Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Hi there and welcome. It is validating to realize there is a name or diagnosis to make sense of all the madness and abuse, but with that can also come anger and sadness because it really drives home the reality of the situation. Overall, though, the truth is liberating and the newfound awareness and clarity dispells any doubts that 'it was all in our head' or that it wasn't that bad. I remember when I first heard the term bpd, I too was in therapy. I was trying to learn how to have contact with nada (term on this board some use to describe bpd mothers) and not be negatively affected by her abuse and my therapist pulled out the DSM book and read the characteristics. I couldn't believe it! It helped to make the abuse real and helped me to realize I wasn't alone. As you are not either. Through reading posts on this board, reading books on bpd and talking with my therapist, everything began to fall into place and so I began my journey to self discovery and peace. > > Hello, > > just figuring out through seeing a therapist recently and reading stop > walking on eggshells, my mother seems to be bpd. I haven't spoken to > her in about 4 months because I'd just had enough of her vile meaness > and total disrespect to me and my wife and daughter.The light bulb > really went off explaining her behavior when the therapist mentioned > bpd to me and i read eggshells. Bingo! This is just my diagnosis but > there are just to many similarities regarding her behavior.This is my > first chat group so I'm hoping to learn from other personal > situations. I'm 55 and my mother is 81.I read a quote that someone > hasn't spoken to their mother in 3 years. He said it's sad and painful > but peaceful.That's just about how I feel. > > Peace, > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Thank you, . > > > > Hello, > > > > just figuring out through seeing a therapist recently and reading > stop > > walking on eggshells, my mother seems to be bpd. I haven't spoken > to > > her in about 4 months because I'd just had enough of her vile > meaness > > and total disrespect to me and my wife and daughter.The light bulb > > really went off explaining her behavior when the therapist > mentioned > > bpd to me and i read eggshells. Bingo! This is just my diagnosis > but > > there are just to many similarities regarding her behavior.This is > my > > first chat group so I'm hoping to learn from other personal > > situations. I'm 55 and my mother is 81.I read a quote that someone > > hasn't spoken to their mother in 3 years. He said it's sad and > painful > > but peaceful.That's just about how I feel. > > > > Peace, > > > > Mike > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 HI Mike, Welcome to the group. I am sure you will find what you are looking for here. Everybody is open and willing to share. So if you need help and encouragement you have came to the right place. You will find nothing but support here. I have only been coming here for 4 or 5 months but I just love it. Welcome again. Lizzy > > Hello, > > just figuring out through seeing a therapist recently and reading stop > walking on eggshells, my mother seems to be bpd. I haven't spoken to > her in about 4 months because I'd just had enough of her vile meaness > and total disrespect to me and my wife and daughter.The light bulb > really went off explaining her behavior when the therapist mentioned > bpd to me and i read eggshells. Bingo! This is just my diagnosis but > there are just to many similarities regarding her behavior.This is my > first chat group so I'm hoping to learn from other personal > situations. I'm 55 and my mother is 81.I read a quote that someone > hasn't spoken to their mother in 3 years. He said it's sad and painful > but peaceful.That's just about how I feel. > > Peace, > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 > > > > Hello, > > > > just figuring out through seeing a therapist recently and reading > stop > > walking on eggshells, my mother seems to be bpd. I haven't spoken > to > > her in about 4 months because I'd just had enough of her vile > meaness > > and total disrespect to me and my wife and daughter.The light bulb > > really went off explaining her behavior when the therapist > mentioned > > bpd to me and i read eggshells. Bingo! This is just my diagnosis > but > > there are just to many similarities regarding her behavior.This is > my > > first chat group so I'm hoping to learn from other personal > > situations. I'm 55 and my mother is 81.I read a quote that someone > > hasn't spoken to their mother in 3 years. He said it's sad and > painful > > but peaceful.That's just about how I feel. > > > > Peace, > > > > Mike > > >Thanks for your encouragement and support, Lizzy. Has anyone read Understanding the Boderline Mother by Ann Lawson? The reviews on Amazon have been good but the book sells for around $32. Kind of expensive but if it's worth it I'll buy. Any feedback would be appreciated. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Welcome to the group. My nada doesn't have an official diagnosis, but, like you, I read Eggshell after being tipped off by my therapist. I've decided that I don't care what her diagnosis is as long as the strategies work in terms of dealing with my nada and healthing myself. I think it's been very worth it. Trish > > Hello, > > just figuring out through seeing a therapist recently and reading stop > walking on eggshells, my mother seems to be bpd. I haven't spoken to > her in about 4 months because I'd just had enough of her vile meaness > and total disrespect to me and my wife and daughter.The light bulb > really went off explaining her behavior when the therapist mentioned > bpd to me and i read eggshells. Bingo! This is just my diagnosis but > there are just to many similarities regarding her behavior.This is my > first chat group so I'm hoping to learn from other personal > situations. I'm 55 and my mother is 81.I read a quote that someone > hasn't spoken to their mother in 3 years. He said it's sad and painful > but peaceful.That's just about how I feel. > > Peace, > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hi Mike, Welcome to WTOAdultChildren! This was the first book I read, coming across it accidentally. Even from the brief excerpts I realized that I had stumbled onto something very very important. This book goes into depth about the various manifestations of the BPD mother's personality (queen, witch, waif, hermit), and how these various aspects affect her children. I would also recommend the book " Surviving Your Borderline Parent " . This book also includes exercises that are very helpful. Take care, Sylvia >.........> > > > >Thanks for your encouragement and support, Lizzy. Has anyone read > Understanding the Boderline Mother by Ann Lawson? The > reviews on Amazon have been good but the book sells for around $32. > Kind of expensive but if it's worth it I'll buy. Any feedback would > be appreciated. > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 > >.........> > > > > >Thanks for your encouragement and support, Lizzy. Has anyone read > > Understanding the Boderline Mother by Ann Lawson? The > > reviews on Amazon have been good but the book sells for around $32. > > Kind of expensive but if it's worth it I'll buy. Any feedback would > > be appreciated. > > > > Mike > > >Thanks so much for the info, Sylvia. I went ahead and ordered it anyway. The reviews were just so overwhelmingly positive.I will check out your recommendation, also. Peace, Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Nice to meet you Jill,I hope that you find comfort with this family,we all deal with it daily with ourselves or someone we love deeply.Hugs, Subject: new to group To: " livercirrhosissupport " <livercirrhosissupport > Date: Thursday, October 8, 2009, 6:40 PM I recently joined this group and it's about time I introduced myself. I'm getting my courage up. I contracted Hep C from a transfusion during spinal surgery in 1975, before blood was screened for it. Up until recently, I had fibrosis but nothing dramatic. Now, it seems that things have rapidly progressed. I had a CT for something else and it showed hepatosplenamegaly, portal hypertension and varices (not esophageal). Transjugular biopsy confirmed tons of inflammation and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as it was put to me. Tomorrow, I will begin retreating with peginterferon & ribavirin. There is a possibility that I've also developed autoimmune hepatitis, in which case I will have to stop the interferon and switch to prednisone and imuran. I'm glad I've found this group. Thank you for letting me join. Be well, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 welcome jill g. you have come to the right place .you are in my prayers much love barby > > I recently joined this group and it's about time I introduced myself. I'm getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, before blood was screened for it. Up until recently, I had fibrosis but nothing dramatic. Now, it seems that things have rapidly progressed. I had a CT for something else and it showed hepatosplenamegaly, portal hypertension and varices (not esophageal). Transjugular biopsy confirmed tons of inflammation and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is a possibility that I've also developed autoimmune hepatitis, in which case I will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join. > > Be well, > Jill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Hi Jill,    WELCOME to our group! Thanks for this day and for our tomorrows  Love, Lyncia   From: Jill Gecker <jsgeckerearthlink (DOT) net> Subject: new to group To: " livercirrhosissupp ort " <livercirrhosissuppo rtyahoogroups (DOT) com> Date: Thursday, October 8, 2009, 6:40 PM I recently joined this group and it's about time I introduced myself. I'm getting my courage up. I contracted Hep C from a transfusion during spinal surgery in 1975, before blood was screened for it. Up until recently, I had fibrosis but nothing dramatic. Now, it seems that things have rapidly progressed. I had a CT for something else and it showed hepatosplenamegaly, portal hypertension and varices (not esophageal). Transjugular biopsy confirmed tons of inflammation and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as it was put to me. Tomorrow, I will begin retreating with peginterferon & ribavirin. There is a possibility that I've also developed autoimmune hepatitis, in which case I will have to stop the interferon and switch to prednisone and imuran. I'm glad I've found this group. Thank you for letting me join. Be well, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Hi, Jill...I'm a Jill also! But I have a twin brother named Jack...my mom thought it was cute many years ago. Welcome...welcome. I'm sorry you had to get up courage to speak up! Last night we were a little crazy....having lots of fun, laughing. We all deal with alot of stress and loss sometimes ...and it was such fun to be goofy and laugh! My husband has stage 4 cirrhosis with compensated liver function due to NASH. He has esoughageal and rectal varices,portal hypertension, enlarged liver and spleen, low platelet count and we're presently dealing with a large blood clots in his mesenteric,splenic and portal veins.His MELD is 10. He sees a hepatic specialist at The Cleveland Clinic. We live one day at a time and try to make each day a good one. You have found the right place. We will help you ,educate you , nurture you laugh, with you ,cry with you and love you. Welcome.  You have found your " other " family.                                                                           Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport <livercirrhosissupport > Sent: Thu, October 8, 2009 6:40:33 PM Subject: new to group  I recently joined this group and it's about time I introduced myself. I'm getting my courage up. I contracted Hep C from a transfusion during spinal surgery in 1975, before blood was screened for it. Up until recently, I had fibrosis but nothing dramatic. Now, it seems that things have rapidly progressed. I had a CT for something else and it showed hepatosplenamegaly, portal hypertension and varices (not esophageal). Transjugular biopsy confirmed tons of inflammation and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as it was put to me. Tomorrow, I will begin retreating with peginterferon & ribavirin. There is a possibility that I've also developed autoimmune hepatitis, in which case I will have to stop the interferon and switch to prednisone and imuran. I'm glad I've found this group. Thank you for letting me join. Be well, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Jill, welcome, other Jill, I had neighbors with two kids, Ann and Andy. I always though she should dress them up like the dolls. How are we going to tell you two apart? Jan H > Hi, Jill...I'm a Jill also! But I have a twin brother named Jack...my mom > thought it was cute many years ago. Welcome...welcome. I'm sorry you had to > get up courage to speak up! Last night we were a little crazy....having lots > of fun, laughing. We all deal with alot of stress and loss sometimes ...and > it was such fun to be goofy and laugh! My husband has stage 4 cirrhosis > with compensated liver function due to NASH. He has esoughageal and rectal > varices,portal hypertension, enlarged liver and spleen, low platelet count > and we're presently dealing with a large blood clots in his > mesenteric,splenic and portal veins.His MELD is 10. He sees a hepatic > specialist at The Cleveland Clinic. We live one day at a time and try to > make each day a good one. You have found the right place. We will help you > ,educate you , nurture you laugh, with you ,cry with you and love you. > Welcome. > You have found your " other " family. > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > > > > ________________________________ > > To: livercirrhosissupport <livercirrhosissupport > > Sent: Thu, October 8, 2009 6:40:33 PM > Subject: new to group > > > I recently joined this group and it's about time I introduced myself. I'm > getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, before > blood was screened for it. Up until recently, I had fibrosis but nothing > dramatic. Now, it seems that things have rapidly progressed. I had a CT for > something else and it showed hepatosplenamegaly, portal hypertension and > varices (not esophageal). Transjugular biopsy confirmed tons of inflammation > and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as > it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is > a possibility that I've also developed autoimmune hepatitis, in which case I > will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join. > > Be well, > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Excuse me, but how in blazes does one develop blood clots with low platelets? Have they explained this to you at all? My little friend Annika Tiede was on coumadin post transplant due to losing her first two grafts due to portal vein thrombosis, also called Budd Chiari syndrome, The liver docs argued with the blood docs because the comadin gave her a stroke, hemoragic type in her brain, and they wanted her off the comadin, but the transplant team said now way, over my dead body- she stays on the coumadin. Her Mommy hasnt posted on her blog since June, and I hope to high hope this is good and not a bad haitus. You have read about her yes? Here is the link- http://moreena.typepad.com/falling_down_is_also_a_gi/ love, Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Thu, October 8, 2009 6:51:36 PM Subject: Re: new to group Hi, Jill...I'm a Jill also! But I have a twin brother named Jack...my mom thought it was cute many years ago. Welcome...welcome. I'm sorry you had to get up courage to speak up! Last night we were a little crazy....having lots of fun, laughing. We all deal with alot of stress and loss sometimes ...and it was such fun to be goofy and laugh! My husband has stage 4 cirrhosis with compensated liver function due to NASH. He has esoughageal and rectal varices,portal hypertension, enlarged liver and spleen, low platelet count and we're presently dealing with a large blood clots in his mesenteric,splenic and portal veins.His MELD is 10. He sees a hepatic specialist at The Cleveland Clinic. We live one day at a time and try to make each day a good one. You have found the right place. We will help you ,educate you , nurture you laugh, with you ,cry with you and love you. Welcome. You have found your " other " family. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ____________ _________ _________ __ From: Jill Gecker <jsgeckerearthlink (DOT) net> To: livercirrhosissuppo rt <livercirrhosissuppo rtyahoogroups (DOT) com> Sent: Thu, October 8, 2009 6:40:33 PM Subject: new to group I recently joined this group and it's about time I introduced myself. I'm getting my courage up. I contracted Hep C from a transfusion during spinal surgery in 1975, before blood was screened for it. Up until recently, I had fibrosis but nothing dramatic. Now, it seems that things have rapidly progressed. I had a CT for something else and it showed hepatosplenamegaly, portal hypertension and varices (not esophageal). Transjugular biopsy confirmed tons of inflammation and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as it was put to me. Tomorrow, I will begin retreating with peginterferon & ribavirin. There is a possibility that I've also developed autoimmune hepatitis, in which case I will have to stop the interferon and switch to prednisone and imuran. I'm glad I've found this group. Thank you for letting me join. Be well, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 I'm the cute one! LOL !!! Just kidding! I'll figure something.                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Thu, October 8, 2009 8:57:43 PM Subject: Re: new to group  Jill, welcome, other Jill, I had neighbors with two kids, Ann and Andy. I always though she should dress them up like the dolls. How are we going to tell you two apart? Jan H On Thu, Oct 8, 2009 at 5:51 PM, Jill <jillkstewart@ yahoo.com> wrote: > Hi, Jill....I'm a Jill also! But I have a twin brother named Jack...my mom > thought it was cute many years ago. Welcome...welcome. I'm sorry you had to > get up courage to speak up! Last night we were a little crazy....having lots > of fun, laughing. We all deal with alot of stress and loss sometimes ....and > it was such fun to be goofy and laugh! My husband has stage 4 cirrhosis > with compensated liver function due to NASH. He has esoughageal and rectal > varices,portal hypertension, enlarged liver and spleen, low platelet count > and we're presently dealing with a large blood clots in his > mesenteric,splenic and portal veins.His MELD is 10. He sees a hepatic > specialist at The Cleveland Clinic. We live one day at a time and try to > make each day a good one. You have found the right place. We will help you > ,educate you , nurture you laugh, with you ,cry with you and love you. > Welcome. > You have found your " other " family. > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > > > > ____________ _________ _________ __ > From: Jill Gecker <jsgeckerearthlink (DOT) net> > To: livercirrhosissuppo rt <livercirrhosissuppo rtyahoogroups (DOT) com> > Sent: Thu, October 8, 2009 6:40:33 PM > Subject: new to group > > > I recently joined this group and it's about time I introduced myself. I'm > getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, before > blood was screened for it. Up until recently, I had fibrosis but nothing > dramatic. Now, it seems that things have rapidly progressed. I had a CT for > something else and it showed hepatosplenamegaly, portal hypertension and > varices (not esophageal). Transjugular biopsy confirmed tons of inflammation > and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as > it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is > a possibility that I've also developed autoimmune hepatitis, in which case I > will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join.. > > Be well, > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Hi Jill. I'm so sorry about your circumstances. I too contracted Hep C in 74-75 but mine was self induced by IV drug usage. I don't know what shape my liver is in as I've never had a biopsy. THANK YOU for joining the group. You will find knowledge, comfort , hope and encouragement here. Best wishes~~~Debbie > > I recently joined this group and it's about time I introduced myself. I'm getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, before blood was screened for it. Up until recently, I had fibrosis but nothing dramatic. Now, it seems that things have rapidly progressed. I had a CT for something else and it showed hepatosplenamegaly, portal hypertension and varices (not esophageal). Transjugular biopsy confirmed tons of inflammation and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is a possibility that I've also developed autoimmune hepatitis, in which case I will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join. > > Be well, > Jill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Hi Jill, Welcome to the group. I'm Penny, and I too have Hep C, but I don't know how I contracted it. I first became ill with it in 1983, but they misdiagnosed it as Hep B. I didn't know it was Hep C until my first biopsy in 1990. I never did the treatment for Hep C, developed cirrhosis in 2004, and got a liver transplant on January 6, 2008. I was very ill and lucky to only have a 30 day wait for a transplant. I am now doing the treatment for the Hep C and am undetectable. I have 7 weeks left of treatment to go. Take care. Penny > > I recently joined this group and it's about time I introduced myself. I'm getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, before blood was screened for it. Up until recently, I had fibrosis but nothing dramatic. Now, it seems that things have rapidly progressed. I had a CT for something else and it showed hepatosplenamegaly, portal hypertension and varices (not esophageal). Transjugular biopsy confirmed tons of inflammation and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is a possibility that I've also developed autoimmune hepatitis, in which case I will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join. > > Be well, > Jill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Jill, welcome to our group. You are so welcome here, although I am so sorry that you have to be here. I was also diagnosed with Grade 2, Stage 4 cirrhosis this July. I had know since 1993 that I had non alcoholic fatty liver disease, but it had always been stable. My last biopsy prior to this July was in Dec., 2006 and all was stable. I was shocked to learn I had so quicky progressed into cirrhosis, especially since I had just lost my husband in Jan. of this year to the same disease. Please know you are in my thoughts and prayers as you face the days ahead.  Warm Hugs...........  Di http://auntdisexperimentallife.blogspot.com/ ________________________________ To: livercirrhosissupport <livercirrhosissupport > Sent: Thursday, October 8, 2009 5:40:33 PM Subject: new to group  I recently joined this group and it's about time I introduced myself. I'm getting my courage up. I contracted Hep C from a transfusion during spinal surgery in 1975, before blood was screened for it. Up until recently, I had fibrosis but nothing dramatic. Now, it seems that things have rapidly progressed. I had a CT for something else and it showed hepatosplenamegaly, portal hypertension and varices (not esophageal). Transjugular biopsy confirmed tons of inflammation and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as it was put to me. Tomorrow, I will begin retreating with peginterferon & ribavirin. There is a possibility that I've also developed autoimmune hepatitis, in which case I will have to stop the interferon and switch to prednisone and imuran. I'm glad I've found this group. Thank you for letting me join. Be well, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Thank you all for such an incredibly warm welcome. I am sure I've found the best place to be for this. It will take me a while to get to know you all, but I'm looking forward to it. Where is everyone from? I live in CT, but was born a Jersey girl. I came to CT to go to college, stayed for grad school and never left (and that was many years ago) Thank you, again, Jill new to group > > > I recently joined this group and it's about time I introduced myself. I'm > getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, > before > blood was screened for it. Up until recently, I had fibrosis but nothing > dramatic. Now, it seems that things have rapidly progressed. I had a CT > for > something else and it showed hepatosplenamegaly, portal hypertension and > varices (not esophageal). Transjugular biopsy confirmed tons of > inflammation > and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, > as > it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is > a possibility that I've also developed autoimmune hepatitis, in which case > I > will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join.. > > Be well, > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Hey Jill....lets sign our posts with Jill S or Jill G. That might help everyone with the confusion. Glad to have you aboard.                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, October 9, 2009 11:21:19 AM Subject: Re: new to group  Thank you all for such an incredibly warm welcome. I am sure I've found the best place to be for this. It will take me a while to get to know you all, but I'm looking forward to it. Where is everyone from? I live in CT, but was born a Jersey girl. I came to CT to go to college, stayed for grad school and never left (and that was many years ago) Thank you, again, Jill new to group > > > I recently joined this group and it's about time I introduced myself. I'm > getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, > before > blood was screened for it. Up until recently, I had fibrosis but nothing > dramatic. Now, it seems that things have rapidly progressed. I had a CT > for > something else and it showed hepatosplenamegaly, portal hypertension and > varices (not esophageal). Transjugular biopsy confirmed tons of > inflammation > and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, > as > it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is > a possibility that I've also developed autoimmune hepatitis, in which case > I > will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join.. > > Be well, > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Jill, do you have a nickname? I was wondering if you did so we might not get the Jills all mixxed up. Back when Chief was alive, folks got his Eagle mixed up with mine. It was kinda funny, though. Just a thought . Love, Bobby Sent via BlackBerry from T-Mobile Re: new to group Thank you all for such an incredibly warm welcome. I am sure I've found the best place to be for this. It will take me a while to get to know you all, but I'm looking forward to it. Where is everyone from? I live in CT, but was born a Jersey girl. I came to CT to go to college, stayed for grad school and never left (and that was many years ago) Thank you, again, Jill new to group > > > I recently joined this group and it's about time I introduced myself. I'm > getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, > before > blood was screened for it. Up until recently, I had fibrosis but nothing > dramatic. Now, it seems that things have rapidly progressed. I had a CT > for > something else and it showed hepatosplenamegaly, portal hypertension and > varices (not esophageal). Transjugular biopsy confirmed tons of > inflammation > and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, > as > it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is > a possibility that I've also developed autoimmune hepatitis, in which case > I > will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join.. > > Be well, > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 I actually thought about that, but figured that both of us have our last names showing so that would take care of it. But, if you think it would help we'll give it a go. Love, Jill G new to group > > > I recently joined this group and it's about time I introduced myself. I'm > getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, > before > blood was screened for it. Up until recently, I had fibrosis but nothing > dramatic. Now, it seems that things have rapidly progressed. I had a CT > for > something else and it showed hepatosplenamegaly, portal hypertension and > varices (not esophageal). Transjugular biopsy confirmed tons of > inflammation > and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, > as > it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is > a possibility that I've also developed autoimmune hepatitis, in which case > I > will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join.. > > Be well, > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 You know, That's true ..our last names do show! That should be plenty.                                                                           Love,Jill S.  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, October 9, 2009 11:31:27 AM Subject: Re: new to group  I actually thought about that, but figured that both of us have our last names showing so that would take care of it. But, if you think it would help we'll give it a go. Love, Jill G new to group > > > I recently joined this group and it's about time I introduced myself. I'm > getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, > before > blood was screened for it. Up until recently, I had fibrosis but nothing > dramatic. Now, it seems that things have rapidly progressed. I had a CT > for > something else and it showed hepatosplenamegaly, portal hypertension and > varices (not esophageal). Transjugular biopsy confirmed tons of > inflammation > and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, > as > it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is > a possibility that I've also developed autoimmune hepatitis, in which case > I > will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join.. > > Be well, > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Well that is the $64,000.00 question. The cardiologist waasn't surprised to see the clot in Ed. He said,in fact, That a large percentage of cirrohsis patients will end up with one. I asked him if the coumadin combined with his platelet count of 55,0000 to 65,000 will make him bleed alot more. He didn't seem worried about it.. But I'm like you....I would think a low platelet count wouldn't cause clots.?  Go figure.                                                                           Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Thu, October 8, 2009 9:28:55 PM Subject: Re: new to group  Excuse me, but how in blazes does one develop blood clots with low platelets? Have they explained this to you at all? My little friend Annika Tiede was on coumadin post transplant due to losing her first two grafts due to portal vein thrombosis, also called Budd Chiari syndrome, The liver docs argued with the blood docs because the comadin gave her a stroke, hemoragic type in her brain, and they wanted her off the comadin, but the transplant team said now way, over my dead body- she stays on the coumadin. Her Mommy hasnt posted on her blog since June, and I hope to high hope this is good and not a bad haitus. You have read about her yes? Here is the link- http://moreena. typepad.com/ falling_down_ is_also_a_ gi/ love, Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Jill <jillkstewart@ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Thu, October 8, 2009 6:51:36 PM Subject: Re: new to group Hi, Jill...I'm a Jill also! But I have a twin brother named Jack...my mom thought it was cute many years ago. Welcome...welcome. I'm sorry you had to get up courage to speak up! Last night we were a little crazy....having lots of fun, laughing. We all deal with alot of stress and loss sometimes ....and it was such fun to be goofy and laugh! My husband has stage 4 cirrhosis with compensated liver function due to NASH. He has esoughageal and rectal varices,portal hypertension, enlarged liver and spleen, low platelet count and we're presently dealing with a large blood clots in his mesenteric,splenic and portal veins.His MELD is 10. He sees a hepatic specialist at The Cleveland Clinic. We live one day at a time and try to make each day a good one. You have found the right place. We will help you ,educate you , nurture you laugh, with you ,cry with you and love you. Welcome. You have found your " other " family. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ____________ _________ _________ __ From: Jill Gecker <jsgecker@earthlink . net> To: livercirrhosissuppo rt <livercirrhosissupp o rtyahoogroups (DOT) com> Sent: Thu, October 8, 2009 6:40:33 PM Subject: new to group I recently joined this group and it's about time I introduced myself. I'm getting my courage up. I contracted Hep C from a transfusion during spinal surgery in 1975, before blood was screened for it. Up until recently, I had fibrosis but nothing dramatic. Now, it seems that things have rapidly progressed. I had a CT for something else and it showed hepatosplenamegaly, portal hypertension and varices (not esophageal). Transjugular biopsy confirmed tons of inflammation and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, as it was put to me. Tomorrow, I will begin retreating with peginterferon & ribavirin. There is a possibility that I've also developed autoimmune hepatitis, in which case I will have to stop the interferon and switch to prednisone and imuran. I'm glad I've found this group. Thank you for letting me join. Be well, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Jill G. I lived in Danbury for 2 yrs along time ago:-)Â > Hi, Jill....I'm a Jill also! But I have a twin brother named Jack...my mom > thought it was cute many years ago. Welcome...welcome. I'm sorry you had > to > get up courage to speak up! Last night we were a little crazy....having > lots > of fun, laughing. We all deal with alot of stress and loss sometimes > ....and > it was such fun to be goofy and laugh! My husband has stage 4 cirrhosis > with compensated liver function due to NASH. He has esoughageal and rectal > varices,portal hypertension, enlarged liver and spleen, low platelet count > and we're presently dealing with a large blood clots in his > mesenteric,splenic and portal veins.His MELD is 10. He sees a hepatic > specialist at The Cleveland Clinic. We live one day at a time and try to > make each day a good one. You have found the right place. We will help you > ,educate you , nurture you laugh, with you ,cry with you and love you. > Welcome. > You have found your " other " family. > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > > > > ____________ _________ _________ __ > From: Jill Gecker <jsgecker@earthlink . net> > To: livercirrhosissuppo rt <livercirrhosissupp o rtyahoogroups (DOT) com> > Sent: Thu, October 8, 2009 6:40:33 PM > Subject: new to group > > > I recently joined this group and it's about time I introduced myself. I'm > getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, > before > blood was screened for it. Up until recently, I had fibrosis but nothing > dramatic. Now, it seems that things have rapidly progressed. I had a CT > for > something else and it showed hepatosplenamegaly, portal hypertension and > varices (not esophageal). Transjugular biopsy confirmed tons of > inflammation > and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, > as > it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is > a possibility that I've also developed autoimmune hepatitis, in which case > I > will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join.. > > Be well, > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 There is no one better.......... Thanks for this day and for our tomorrows  Love, Lyncia   > Hi, Jill....I'm a Jill also! But I have a twin brother named Jack...my mom > thought it was cute many years ago. Welcome...welcome. I'm sorry you had > to > get up courage to speak up! Last night we were a little crazy....having > lots > of fun, laughing. We all deal with alot of stress and loss sometimes > ....and > it was such fun to be goofy and laugh! My husband has stage 4 cirrhosis > with compensated liver function due to NASH. He has esoughageal and rectal > varices,portal hypertension, enlarged liver and spleen, low platelet count > and we're presently dealing with a large blood clots in his > mesenteric,splenic and portal veins.His MELD is 10. He sees a hepatic > specialist at The Cleveland Clinic. We live one day at a time and try to > make each day a good one. You have found the right place. We will help you > ,educate you , nurture you laugh, with you ,cry with you and love you. > Welcome. > You have found your " other " family. > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > > > > ____________ _________ _________ __ > From: Jill Gecker <jsgecker@earthlink . net> > To: livercirrhosissuppo rt <livercirrhosissupp o rtyahoogroups (DOT) com> > Sent: Thu, October 8, 2009 6:40:33 PM > Subject: new to group > > > I recently joined this group and it's about time I introduced myself. I'm > getting my courage up. > > I contracted Hep C from a transfusion during spinal surgery in 1975, > before > blood was screened for it. Up until recently, I had fibrosis but nothing > dramatic. Now, it seems that things have rapidly progressed. I had a CT > for > something else and it showed hepatosplenamegaly, portal hypertension and > varices (not esophageal). Transjugular biopsy confirmed tons of > inflammation > and 3-4/4 fibrosis which I guess is " knocking on the door " of cirrhosis, > as > it was put to me. > > Tomorrow, I will begin retreating with peginterferon & ribavirin. There is > a possibility that I've also developed autoimmune hepatitis, in which case > I > will have to stop the interferon and switch to prednisone and imuran. > > I'm glad I've found this group. Thank you for letting me join.. > > Be well, > Jill > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.