Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Hi Cat, I am really enjoying reading everyone's experiences with fibromyalgia. It is amazing that other people have the same thing that I have. Before I saw this new doctor, I thought I was crazy. I was in this deep depression for no apparent reason and was faking being OK to everyone, even my family. When I told my doctor this, she prescribed Lexapro. I am looking for a more natural way to deal with the depression though. I exercise almost every day, but I am going to try and make it a point to walk outside so I can clear my mind each day. I have been under a great deal of stress with work and college. I was working on my master's degree, but decided that I needed to drop that for awhile and rest. I think my body is reacting to all the stress and it has let down some. I also have two teenagers. My daughter is training to be an EMT and my son just turned 16. We have just had a lot of changes going on in our family this year. Thanks for responding. I look forward to many wonderful conversations with you all. Debbie > > Date: 2004/03/20 Sat PM 01:54:21 EST > To: Fibromyalgia_Support_Group > Subject: Re: New to the Group > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Penny, Thanks for responding. It must have been really scary thinking you were having a stroke. It is so upsetting to feel like something really bad is happening and then go to the ER and be told that there is absolutely nothing wrong with you and then they look at you strange. My family tried to get me to go the ER when I was having the chest pains, but I would not. I am glad I didn't go now, because my heart would have checked out fine. I now understand why I have had all of this pain for all these years and it is a relief in itself just to know what is going on. Now, to deal with it all. Debbie > > > Date: 2004/03/20 Sat PM 02:09:18 EST > To: <Fibromyalgia_Support_Group > > Subject: Re: New to the Group > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 , I have had the chest pains today too and have just had to tell myself that I am not having a heart attack. It can be scary. I am glad to know that we have some of the same symptoms. I have been hypoglycemic for years and it seems that since I was diagnosed with hypoglycemia, my health problems have just gone from bad to worse. I am trying to keep a good attitude though. Debbie > > From: SpiritSpeaker7@... > Date: 2004/03/20 Sat PM 06:07:34 EST > To: Fibromyalgia_Support_Group > Subject: Re: New to the Group > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 - Where do you live in PA. I am in Pittsburgh. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2004 Report Share Posted March 21, 2004 Hi Janet, Thank you for the welcome! I am so sorry to know that you have this chest pain also. My, at first I also thought I was having heart problems, then even thought of lung cancer. Then, my sister told me she had the same pain that comes and goes. While I hate knowing that it's Fibro...I feel a lot better knowing that it isn't heart or lung trouble. Do you have your chest pain and soreness all the time or off and on? I have been real stressed lately so I'm wondering if that is why it's so sore and painful. I also feel like my body is a big bruise. <Ouch> One thing that I found when I went to my lady doctor is that she also has Fibro and is about my same age....so I know she understands. Thanks so much for your reply! Gentle Hugs To All, Margie Hello Margie, Welcome to the group. I have alot of chest pain too. It feels exactly how you have stated. I hate to tell you how many times I have been to the doctor because of it. But you never know??? I feel like most of my body is a bruise, that is why I only accept gentle hugs! Catch you later, ((Hugs)) Janet/littletoot53 > Hi! > > I'm a new to the group and a 59 yr. old married lady. I have had Fibro for > years and my 3 sisters on mom also have it. I didn't think the first > several years were all that bad, however lately I have really been hurting. > I just read where several of you have chest pain from the Fibro. I have had > soreness mostly in the upper chest....and when I press on the areas it feels > so terribly sore...much like it's bruised. It was pretty scary at first, but > then I began to think it may be Fibro. Can any of you relate to this? I'm > wondering if those of you that have chest pain could explain just what your > chest feels like. My hubby thinks perhaps I should have a chest x- ray. I'm > just not sure what to think right now. I also have Costochondritis > (inflammation of the rib cage)...or at least that's what my doctor tells me. > > I had lower back surgery about 1.5 years ago which left me with nerve damage > and Neuropathy in my foot and ankle...I go to pain management and take > Trileptal and Vicodin every day for that and I know these meds help the > Fibro also. > > I'm so glad I joined the list! Everyone seems so warm and friendly. > > Take GOOD care, > > Margie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2004 Report Share Posted March 21, 2004 Hi Debbie, Your chest pain sounds very much like mine...although my chest is mostly sore to touch most of the time. I also get pain in the shoulder area and the neck too. I'm sure you were very much relieved to know that your heart is fine. What do you take for your Fibro? Margie Margie, I have had the chest pain and still get if from time to time. My pain is like an elephant sitting on my chest and it runs down my left arm and into my back. I thought I was having a heart attack last week. I went to my doctor and was diagnosed with fibromyalgia. My chest also hurt to touch it, almost like it was bruised. It is more scary to me to get the chest pain than pain in other areas. The doctor did an EKG and my heart is fine though. When this happens, I just have to tell myself that I am not having a heart attack and try to get through it. When it ever starts though, I deal with it for a day or so before it goes away. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Dear Margie, It does help to have a doctor who has fibro, doesn't it. I am thankful to hear that your chest pain is due to the fibro and not your heart. Willl be praying for you, that the chest pains will resolve themselves. hugs and prayers, Sharon - Memphis, TN Faith...with it, miracles *CAN* and *DO* happen! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Margie, I am not really taking anything at the current time except Klonopin, which I am trying to come off of. My doctor prescribed Wellbutrin, but I didn't like how I felt when I took it. Sometimes my chest is sore to touch too. It seems that a lot of people with Fibromyalgia have the chest pain. It is good to know that we aren't alone and that we have people who are supportive of each other. Debbie > > > Date: 2004/03/21 Sun PM 06:20:23 EST > To: <Fibromyalgia_Support_Group > > Subject: Re: Re: New to the Group > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Cat, Thanks for responding. Is the 5-HTP an abbreviation of something, or is that what it is called? Sometimes I get confused on abbreviations. I take a vitamin called " Hypoglycemic Nutrition " which has magnesium, so hopefully I am getting enough of that. I need to check and see just how much magnesium it actually has though. Debbie > > > Date: 2004/03/21 Sun PM 07:03:12 EST > To: Fibromyalgia_Support_Group > Subject: Re: Re: New to the Group > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 , The doctor said that my dizzy spells was from my dysautonomia. However, I think this goes with FM too. The Klonopin does level the dizzy spells though. I would always have one when I was extremely stressed. Debbie > > From: SpiritSpeaker7@... > Date: 2004/03/21 Sun PM 08:40:08 EST > To: Fibromyalgia_Support_Group > Subject: Re: New to the Group > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 , Thank you for telling me your experiences with chest pain. Mine are almost identical. It is so wonderful to be able to relate to people who have the same problems that I do. Debbie > > From: SpiritSpeaker7@... > Date: 2004/03/21 Sun PM 08:42:24 EST > To: Fibromyalgia_Support_Group > Subject: Re: New to the Group > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2009 Report Share Posted November 20, 2009 , Eisser,Thank you so much for this addresses in Switzerland!!!! It shall help a good friend of mine whose child in Germany just got diagnosed..... Well at least a bit closer to home. Eisser, l was wondering, since you live in the CH, would you be willing to travel to Germany to visit an MD who is one of the top MDs in the lyme-autism world? I wish l was that close to bring my child to him..... Can someone provide Dr K's address in Germany? (We refer to the MD's by initial only, that is a procedure in this group)Hope someone can chime in w the address or write to you off-list! Viel Glueck!Blessings to all!IsaEnviado desde mi oficina móvil BlackBerry® de TelcelDate: Fri, 20 Nov 2009 18:05:39 -0000To: <BorreliaMultipleInfectionsAndAutism >Subject: Re: New to the group Hello Eisser:Welcome to the group. I just wanted to make sure you had this list of autism organizations in Switzerland. I thought I recalled there being a DAN doc in Switzerland. I was surprised to read your email indicating there was not. Hmmmm. Here is the list. I don't know anything about these organizations in terms of how progressive or biomed oriented they are and I'm sure you already know about them but I wanted to be sure. Take care Eisser. SuzanSWITZERLANDAutisme Suisse Association de ParentsRue de Lausanne 91CH-1700 FribourgSwitzerlandPhone: 41 (0)26 321 36 10Fax: 41 (0)26 321 36 15Email: infoautism (DOT) ch Website: http://www.autism.ch Autismus Deutsche SchweizFischerhöflirain 88854 SiebnenSwitzerlandPhone: 41 (0)55 440 60 25Fax: 41 (0)55 440 60 25Email: infoautismus (DOT) ch Website: http://www.autismus.ch Autisme Suisse romande2, Avenue de RumineCH - 1005 LausanneSwitzerlandPhone: 41 (0) 21 341 93 21Fax: 41 (0) 21 341 90 79Email: infoautisme-suisse (DOT) ch Website: http://www.autisme-suisse.ch Fondation Pour L'Education Des Enfants Autistes " La Taniere " CH- 1125 Monnaz-sur-MorgesSwitzerlandPhone: 41-21-801-0220Website: http://www.hapi.ch/FEDEA.htm Schweizerische Informations -und Dokumentationsstelle fur AutismusfragenPetrus Kanisius - Grasse 21CH - 1700 FreiburgSwitzerlandPhone: 41 26 300 77 48Fax: 41 26 300 97 49> >> > >> > Hi from Switzerland, I have a six-year-old autistic child. Recently > >> > I heard about the connection of Lyme-autism. I contacted some > >> > specialists and labs, none have heard of this connection neither of > >> > the provocation with Rizol oil.> >> > I looked up the symptoms of lyme, but I don't have any of these > >> > symptoms. And my son has never be biten by a tick (although I know > >> > that there are a lot ticks, here in Switzerland) .> >> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > >> > TEST???> >> > I would appreciate your sharings.> >> >> >> > Eisser> >> >> >> >> >> >> >> > ------------ --------- --------- ------> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2009 Report Share Posted November 20, 2009 Isa Here is an address in Germany for DK. I dont know if its up to date etc, u might need to check that... Shanthi INK-Institut für Neurobiologie nach Dr. Klinghardt GmbHPlanckstraße 5670184 Stuttgart, Germany HRB 18988, StuttgartUst.-IdNr.: DE812381100 Tel.: 0711-80 60 87- 45 Fax.: 0711-80 60 87-13 E-Mail: miriamscharpf@...Homepage: www.ink.ag To: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism >Sent: Fri, November 20, 2009 9:34:47 PMSubject: Re: Re: New to the group , Eisser,Thank you so much for this addresses in Switzerland! !!! It shall help a good friend of mine whose child in Germany just got diagnosed... .. Well at least a bit closer to home. Eisser, l was wondering, since you live in the CH, would you be willing to travel to Germany to visit an MD who is one of the top MDs in the lyme-autism world? I wish l was that close to bring my child to him..... Can someone provide Dr K's address in Germany? (We refer to the MD's by initial only, that is a procedure in this group)Hope someone can chime in w the address or write to you off-list! Viel Glueck!Blessings to all!Isa Enviado desde mi oficina móvil BlackBerry® de Telcel Date: Fri, 20 Nov 2009 18:05:39 -0000 To: <BorreliaMultipleInf ectionsAndAutism @yahoogroups. com> Subject: [borreliaMultipleIn fectionsAndAutis m] Re: New to the group Hello Eisser:Welcome to the group. I just wanted to make sure you had this list of autism organizations in Switzerland. I thought I recalled there being a DAN doc in Switzerland. I was surprised to read your email indicating there was not. Hmmmm. Here is the list. I don't know anything about these organizations in terms of how progressive or biomed oriented they are and I'm sure you already know about them but I wanted to be sure. Take care Eisser. SuzanSWITZERLANDAutisme Suisse Association de ParentsRue de Lausanne 91CH-1700 FribourgSwitzerlandPhone: 41 (0)26 321 36 10Fax: 41 (0)26 321 36 15Email: infoautism (DOT) ch Website: http://www.autism. ch Autismus Deutsche SchweizFischerhöflirain 88854 SiebnenSwitzerlandPhone: 41 (0)55 440 60 25Fax: 41 (0)55 440 60 25Email: infoautismus (DOT) ch Website: http://www.autismus.ch Autisme Suisse romande2, Avenue de RumineCH - 1005 LausanneSwitzerlandPhone: 41 (0) 21 341 93 21Fax: 41 (0) 21 341 90 79Email: info@autisme- suisse.ch Website: http://www.autisme-suisse.ch Fondation Pour L'Education Des Enfants Autistes"La Taniere"CH- 1125 Monnaz-sur-MorgesSwitzerlandPhone: 41-21-801-0220Website: http://www.hapi. ch/FEDEA. htm Schweizerische Informations -und Dokumentationsstell e fur AutismusfragenPetrus Kanisius - Grasse 21CH - 1700 FreiburgSwitzerlandPhone: 41 26 300 77 48Fax: 41 26 300 97 49> >> > >> > Hi from Switzerland, I have a six-year-old autistic child. Recently > >> > I heard about the connection of Lyme-autism. I contacted some > >> > specialists and labs, none have heard of this connection neither of > >> > the provocation with Rizol oil.> >> > I looked up the symptoms of lyme, but I don't have any of these > >> > symptoms. And my son has never be biten by a tick (although I know > >> > that there are a lot ticks, here in Switzerland) .> >> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > >> > TEST???> >> > I would appreciate your sharings.> >> >> >> > Eisser> >> >> >> >> >> >> >> > ------------ --------- --------- ------> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2009 Report Share Posted November 21, 2009 THanks Isa To: BorreliaMultipleInfectionsAndAutism Sent: Sat, November 21, 2009 7:34:43 AMSubject: Re: Re: New to the group Isa Here is an address in Germany for DK. I dont know if its up to date etc, u might need to check that... Shanthi INK-Institut für Neurobiologie nach Dr. Klinghardt GmbHPlanckstraße 5670184 Stuttgart, Germany HRB 18988, StuttgartUst.-IdNr.: DE812381100 Tel.: 0711-80 60 87- 45 Fax.: 0711-80 60 87-13 E-Mail: miriamscharpf@ ink.agHomepage: www.ink.ag From: "isaguzmandiaz2@ yahoo.com. mx" <isaguzmandiaz2@ yahoo.com. mx>To: "BorreliaMultipleIn fectionsAndAutis myahoogroups (DOT) com" <BorreliaMultipleInf ectionsAndAutism @yahoogroups. com>Sent: Fri, November 20, 2009 9:34:47 PMSubject: Re: [borreliaMultipleIn fectionsAndAutis m] Re: New to the group , Eisser,Thank you so much for this addresses in Switzerland! !!! It shall help a good friend of mine whose child in Germany just got diagnosed... .. Well at least a bit closer to home. Eisser, l was wondering, since you live in the CH, would you be willing to travel to Germany to visit an MD who is one of the top MDs in the lyme-autism world? I wish l was that close to bring my child to him..... Can someone provide Dr K's address in Germany? (We refer to the MD's by initial only, that is a procedure in this group)Hope someone can chime in w the address or write to you off-list! Viel Glueck!Blessings to all!Isa Enviado desde mi oficina móvil BlackBerry® de Telcel Date: Fri, 20 Nov 2009 18:05:39 -0000 To: <BorreliaMultipleInf ectionsAndAutism @yahoogroups. com> Subject: [borreliaMultipleIn fectionsAndAutis m] Re: New to the group Hello Eisser:Welcome to the group. I just wanted to make sure you had this list of autism organizations in Switzerland. I thought I recalled there being a DAN doc in Switzerland. I was surprised to read your email indicating there was not. Hmmmm. Here is the list. I don't know anything about these organizations in terms of how progressive or biomed oriented they are and I'm sure you already know about them but I wanted to be sure. Take care Eisser. SuzanSWITZERLANDAutisme Suisse Association de ParentsRue de Lausanne 91CH-1700 FribourgSwitzerlandPhone: 41 (0)26 321 36 10Fax: 41 (0)26 321 36 15Email: infoautism (DOT) ch Website: http://www.autism. ch Autismus Deutsche SchweizFischerhöflirain 88854 SiebnenSwitzerlandPhone: 41 (0)55 440 60 25Fax: 41 (0)55 440 60 25Email: infoautismus (DOT) ch Website: http://www.autismus .ch Autisme Suisse romande2, Avenue de RumineCH - 1005 LausanneSwitzerlandPhone: 41 (0) 21 341 93 21Fax: 41 (0) 21 341 90 79Email: info@autisme- suisse.ch Website: http://www.autisme- suisse.ch Fondation Pour L'Education Des Enfants Autistes"La Taniere"CH- 1125 Monnaz-sur-MorgesSwitzerlandPhone: 41-21-801-0220Website: http://www.hapi. ch/FEDEA. htm Schweizerische Informations -und Dokumentationsstell e fur AutismusfragenPetrus Kanisius - Grasse 21CH - 1700 FreiburgSwitzerlandPhone: 41 26 300 77 48Fax: 41 26 300 97 49> >> > >> > Hi from Switzerland, I have a six-year-old autistic child. Recently > >> > I heard about the connection of Lyme-autism. I contacted some > >> > specialists and labs, none have heard of this connection neither of > >> > the provocation with Rizol oil.> >> > I looked up the symptoms of lyme, but I don't have any of these > >> > symptoms. And my son has never be biten by a tick (although I know > >> > that there are a lot ticks, here in Switzerland) .> >> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > >> > TEST???> >> > I would appreciate your sharings.> >> >> >> > Eisser> >> >> >> >> >> >> >> > ------------ --------- --------- ------> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 Yes, , it can be ordered through our regular physician. It is called " Lyme Disease, Serum, Western Blot " , LabCrop test code 163600. When you get your test result back, do not take the lab's interpretation of test result as is. You can post in the group to ask for help in interpretation or work with a LLMD. Limin -------------------------------------------------- Sent: Tuesday, March 02, 2010 02:57 PM To: <BorreliaMultipleInfectionsAndAutism > Subject: Re: New To The Group > Thanks Limin.... can this be done through my regular physician? I am going > tomorrow. I canceled the girls apt today.. we actually did go but my > daughter threw such a tantrum and bit me!!! I can't handle them both by > myself. I was so furious I just walked out and we went home. Maybe > tomorrow will be better... > Blessings, > Muniz > > >> >> >> >> Hi >> >> >> >> Welcome! I just wanted to inquire as to what kind of Dr. you may be >> >> seeing >> >> to have your family tested for Lyme? Many children with gestational >> >> Lyme >> >> do >> >> not test positive for Lyme (even if they are positive) Lyme Dr.s don't >> >> usually take insurance but the testing is so crucial and unfortunately >> >> flawed. Since you know you had a bulls eye rash before you conceived >> >> your >> >> twins...well a bulls eye rash after a tick bite is a positive and most >> >> Lyme >> >> literate Dr.s are acknowledging gestational Lyme. >> >> >> >> Lyme is not just a Lab positive diagnosis but it is a clinical >> >> diagnosis. >> >> It >> >> really will help you to see a LLMD or LLND. I hear you that you don't >> >> have a >> >> lot to spend on alternative medicine. >> >> LIA is having their annual conference April 15th through18th. If you >> >> could >> >> possibly attend it would go very far to shorten your learning curve >> >> and >> >> end >> >> up possibly saving you much time and money. >> >> >> >> If you are unable to attend LIA will be selling the dvds of the >> >> conference. >> >> Trust me these are money well spent....and you can purchase them for >> >> less >> >> than the cost to see one Lyme Dr. for one hour for one child....wish I >> >> had >> >> them when I started my Lyme research. >> >> >> >> So glad you have been lead here....you are making a great start! >> >> >> >> Hugs, >> >> >> > >> > >> > >> > >> > ------------------------------------ >> > >> > Quote Link to comment Share on other sites More sharing options...
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