Re: Countdown to Surgery on 11/7

October 14, 2005

Hi Sis,

Your description of your flares ring a bell with me. I had the same

flares, the same responses to vitamins. When I first got sick I

thought I needed to supplement with tons of vitamins, minerals,

herbs, etc, but I found in the end, that my body didn't LIKE getting

all those vitamins. I think it had to do with the liver. In any

case, I have felt much better backing off of alot of vitamins. I do

still take supplements, but I cycle them for the most part. Not in

any specific date range, but I take them for awhile, then back off,

then start up again and back off. I find it has helped tremendously.

Also, I had the same experience with flares right before my period.

Since many women with autoimmune symptoms experience a great feeling

of relief during pregnancy, the medical community recognizes that

hormones play a role in our illnesses. It is also significant that

more women than men have autoimmune disease. I know you said your

bloodwork is normal, but at the same time, that does not mean you

are not having an autoimmune response. I never was diagnosed with

anything autoimmune until 4 years post explant. So, things can be

whacky with your immune system that blood tests haven't found yet.

I don't want to scare you, but just let you know that what you are

experiencing has been fairly typical.

I am really glad you are getting ready to go through surgery! And

super glad to hear your husband has finally come on board. It takes

our guys awhile sometimes to get past the boobs and start seeing our

pain. But that's great that he has come around. You are going to

need his support during this healing journey.

Stay positive! Things will begin to look up greatly after explant,

and you will never have to worry about those toxic bombs in you

again!

Wishing you wellness,

Patty

--- In , " auntsisnj " <auntsisnj@l...>

wrote:

>

> Good morning everyone. Had a few weeks where I felt really good,

a

> little taste of what it might be like to be normal again after 5

> months of suffering (5 months that feels like years, but I know

there

> are others who have suffered a whole lot longer than me).

Actually I

> wonder if feeling good for the last few weeks was in part due to

some

> vitamins I was taking - I felt good for a few weeks on them, then

> felt bad and stopped taking them because it seemed like I had

vitamin

> A toxicity, and for a few weeks after stopping the vitamins I felt

> really good. Even though they were more than my body could

handle,

> they must have temporarily strengthened my immune system since I

felt

> so good a few weeks after discontinuing them. Now I'm feeling

quite

> poorly, my head throbs, my fingers are swollen, my fingernails and

> toenails also throb, and my vision is definitely blurry. I notice

> when I don't feel well, my fingers look kind of bluish. I also

> notice my husband is stepping me through things that he never had

to

> before, so he must notice my brain fog. Thankful that I've only

got

> a few weeks before surgery on 11/7. I've lost 10 lbs and I was

thin

> to begin with. One thing I've noticed, and I don't know why, is

that

> during my period I often feel better, but the week or two before

my

> period my symptoms get alot worse. I'm on the pill and I think

that

> aggravates my symptoms, because I think the pill lowers your

> immunity, so that might explain why I feel better during my

period,

> because I'm not taking the pill. I'm thankful that I have some

> supportive family members and friends, really thankful to have

found

> this site, and extremely thankful that my husband is finally on

board

> with this (some of you may recall he couldn't accept that these

> implants were making me sick, but I gave him what he wanted and

ruled

> out any other possible illness that my doctors could think of,

plus I

> must thank his sister for yelling at him and somehow getting

through

> to him). Interesting to feel so awful and have bloodwork all turn

> out normal. I have pre-surgical vitamins that I'll be taking

prior

> to my surgery, so I'm curious to see if I feel good or bad on

them -

> I want to give them a try, but I think I'll take 2 a day instead

of

> 6, since I showed a sensitivity to too much vitamin A in the

past. I

> don't have a question, I guess I just wanted to reach out to the

> group for support as I prepare to have my surgery. Dr. Feng is my

> doctor, I know I'm in good hands, I just ask for your prayers.

When

> I postponed my original surgery of 10/5, I was totally distraught

and

> felt hopeless, my husband was a major roadblock and in my heart I

> knew Dr. Feng was the right person for the job. I told my husband

> that I had two choices, suicide or surgery - and obviously I'm

opting

> for the surgery.

>

> Sis

>

October 14, 2005

I found the same thing as Patty, except it was the metals in the vitamins

that made me sick. I could take all the vitamins I wanted as long as I

avoided all the metals. It was the toxins from the implants that had heavy

metals that I needed to clear out of my system, and after that happened, I

could take most supplements again. I did not avoid most vitamins, but

there were no multi-vitamins that I could take for years.

Lynda

At 07:59 AM 10/14/2005, you wrote:

>Hi Sis,

>Your description of your flares ring a bell with me. I had the same

>flares, the same responses to vitamins. When I first got sick I

>thought I needed to supplement with tons of vitamins, minerals,

>herbs, etc, but I found in the end, that my body didn't LIKE getting

>all those vitamins. I think it had to do with the liver. In any

>case, I have felt much better backing off of alot of vitamins. I do

>still take supplements, but I cycle them for the most part. Not in

>any specific date range, but I take them for awhile, then back off,

>then start up again and back off. I find it has helped tremendously.

>

>Also, I had the same experience with flares right before my period.

>Since many women with autoimmune symptoms experience a great feeling

>of relief during pregnancy, the medical community recognizes that

>hormones play a role in our illnesses. It is also significant that

>more women than men have autoimmune disease. I know you said your

>bloodwork is normal, but at the same time, that does not mean you

>are not having an autoimmune response. I never was diagnosed with

>anything autoimmune until 4 years post explant. So, things can be

>whacky with your immune system that blood tests haven't found yet.

>

>I don't want to scare you, but just let you know that what you are

>experiencing has been fairly typical.

>

>I am really glad you are getting ready to go through surgery! And

>super glad to hear your husband has finally come on board. It takes

>our guys awhile sometimes to get past the boobs and start seeing our

>pain. But that's great that he has come around. You are going to

>need his support during this healing journey.

>

>Stay positive! Things will begin to look up greatly after explant,

>and you will never have to worry about those toxic bombs in you

>again!

>Wishing you wellness,

>Patty

>

>--- In , " auntsisnj " <auntsisnj@l...>

>wrote:

> >

> > Good morning everyone. Had a few weeks where I felt really good,

>a

> > little taste of what it might be like to be normal again after 5

> > months of suffering (5 months that feels like years, but I know

>there

> > are others who have suffered a whole lot longer than me).

>Actually I

> > wonder if feeling good for the last few weeks was in part due to

>some

> > vitamins I was taking - I felt good for a few weeks on them, then

> > felt bad and stopped taking them because it seemed like I had

>vitamin

> > A toxicity, and for a few weeks after stopping the vitamins I felt

> > really good. Even though they were more than my body could

>handle,

> > they must have temporarily strengthened my immune system since I

>felt

> > so good a few weeks after discontinuing them. Now I'm feeling

>quite

> > poorly, my head throbs, my fingers are swollen, my fingernails and

> > toenails also throb, and my vision is definitely blurry. I notice

> > when I don't feel well, my fingers look kind of bluish. I also

> > notice my husband is stepping me through things that he never had

>to

> > before, so he must notice my brain fog. Thankful that I've only

>got

> > a few weeks before surgery on 11/7. I've lost 10 lbs and I was

>thin

> > to begin with. One thing I've noticed, and I don't know why, is

>that

> > during my period I often feel better, but the week or two before

>my

> > period my symptoms get alot worse. I'm on the pill and I think

>that

> > aggravates my symptoms, because I think the pill lowers your

> > immunity, so that might explain why I feel better during my

>period,

> > because I'm not taking the pill. I'm thankful that I have some

> > supportive family members and friends, really thankful to have

>found

> > this site, and extremely thankful that my husband is finally on

>board

> > with this (some of you may recall he couldn't accept that these

> > implants were making me sick, but I gave him what he wanted and

>ruled

> > out any other possible illness that my doctors could think of,

>plus I

> > must thank his sister for yelling at him and somehow getting

>through

> > to him). Interesting to feel so awful and have bloodwork all turn

> > out normal. I have pre-surgical vitamins that I'll be taking

>prior

> > to my surgery, so I'm curious to see if I feel good or bad on

>them -

> > I want to give them a try, but I think I'll take 2 a day instead

>of

> > 6, since I showed a sensitivity to too much vitamin A in the

>past. I

> > don't have a question, I guess I just wanted to reach out to the

> > group for support as I prepare to have my surgery. Dr. Feng is my

> > doctor, I know I'm in good hands, I just ask for your prayers.

>When

> > I postponed my original surgery of 10/5, I was totally distraught

>and

> > felt hopeless, my husband was a major roadblock and in my heart I

> > knew Dr. Feng was the right person for the job. I told my husband

> > that I had two choices, suicide or surgery - and obviously I'm

>opting

> > for the surgery.

> >

> > Sis

> >

>

>Opinions expressed are NOT meant to take the place of advice given by

>licensed health care professionals. Consult your physician or licensed

>health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

>Find out what the facts are, and make your own decisions about how to live

>a happy life and how to work for a better world. " - Linus ing,

>two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

October 14, 2005

Great info, Lynda. I never thought to look at just the metals in

vitamins. And yes, I had problems with multi-vitamins and minerals

too! DUH. I am allergic to metals (can't wear most jewelry except

for 14K gold).

I've done alot of heavy metal detoxing, so I am hopefully beyond all

that now. But I still cycle my vitamins and that seems to work well.

Magnesium is one that I think is vitally important for us.

Patty

> >Hi Sis,

> >Your description of your flares ring a bell with me. I had the

same

> >flares, the same responses to vitamins. When I first got sick I

> >thought I needed to supplement with tons of vitamins, minerals,

> >herbs, etc, but I found in the end, that my body didn't LIKE

getting

> >all those vitamins. I think it had to do with the liver. In any

> >case, I have felt much better backing off of alot of vitamins. I

do

> >still take supplements, but I cycle them for the most part. Not

in

> >any specific date range, but I take them for awhile, then back

off,

> >then start up again and back off. I find it has helped

tremendously.

> >

> >Also, I had the same experience with flares right before my

period.

> >Since many women with autoimmune symptoms experience a great

feeling

> >of relief during pregnancy, the medical community recognizes that

> >hormones play a role in our illnesses. It is also significant

that

> >more women than men have autoimmune disease. I know you said

your

> >bloodwork is normal, but at the same time, that does not mean you

> >are not having an autoimmune response. I never was diagnosed with

> >anything autoimmune until 4 years post explant. So, things can be

> >whacky with your immune system that blood tests haven't found yet.

> >

> >I don't want to scare you, but just let you know that what you are

> >experiencing has been fairly typical.

> >

> >I am really glad you are getting ready to go through surgery! And

> >super glad to hear your husband has finally come on board. It

takes

> >our guys awhile sometimes to get past the boobs and start seeing

our

> >pain. But that's great that he has come around. You are going to

> >need his support during this healing journey.

> >

> >Stay positive! Things will begin to look up greatly after

explant,

> >and you will never have to worry about those toxic bombs in you

> >again!

> >Wishing you wellness,

> >Patty

> >

> >--- In , " auntsisnj " <auntsisnj@l...>

> >wrote:

> > >

> > > Good morning everyone. Had a few weeks where I felt really

good,

> >a

> > > little taste of what it might be like to be normal again after

5

> > > months of suffering (5 months that feels like years, but I know

> >there

> > > are others who have suffered a whole lot longer than me).

> >Actually I

> > > wonder if feeling good for the last few weeks was in part due

to

> >some

> > > vitamins I was taking - I felt good for a few weeks on them,

then

> > > felt bad and stopped taking them because it seemed like I had

> >vitamin

> > > A toxicity, and for a few weeks after stopping the vitamins I

felt

> > > really good. Even though they were more than my body could

> >handle,

> > > they must have temporarily strengthened my immune system since

I

> >felt

> > > so good a few weeks after discontinuing them. Now I'm feeling

> >quite

> > > poorly, my head throbs, my fingers are swollen, my fingernails

and

> > > toenails also throb, and my vision is definitely blurry. I

notice

> > > when I don't feel well, my fingers look kind of bluish. I also

> > > notice my husband is stepping me through things that he never

had

> >to

> > > before, so he must notice my brain fog. Thankful that I've

only

> >got

> > > a few weeks before surgery on 11/7. I've lost 10 lbs and I was

> >thin

> > > to begin with. One thing I've noticed, and I don't know why,

is

> >that

> > > during my period I often feel better, but the week or two

before

> >my

> > > period my symptoms get alot worse. I'm on the pill and I think

> >that

> > > aggravates my symptoms, because I think the pill lowers your

> > > immunity, so that might explain why I feel better during my

> >period,

> > > because I'm not taking the pill. I'm thankful that I have some

> > > supportive family members and friends, really thankful to have

> >found

> > > this site, and extremely thankful that my husband is finally on

> >board

> > > with this (some of you may recall he couldn't accept that these

> > > implants were making me sick, but I gave him what he wanted and

> >ruled

> > > out any other possible illness that my doctors could think of,

> >plus I

> > > must thank his sister for yelling at him and somehow getting

> >through

> > > to him). Interesting to feel so awful and have bloodwork all

turn

> > > out normal. I have pre-surgical vitamins that I'll be taking

> >prior

> > > to my surgery, so I'm curious to see if I feel good or bad on

> >them -

> > > I want to give them a try, but I think I'll take 2 a day

instead

> >of

> > > 6, since I showed a sensitivity to too much vitamin A in the

> >past. I

> > > don't have a question, I guess I just wanted to reach out to

the

> > > group for support as I prepare to have my surgery. Dr. Feng

is my

> > > doctor, I know I'm in good hands, I just ask for your prayers.

> >When

> > > I postponed my original surgery of 10/5, I was totally

distraught

> >and

> > > felt hopeless, my husband was a major roadblock and in my

heart I

> > > knew Dr. Feng was the right person for the job. I told my

husband

> > > that I had two choices, suicide or surgery - and obviously I'm

> >opting

> > > for the surgery.

> > >

> > > Sis

> > >

> >

> >Opinions expressed are NOT meant to take the place of advice

given by

> >licensed health care professionals. Consult your physician or

licensed

> >health care professional before commencing any medical treatment.

> >

> > " Do not let either the medical authorities or the politicians

mislead you.

> >Find out what the facts are, and make your own decisions about

how to live

> >a happy life and how to work for a better world. " - Linus

ing,

> >two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

October 14, 2005

Yes, I can take Magnesium and also iron now, and there is copper and zinc,

etc. in my multi.

I do take days where I limit my vitamins to a few essentials.

I also have problems with metals in jewelry, but I can wear surgical steel

and 14-18K gold. I can wear the others for a few hours and then they start

itching.

I also did a lot of heavy metal detoxing in the first two years after explant.

Lynda

At 08:17 AM 10/14/2005, you wrote:

>Great info, Lynda. I never thought to look at just the metals in

>vitamins. And yes, I had problems with multi-vitamins and minerals

>too! DUH. I am allergic to metals (can't wear most jewelry except

>for 14K gold).

>

>I've done alot of heavy metal detoxing, so I am hopefully beyond all

>that now. But I still cycle my vitamins and that seems to work well.

>Magnesium is one that I think is vitally important for us.

>Patty

>

> > >Hi Sis,

> > >Your description of your flares ring a bell with me. I had the

>same

> > >flares, the same responses to vitamins. When I first got sick I

> > >thought I needed to supplement with tons of vitamins, minerals,

> > >herbs, etc, but I found in the end, that my body didn't LIKE

>getting

> > >all those vitamins. I think it had to do with the liver. In any

> > >case, I have felt much better backing off of alot of vitamins. I

>do

> > >still take supplements, but I cycle them for the most part. Not

>in

> > >any specific date range, but I take them for awhile, then back

>off,

> > >then start up again and back off. I find it has helped

>tremendously.

> > >

> > >Also, I had the same experience with flares right before my

>period.

> > >Since many women with autoimmune symptoms experience a great

>feeling

> > >of relief during pregnancy, the medical community recognizes that

> > >hormones play a role in our illnesses. It is also significant

>that

> > >more women than men have autoimmune disease. I know you said

>your

> > >bloodwork is normal, but at the same time, that does not mean you

> > >are not having an autoimmune response. I never was diagnosed with

> > >anything autoimmune until 4 years post explant. So, things can be

> > >whacky with your immune system that blood tests haven't found yet.

> > >

> > >I don't want to scare you, but just let you know that what you are

> > >experiencing has been fairly typical.

> > >

> > >I am really glad you are getting ready to go through surgery! And

> > >super glad to hear your husband has finally come on board. It

>takes

> > >our guys awhile sometimes to get past the boobs and start seeing

>our

> > >pain. But that's great that he has come around. You are going to

> > >need his support during this healing journey.

> > >

> > >Stay positive! Things will begin to look up greatly after

>explant,

> > >and you will never have to worry about those toxic bombs in you

> > >again!

> > >Wishing you wellness,

> > >Patty

> > >

> > >--- In , " auntsisnj " <auntsisnj@l...>

> > >wrote:

> > > >

> > > > Good morning everyone. Had a few weeks where I felt really

>good,

> > >a

> > > > little taste of what it might be like to be normal again after

>5

> > > > months of suffering (5 months that feels like years, but I know

> > >there

> > > > are others who have suffered a whole lot longer than me).

> > >Actually I

> > > > wonder if feeling good for the last few weeks was in part due

>to

> > >some

> > > > vitamins I was taking - I felt good for a few weeks on them,

>then

> > > > felt bad and stopped taking them because it seemed like I had

> > >vitamin

> > > > A toxicity, and for a few weeks after stopping the vitamins I

>felt

> > > > really good. Even though they were more than my body could

> > >handle,

> > > > they must have temporarily strengthened my immune system since

>I

> > >felt

> > > > so good a few weeks after discontinuing them. Now I'm feeling

> > >quite

> > > > poorly, my head throbs, my fingers are swollen, my fingernails

>and

> > > > toenails also throb, and my vision is definitely blurry. I

>notice

> > > > when I don't feel well, my fingers look kind of bluish. I also

> > > > notice my husband is stepping me through things that he never

>had

> > >to

> > > > before, so he must notice my brain fog. Thankful that I've

>only

> > >got

> > > > a few weeks before surgery on 11/7. I've lost 10 lbs and I was

> > >thin

> > > > to begin with. One thing I've noticed, and I don't know why,

>is

> > >that

> > > > during my period I often feel better, but the week or two

>before

> > >my

> > > > period my symptoms get alot worse. I'm on the pill and I think

> > >that

> > > > aggravates my symptoms, because I think the pill lowers your

> > > > immunity, so that might explain why I feel better during my

> > >period,

> > > > because I'm not taking the pill. I'm thankful that I have some

> > > > supportive family members and friends, really thankful to have

> > >found

> > > > this site, and extremely thankful that my husband is finally on

> > >board

> > > > with this (some of you may recall he couldn't accept that these

> > > > implants were making me sick, but I gave him what he wanted and

> > >ruled

> > > > out any other possible illness that my doctors could think of,

> > >plus I

> > > > must thank his sister for yelling at him and somehow getting

> > >through

> > > > to him). Interesting to feel so awful and have bloodwork all

>turn

> > > > out normal. I have pre-surgical vitamins that I'll be taking

> > >prior

> > > > to my surgery, so I'm curious to see if I feel good or bad on

> > >them -

> > > > I want to give them a try, but I think I'll take 2 a day

>instead

> > >of

> > > > 6, since I showed a sensitivity to too much vitamin A in the

> > >past. I

> > > > don't have a question, I guess I just wanted to reach out to

>the

> > > > group for support as I prepare to have my surgery. Dr. Feng

>is my

> > > > doctor, I know I'm in good hands, I just ask for your prayers.

> > >When

> > > > I postponed my original surgery of 10/5, I was totally

>distraught

> > >and

> > > > felt hopeless, my husband was a major roadblock and in my

>heart I

> > > > knew Dr. Feng was the right person for the job. I told my

>husband

> > > > that I had two choices, suicide or surgery - and obviously I'm

> > >opting

> > > > for the surgery.

> > > >

> > > > Sis

> > > >

> > >

> > >Opinions expressed are NOT meant to take the place of advice

>given by

> > >licensed health care professionals. Consult your physician or

>licensed

> > >health care professional before commencing any medical treatment.

> > >

> > > " Do not let either the medical authorities or the politicians

>mislead you.

> > >Find out what the facts are, and make your own decisions about

>how to live

> > >a happy life and how to work for a better world. " - Linus

>ing,

> > >two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> > >

October 14, 2005

I am glad you mentioned that about the surgical steel! That piece

of file that broke off in my root during the root canal is surgical

stainless steel (so he tells me--I think his assistant also

mentioned titanium as a possibility, which I do not want left in me!)

I am just praying that they will be able to remove it finally on the

25th.

Thanks Lynda. It seems quite a few of us share this thing with

metal allergies.

Patty

> > > >Hi Sis,

> > > >Your description of your flares ring a bell with me. I had

the

> >same

> > > >flares, the same responses to vitamins. When I first got

sick I

> > > >thought I needed to supplement with tons of vitamins,

minerals,

> > > >herbs, etc, but I found in the end, that my body didn't LIKE

> >getting

> > > >all those vitamins. I think it had to do with the liver. In

any

> > > >case, I have felt much better backing off of alot of

vitamins. I

> >do

> > > >still take supplements, but I cycle them for the most part.

Not

> >in

> > > >any specific date range, but I take them for awhile, then back

> >off,

> > > >then start up again and back off. I find it has helped

> >tremendously.

> > > >

> > > >Also, I had the same experience with flares right before my

> >period.

> > > >Since many women with autoimmune symptoms experience a great

> >feeling

> > > >of relief during pregnancy, the medical community recognizes

that

> > > >hormones play a role in our illnesses. It is also significant

> >that

> > > >more women than men have autoimmune disease. I know you said

> >your

> > > >bloodwork is normal, but at the same time, that does not mean

you

> > > >are not having an autoimmune response. I never was diagnosed

with

> > > >anything autoimmune until 4 years post explant. So, things

can be

> > > >whacky with your immune system that blood tests haven't found

yet.

> > > >

> > > >I don't want to scare you, but just let you know that what

you are

> > > >experiencing has been fairly typical.

> > > >

> > > >I am really glad you are getting ready to go through

surgery! And

> > > >super glad to hear your husband has finally come on board. It

> >takes

> > > >our guys awhile sometimes to get past the boobs and start

seeing

> >our

> > > >pain. But that's great that he has come around. You are

going to

> > > >need his support during this healing journey.

> > > >

> > > >Stay positive! Things will begin to look up greatly after

> >explant,

> > > >and you will never have to worry about those toxic bombs in

you

> > > >again!

> > > >Wishing you wellness,

> > > >Patty

> > > >

> > > >--- In , " auntsisnj "

<auntsisnj@l...>

> > > >wrote:

> > > > >

> > > > > Good morning everyone. Had a few weeks where I felt really

> >good,

> > > >a

> > > > > little taste of what it might be like to be normal again

after

> >5

> > > > > months of suffering (5 months that feels like years, but I

know

> > > >there

> > > > > are others who have suffered a whole lot longer than me).

> > > >Actually I

> > > > > wonder if feeling good for the last few weeks was in part

due

> >to

> > > >some

> > > > > vitamins I was taking - I felt good for a few weeks on

them,

> >then

> > > > > felt bad and stopped taking them because it seemed like I

had

> > > >vitamin

> > > > > A toxicity, and for a few weeks after stopping the

vitamins I

> >felt

> > > > > really good. Even though they were more than my body could

> > > >handle,

> > > > > they must have temporarily strengthened my immune system

since

> >I

> > > >felt

> > > > > so good a few weeks after discontinuing them. Now I'm

feeling

> > > >quite

> > > > > poorly, my head throbs, my fingers are swollen, my

fingernails

> >and

> > > > > toenails also throb, and my vision is definitely blurry. I

> >notice

> > > > > when I don't feel well, my fingers look kind of bluish. I

also

> > > > > notice my husband is stepping me through things that he

never

> >had

> > > >to

> > > > > before, so he must notice my brain fog. Thankful that I've

> >only

> > > >got

> > > > > a few weeks before surgery on 11/7. I've lost 10 lbs and

I was

> > > >thin

> > > > > to begin with. One thing I've noticed, and I don't know

why,

> >is

> > > >that

> > > > > during my period I often feel better, but the week or two

> >before

> > > >my

> > > > > period my symptoms get alot worse. I'm on the pill and I

think

> > > >that

> > > > > aggravates my symptoms, because I think the pill lowers

your

> > > > > immunity, so that might explain why I feel better during my

> > > >period,

> > > > > because I'm not taking the pill. I'm thankful that I have

some

> > > > > supportive family members and friends, really thankful to

have

> > > >found

> > > > > this site, and extremely thankful that my husband is

finally on

> > > >board

> > > > > with this (some of you may recall he couldn't accept that

these

> > > > > implants were making me sick, but I gave him what he

wanted and

> > > >ruled

> > > > > out any other possible illness that my doctors could think

of,

> > > >plus I

> > > > > must thank his sister for yelling at him and somehow

getting

> > > >through

> > > > > to him). Interesting to feel so awful and have bloodwork

all

> >turn

> > > > > out normal. I have pre-surgical vitamins that I'll be

taking

> > > >prior

> > > > > to my surgery, so I'm curious to see if I feel good or bad

on

> > > >them -

> > > > > I want to give them a try, but I think I'll take 2 a day

> >instead

> > > >of

> > > > > 6, since I showed a sensitivity to too much vitamin A in

the

> > > >past. I

> > > > > don't have a question, I guess I just wanted to reach out

to

> >the

> > > > > group for support as I prepare to have my surgery. Dr.

Feng

> >is my

> > > > > doctor, I know I'm in good hands, I just ask for your

prayers.

> > > >When

> > > > > I postponed my original surgery of 10/5, I was totally

> >distraught

> > > >and

> > > > > felt hopeless, my husband was a major roadblock and in my

> >heart I

> > > > > knew Dr. Feng was the right person for the job. I told my

> >husband

> > > > > that I had two choices, suicide or surgery - and obviously

I'm

> > > >opting

> > > > > for the surgery.

> > > > >

> > > > > Sis

> > > > >

> > > >

> > > >Opinions expressed are NOT meant to take the place of advice

> >given by

> > > >licensed health care professionals. Consult your physician or

> >licensed

> > > >health care professional before commencing any medical

treatment.

> > > >

> > > > " Do not let either the medical authorities or the politicians

> >mislead you.

> > > >Find out what the facts are, and make your own decisions about

> >how to live

> > > >a happy life and how to work for a better world. " - Linus

> >ing,

> > > >two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> > > >

October 14, 2005

Boy, I did not know that they broke something off in your

mouth. Darn. Titanium does not react on most people, and dental implants

are titanium. A few people have problems, but for the most part, I have

heard of people having them 40 years with no problems.

I know I have staples in my chest (did not know they were putting them

there) and they are titanium and perhaps some tungsten. I sure would not

have had them if I had known they were doing it.

Lynda

At 09:47 AM 10/14/2005, you wrote:

>I am glad you mentioned that about the surgical steel! That piece

>of file that broke off in my root during the root canal is surgical

>stainless steel (so he tells me--I think his assistant also

>mentioned titanium as a possibility, which I do not want left in me!)

>

>I am just praying that they will be able to remove it finally on the

>25th.

>Thanks Lynda. It seems quite a few of us share this thing with

>metal allergies.

>Patty

>

> > > > >Hi Sis,

> > > > >Your description of your flares ring a bell with me. I had

>the

> > >same

> > > > >flares, the same responses to vitamins. When I first got

>sick I

> > > > >thought I needed to supplement with tons of vitamins,

>minerals,

> > > > >herbs, etc, but I found in the end, that my body didn't LIKE

> > >getting

> > > > >all those vitamins. I think it had to do with the liver. In

>any

> > > > >case, I have felt much better backing off of alot of

>vitamins. I

> > >do

> > > > >still take supplements, but I cycle them for the most part.

>Not

> > >in

> > > > >any specific date range, but I take them for awhile, then back

> > >off,

> > > > >then start up again and back off. I find it has helped

> > >tremendously.

> > > > >

> > > > >Also, I had the same experience with flares right before my

> > >period.

> > > > >Since many women with autoimmune symptoms experience a great

> > >feeling

> > > > >of relief during pregnancy, the medical community recognizes

>that

> > > > >hormones play a role in our illnesses. It is also significant

> > >that

> > > > >more women than men have autoimmune disease. I know you said

> > >your

> > > > >bloodwork is normal, but at the same time, that does not mean

>you

> > > > >are not having an autoimmune response. I never was diagnosed

>with

> > > > >anything autoimmune until 4 years post explant. So, things

>can be

> > > > >whacky with your immune system that blood tests haven't found

>yet.

> > > > >

> > > > >I don't want to scare you, but just let you know that what

>you are

> > > > >experiencing has been fairly typical.

> > > > >

> > > > >I am really glad you are getting ready to go through

>surgery! And

> > > > >super glad to hear your husband has finally come on board. It

> > >takes

> > > > >our guys awhile sometimes to get past the boobs and start

>seeing

> > >our

> > > > >pain. But that's great that he has come around. You are

>going to

> > > > >need his support during this healing journey.

> > > > >

> > > > >Stay positive! Things will begin to look up greatly after

> > >explant,

> > > > >and you will never have to worry about those toxic bombs in

>you

> > > > >again!

> > > > >Wishing you wellness,

> > > > >Patty

> > > > >

> > > > >--- In , " auntsisnj "

><auntsisnj@l...>

> > > > >wrote:

> > > > > >

> > > > > > Good morning everyone. Had a few weeks where I felt really

> > >good,

> > > > >a

> > > > > > little taste of what it might be like to be normal again

>after

> > >5

> > > > > > months of suffering (5 months that feels like years, but I

>know

> > > > >there

> > > > > > are others who have suffered a whole lot longer than me).

> > > > >Actually I

> > > > > > wonder if feeling good for the last few weeks was in part

>due

> > >to

> > > > >some

> > > > > > vitamins I was taking - I felt good for a few weeks on

>them,

> > >then

> > > > > > felt bad and stopped taking them because it seemed like I

>had

> > > > >vitamin

> > > > > > A toxicity, and for a few weeks after stopping the

>vitamins I

> > >felt

> > > > > > really good. Even though they were more than my body could

> > > > >handle,

> > > > > > they must have temporarily strengthened my immune system

>since

> > >I

> > > > >felt

> > > > > > so good a few weeks after discontinuing them. Now I'm

>feeling

> > > > >quite

> > > > > > poorly, my head throbs, my fingers are swollen, my

>fingernails

> > >and

> > > > > > toenails also throb, and my vision is definitely blurry. I

> > >notice

> > > > > > when I don't feel well, my fingers look kind of bluish. I

>also

> > > > > > notice my husband is stepping me through things that he

>never

> > >had

> > > > >to

> > > > > > before, so he must notice my brain fog. Thankful that I've

> > >only

> > > > >got

> > > > > > a few weeks before surgery on 11/7. I've lost 10 lbs and

>I was

> > > > >thin

> > > > > > to begin with. One thing I've noticed, and I don't know

>why,

> > >is

> > > > >that

> > > > > > during my period I often feel better, but the week or two

> > >before

> > > > >my

> > > > > > period my symptoms get alot worse. I'm on the pill and I

>think

> > > > >that

> > > > > > aggravates my symptoms, because I think the pill lowers

>your

> > > > > > immunity, so that might explain why I feel better during my

> > > > >period,

> > > > > > because I'm not taking the pill. I'm thankful that I have

>some

> > > > > > supportive family members and friends, really thankful to

>have

> > > > >found

> > > > > > this site, and extremely thankful that my husband is

>finally on

> > > > >board

> > > > > > with this (some of you may recall he couldn't accept that

>these

> > > > > > implants were making me sick, but I gave him what he

>wanted and

> > > > >ruled

> > > > > > out any other possible illness that my doctors could think

>of,

> > > > >plus I

> > > > > > must thank his sister for yelling at him and somehow

>getting

> > > > >through

> > > > > > to him). Interesting to feel so awful and have bloodwork

>all

> > >turn

> > > > > > out normal. I have pre-surgical vitamins that I'll be

>taking

> > > > >prior

> > > > > > to my surgery, so I'm curious to see if I feel good or bad

>on

> > > > >them -

> > > > > > I want to give them a try, but I think I'll take 2 a day

> > >instead

> > > > >of

> > > > > > 6, since I showed a sensitivity to too much vitamin A in

>the

> > > > >past. I

> > > > > > don't have a question, I guess I just wanted to reach out

>to

> > >the

> > > > > > group for support as I prepare to have my surgery. Dr.

>Feng

> > >is my

> > > > > > doctor, I know I'm in good hands, I just ask for your

>prayers.

> > > > >When

> > > > > > I postponed my original surgery of 10/5, I was totally

> > >distraught

> > > > >and

> > > > > > felt hopeless, my husband was a major roadblock and in my

> > >heart I

> > > > > > knew Dr. Feng was the right person for the job. I told my

> > >husband

> > > > > > that I had two choices, suicide or surgery - and obviously

>I'm

> > > > >opting

> > > > > > for the surgery.

> > > > > >

> > > > > > Sis

> > > > > >

> > > > >

> > > > >Opinions expressed are NOT meant to take the place of advice

> > >given by

> > > > >licensed health care professionals. Consult your physician or

> > >licensed

> > > > >health care professional before commencing any medical

>treatment.

> > > > >

> > > > > " Do not let either the medical authorities or the politicians

> > >mislead you.

> > > > >Find out what the facts are, and make your own decisions about

> > >how to live

> > > > >a happy life and how to work for a better world. " - Linus

> > >ing,

> > > > >two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> > > > >

October 14, 2005

Sis,

Congrats on the upcoming surgery. I'll be having mine on the 5th with Melmed. Your up-and-down symptoms sound familiar--I've been having that experience as well. There was awhile there (before I realized it was the implants that were making me sick) when I started feeling better--not good, mind you, just a little better--and I thought I was back on the road to health. But then I started feeling worse again. I lost weight, too, and weighed less than when I was in high school! Believe me, it did not look pretty. My partner said I looked like a POW. Thank goodness I have gained it back. For me, supplements and herbs have helped alot to get me to a plateau where I can stand to be alive(instead of being so sick that I wished I was dead) and now it's just damage control until the Aliens are out.

I am trying to be really kind to myself until the surgery. Perhaps you can do the same. Take lots of baths, listen to music, take walks, eat well, and try and relax. I know for me that stress really makes me feel worse--I think the higher level of cortisol we produce when stressed is especially hard on our already overwhelmed bodies.

Good luck! Let's compare notes on healing afterwards.

xo

Melinda

Countdown to Surgery on 11/7

Good morning everyone. Had a few weeks where I felt really good, a little taste of what it might be like to be normal again after 5 months of suffering (5 months that feels like years, but I know there are others who have suffered a whole lot longer than me). Actually I wonder if feeling good for the last few weeks was in part due to some vitamins I was taking - I felt good for a few weeks on them, then felt bad and stopped taking them because it seemed like I had vitamin A toxicity, and for a few weeks after stopping the vitamins I felt really good. Even though they were more than my body could handle, they must have temporarily strengthened my immune system since I felt so good a few weeks after discontinuing them. Now I'm feeling quite poorly, my head throbs, my fingers are swollen, my fingernails and toenails also throb, and my vision is definitely blurry. I notice when I don't feel well, my fingers look kind of bluish. I also notice my husband is stepping me through things that he never had to before, so he must notice my brain fog. Thankful that I've only got a few weeks before surgery on 11/7. I've lost 10 lbs and I was thin to begin with. One thing I've noticed, and I don't know why, is that during my period I often feel better, but the week or two before my period my symptoms get alot worse. I'm on the pill and I think that aggravates my symptoms, because I think the pill lowers your immunity, so that might explain why I feel better during my period, because I'm not taking the pill. I'm thankful that I have some supportive family members and friends, really thankful to have found this site, and extremely thankful that my husband is finally on board with this (some of you may recall he couldn't accept that these implants were making me sick, but I gave him what he wanted and ruled out any other possible illness that my doctors could think of, plus I must thank his sister for yelling at him and somehow getting through to him). Interesting to feel so awful and have bloodwork all turn out normal. I have pre-surgical vitamins that I'll be taking prior to my surgery, so I'm curious to see if I feel good or bad on them - I want to give them a try, but I think I'll take 2 a day instead of 6, since I showed a sensitivity to too much vitamin A in the past. I don't have a question, I guess I just wanted to reach out to the group for support as I prepare to have my surgery. Dr. Feng is my doctor, I know I'm in good hands, I just ask for your prayers. When I postponed my original surgery of 10/5, I was totally distraught and felt hopeless, my husband was a major roadblock and in my heart I knew Dr. Feng was the right person for the job. I told my husband that I had two choices, suicide or surgery - and obviously I'm opting for the surgery. Sis

October 14, 2005

Lynda, I was wondering if that might be a culprit, too. Is copper

considered a metal, this vitamin had copper in it.

Sis

> >Hi Sis,

> >Your description of your flares ring a bell with me. I had the

same

> >flares, the same responses to vitamins. When I first got sick I

> >thought I needed to supplement with tons of vitamins, minerals,

> >herbs, etc, but I found in the end, that my body didn't LIKE

getting

> >all those vitamins. I think it had to do with the liver. In any

> >case, I have felt much better backing off of alot of vitamins. I

do

> >still take supplements, but I cycle them for the most part. Not in

> >any specific date range, but I take them for awhile, then back off,

> >then start up again and back off. I find it has helped

tremendously.

> >

> >Also, I had the same experience with flares right before my period.

> >Since many women with autoimmune symptoms experience a great

feeling

> >of relief during pregnancy, the medical community recognizes that

> >hormones play a role in our illnesses. It is also significant that

> >more women than men have autoimmune disease. I know you said your

> >bloodwork is normal, but at the same time, that does not mean you

> >are not having an autoimmune response. I never was diagnosed with

> >anything autoimmune until 4 years post explant. So, things can be

> >whacky with your immune system that blood tests haven't found yet.

> >

> >I don't want to scare you, but just let you know that what you are

> >experiencing has been fairly typical.

> >

> >I am really glad you are getting ready to go through surgery! And

> >super glad to hear your husband has finally come on board. It

takes

> >our guys awhile sometimes to get past the boobs and start seeing

our

> >pain. But that's great that he has come around. You are going to

> >need his support during this healing journey.

> >

> >Stay positive! Things will begin to look up greatly after explant,

> >and you will never have to worry about those toxic bombs in you

> >again!

> >Wishing you wellness,

> >Patty

> >

> >--- In , " auntsisnj " <auntsisnj@l...>

> >wrote:

> > >

> > > Good morning everyone. Had a few weeks where I felt really

good,

> >a

> > > little taste of what it might be like to be normal again after 5

> > > months of suffering (5 months that feels like years, but I know

> >there

> > > are others who have suffered a whole lot longer than me).

> >Actually I

> > > wonder if feeling good for the last few weeks was in part due to

> >some

> > > vitamins I was taking - I felt good for a few weeks on them,

then

> > > felt bad and stopped taking them because it seemed like I had

> >vitamin

> > > A toxicity, and for a few weeks after stopping the vitamins I

felt

> > > really good. Even though they were more than my body could

> >handle,

> > > they must have temporarily strengthened my immune system since I

> >felt

> > > so good a few weeks after discontinuing them. Now I'm feeling

> >quite

> > > poorly, my head throbs, my fingers are swollen, my fingernails

and

> > > toenails also throb, and my vision is definitely blurry. I

notice

> > > when I don't feel well, my fingers look kind of bluish. I also

> > > notice my husband is stepping me through things that he never

had

> >to

> > > before, so he must notice my brain fog. Thankful that I've only

> >got

> > > a few weeks before surgery on 11/7. I've lost 10 lbs and I was

> >thin

> > > to begin with. One thing I've noticed, and I don't know why, is

> >that

> > > during my period I often feel better, but the week or two before

> >my

> > > period my symptoms get alot worse. I'm on the pill and I think

> >that

> > > aggravates my symptoms, because I think the pill lowers your

> > > immunity, so that might explain why I feel better during my

> >period,

> > > because I'm not taking the pill. I'm thankful that I have some

> > > supportive family members and friends, really thankful to have

> >found

> > > this site, and extremely thankful that my husband is finally on

> >board

> > > with this (some of you may recall he couldn't accept that these

> > > implants were making me sick, but I gave him what he wanted and

> >ruled

> > > out any other possible illness that my doctors could think of,

> >plus I

> > > must thank his sister for yelling at him and somehow getting

> >through

> > > to him). Interesting to feel so awful and have bloodwork all

turn

> > > out normal. I have pre-surgical vitamins that I'll be taking

> >prior

> > > to my surgery, so I'm curious to see if I feel good or bad on

> >them -

> > > I want to give them a try, but I think I'll take 2 a day instead

> >of

> > > 6, since I showed a sensitivity to too much vitamin A in the

> >past. I

> > > don't have a question, I guess I just wanted to reach out to the

> > > group for support as I prepare to have my surgery. Dr. Feng is

my

> > > doctor, I know I'm in good hands, I just ask for your prayers.

> >When

> > > I postponed my original surgery of 10/5, I was totally

distraught

> >and

> > > felt hopeless, my husband was a major roadblock and in my heart

I

> > > knew Dr. Feng was the right person for the job. I told my

husband

> > > that I had two choices, suicide or surgery - and obviously I'm

> >opting

> > > for the surgery.

> > >

> > > Sis

> > >

> >

> >Opinions expressed are NOT meant to take the place of advice given

by

> >licensed health care professionals. Consult your physician or

licensed

> >health care professional before commencing any medical treatment.

> >

> > " Do not let either the medical authorities or the politicians

mislead you.

> >Find out what the facts are, and make your own decisions about how

to live

> >a happy life and how to work for a better world. " - Linus ing,

> >two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

October 14, 2005

I wouldn't put to much thought into the good or bad days at this time

and what is causing them, it is par for the course with autoimmune

issues. They wax and wane and that is the way the disease usually is.

Until the implants are out I doubt you will figure out why one day is

better than the other because it is just such a roller coaster ride

when the implants are in your body. I have a suggestion though.... I

am not sure what you plan to do as far as children or how old you are

but if you are wanting kids later on...I would try to find a different

method of birth control if you can figure one out that you can trust.

I just think hormones are not really good for you right now. Of course

if you can't use anything else like condoms (i know hassle) but that

is what I did ... we used condoms for a bit until we decided no more

kids and then my husband had a vasectomy. But we have 5 kids between

us and I am in my early 40's now. If you want kids think about some

other way you can give your body a break from the horomones at least

until after your surgery and after you start to get better. this is

just an opinion and of course you don't have to do it though.

As for the other stuff I honestly think you will be fine. I am fine

and it took a bit but I really did get lucky because I can honestly

say healing was only a struggle for a short time. I pretty much just

got better and better after my surgery to the point where now I can

hardly recall being ill. I did take vitamins for awhile and then I

went off them and when I felt exactly the same I just couldn't see

spending all that cash on them and I decided to just try to eat my

vitamins in my healthy food! I am not by any means saying you should

not try to take supps or anything like that at all, just that if I got

better the way I did I am sure you can too and with or without the

vitamins!

Anyhow hang in there, you have a fabulous surgeon that really makes

all the difference in the world!

hugs

In , " auntsisnj " <auntsisnj@l...> wrote:

>

> Good morning everyone. Had a few weeks where I felt really good, a

> little taste of what it might be like to be normal again after 5

> months of suffering (5 months that feels like years, but I know there

> are others who have suffered a whole lot longer than me). Actually I

> wonder if feeling good for the last few weeks was in part due to some

> vitamins I was taking - I felt good for a few weeks on them, then

> felt bad and stopped taking them because it seemed like I had vitamin

> A toxicity, and for a few weeks after stopping the vitamins I felt

> really good. Even though they were more than my body could handle,

> they must have temporarily strengthened my immune system since I felt

> so good a few weeks after discontinuing them. Now I'm feeling quite

> poorly, my head throbs, my fingers are swollen, my fingernails and

> toenails also throb, and my vision is definitely blurry. I notice

> when I don't feel well, my fingers look kind of bluish. I also

> notice my husband is stepping me through things that he never had to

> before, so he must notice my brain fog. Thankful that I've only got

> a few weeks before surgery on 11/7. I've lost 10 lbs and I was thin

> to begin with. One thing I've noticed, and I don't know why, is that

> during my period I often feel better, but the week or two before my

> period my symptoms get alot worse. I'm on the pill and I think that

> aggravates my symptoms, because I think the pill lowers your

> immunity, so that might explain why I feel better during my period,

> because I'm not taking the pill. I'm thankful that I have some

> supportive family members and friends, really thankful to have found

> this site, and extremely thankful that my husband is finally on board

> with this (some of you may recall he couldn't accept that these

> implants were making me sick, but I gave him what he wanted and ruled

> out any other possible illness that my doctors could think of, plus I

> must thank his sister for yelling at him and somehow getting through

> to him). Interesting to feel so awful and have bloodwork all turn

> out normal. I have pre-surgical vitamins that I'll be taking prior

> to my surgery, so I'm curious to see if I feel good or bad on them -

> I want to give them a try, but I think I'll take 2 a day instead of

> 6, since I showed a sensitivity to too much vitamin A in the past. I

> don't have a question, I guess I just wanted to reach out to the

> group for support as I prepare to have my surgery. Dr. Feng is my

> doctor, I know I'm in good hands, I just ask for your prayers. When

> I postponed my original surgery of 10/5, I was totally distraught and

> felt hopeless, my husband was a major roadblock and in my heart I

> knew Dr. Feng was the right person for the job. I told my husband

> that I had two choices, suicide or surgery - and obviously I'm opting

> for the surgery.

>

> Sis

>

October 14, 2005

Definitely copper is a metal.

Lynda

At 04:54 PM 10/14/2005, you wrote:

>Lynda, I was wondering if that might be a culprit, too. Is copper

>considered a metal, this vitamin had copper in it.

>

>Sis

>

> > >Hi Sis,

> > >Your description of your flares ring a bell with me. I had the

>same

> > >flares, the same responses to vitamins. When I first got sick I

> > >thought I needed to supplement with tons of vitamins, minerals,

> > >herbs, etc, but I found in the end, that my body didn't LIKE

>getting

> > >all those vitamins. I think it had to do with the liver. In any

> > >case, I have felt much better backing off of alot of vitamins. I

>do

> > >still take supplements, but I cycle them for the most part. Not in

> > >any specific date range, but I take them for awhile, then back off,

> > >then start up again and back off. I find it has helped

>tremendously.

> > >

> > >Also, I had the same experience with flares right before my period.

> > >Since many women with autoimmune symptoms experience a great

>feeling

> > >of relief during pregnancy, the medical community recognizes that

> > >hormones play a role in our illnesses. It is also significant that

> > >more women than men have autoimmune disease. I know you said your

> > >bloodwork is normal, but at the same time, that does not mean you

> > >are not having an autoimmune response. I never was diagnosed with

> > >anything autoimmune until 4 years post explant. So, things can be

> > >whacky with your immune system that blood tests haven't found yet.

> > >

> > >I don't want to scare you, but just let you know that what you are

> > >experiencing has been fairly typical.

> > >

> > >I am really glad you are getting ready to go through surgery! And

> > >super glad to hear your husband has finally come on board. It

>takes

> > >our guys awhile sometimes to get past the boobs and start seeing

>our

> > >pain. But that's great that he has come around. You are going to

> > >need his support during this healing journey.

> > >

> > >Stay positive! Things will begin to look up greatly after explant,

> > >and you will never have to worry about those toxic bombs in you

> > >again!

> > >Wishing you wellness,

> > >Patty

> > >

> > >--- In , " auntsisnj " <auntsisnj@l...>

> > >wrote:

> > > >

> > > > Good morning everyone. Had a few weeks where I felt really

>good,

> > >a

> > > > little taste of what it might be like to be normal again after 5

> > > > months of suffering (5 months that feels like years, but I know

> > >there

> > > > are others who have suffered a whole lot longer than me).

> > >Actually I

> > > > wonder if feeling good for the last few weeks was in part due to

> > >some

> > > > vitamins I was taking - I felt good for a few weeks on them,

>then

> > > > felt bad and stopped taking them because it seemed like I had

> > >vitamin

> > > > A toxicity, and for a few weeks after stopping the vitamins I

>felt

> > > > really good. Even though they were more than my body could

> > >handle,

> > > > they must have temporarily strengthened my immune system since I

> > >felt

> > > > so good a few weeks after discontinuing them. Now I'm feeling

> > >quite

> > > > poorly, my head throbs, my fingers are swollen, my fingernails

>and

> > > > toenails also throb, and my vision is definitely blurry. I

>notice

> > > > when I don't feel well, my fingers look kind of bluish. I also

> > > > notice my husband is stepping me through things that he never

>had

> > >to

> > > > before, so he must notice my brain fog. Thankful that I've only

> > >got

> > > > a few weeks before surgery on 11/7. I've lost 10 lbs and I was

> > >thin

> > > > to begin with. One thing I've noticed, and I don't know why, is

> > >that

> > > > during my period I often feel better, but the week or two before

> > >my

> > > > period my symptoms get alot worse. I'm on the pill and I think

> > >that

> > > > aggravates my symptoms, because I think the pill lowers your

> > > > immunity, so that might explain why I feel better during my

> > >period,

> > > > because I'm not taking the pill. I'm thankful that I have some

> > > > supportive family members and friends, really thankful to have

> > >found

> > > > this site, and extremely thankful that my husband is finally on

> > >board

> > > > with this (some of you may recall he couldn't accept that these

> > > > implants were making me sick, but I gave him what he wanted and

> > >ruled

> > > > out any other possible illness that my doctors could think of,

> > >plus I

> > > > must thank his sister for yelling at him and somehow getting

> > >through

> > > > to him). Interesting to feel so awful and have bloodwork all

>turn

> > > > out normal. I have pre-surgical vitamins that I'll be taking

> > >prior

> > > > to my surgery, so I'm curious to see if I feel good or bad on

> > >them -

> > > > I want to give them a try, but I think I'll take 2 a day instead

> > >of

> > > > 6, since I showed a sensitivity to too much vitamin A in the

> > >past. I

> > > > don't have a question, I guess I just wanted to reach out to the

> > > > group for support as I prepare to have my surgery. Dr. Feng is

>my

> > > > doctor, I know I'm in good hands, I just ask for your prayers.

> > >When

> > > > I postponed my original surgery of 10/5, I was totally

>distraught

> > >and

> > > > felt hopeless, my husband was a major roadblock and in my heart

>I

> > > > knew Dr. Feng was the right person for the job. I told my

>husband

> > > > that I had two choices, suicide or surgery - and obviously I'm

> > >opting

> > > > for the surgery.

> > > >

> > > > Sis

> > > >

> > >

> > >Opinions expressed are NOT meant to take the place of advice given

>by

> > >licensed health care professionals. Consult your physician or

>licensed

> > >health care professional before commencing any medical treatment.

> > >

> > > " Do not let either the medical authorities or the politicians

>mislead you.

> > >Find out what the facts are, and make your own decisions about how

>to live

> > >a happy life and how to work for a better world. " - Linus ing,

> > >two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> > >

October 14, 2005

Hey - I'm definitely leaning towards skipping the " pill " this

coming month. My doctor put me on them for the hormones, not for

birth control. I went into an early menopause and couldn't sleep and

was having night sweats, and he thought the pill would help. I think

I've got about another week's worth to take, and then I'll see how I

do without them next month. Might be a big help not to be on them

for my surgery and I'll see how I do without them for a while. It's

amazing, now that my husband is on the same page as me, and I've got

the surgery scheduled, I already am starting to feel like I'm getting

my life back. Even though I feel pretty crummy, it feels different

knowing that there's a means to an end. About a month ago I was

about as pathetic as a person can be. I just didn't feel like there

was any way out of this.

>

> I wouldn't put to much thought into the good or bad days at this

time

> and what is causing them, it is par for the course with autoimmune

> issues. They wax and wane and that is the way the disease usually

is.

> Until the implants are out I doubt you will figure out why one day

is

> better than the other because it is just such a roller coaster ride

> when the implants are in your body. I have a suggestion though.... I

> am not sure what you plan to do as far as children or how old you

are

> but if you are wanting kids later on...I would try to find a

different

> method of birth control if you can figure one out that you can

trust.

> I just think hormones are not really good for you right now. Of

course

> if you can't use anything else like condoms (i know hassle) but that

> is what I did ... we used condoms for a bit until we decided no more

> kids and then my husband had a vasectomy. But we have 5 kids between

> us and I am in my early 40's now. If you want kids think about some

> other way you can give your body a break from the horomones at least

> until after your surgery and after you start to get better. this is

> just an opinion and of course you don't have to do it though.

> As for the other stuff I honestly think you will be fine. I am fine

> and it took a bit but I really did get lucky because I can honestly

> say healing was only a struggle for a short time. I pretty much just

> got better and better after my surgery to the point where now I can

> hardly recall being ill. I did take vitamins for awhile and then I

> went off them and when I felt exactly the same I just couldn't see

> spending all that cash on them and I decided to just try to eat my

> vitamins in my healthy food! I am not by any means saying you should

> not try to take supps or anything like that at all, just that if I

got

> better the way I did I am sure you can too and with or without the

> vitamins!

> Anyhow hang in there, you have a fabulous surgeon that really makes

> all the difference in the world!

> hugs

>

> In , " auntsisnj " <auntsisnj@l...>

wrote:

> >

> > Good morning everyone. Had a few weeks where I felt really good,

a

> > little taste of what it might be like to be normal again after 5

> > months of suffering (5 months that feels like years, but I know

there

> > are others who have suffered a whole lot longer than me).

Actually I

> > wonder if feeling good for the last few weeks was in part due to

some

> > vitamins I was taking - I felt good for a few weeks on them, then

> > felt bad and stopped taking them because it seemed like I had

vitamin

> > A toxicity, and for a few weeks after stopping the vitamins I

felt

> > really good. Even though they were more than my body could

handle,

> > they must have temporarily strengthened my immune system since I

felt

> > so good a few weeks after discontinuing them. Now I'm feeling

quite

> > poorly, my head throbs, my fingers are swollen, my fingernails

and

> > toenails also throb, and my vision is definitely blurry. I

notice

> > when I don't feel well, my fingers look kind of bluish. I also

> > notice my husband is stepping me through things that he never had

to

> > before, so he must notice my brain fog. Thankful that I've only

got

> > a few weeks before surgery on 11/7. I've lost 10 lbs and I was

thin

> > to begin with. One thing I've noticed, and I don't know why, is

that

> > during my period I often feel better, but the week or two before

my

> > period my symptoms get alot worse. I'm on the pill and I think

that

> > aggravates my symptoms, because I think the pill lowers your

> > immunity, so that might explain why I feel better during my

period,

> > because I'm not taking the pill. I'm thankful that I have some

> > supportive family members and friends, really thankful to have

found

> > this site, and extremely thankful that my husband is finally on

board

> > with this (some of you may recall he couldn't accept that these

> > implants were making me sick, but I gave him what he wanted and

ruled

> > out any other possible illness that my doctors could think of,

plus I

> > must thank his sister for yelling at him and somehow getting

through

> > to him). Interesting to feel so awful and have bloodwork all

turn

> > out normal. I have pre-surgical vitamins that I'll be taking

prior

> > to my surgery, so I'm curious to see if I feel good or bad on

them -

> > I want to give them a try, but I think I'll take 2 a day instead

of

> > 6, since I showed a sensitivity to too much vitamin A in the

past. I

> > don't have a question, I guess I just wanted to reach out to the

> > group for support as I prepare to have my surgery. Dr. Feng is

my

> > doctor, I know I'm in good hands, I just ask for your prayers.

When

> > I postponed my original surgery of 10/5, I was totally distraught

and

> > felt hopeless, my husband was a major roadblock and in my heart I

> > knew Dr. Feng was the right person for the job. I told my

husband

> > that I had two choices, suicide or surgery - and obviously I'm

opting

> > for the surgery.

> >

> > Sis

> >

>

October 14, 2005

Hi Melinda - I'm starting to feel like a new woman already (or like I

woman I was 6 months ago) - I'm actually looking forward to a few

things we've got planned, instead of feeling like I didn't want to go

anywhere because I didn't know if it would be a good day or a bad

day. Definitely would love to compare healing notes afterwards. I'm

definitely a little scared of feeling worse than I do right now, but

I'm trying to keep that faith that the healing will begin once my

body is rid of this bio-crap!

Sis

>

> Sis,

> Congrats on the upcoming surgery. I'll be having mine on the 5th

with Melmed. Your up-and-down symptoms sound familiar--I've been

having that experience as well. There was awhile there (before I

realized it was the implants that were making me sick) when I started

feeling better--not good, mind you, just a little better--and I

thought I was back on the road to health. But then I started feeling

worse again. I lost weight, too, and weighed less than when I was in

high school! Believe me, it did not look pretty. My partner said I

looked like a POW. Thank goodness I have gained it back. For me,

supplements and herbs have helped alot to get me to a plateau where I

can stand to be alive(instead of being so sick that I wished I was

dead) and now it's just damage control until the Aliens are out.

> I am trying to be really kind to myself until the surgery. Perhaps

you can do the same. Take lots of baths, listen to music, take walks,

eat well, and try and relax. I know for me that stress really makes

me feel worse--I think the higher level of cortisol we produce when

stressed is especially hard on our already overwhelmed bodies.

> Good luck! Let's compare notes on healing afterwards.

> xo

> Melinda

>

> Countdown to Surgery on 11/7

>

> Good morning everyone. Had a few weeks where I felt really good,

a

> little taste of what it might be like to be normal again after 5

> months of suffering (5 months that feels like years, but I know

there

> are others who have suffered a whole lot longer than me).

Actually I

> wonder if feeling good for the last few weeks was in part due to

some

> vitamins I was taking - I felt good for a few weeks on them, then

> felt bad and stopped taking them because it seemed like I had

vitamin

> A toxicity, and for a few weeks after stopping the vitamins I

felt

> really good. Even though they were more than my body could

handle,

> they must have temporarily strengthened my immune system since I

felt

> so good a few weeks after discontinuing them. Now I'm feeling

quite

> poorly, my head throbs, my fingers are swollen, my fingernails

and

> toenails also throb, and my vision is definitely blurry. I

notice

> when I don't feel well, my fingers look kind of bluish. I also

> notice my husband is stepping me through things that he never had

to

> before, so he must notice my brain fog. Thankful that I've only

got

> a few weeks before surgery on 11/7. I've lost 10 lbs and I was

thin

> to begin with. One thing I've noticed, and I don't know why, is

that

> during my period I often feel better, but the week or two before

my

> period my symptoms get alot worse. I'm on the pill and I think

that

> aggravates my symptoms, because I think the pill lowers your

> immunity, so that might explain why I feel better during my

period,

> because I'm not taking the pill. I'm thankful that I have some

> supportive family members and friends, really thankful to have

found

> this site, and extremely thankful that my husband is finally on

board

> with this (some of you may recall he couldn't accept that these

> implants were making me sick, but I gave him what he wanted and

ruled

> out any other possible illness that my doctors could think of,

plus I

> must thank his sister for yelling at him and somehow getting

through

> to him). Interesting to feel so awful and have bloodwork all

turn

> out normal. I have pre-surgical vitamins that I'll be taking

prior

> to my surgery, so I'm curious to see if I feel good or bad on

them -

> I want to give them a try, but I think I'll take 2 a day instead

of

> 6, since I showed a sensitivity to too much vitamin A in the

past. I

> don't have a question, I guess I just wanted to reach out to the

> group for support as I prepare to have my surgery. Dr. Feng is

my

> doctor, I know I'm in good hands, I just ask for your prayers.

When

> I postponed my original surgery of 10/5, I was totally distraught

and

> felt hopeless, my husband was a major roadblock and in my heart I

> knew Dr. Feng was the right person for the job. I told my

husband

> that I had two choices, suicide or surgery - and obviously I'm

opting

> for the surgery.

>

> Sis

>

> Opinions expressed are NOT meant to take the place of advice

given by licensed health care professionals. Consult your physician

or licensed health care professional before commencing any medical

treatment.

>

> " Do not let either the medical authorities or the politicians

mislead you. Find out what the facts are, and make your own decisions

about how to live a happy life and how to work for a better world. " -

Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963,

Peace)

>

October 14, 2005

Are you sure you want to quit the pill just before explantation? Your body

is going to be going through a lot of changes, is it wise to put it through

hormonal changes at the same time? Hormones are tough to balance, I'm

having issues now myself. I don't know if I would want to go through night

sweats and sleeplessness along with surgery. You can always wait until

after you explant and are recovered from surgery. Just a thought...

Kenda

> Hey - I'm definitely leaning towards skipping the " pill " this

> coming month. My doctor put me on them for the hormones, not for

> birth control. I went into an early menopause and couldn't sleep and

> was having night sweats, and he thought the pill would help. I think

> I've got about another week's worth to take, and then I'll see how I

> do without them next month. Might be a big help not to be on them

> for my surgery and I'll see how I do without them for a while. It's

> amazing, now that my husband is on the same page as me, and I've got

> the surgery scheduled, I already am starting to feel like I'm getting

> my life back. Even though I feel pretty crummy, it feels different

> knowing that there's a means to an end. About a month ago I was

> about as pathetic as a person can be. I just didn't feel like there

> was any way out of this.

>

>>>

>>> Good morning everyone. Had a few weeks where I felt really good,

> a

>>> little taste of what it might be like to be normal again after 5

>>> months of suffering (5 months that feels like years, but I know

> there

>>> are others who have suffered a whole lot longer than me).

> Actually I

>>> wonder if feeling good for the last few weeks was in part due to

> some

>>> vitamins I was taking - I felt good for a few weeks on them, then

>>> felt bad and stopped taking them because it seemed like I had

> vitamin

>>> A toxicity, and for a few weeks after stopping the vitamins I

> felt

>>> really good. Even though they were more than my body could

> handle,

>>> they must have temporarily strengthened my immune system since I

> felt

>>> so good a few weeks after discontinuing them. Now I'm feeling

> quite

>>> poorly, my head throbs, my fingers are swollen, my fingernails

> and

>>> toenails also throb, and my vision is definitely blurry. I

> notice

>>> when I don't feel well, my fingers look kind of bluish. I also

>>> notice my husband is stepping me through things that he never had

> to

>>> before, so he must notice my brain fog. Thankful that I've only

> got

>>> a few weeks before surgery on 11/7. I've lost 10 lbs and I was

> thin

>>> to begin with. One thing I've noticed, and I don't know why, is

> that

>>> during my period I often feel better, but the week or two before

> my

>>> period my symptoms get alot worse. I'm on the pill and I think

> that

>>> aggravates my symptoms, because I think the pill lowers your

>>> immunity, so that might explain why I feel better during my

> period,

>>> because I'm not taking the pill. I'm thankful that I have some

>>> supportive family members and friends, really thankful to have

> found

>>> this site, and extremely thankful that my husband is finally on

> board

>>> with this (some of you may recall he couldn't accept that these

>>> implants were making me sick, but I gave him what he wanted and

> ruled

>>> out any other possible illness that my doctors could think of,

> plus I

>>> must thank his sister for yelling at him and somehow getting

> through

>>> to him). Interesting to feel so awful and have bloodwork all

> turn

>>> out normal. I have pre-surgical vitamins that I'll be taking

> prior

>>> to my surgery, so I'm curious to see if I feel good or bad on

> them -

>>> I want to give them a try, but I think I'll take 2 a day instead

> of

>>> 6, since I showed a sensitivity to too much vitamin A in the

> past. I

>>> don't have a question, I guess I just wanted to reach out to the

>>> group for support as I prepare to have my surgery. Dr. Feng is

> my

>>> doctor, I know I'm in good hands, I just ask for your prayers.

> When

>>> I postponed my original surgery of 10/5, I was totally distraught

> and

>>> felt hopeless, my husband was a major roadblock and in my heart I

>>> knew Dr. Feng was the right person for the job. I told my

> husband

>>> that I had two choices, suicide or surgery - and obviously I'm

> opting

>>> for the surgery.

>>>

>>> Sis

>>>

>>

>

> Opinions expressed are NOT meant to take the place of advice given by licensed

> health care professionals. Consult your physician or licensed health care

> professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

> Find out what the facts are, and make your own decisions about how to live a

> happy life and how to work for a better world. " - Linus ing, two-time

> Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

October 14, 2005

All of our hormones must be in balance or we will notice symptoms.

They are intricately tied in with just about every bodily function

including immune function. That is why so many women notice so many

symptoms during certain parts of their cycles. And being in

menopause--surgical or not--can play havoc with everything going on

in your body. But so can taking artificial hormones. I would

suggest having saliva testing for all your hormones--adrenal,

cortisol, estrogen, progesterone, testosterone, etc. and then go to

someone skilled in balancing them with bioidentical hormones---these

are usually made to order and done at a compounding pharmacy. they

ar not synthetic. It will be very important for you to have your

hormone imbalances addressed in order to make good progress in

feeling well. Good luck.

Hugs, kathy

> > >

> > > Good morning everyone. Had a few weeks where I felt really

good,

> a

> > > little taste of what it might be like to be normal again after

5

> > > months of suffering (5 months that feels like years, but I

know

> there

> > > are others who have suffered a whole lot longer than me).

> Actually I

> > > wonder if feeling good for the last few weeks was in part due

to

> some

> > > vitamins I was taking - I felt good for a few weeks on them,

then

> > > felt bad and stopped taking them because it seemed like I had

> vitamin

> > > A toxicity, and for a few weeks after stopping the vitamins I

> felt

> > > really good. Even though they were more than my body could

> handle,

> > > they must have temporarily strengthened my immune system since

I

> felt

> > > so good a few weeks after discontinuing them. Now I'm feeling

> quite

> > > poorly, my head throbs, my fingers are swollen, my fingernails

> and

> > > toenails also throb, and my vision is definitely blurry. I

> notice

> > > when I don't feel well, my fingers look kind of bluish. I

also

> > > notice my husband is stepping me through things that he never

had

> to

> > > before, so he must notice my brain fog. Thankful that I've

only

> got

> > > a few weeks before surgery on 11/7. I've lost 10 lbs and I

was

> thin

> > > to begin with. One thing I've noticed, and I don't know why,

is

> that

> > > during my period I often feel better, but the week or two

before

> my

> > > period my symptoms get alot worse. I'm on the pill and I

think

> that

> > > aggravates my symptoms, because I think the pill lowers your

> > > immunity, so that might explain why I feel better during my

> period,

> > > because I'm not taking the pill. I'm thankful that I have

some

> > > supportive family members and friends, really thankful to have

> found

> > > this site, and extremely thankful that my husband is finally

on

> board

> > > with this (some of you may recall he couldn't accept that

these

> > > implants were making me sick, but I gave him what he wanted

and

> ruled

> > > out any other possible illness that my doctors could think of,

> plus I

> > > must thank his sister for yelling at him and somehow getting

> through

> > > to him). Interesting to feel so awful and have bloodwork all

> turn

> > > out normal. I have pre-surgical vitamins that I'll be taking

> prior

> > > to my surgery, so I'm curious to see if I feel good or bad on

> them -

> > > I want to give them a try, but I think I'll take 2 a day

instead

> of

> > > 6, since I showed a sensitivity to too much vitamin A in the

> past. I

> > > don't have a question, I guess I just wanted to reach out to

the

> > > group for support as I prepare to have my surgery. Dr. Feng

is

> my

> > > doctor, I know I'm in good hands, I just ask for your

prayers.

> When

> > > I postponed my original surgery of 10/5, I was totally

distraught

> and

> > > felt hopeless, my husband was a major roadblock and in my

heart I

> > > knew Dr. Feng was the right person for the job. I told my

> husband

> > > that I had two choices, suicide or surgery - and obviously I'm

> opting

> > > for the surgery.

> > >

> > > Sis

> > >

> >

>

October 14, 2005

That's a good point. Might not be a bad idea to wait until the following month.

----- Original Message -----From: "Kenda Skaggs" Subject: Re: Re: Countdown to Surgery on 11/7Date: Fri, 14 Oct 2005 22:17:35 -0500Are you sure you want to quit the pill just before explantation? Your bodyis going to be going through a lot of changes, is it wise to put it throughhormonal changes at the same time? Hormones are tough to balance, I'mhaving issues now myself. I don't know if I would want to go through nightsweats and sleeplessness along with surgery. You can always wait untilafter you explant and are recovered from surgery. Just a thought...Kenda> Hey - I'm definitely leaning towards skipping the "pill" this> coming month. My doctor put me on them for the hormones, not for> birth control. I went into an early menopause and couldn't sleep and> was having night sweats, and he thought the pill would help. I think> I've got about another week's worth to take, and then I'll see how I> do without them next month. Might be a big help not to be on them> for my surgery and I'll see how I do without them for a while. It's> amazing, now that my husband is on the same page as me, and I've got> the surgery scheduled, I already am starting to feel like I'm getting> my life back. Even though I feel pretty crummy, it feels different> knowing that there's a means to an end. About a month ago I was> about as pathetic as a person can be. I just didn't feel like there> was any way out of this.> > >>> >>> Good morning everyone. Had a few weeks where I felt really good,> a >>> little taste of what it might be like to be normal again after 5>>> months of suffering (5 months that feels like years, but I know> there >>> are others who have suffered a whole lot longer than me).> Actually I >>> wonder if feeling good for the last few weeks was in part due to> some >>> vitamins I was taking - I felt good for a few weeks on them, then>>> felt bad and stopped taking them because it seemed like I had> vitamin >>> A toxicity, and for a few weeks after stopping the vitamins I> felt >>> really good. Even though they were more than my body could> handle, >>> they must have temporarily strengthened my immune system since I> felt >>> so good a few weeks after discontinuing them. Now I'm feeling> quite >>> poorly, my head throbs, my fingers are swollen, my fingernails> and >>> toenails also throb, and my vision is definitely blurry. I> notice >>> when I don't feel well, my fingers look kind of bluish. I also>>> notice my husband is stepping me through things that he never had> to >>> before, so he must notice my brain fog. Thankful that I've only> got >>> a few weeks before surgery on 11/7. I've lost 10 lbs and I was> thin >>> to begin with. One thing I've noticed, and I don't know why, is> that >>> during my period I often feel better, but the week or two before> my >>> period my symptoms get alot worse. I'm on the pill and I think> that >>> aggravates my symptoms, because I think the pill lowers your>>> immunity, so that might explain why I feel better during my> period, >>> because I'm not taking the pill. I'm thankful that I have some>>> supportive family members and friends, really thankful to have> found >>> this site, and extremely thankful that my husband is finally on> board >>> with this (some of you may recall he couldn't accept that these>>> implants were making me sick, but I gave him what he wanted and> ruled >>> out any other possible illness that my doctors could think of,> plus I >>> must thank his sister for yelling at him and somehow getting> through >>> to him). Interesting to feel so awful and have bloodwork all> turn >>> out normal. I have pre-surgical vitamins that I'll be taking> prior >>> to my surgery, so I'm curious to see if I feel good or bad on> them - >>> I want to give them a try, but I think I'll take 2 a day instead> of >>> 6, since I showed a sensitivity to too much vitamin A in the> past. I >>> don't have a question, I guess I just wanted to reach out to the>>> group for support as I prepare to have my surgery. Dr. Feng is> my >>> doctor, I know I'm in good hands, I just ask for your prayers.> When >>> I postponed my original surgery of 10/5, I was totally distraught> and >>> felt hopeless, my husband was a major roadblock and in my heart I>>> knew Dr. Feng was the right person for the job. I told my> husband >>> that I had two choices, suicide or surgery - and obviously I'm> opting >>> for the surgery.>>> >>> Sis>>> >> > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed> health care professionals. Consult your physician or licensed health care> professional before commencing any medical treatment.> > "Do not let either the medical authorities or the politicians mislead you.> Find out what the facts are, and make your own decisions about how to live a> happy life and how to work for a better world." - Linus ing, two-time> Nobel Prize Winner (1954, Chemistry; 1963, Peace)> >

October 15, 2005

Kathy - I never heard of a compounding pharmacy. How would I go

about finding something like that? Also, who does saliva tests,

regular labs?

Sis

> > > >

> > > > Good morning everyone. Had a few weeks where I felt really

> good,

> > a

> > > > little taste of what it might be like to be normal again

after

> 5

> > > > months of suffering (5 months that feels like years, but I

> know

> > there

> > > > are others who have suffered a whole lot longer than me).

> > Actually I

> > > > wonder if feeling good for the last few weeks was in part due

> to

> > some

> > > > vitamins I was taking - I felt good for a few weeks on them,

> then

> > > > felt bad and stopped taking them because it seemed like I had

> > vitamin

> > > > A toxicity, and for a few weeks after stopping the vitamins I

> > felt

> > > > really good. Even though they were more than my body could

> > handle,

> > > > they must have temporarily strengthened my immune system

since

> I

> > felt

> > > > so good a few weeks after discontinuing them. Now I'm

feeling

> > quite

> > > > poorly, my head throbs, my fingers are swollen, my

fingernails

> > and

> > > > toenails also throb, and my vision is definitely blurry. I

> > notice

> > > > when I don't feel well, my fingers look kind of bluish. I

> also

> > > > notice my husband is stepping me through things that he never

> had

> > to

> > > > before, so he must notice my brain fog. Thankful that I've

> only

> > got

> > > > a few weeks before surgery on 11/7. I've lost 10 lbs and I

> was

> > thin

> > > > to begin with. One thing I've noticed, and I don't know why,

> is

> > that

> > > > during my period I often feel better, but the week or two

> before

> > my

> > > > period my symptoms get alot worse. I'm on the pill and I

> think

> > that

> > > > aggravates my symptoms, because I think the pill lowers your

> > > > immunity, so that might explain why I feel better during my

> > period,

> > > > because I'm not taking the pill. I'm thankful that I have

> some

> > > > supportive family members and friends, really thankful to

have

> > found

> > > > this site, and extremely thankful that my husband is finally

> on

> > board

> > > > with this (some of you may recall he couldn't accept that

> these

> > > > implants were making me sick, but I gave him what he wanted

> and

> > ruled

> > > > out any other possible illness that my doctors could think

of,

> > plus I

> > > > must thank his sister for yelling at him and somehow getting

> > through

> > > > to him). Interesting to feel so awful and have bloodwork all

> > turn

> > > > out normal. I have pre-surgical vitamins that I'll be taking

> > prior

> > > > to my surgery, so I'm curious to see if I feel good or bad on

> > them -

> > > > I want to give them a try, but I think I'll take 2 a day

> instead

> > of

> > > > 6, since I showed a sensitivity to too much vitamin A in the

> > past. I

> > > > don't have a question, I guess I just wanted to reach out to

> the

> > > > group for support as I prepare to have my surgery. Dr. Feng

> is

> > my

> > > > doctor, I know I'm in good hands, I just ask for your

> prayers.

> > When

> > > > I postponed my original surgery of 10/5, I was totally

> distraught

> > and

> > > > felt hopeless, my husband was a major roadblock and in my

> heart I

> > > > knew Dr. Feng was the right person for the job. I told my

> > husband

> > > > that I had two choices, suicide or surgery - and obviously

I'm

> > opting

> > > > for the surgery.

> > > >

> > > > Sis

> > > >

> > >

> >

>

October 15, 2005

I am really really happy for you that your surgery is coming, I

remember the feeling of waiting for that day to come and it was such a

long wait but then it came and went as all things do and don't be

surprised if you feel a bit depressed for a little while, or it may be

just the opposite but just be prepared. As for the pill I would ask

your Dr if you should just quit it right away or if the recomend some

type of taper before you just stop it, but for me I never had any

problems just stopping BCP pills.

I would still speak to your Dr. but I would think it will help your

body heal faster to not have the extra hormones, however, if your

taking them for early menopause then that is something different than

just trying to not get pregnant and I don't know if you will need

another hormone replacement or not. There are bioidentical hormones

now a days that are supposed to be really good. You may want to look

into finding a Dr that can help you with these.

Again good luck and just hang in there...the day is coming.

Hugs