Re: Will I ever feel better? Some things that helped me...

[Guest guest]

Molly

That was a wonderfully inspiring post. Thank you for sharing!

Hugs, kathy

--- In , " MollyBloom54 " <mollyb54@b...>

wrote:

> Hi Ladies,

> I emailed this to someone tonight (or this morning)...and I

thought maybe it would be

> good to post.

>

> Like some others here, I wondered if I would ever feel better.

About two years ago, I was

> as frightened as I have ever been. I had just found out my 20-

year old double-lumen

> implants were ruptured, and I was being diagnosed with one

autoimmune illness after

> another. So I started franticaly asking questions, trying to

figure out what was going on.

>

> If there is one piece of advice that I would offer to 'new' women

here, it is to be patient

> with yourself and recognize that healing takes time. This is not

easy for me to do, since I

> have always been somewhat driven. As a result, I struggled with

serious depression

> before and after my explant. Only in the last few months did I

start really believing I might

> yet have a life.

>

> One thing that did help was learning that what I was experiencing

was neither unusual,

> nor was it likely to be permanent.

>

> 1. Statistics show that most women DO improve after explant.

> I was terrified because of the decline of my health and the

discovery that my implants

> were ruptured. I spoke to some women who had been far more ill

than I. A nurse who

> had worked for Cronin (the implant inventor), had become so ill

that she was in a

> wheelchair. She told me that an MRI of her brain had shown

many 'lesions' (which indicate

> MS). Yet now, her MRI is clear! I didn't believe her. What I

had read of MS, once you

> have it, it does not go away. However, a neurologist I saw

confirmed this possibility. Dr.

> Weiss said that some women with silicone implants have symptoms of

MS and even MRIs

> indicating demyelination, but do not have 'actual' MS. And

women who have 'actual' MS

> still fare better than those whose illness is unrelated to

implants. This was particularly

> important to me, since Dr. Weiss was the third neurologist who

told me that I had MS

> (from clinical observation, MRIs and spinal tap).

>

> Dr. Weiss told me that he has seen far too many women with

implants to believe the

> accepted wisdom that implants do not cause autoimmune illnesses,

like MS. However, the

> course of these autoimmune illnesses is generally less severe with

women who have had

> silicone implants and have had them removed, than with patients

who never had implants.

> Dr. Weiss impressed me with his knowledge and intelligence. He

certainly did not look or

> sound like a 'crack-pot'. I also looked up his record online (as

I do with all doctors now)

> and found that he received his MD from Northwestern University and

did his residency at

> Mayo Clinic, and has practiced for many years with no blemish on

his record. Not that

> credentials are everything, but these sure are not shabby. I was

beginning to have some

> hope.

>

> 2. The improvement can take time. I can't tell you how

important it was to remind myself

> of this. First, it can take up to a month after surgery for the

anesthesia to leave your

> system. The nurse told me to expect short term memory loss during

this time - beyond

> the 'fibro-fog' that many of us already experience. Knowing that

also helped, because my

> memory seemed to worsen after surgery! Secondly, Dr. Vasey, a

rheumatologist familiar

> with implant issues, explains that surgery 'stirs up' the immune

system -- thus it can take

> up to a year for women to feel noticeably better. I am sure there

is a more accurate

> medical explanation than that, but this made sense to me. The

systemic illnesses we get

> from implants develop as a result of an over-active immune system

reacting to foreign

> substances. I was diagnosed with multiple autoimmune diseases,

just prior to my explant.

> And it did take about a year before I could see that my health was

improving. I still have a

> long way to go, but I am so much better than I was. The best way

that I have found to lift

> my spirits and regain perspective is by talking with other women

who have gone through

> what I have.

>

> I sure hope this helps.. Creativity and a fertile imagination

can be a blessing, but they can

> also be a curse -- especially when it comes to imagining the

worst.

> So turn on the 'positive' colors, and imagine yourself turning a

corner with explant

> surgery. Instead of being splattered onto asphalt from 30,000

ft, you are being whisked

> into a lush garden of vibrant energy, and clear (not toxic) air.

[Guest guest]

Hi Molly,

Thank you for this. It gives me a bit of hope.

DarleneMollyBloom54 <mollyb54@...> wrote:

Hi Ladies,I emailed this to someone tonight (or this morning)...and I thought maybe it would be good to post. Like some others here, I wondered if I would ever feel better. About two years ago, I was as frightened as I have ever been. I had just found out my 20-year old double-lumen implants were ruptured, and I was being diagnosed with one autoimmune illness after another. So I started franticaly asking questions, trying to figure out what was going on.If there is one piece of advice that I would offer to 'new' women here, it is to be patient with yourself and recognize that healing takes time. This is not easy for me to do, since I have always been somewhat driven. As a result, I struggled with serious depression before and after my explant. Only in the last few months did I start really

believing I might yet have a life.One thing that did help was learning that what I was experiencing was neither unusual, nor was it likely to be permanent. 1. Statistics show that most women DO improve after explant. I was terrified because of the decline of my health and the discovery that my implants were ruptured. I spoke to some women who had been far more ill than I. A nurse who had worked for Cronin (the implant inventor), had become so ill that she was in a wheelchair. She told me that an MRI of her brain had shown many 'lesions' (which indicate MS). Yet now, her MRI is clear! I didn't believe her. What I had read of MS, once you have it, it does not go away. However, a neurologist I saw confirmed this possibility. Dr. Weiss said that some women with silicone implants have symptoms of MS and even MRIs indicating

demyelination, but do not have 'actual' MS. And women who have 'actual' MS still fare better than those whose illness is unrelated to implants. This was particularly important to me, since Dr. Weiss was the third neurologist who told me that I had MS (from clinical observation, MRIs and spinal tap). Dr. Weiss told me that he has seen far too many women with implants to believe the accepted wisdom that implants do not cause autoimmune illnesses, like MS. However, the course of these autoimmune illnesses is generally less severe with women who have had silicone implants and have had them removed, than with patients who never had implants. Dr. Weiss impressed me with his knowledge and intelligence. He certainly did not look or sound like a 'crack-pot'. I also looked up his record online (as I do with all doctors now) and found that he received his MD from Northwestern

University and did his residency at Mayo Clinic, and has practiced for many years with no blemish on his record. Not that credentials are everything, but these sure are not shabby. I was beginning to have some hope.2. The improvement can take time. I can't tell you how important it was to remind myself of this. First, it can take up to a month after surgery for the anesthesia to leave your system. The nurse told me to expect short term memory loss during this time - beyond the 'fibro-fog' that many of us already experience. Knowing that also helped, because my memory seemed to worsen after surgery! Secondly, Dr. Vasey, a rheumatologist familiar with implant issues, explains that surgery 'stirs up' the immune system -- thus it can take up to a year for women to feel noticeably better. I am sure there is a more accurate medical explanation than that, but this

made sense to me. The systemic illnesses we get from implants develop as a result of an over-active immune system reacting to foreign substances. I was diagnosed with multiple autoimmune diseases, just prior to my explant. And it did take about a year before I could see that my health was improving. I still have a long way to go, but I am so much better than I was. The best way that I have found to lift my spirits and regain perspective is by talking with other women who have gone through what I have. I sure hope this helps.. Creativity and a fertile imagination can be a blessing, but they can also be a curse -- especially when it comes to imagining the worst. So turn on the 'positive' colors, and imagine yourself turning a corner with explant surgery. Instead of being splattered onto asphalt from 30,000 ft, you are being whisked into a lush garden of vibrant

energy, and clear (not toxic) air.

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

You bet. ;-)

> Hi Ladies,

> I emailed this to someone tonight (or this morning)...and I thought maybe it

would be

> good to post.

>

> Like some others here, I wondered if I would ever feel better. About two

years ago, I

was

> as frightened as I have ever been. I had just found out my 20-year old

double-lumen

> implants were ruptured, and I was being diagnosed with one autoimmune illness

after

> another. So I started franticaly asking questions, trying to figure out what

was going on.

>

> If there is one piece of advice that I would offer to 'new' women here, it is

to be patient

> with yourself and recognize that healing takes time. This is not easy for me

to do, since

I

> have always been somewhat driven. As a result, I struggled with serious

depression

> before and after my explant. Only in the last few months did I start really

believing I

might

> yet have a life.

>

> One thing that did help was learning that what I was experiencing was neither

unusual,

> nor was it likely to be permanent.

>

> 1. Statistics show that most women DO improve after explant.

> I was terrified because of the decline of my health and the discovery that my

implants

> were ruptured. I spoke to some women who had been far more ill than I. A

nurse who

> had worked for Cronin (the implant inventor), had become so ill that she was

in a

> wheelchair. She told me that an MRI of her brain had shown many 'lesions'

(which

indicate

> MS). Yet now, her MRI is clear! I didn't believe her. What I had read of

MS, once you

> have it, it does not go away. However, a neurologist I saw confirmed this

possibility.

Dr.

> Weiss said that some women with silicone implants have symptoms of MS and even

MRIs

> indicating demyelination, but do not have 'actual' MS. And women who have

'actual'

MS

> still fare better than those whose illness is unrelated to implants. This was

particularly

> important to me, since Dr. Weiss was the third neurologist who told me that I

had MS

> (from clinical observation, MRIs and spinal tap).

>

> Dr. Weiss told me that he has seen far too many women with implants to believe

the

> accepted wisdom that implants do not cause autoimmune illnesses, like MS.

However,

the

> course of these autoimmune illnesses is generally less severe with women who

have had

> silicone implants and have had them removed, than with patients who never had

implants.

> Dr. Weiss impressed me with his knowledge and intelligence. He certainly did

not look

or

> sound like a 'crack-pot'. I also looked up his record online (as I do with

all doctors now)

> and found that he received his MD from Northwestern University and did his

residency

at

> Mayo Clinic, and has practiced for many years with no blemish on his record.

Not that

> credentials are everything, but these sure are not shabby. I was beginning to

have some

> hope.

>

> 2. The improvement can take time. I can't tell you how important it was to

remind

myself

> of this. First, it can take up to a month after surgery for the anesthesia to

leave your

> system. The nurse told me to expect short term memory loss during this time -

beyond

> the 'fibro-fog' that many of us already experience. Knowing that also

helped, because

my

> memory seemed to worsen after surgery! Secondly, Dr. Vasey, a

rheumatologist

familiar

> with implant issues, explains that surgery 'stirs up' the immune system --

thus it can

take

> up to a year for women to feel noticeably better. I am sure there is a more

accurate

> medical explanation than that, but this made sense to me. The systemic

illnesses we

get

> from implants develop as a result of an over-active immune system reacting to

foreign

> substances. I was diagnosed with multiple autoimmune diseases, just prior to

my

explant.

> And it did take about a year before I could see that my health was improving.

I still have

a

> long way to go, but I am so much better than I was. The best way that I have

found to

lift

> my spirits and regain perspective is by talking with other women who have gone

through

> what I have.

>

> I sure hope this helps.. Creativity and a fertile imagination can be a

blessing, but they

can

> also be a curse -- especially when it comes to imagining the worst.

> So turn on the 'positive' colors, and imagine yourself turning a corner with

explant

> surgery. Instead of being splattered onto asphalt from 30,000 ft, you are

being

whisked

> into a lush garden of vibrant energy, and clear (not toxic) air.

>

>

>

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given by licensed

health

care professionals. Consult your physician or licensed health care professional

before

commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

Find out what

the facts are, and make your own decisions about how to live a happy life and

how to work

for a better world. " - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963,

Peace)

>

>

[Guest guest]

Hi Lea-

Thank you! You have been so supportive.

Also I wanted to mention that my husband reminded me that he had blood from his

rectum before - It was colitis. Not deadly, but very painful and very annoying.

So there can be many reasons for bleeding liket his - do not panic, dear...

BUT DO insist on talkign to your doctor TODAY.

Love you,

M

> Darling Molly:

>

> Thank you for this. You have given me hope that I will get better one day.

> This is an excellent post and I'm so glad that you took the time to write

> it. When you write about what your heart tells you, it is so therapeutic. I

> find that when I put my feelings on paper it helps to empty the bucket. I

> did not know that lesions on the brain can go away, mine are still there,

> but I'm do to have another MRI soon.

>

> Honey, I know that you will get better because you have a very positive

> attitude. My friend Nathalie had the double lumen and then a saline implant

> that had a faulty valve. She is flat and has no implant and has had a

> little boy two years ago after being explanted. She was born with only one

> breast and her Mother gave her a breast implant for her sixteenth birthday.

> Nathalie had her double lumen for fifteen years and of course it was

> ruptured. She has some foot problems and weight problems, but is healthy

> enough to work. We are good friends and BMS settled with her, she is one

> lady that they would not want to mess with. Nathalie will write her story,

> but she has been gaged which means that she will have to change her name.

> They will not gag me.

>

> I see that you are not sleeping very well, your mind is too busy.

>

> Good luck and please stay close...love you................Lea

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

> Will I ever feel better? Some things that helped

> me...

>

>

> > Hi Ladies,

> > I emailed this to someone tonight (or this morning)...and I thought maybe

> > it would be

> > good to post.

> >

> > Like some others here, I wondered if I would ever feel better. About two

> > years ago, I was

> > as frightened as I have ever been. I had just found out my 20-year old

> > double-lumen

> > implants were ruptured, and I was being diagnosed with one autoimmune

> > illness after

> > another. So I started franticaly asking questions, trying to figure out

> > what was going on.

> >

> > If there is one piece of advice that I would offer to 'new' women here, it

> > is to be patient

> > with yourself and recognize that healing takes time. This is not easy for

> > me to do, since I

> > have always been somewhat driven. As a result, I struggled with serious

> > depression

> > before and after my explant. Only in the last few months did I start

> > really believing I might

> > yet have a life.

> >

> > One thing that did help was learning that what I was experiencing was

> > neither unusual,

> > nor was it likely to be permanent.

> >

> > 1. Statistics show that most women DO improve after explant.

> > I was terrified because of the decline of my health and the discovery

> > that my implants

> > were ruptured. I spoke to some women who had been far more ill than I.

> > A nurse who

> > had worked for Cronin (the implant inventor), had become so ill that she

> > was in a

> > wheelchair. She told me that an MRI of her brain had shown many 'lesions'

> > (which indicate

> > MS). Yet now, her MRI is clear! I didn't believe her. What I had read

> > of MS, once you

> > have it, it does not go away. However, a neurologist I saw confirmed this

> > possibility. Dr.

> > Weiss said that some women with silicone implants have symptoms of MS and

> > even MRIs

> > indicating demyelination, but do not have 'actual' MS. And women who

> > have 'actual' MS

> > still fare better than those whose illness is unrelated to implants. This

> > was particularly

> > important to me, since Dr. Weiss was the third neurologist who told me

> > that I had MS

> > (from clinical observation, MRIs and spinal tap).

> >

> > Dr. Weiss told me that he has seen far too many women with implants to

> > believe the

> > accepted wisdom that implants do not cause autoimmune illnesses, like MS.

> > However, the

> > course of these autoimmune illnesses is generally less severe with women

> > who have had

> > silicone implants and have had them removed, than with patients who never

> > had implants.

> > Dr. Weiss impressed me with his knowledge and intelligence. He certainly

> > did not look or

> > sound like a 'crack-pot'. I also looked up his record online (as I do

> > with all doctors now)

> > and found that he received his MD from Northwestern University and did his

> > residency at

> > Mayo Clinic, and has practiced for many years with no blemish on his

> > record. Not that

> > credentials are everything, but these sure are not shabby. I was

> > beginning to have some

> > hope.

> >

> > 2. The improvement can take time. I can't tell you how important it was

> > to remind myself

> > of this. First, it can take up to a month after surgery for the

> > anesthesia to leave your

> > system. The nurse told me to expect short term memory loss during this

> > time - beyond

> > the 'fibro-fog' that many of us already experience. Knowing that also

> > helped, because my

> > memory seemed to worsen after surgery! Secondly, Dr. Vasey, a

> > rheumatologist familiar

> > with implant issues, explains that surgery 'stirs up' the immune system --

> > thus it can take

> > up to a year for women to feel noticeably better. I am sure there is a

> > more accurate

> > medical explanation than that, but this made sense to me. The systemic

> > illnesses we get

> > from implants develop as a result of an over-active immune system reacting

> > to foreign

> > substances. I was diagnosed with multiple autoimmune diseases, just prior

> > to my explant.

> > And it did take about a year before I could see that my health was

> > improving. I still have a

> > long way to go, but I am so much better than I was. The best way that I

> > have found to lift

> > my spirits and regain perspective is by talking with other women who have

> > gone through

> > what I have.

> >

> > I sure hope this helps.. Creativity and a fertile imagination can be a

> > blessing, but they can

> > also be a curse -- especially when it comes to imagining the worst.

> > So turn on the 'positive' colors, and imagine yourself turning a corner

> > with explant

> > surgery. Instead of being splattered onto asphalt from 30,000 ft, you

> > are being whisked

> > into a lush garden of vibrant energy, and clear (not toxic) air.

> >

> >

> >

> >

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place of advice given by

> > licensed health care professionals. Consult your physician or licensed

> > health care professional before commencing any medical treatment.

> >

> > " Do not let either the medical authorities or the politicians mislead you.

> > Find out what the facts are, and make your own decisions about how to live

> > a happy life and how to work for a better world. " - Linus ing,

> > two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

> >

[Guest guest]

Molly,

Your message is outstanding! Thanks!

Rogene

[Guest guest]

Why thank you, ... you are welcome!!

> Molly,

>

> Your message is outstanding! Thanks!

>

> Rogene