Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 writes: She told me she has about 150 patients on the Wiley program. But she counts you as on Wiley and you're clearly not with that low progesterone dose. So that figure of 150 she gives isn't remotely reliable. She may call anybody who is cycling "on Wiley." Given Leah's loose definition, we have no idea if she has even one single patient on Wiley. L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 You know, I am just the messenger here. I guess you all can ask Leah. I never had heard of Wiley or her book before Leah told me about her last fall. I have told you all what I know. This nitpicking about titles and labels seems a bit over the top to me. Leah is VERY laid back just like most people in Santa Fe, it is that kind of town. We don't get hung up on this kind of nitpicking. Leah said she NEVER would have considered the high levels of hormones, and was very skeptical of the Wiley program at first for that reason. And then she learned quickly it couldn't be done by the book, it had to be individualized. It sounds like a good doctor to me. I am glad she is mine. The fundamentalism on this list sounds to me like the Baptist Church I recovered from by having to go to Baylor University to get my first degree! LOL I don't give a hoot what she wants to call the program. She made me read the book and decide if I wanted to try it and that is what we are doing, TO FIT MY INDIVIDUAL NEEDS. If she didn't do it that way, it sounds to me like it could lead to a great lawsuit! I want her to care for me, not make me want to suit her because she puts a silly rigid program above what works! It is called creative science. I left most MDs over the years due to their rigidity. Leah is a breath of fresh air. --- Original Message ----- From: lynnelalala@... To: rhythmicliving Sent: Monday, March 27, 2006 4:14 PM Subject: Re: Where's Wiley? writes: She told me she has about 150 patients on the Wiley program. But she counts you as on Wiley and you're clearly not with that low progesterone dose. So that figure of 150 she gives isn't remotely reliable. She may call anybody who is cycling "on Wiley." Given Leah's loose definition, we have no idea if she has even one single patient on Wiley. L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 McIlhaney's wrote: You know, I am just the messenger here. And then she learned quickly it couldn't be done by the book, it had to be individualized. It sounds like a good doctor to me. You are absolutely right, a good doctor should have the wellfare of their patients in mind foremost, never mind THE PROTOCOL. There was a woman here on the list who was treated early on by Leah and she had lots of problems with P, she was bloated and ended up in ER. I am sure Leah learned plenty from cases like hers and others. I have a new gyno and she is familiar with the Wiley protocol, but the first thing out of her mouth was that the P was too high for most of her patients. She had no problem lowering the doses. The fundamentalism on this list sounds to me like the Baptist Church I recovered from by having to go to Baylor University to get my first degree! LOL I don't give a hoot what she wants to call the program. Geez saying we are fundamentalists is scary! We are far from that, I assure you. Bottomline we want to feel good with our hormonal regimen whatever it takes. But politics are politics and the Wiley team does make claims they have treated something like 3,000 women successfully. I know for a fact that many women, who are ordering the "Wiley protocol" are using a\it as they see fit. And well they should. So all Lynne is saying that the "data" may well be misleading to newcomers. Obviously we are concerned about women who want to start this protocol, esp with a naive doctor. We do not want them to go through what we went through. Thank goodness this is not the case in your situation, but I am approving new members daily and it is important they realize what they are getting into. It took us many months to recover from the Wiley doses and some of us, as you have read here, are still struggling. We are not nitpciking you, we are hoping to inform you and other newcomers with what we have discovered. And we are 200+ members on this list and no slouches either. We are very well educated and concerned. Madeleen --- Original Message ----- From: lynnelalala@... To: rhythmicliving Sent: Monday, March 27, 2006 4:14 PM Subject: Re: Where's Wiley? writes: She told me she has about 150 patients on the Wiley program. But she counts you as on Wiley and you're clearly not with that low progesterone dose. So that figure of 150 she gives isn't remotely reliable. She may call anybody who is cycling "on Wiley." Given Leah's loose definition, we have no idea if she has even one single patient on Wiley. L Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 I am one of those still recovering for the last year or so. Not sure if I will ever feel the same again. I had to go onto Zoloft, Ambien and xanex. Almost done weaning off the xanex but I"m far from recovered. Liz McIlhaney's wrote: It took us many months to recover from the Wiley doses and some of us, as you have read here, are still struggling. We are not nitpciking you, we are hoping to inform you and other newcomers with what we have discovered. And we are 200+ members on thi! s list and no slouches either. We are very well educated and concerned. Madeleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Great! This is a good list then, if all those questions are to help me and us. Keep it up gals, and I will try to answer as best I can. I sure am learning a lot of questions to ask Leah when I see her again! LOL Since she hasn't taken new patients since the late 1990s as far as I know, I probably am the only newbie she has on this program now, unless some of her older patients are just needing the hormone therapy due to when they enter menopause. I got the idea she has a group of women on the program and has for some time, but isn't regularly putting new women on it because she isn't taking new patients. So I think I am sort of an isolated case, although her husband is taking new patients and from what I understand, he is helping them do Wiley too, if they want. It was very clear to me that her staff was being VERY diligent in taking care of me VERY WELL. I never have known a doctor's office to give us so much phone access and so promptly!!!! Now I am understanding more than ever why!! Re: Where's Wiley? writes: She told me she has about 150 patients on the Wiley program. But she counts you as on Wiley and you're clearly not with that low progesterone dose. So that figure of 150 she gives isn't remotely reliable. She may call anybody who is cycling "on Wiley." Given Leah's loose definition, we have no idea if she has even one single patient on Wiley. L Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 My ex husband (we are still friends) who was educated at Tulane and Harvard and taught at the latter always said I never really got an education at Baylor, speaking of education....LOL So whether I myself am well educated is up for discussion! LOL Re: Where's Wiley? writes: She told me she has about 150 patients on the Wiley program. But she counts you as on Wiley and you're clearly not with that low progesterone dose. So that figure of 150 she gives isn't remotely reliable. She may call anybody who is cycling "on Wiley." Given Leah's loose definition, we have no idea if she has even one single patient on Wiley. L Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 I think she thinks it's " basic Wiley " because women are taking 8 mg doses of E. That is totally unheard of the real bioidentical " world " . You know how doctors like to give low low doses of E. So maybe that's why this doctor considers these women no " basic Wiley " . But it really is not an accurate description of what these women are doing. Even basic Wiley is a suicide mission! > > writes: > > She told me she has about 150 patients on the Wiley program. > But she counts you as on Wiley and you're clearly not with that low > progesterone dose. So that figure of 150 she gives isn't remotely reliable. She may > call anybody who is cycling " on Wiley. " > > Given Leah's loose definition, we have no idea if she has even one single > patient on Wiley. > > L > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 > > Message: 12 > Date: Fri, 31 Mar 2006 14:16:50 -0700 > > Subject: Re: Re: Where's Wiley? > > They beat up on me there just as much as I feel like some people do on > this list! LOL > > I just wanna have fun.....LOL > ..... please tell us you don't wonder why...???!.... What you need to understand is that many of the women on here have been seriously hurt and still are by having trustingly followed the Wiley Protocol... not only were they 'scammed' by a poorly tested protocol, they were also treated in a most degrading and dismissive manner... you need to back off a bit and realize that as much as you are singing praises to a modified protocol you are following, Wiley or not, that there are indeed tender feelings here...No one is in a playful mood on this level. Health and lives have been harmed. was as straight as she could be in her response to you... I just wonder what you are really looking for... fun?... at whose expense? Good Bye, Eileen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Laurel's comments below Eileen's well written post. ..... please tell us you don't wonder why...???!.... What you need to understand is that many of the women on here have been seriously hurt and still are by having trustingly followed the Wiley Protocol... not only were they 'scammed' by a poorly tested protocol, they were also treated in a most degrading and dismissive manner... you need to back off a bit and realize that as much as you are singing praises to a modified protocol you are following, Wiley or not, that there are indeed tender feelings here...No one is in a playful mood on this level. Health and lives have been harmed. was as straight as she could be in her response to you... I just wonder what you are really looking for... fun?... at whose expense? Good Bye, Eileen _________________________________________ Eileen, Thank you for taking the time to write this excellent note. My only addition is that it would be more accurate to say that the protocol was never tested rather than even ‘poorly’ tested. Trying it out “on my girlfriends” does not constitute a private study (even ‘private studies’ must be registered). The publisher was extremely irresponsible to publish that protocol. Dr. Formby told them there was no science to support the dosing schedule at the time of publishing (reminds me of a Million Little Pieces). There was only science to support the idea of rhythmic replacement. And I’ll repeat. Rhythmic replacement was not Wiley’s idea. When I asked Dr. Formby about it he said something close to, “oh no, everyone thought about that since we were able to measure the hormone vales during a menstrual cycle which happened in the 50’s”. Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 God forbid! But trust me, if you go applying 6200 mg of P in 2 weeks time, you'll see what happens! > > > If it is a suicide mission and I die, I will try to contact you all from 'the other side,' to let you know for sure! LOL > > > > Re: Where's Wiley? > > > I think she thinks it's " basic Wiley " because women are taking 8 mg > doses of E. That is totally unheard of the real bioidentical " world " . > You know how doctors like to give low low doses of E. So maybe that's > why this doctor considers these women no " basic Wiley " . But it really > is not an accurate description of what these women are doing. Even > basic Wiley is a suicide mission! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Yes, I plan to. Thanks for the support and understanding. Re: Where's Wiley? - No problem. We all are after the same thing here -- to feel good! I guess Wiley opened the door to high E and that is a good thing. You should show your doctor those responses from the Wiley group just so she knows where they are coming from. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Oh sure. Hang in there! You seem to be doing well. > > Yes, I plan to. Thanks for the support and understanding. > > Re: Where's Wiley? > > > - No problem. We all are after the same thing here -- to > feel good! I guess Wiley opened the door to high E and that is a > good thing. You should show your doctor those responses from the > Wiley group just so she knows where they are coming from. > > > > Quote Link to comment Share on other sites More sharing options...
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