 3)

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  • 2 weeks later...

Korey,

I'm in Cobb (good luck even finding it on a map, it's so

little) near Clearlake.. if you come down I-5 and are

heading to Sonora you could drive right by on the way.

I'm about 50 miles from Sonora..

Casey

charge@...

minnow@...

Mom to Dawn 20, Ken 9 ADHD, and 6 CHARGE.

Cobb California

ICQ UIN# 728514

ICQ Pager http://wwp.mirabilis.com/728514

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Does anyone have any other sources for extra calories. We have

>given all the fating foods.

So you have tried just adding vegetable oil for extra calories? We were

doing this at the same time as adding polycose when was little. He

got really chubby for a while (only time in his life!) I am sorry I don't

remember how much we added, it has been so long. , mom to , (9)

ChArGE

S. Hartshorne

.Hartshorne@...

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  • 2 weeks later...

I just wanted to repeat that I am sorry about what I wrote last night.

I probably got a little stronger than I meant to be, and I apologize for

that. There was truth to what I said, and I maintain that, but as

pointed out, I did not stay within the guidelines of the group. Also,

Michel, I would refer you to that particular note, as personally

attacking me, and my ability to succeed in my career, is definitely out

of line also.

I hope that is the last that will come of this. Two apologies should do

it, or there just is not a point.

Jen

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>

>

>

> I just wanted to repeat that I am sorry about what I wrote last night.

> I probably got a little stronger than I meant to be, and I apologize for

> that. There was truth to what I said, and I maintain that, but as

> pointed out, I did not stay within the guidelines of the group. Also,

> Michel, I would refer you to that particular note, as personally

> attacking me, and my ability to succeed in my career, is definitely out

> of line also.

After you knowingly and willfully posted what you did last night,

which in fact DEFAMED me on this mailing list (I have been reading

quite a few negative remarks made against me in sympathy to your

deliberate misrepresentations of what I had said to you over the weekend),

I think that my comments about your lack of professionalism

were in fact perfectly IN LINE.

I'll happily speak to Norgaard about this, but I'm bailing out

of this group anyway.

As I observed and said publicly not so long ago when I joined

this group, every time a diabetic gives me a bad time, they

have always been a Type 1. You proved to be no exception. I

really prefer rubbing shoulders with Type 2's, even though

I as a Type 1 myself have less help to offer them, e.g., zero experience

on my part with oral medications.

Moral? Having Type 1 diabetes appears to be more stressful than

having Type 2, on average.

Michel

>

> I hope that is the last that will come of this. Two apologies should do

> it, or there just is not a point.

>

> Jen

>

>

>

>

>

>

>

>

> ------------------------------------------------------------------------

>

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  • 2 weeks later...

Kim,

A little late I guess, but for antone who could use this info. I just got back

from Jillian's genetic appt and he said there is a new RSV vaccine and to call

my pulmonoligist to see if Jillian was a candidate.

Foley.

PS Genetics appt summary in a moment.

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  • 3 weeks later...
Guest guest

Jeanie,

I get messages like that periodically. I think it's in the sender's

settings, not yours.

>

> From: toby.c@... (Toby Colp)

>

> Hi everyone,

> Here's a real stupid question; why do the e-mails that I've been

> sending come up in horizontal form. I find this a very difficult way to

> read, is it something I've done to my computer.

>

> Jeanie Colp

>

--

Graeme & Weir

gweir@...

http://www.geocities.com/SunsetStrip/Palms/5716

*ICQ* UIN:1426476

*AOL Buddy* - Kawfolks

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:

I have not gotten to poty train yet. He is 6 years old, and knows what

he has to do, but refuses to do it. he sits in the toilet for long periods of

time, only to go in his diaper as soon as I put it on. I am still working on

the finishing touches of potty training with my 3 year old. As soon as I

accomplish that, I may attempt to aggressively train again.

Ana, mom to 6 CHARGER and Jordy 3 1/2

Miami Beach, FL

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I am a para-educator in a public school. We have a child that has charge , he

is 5yrs. old. I had never heard of CHARGE until we got him, so I am trying to

find out all I can about CHARGE and how to go about teaching him to function

in everyday life.

He is verbal, he hears and he can see, he is getting glasses next month we

were told, his mother is trying to get caught up on all his medical stuff. He

had been living with his dad, not sure what is /was or maybe going on(just

doing what I can when I have him at school). This child is very sweet, he

loves to do his work. We are helping the mother potty train him, or trying to

help, we take him to the potty he wears pull-ups and we talk to him about the

potty. We are trying the potty training scheduling used with most children

that are/have autism. I have 4 children of my own, all are ok, please don't

take this wrong I am not trying to be rude. I love my job working with the

children in my classroom. I am hoping to be able to help this child and the

mother as much as possible. I do not know what it is like to deal with this or

any other syndrome has a parent. I only hope that as a para-educator I can

help the mother and be supportive for her and the child.

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Hi,

My name is Paje, I am interested in the conferrence that is going to be in

Houston in July. I am a para-educator trying to help a child with CHARGE. Any

info, is helpful.

I have one thing to ask, Is trying to potty train a hard thing and is there

a special way to do this? We are using the potty training method used with

children that have autism.

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  • 2 weeks later...
Guest guest

Marleen writes:

<< I'm Marleen,22. I have a baby from six months and when I was pregnant I had

pregnancydiabetes. I just know for a month thay I have type I now. There is no

diabetic history in my family. Is there a chance that I heal from it? What about

Chronium and Zink? >>

A diagnosis as a type 1 diabetic means the beta cells in your pancreas have lost

their ability to manufacture insulin. You will always need to take insulin,

Marleen ... :o(

But the good news is that there are exciting research projects going on right

now that may help you greatly, including the use of inhaled insulin, and blood

glucose monitors that don't involve having to finger-stick.

There are many people who believe that type 1 can arise from exposure to certain

viruses. You had gestational diabetes. That usually results in later development

of type 2 diabetes - not type 1. If there is no diabetes history in your family,

it is more likely that you are a 1 than a 2 (type 2 has a strong genetic link).

Marleen, tell us what the doctor has prescribed, and how you are doing. It must

be tough, with a new baby to care for, to be handed this unwelcome news.

Hugs,

Susie

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I just know for a month thay I have type I now. There is no diabetic

history in my family. Is there a chance that I heal from it? What about Chronium

and Zink?

Hi, --

The medical establishment would have you believe that there is no way to

" get over " type 1 diabetes. I know a man who did. His name is Dane and

he use a nutritional counselor to change his nutrition, including supplements of

zinc and chromium (and some other stuff). If you want to contact him, you can

reach him through me. He's off insulin altogether and is not subject to any

blood sugar problems, has been fine for a couple of years now. His experience

is not unique, but is rare.

Jere Matlock

Co-author, " Confronting Diabetes "

jere@...

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Jere Matlock writes:

<< The medical establishment would have you believe that there is no way to " get

over " type 1 diabetes. I know a man who did. His name is Dane and he

use a nutritional counselor to change his nutrition, including supplements of

zinc and chromium (and some other stuff). If you want to contact him, you can

reach him through me. He's off insulin altogether and is not subject to any

blood sugar problems, has been fine for a couple of years now. His experience

is not unique, but is rare. >>

Marleen, anyone who has truly lost pancreas beta cell function and is unable

to manufacture insulin (a true type 1 diabetic) won't begin remanufacturing it

by taking supplements. There has been some success with beta cell transplants,

however, and other research is on the horizon. A warning was just posted in this

group that chromium picolinate supplements may be capable of causing chromosomal

breakage and cancer.

Studies are still underway.

Most diabetics who use insulin are in fact poorly controlled type 1's.

(Before you howl, I say this because 92 percent of all diabeties are type 2's.)

A well-run C-peptide test could help diagnose which type you are, if there is

doubt. But if you are using only insulin (no pills) - and not very much of it,

and you see that if you don't take it in time, you become seriously ill, you are

a true type 1. Eighty-five percent of type 2's are insulin-resistant, and

naturally, those who have to supplement with insulin would be either the very

most insulin-resistant, or they could be eating very high amounts of

carbohydrates as well as calories. We hear of these resistant diabetics taking

100-200 units of insulin daily, in addition to 2-3 kinds of pills, with iffy

results.

Many insulin-injecting type 2's are able to discontinue their medications

and insulin through dietary changes. Many of us take various supplements. I have

discontinued my supplements and noted no change ... hmmmm. Nothing impacts my

bg's as much as the food I eat. But then, I'm an insulin-resistant type 2. In

the low-carb online groups, it's like, " <yawn> Yep, I'm off insulin too. " It is

not considered at all remarkable among those who have changed their eating

habits to improve their health.

Susie

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OtterCritter@... wrote:

> <<Marleen, anyone who has truly lost pancreas beta cell function

> and is unable to manufacture insulin (a true type 1 diabetic) won't

> begin remanufacturing it by taking supplements. There has been some

> success with beta cell transplants, however, and other research is on

> the horizon. >>

>

> A pancreas transplant would result in this too.

>

>

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Guest guest

I wrote:

<< Marleen, anyone who has truly lost pancreas beta cell function and is

unable to manufacture insulin (a true type 1 diabetic) won't begin

remanufacturing it by taking supplements. There has been some success with beta

cell transplants, however, and other research is on the horizon. >>

And Granger writes:

<< A pancreas transplant would result in this too. >>

They transplant the entire pancreas? I thought it was only the beta cells.

Susie

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Guest guest

They still turn to glucose. All food does. Some takes longer than other types,

but unless it is the form of glucose it does the body no good. Toni

WHIMSY2@... wrote:

> From: WHIMSY2@...

>

> Well, for one thing you don't have to worry about the carbs in meat, fish or

> poultry as they have none. Vicki

>

> ------------------------------------------------------------------------

> Have you visited our new web site?

> http://www.onelist.com

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Toni writes:

<< They still turn to glucose. All food does. Some takes longer than other

types, but unless it is the form of glucose it does the body no good. >>

Toni, I may not be understanding what your wrote. Protein not only impacts

our glucose much more slowly than carbohydrates, but also only half as much.

So that's quite a difference when you combine the two. And fat doesn't raise

glucose. (Although some diabetics claim it " makes their glucose soar, " what

I would expect is happening is that it is dampening and slowing down their

typically fast reaction to carbohydrates, so that there is a longer window

of opportunity for them to check their b.g.'s and go, " Oh my! " The effect

lingers longer.)

Susie

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Guest guest

Edd you have such great answers!

Rick

T2 D & E 01/99

Mr Edd wrote:

>

>

> It is an experiment to see how different foods effect your bg. Take a bg

> reading, eat a dish of pasta. 1 1/2 to 2 hours later measure your bg

> again. See, your bg went up a whopping X number of units. Next time take

> a reading, eat a steak (protean) and two green vegetables (complex carbs); 1

> 1/2 to 2 hours later take another reading and see how little your bg went

> up.

> At your next steak dinner substitute a baked potato, with the butter and

> sour cream, for one of the two green veggies. Wow, that really drove up

> your bg reading, didn't it?

> Conclusion, starch turns to sugar and drives up the bg readings, so, if I

> cut out the starches I will have a better chance of staying within the good

> reading zone.

> Eureka!

> This is the easy part; the hard part is doing what you know you should do.

> Mr. Edd

>

> Take good care of the kid in you.

> Re: (no subject)

>

> >

> >

> >At 11:14 AM 4/3/99 -0000, Meenie wrote:

> >>Test after eating a steak, test after eating a baked potato, test after a

> >bowl of pasta...

> >

> >I'm missing something here. These things could make one meal. If I test

> >after eating them, how will I know which one affected my BG - the steak,

> >the baked potatoe, etc. If I want to see what a baked potatoe does to BG,

> >do I eat JUST the potatoe and check BG level, that will tell me what the

> >spud did but that's not much of a meal. How do you separate these things

> >to get useful personal data while eating a MEAL?!

> >

> >

> >

> >-In The Rapid Exchange of Information, Grammar, Spelling & Proper Sentence

> >Structure Are Low On My Priority List.- PK

> >

> >PAUL KOSSART Peru, IL USA

> >NMRA, LDSIG, OPSIG, BRHS, TP & W-HS

> >LaSalle & Bureau County Model R.R. Club

> >Chicago, Burlington & Quincy Model R.R. (HO-1969)

> > " Serving Agriculture & Industry In The Illiniwek River Valley Since 1904. "

> >

> >

> >------------------------------------------------------------------------

> >New hobbies? New curiosities? New enthusiasms?

> >http://www.onelist.com

> >Sign up for a new email list today

> >

>

> ------------------------------------------------------------------------

> Come check out our brand new web site!

> http://www.onelist.com

> Onelist: Making the Internet intimate

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Guest guest

It is an experiment to see how different foods effect your bg. Take a bg

reading, eat a dish of pasta. 1 1/2 to 2 hours later measure your bg

again. See, your bg went up a whopping X number of units. Next time take

a reading, eat a steak (protean) and two green vegetables (complex carbs); 1

1/2 to 2 hours later take another reading and see how little your bg went

up.

At your next steak dinner substitute a baked potato, with the butter and

sour cream, for one of the two green veggies. Wow, that really drove up

your bg reading, didn't it?

Conclusion, starch turns to sugar and drives up the bg readings, so, if I

cut out the starches I will have a better chance of staying within the good

reading zone.

Eureka!

This is the easy part; the hard part is doing what you know you should do.

Mr. Edd

Take good care of the kid in you.

Re: (no subject)

>

>

>At 11:14 AM 4/3/99 -0000, Meenie wrote:

>>Test after eating a steak, test after eating a baked potato, test after a

>bowl of pasta...

>

>I'm missing something here. These things could make one meal. If I test

>after eating them, how will I know which one affected my BG - the steak,

>the baked potatoe, etc. If I want to see what a baked potatoe does to BG,

>do I eat JUST the potatoe and check BG level, that will tell me what the

>spud did but that's not much of a meal. How do you separate these things

>to get useful personal data while eating a MEAL?!

>

>

>

>-In The Rapid Exchange of Information, Grammar, Spelling & Proper Sentence

>Structure Are Low On My Priority List.- PK

>

>PAUL KOSSART Peru, IL USA

>NMRA, LDSIG, OPSIG, BRHS, TP & W-HS

>LaSalle & Bureau County Model R.R. Club

>Chicago, Burlington & Quincy Model R.R. (HO-1969)

> " Serving Agriculture & Industry In The Illiniwek River Valley Since 1904. "

>

>

>------------------------------------------------------------------------

>New hobbies? New curiosities? New enthusiasms?

>http://www.onelist.com

>Sign up for a new email list today

>

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Guest guest

OtterCritter@... wrote:

<<<Yeah ... <sigh...> the tough part is that the malfunctioning autoimmune

> system which killed off the pancreas cells in the first place proceeds to

> destroy the newly-transplanted beta cells. An approach that can either keep

> us from contracting the virus that causes this in the firs place (if that is

> indeed the cause), or that alerts us immediately when we have been exposed

> and sets about preventing the autoimmune system from attacking our own

> bodies, would be a better approach.>>>

Susie,

Yes, I figured there was a downside... I figured I'd just make the best of the

situation and if a practical solution comes along then I'd take advantage of it

but I'm not counting on it.

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  • 1 month later...
Guest guest

Elva,

I am so sorry that you are anemic. I was for a long time and the iron

did a wonderful job. Also, you may want to start eating dark green

vegetables and I am sure you will conquer it. I also have been having

nothing but bad news at the doctor, dentist, eye doctor etc. for a few

years so I know what you mean. I went in for a routine physical and then

they sent me to the hospital for a routine sonogram for gall bladder.

The gall bladder was fine but they found a cyst on my kidney. Well, that

led to a few months of trips to the hospital. Then my dental checkups

were not so good and so on until they found diabetes one day. I really

thought I was falling apart. I am now working hard to reverse all of

this and eat right and exercise. I am determine to make it " good news "

next time.

I think vitamin B12, vitamin c and E, plus fiber should help. I know it

won't hurt. Good luck and keep us informed of your progress. Keep your

chin up.

Heller

Elva wrote:

>

>

>

> I found out a week ago that I am anemic as well as diabetic! Good grief,

> what next? I had a fancy blood test done after the anemia was discovered,

> to see what all the levels are, so that the doc will know how to treat it.

> I have to see him either this week or next, and get on some iron

> supplement. I had no idea I was anemic, didnt feel tired, or have

> shortness of breath, and no ridges on my nails! It's amazing how we can

> have things wrong with us and no clues about it!

>

> Elva in Ontario

>

> Message: 14

> Date: Sun, 16 May 1999 21:14:35 EDT

> From: WHIMSY2@...

> Subject: Re: Nail ridges

>

> In a message dated 99-05-16 15:59:00 EDT, you write:

>

> << .I've noticed some rather prominent vertical ridges on two of

> my fingernails. Does anyone know what this signifies? Is it diabetes

> related? >>

>

> I was quoting from Dr. Isadore Rosenfeld's book " Symptoms. " He said when

> there are lengthwise ridges, to suspect anemia. >>

>

> Thanks, Susie...I don't FEEL anemic...generally feeling fine, no tiredness,

> lethargy, etc. But I'll bring the ridges to my doctor's attention when I see

> him next. Vicki

>

> Visit the British Saloon Car Club of Canada at:

> http://www.geocities.com/MotorCity/7967

>

> ------------------------------------------------------------------------

> Where do some of the Internet's largest email lists reside?

> http://www.onelist.com

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  • 1 month later...
Guest guest

You might want to check out a magazine (printed) that I just subscribed too.

http://www.diabetes-self-mgmt.com/

The May/June issue has information in there for parents, and how to handle

the situation as they become teenagers and want more independence.

(no subject)

>

>

> Hello all members,

>I have a situation coming up that I can use some advise on. We are

planning

>a vacation to Kings Island in Ohio, My son is 10 and a type 1 diabetic. I

>was wondering if anyone had any suggestions of things I need to be sure to

>have available for Mark for the trip. I am the type of person, that would

>rather have an item and not need it, than to wish I had it and left it at

>home.

> We went last year at this time, and when we got back that was when he

went

>in the hospital, and was diagnosed with type 1.

> Any information will be helpful, trouble shooting now will save me worry

>lines later,ha-ha.

>But seriously, I can use any advise you can offer, I want for him to enjoy

>his vacation, not be constantly reminded that he is a diabetic.

> I have a portable cooler, the soft one that holds like a 6 pack. I keep

>this with me at all times, espically when going to town. I carry his

>prepared syringe(if we're going out to supper) in those plastic toothbrush

>holders, you know the ones, you use them on vacation. With the holes on

the

>ends and the size is just right to put his syringe into and not have to

>worry that the plunger will be pushed and lose some of the insulin. They

>pack rather nicely and stay cool.

> Any thing you all can offer will be so very much appreciated.

> Thank you Ann <:)))><

>

>

>---------------------------

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