Re: Having vaginal problems again-help!

[Guest guest]

Daryl,

He gave you Penicillin for a yeast infection? That's

nuts! That will make a yeast infection worse in the

long run. It kills the good organisms that keep yeast

under control along with the bad organisms.

You can get Monistat cream over the counter now . . .

I'd suggest using that.

Your diet is key to getting better . . . I know it's

tough. But, just take one day at a time. I know you

can do it! It can't be any more difficult than feeling

so bad all the time!

Hugs,

Rogene

[Guest guest]

Hi Daryl,

I'm right there with you, except my frustration is skin sores, but it's

preceeded by a vag. & mouth yeast inf., every month for crying out loud

& for no apparent reason. Luckily, I had skin sore cultures done

yesterday; I've got to know what it is, I don't even know what I'm

treating. As for you, Ro is right, antibiotics will cause the yeast to

grow even more out of control. OTC Monistat would be best bet. The

douche your dr. is talking about is the betadine (not perfumed)

variety, it's supposed to restore the ph of the vagina. I'm so sorry

you're having problems after all this time. Take care of yourself & go

get that Monistat!

Cheryl

[Guest guest]

I don't know if Daryl will write soon or not, but I got a call from

her today and wanted to share this.... She tried the Monistat cream

and it actually made things WORSE--she said she is raw and totally

in pain now! It doesn't sound like a yeast infection at this point.

I remember a number of years ago I was having some vaginal trouble.

I kept going back to the gynecologist (this was before implants) and

he kept giving me creams. None of them worked. I must have dealt

with this infection for almost 6 months or more when finally I

decided to go to a new gynecologist. She cultured the infection on

my first appointment, rather than just throwing things at me to try.

Amazingly, the lab results showed a strep infection! No matter how

many anti-fungal creams that other doctor was throwing at me, they

were not going to work. I needed an antibiotic!

Patty

> Daryl,

>

> He gave you Penicillin for a yeast infection? That's

> nuts! That will make a yeast infection worse in the

> long run. It kills the good organisms that keep yeast

> under control along with the bad organisms.

>

> You can get Monistat cream over the counter now . . .

> I'd suggest using that.

>

> Your diet is key to getting better . . . I know it's

> tough. But, just take one day at a time. I know you

> can do it! It can't be any more difficult than feeling

> so bad all the time!

>

> Hugs,

>

> Rogene

[Guest guest]

Hi Patty!

I have had yeast infections severe enough that Monistat made them worse. I don’t know if it was a die-off reaction or the ingredients in Monistat just irritated me. For yeast infections, I always use Diflucan for that reason. Daryl definitely needs to get checked out by her gynecologist. The symptoms for a lot of different vaginal infections seem very similar. When I used to do water aerobics, I would alternate between yeast and bacterial infections because the pH of the pool messed with my pH.

Kenda

I don't know if Daryl will write soon or not, but I got a call from

her today and wanted to share this.... She tried the Monistat cream

and it actually made things WORSE--she said she is raw and totally

in pain now! It doesn't sound like a yeast infection at this point.

I remember a number of years ago I was having some vaginal trouble.

I kept going back to the gynecologist (this was before implants) and

he kept giving me creams. None of them worked. I must have dealt

with this infection for almost 6 months or more when finally I

decided to go to a new gynecologist. She cultured the infection on

my first appointment, rather than just throwing things at me to try.

Amazingly, the lab results showed a strep infection! No matter how

many anti-fungal creams that other doctor was throwing at me, they

were not going to work. I needed an antibiotic!

Patty

> Daryl,

>

> He gave you Penicillin for a yeast infection? That's

> nuts! That will make a yeast infection worse in the

> long run. It kills the good organisms that keep yeast

> under control along with the bad organisms.

>

> You can get Monistat cream over the counter now . . .

> I'd suggest using that.

>

> Your diet is key to getting better . . . I know it's

> tough. But, just take one day at a time. I know you

> can do it! It can't be any more difficult than feeling

> so bad all the time!

>

> Hugs,

>

> Rogene

Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment.

" Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

I once had a yeast infection and used the WalMart equivalent of

Monistat and it turned into a horrible massive reaction. I was swollen

and curled up in a ball from the abdominal pain and then had diarrhea

and headache to top it off. it felt like food poisoning. Once I

figured out that it was from the cream I took some acidophilus pills

and shoved them into my vagina and was fine within a few hours time. I

know that sounds funny but trust me IT WORKS! You can also take cold

unflavored yogurt with active cultures and just cover your vaginal

area with it. not only does it bring you relief on contact t also

kills the yeast. If you use the pills make sure they are disovable

gelatin caps and it helps if you lie down after you insert them.

[Guest guest]

-

Daryl

I know how frustrating this can be --believe me! You need to put

more faith in yourself to find answers. I research all the time for

answers and also put alot of faith in God to direct me to the right

places. Right now I have gotten off of a long plateau by a few

things. First, I am way too acidic. So I have changed my diet

some, and am taking things to make my body less acidic.

Specifically, Miracle 2 neutralizer and am using all their products

which I just love!!! Second, I have gone back to a raw foods diet.

Not entirely, but alot more of it. I am eating lactofermentd foods,

drinking benefcial juices I make with beet and carrot, and drinking

raw milk. I want to add raw cheese and butter and possibly eggs (as

dr. mercola recommends). Since doing these changes, I have been

able to really push taking herbs or supplements or things that used

to make me herx badly with little or no herx. I definitely see it

making a difference. Oh, I am also using magnesium drops with all

the trace minerals and doing detox baths with the miracle 2 soap and

neutralizer. You can also use the neutralizer as a douche for

yeast, as an enema, you can take it internally, put it on all kinds

of skin conditions...I am very impressed with these products and

they were discovered by a man who gives all the glory to God for

helping him to discover the formula. While it would be nice to

fantasize that some doctor would come and stay with you and monitor

you---it is just a fantasy. The overwhelming majority of doctors

dont have a clue as to how to fix you. I find that being persistent

and doing lots of reading online and trying different things and

observing how I react to things is a good approach. Many of us who

have gotten alot better or well have done this. Like Rogene has

said, I figure if something hasn't got much of a chance to harm you,

and might really help, I give it a shot. Sometimes that ends up in

wasted dollars, but so does endless dr. visits and prescription

drugs. Besides, if you don't have your health, not much else

matters. I wish you could feel empowered to believe that you can

find your answers, and feel the peace that God will direct your

paths to it.

Hugs, kathy

-- In , " daryljean35 " <daryljean@c...>

wrote:

> Before my explant 2 yrs. ago, I had constant burning, itching

> vaginal problems. I went to a dozen Dr.s who gave me either yeast

> creams or antibiotics-nothing worked. I would put cold, plain

yogurt

> down there and just sit in the bath for hours. When I had my

explant-

> the problem went away totally for 2 yrs.! 6 days ago it came back

> and it's so painful. I went to my holistic Dr. who gave me

> Penicillin and it isn't working. He told me to use a Masingill

(sp?)

> douche to clear things up but I wanted to get your advice first-I

> had always heard that those douches were not good for us. Who the

> heck knows? I'm so confused.

>

> I'm really at a low point right now-I've paid thousands of Dollars

> to this holistic Dr. who has me on 9 liquid supplements. It has

> helped a little bit with my endometriosis pain but my fibro pain

and

> fatigue is still awful. Now I have a bad cold and this vaginal

> thing! I can't even sit still, it hurts so much! Sometimes, I feel

> like I am being punished for something. I have no control over my

> own body.

>

> I'm listening to these hypnotherapy CD's (another expensive group

I

> joined to try to lose weight and get off sugar) that are supposed

to

> curb my sugar cravings. I feel like I've tried everything to get

rid

> of this Candida. I know that I have a Mycroplasma problem but

don't

> know a Dr. to help me with it.

>

> I wish that I was rich and could fly the right Dr. to my house

and

> have him stay here with me every day to moniter me and make sure

> that I eat only the correct things and take all the right

> supplements. I feel like every day lately has been a struggle.

>

> Sorry to go on and on-getting this vaginal problem back after all

> this time really feels like a defeat. When I was feeling bad, I

used

> to think, Well, at least my vagina is healthy.......any advice?

> Love, Daryl

[Guest guest]

Hi. I just wanted to inform all of you that vulvadynia feels like a

yeast infection and actually most women think that is what they

have. I had the exact same problem about 10 years ago. It can make

you want to kill yourself. I was ready to actually take a cancer

cream to that area or have a mutilating surgery. I found out about

these idiotic procedures through magazine articles. God only knows

how many women went these awful routes. Then by the grace of God,

my brotherinlaw was watching a talk show where they talked about

vulvadynia. He got the number because he thought my sister had

this. She gave it to me. I hooked up with the vpf

vulvarpainfoundation. They have a website. they saved my life!!!

I went on an oxalate free diet, started on calcium citrate, and

immediately felt some improvements. I also found that I actually

had a very low level of yeast that constantly irritated my tissues.

I started using oral nystatin powder as a douche. One tsp. in a

pint of water. That never irritated me. My gyne happily prescribed

it. For the last ten years I have used it anywhere from once a

month to once a week and it has enabled me to pretty pain free. It

doesn't irritate the way all other yeast killers do. I think it is

because it is so mild and nonsensitizing. The research done by Dr.

Clive connects vulvadynia to fibromyalgia. A huge

proportion of people with vulvadynia also have fms. Dr.St Amand

knows this too and has said that his guaifenisen therapy makes

vulvadynia go away. I think anyone who has chronic problems in this

area should go to the vulvar pain website. I only recommend this

site. I have seen others, and I can tell you that theirs has the

best recovery rate. I still support that group and a member.

Hugs, kathy

> I don't know if Daryl will write soon or not, but I got a call

from

> her today and wanted to share this.... She tried the Monistat

cream

> and it actually made things WORSE--she said she is raw and totally

> in pain now! It doesn't sound like a yeast infection at this

point.

>

> I remember a number of years ago I was having some vaginal

trouble.

> I kept going back to the gynecologist (this was before implants)

and

> he kept giving me creams. None of them worked. I must have dealt

> with this infection for almost 6 months or more when finally I

> decided to go to a new gynecologist. She cultured the infection

on

> my first appointment, rather than just throwing things at me to

try.

> Amazingly, the lab results showed a strep infection! No matter

how

> many anti-fungal creams that other doctor was throwing at me, they

> were not going to work. I needed an antibiotic!

> Patty

>

> --- In , Rogene S <saxony01@y...>

wrote:

> > Daryl,

> >

> > He gave you Penicillin for a yeast infection? That's

> > nuts! That will make a yeast infection worse in the

> > long run. It kills the good organisms that keep yeast

> > under control along with the bad organisms.

> >

> > You can get Monistat cream over the counter now . . .

> > I'd suggest using that.

> >

> > Your diet is key to getting better . . . I know it's

> > tough. But, just take one day at a time. I know you

> > can do it! It can't be any more difficult than feeling

> > so bad all the time!

> >

> > Hugs,

> >

> > Rogene

[Guest guest]

Very well said words and excellent advice Kathy! I am so excited

that you are seeing improvements!

Patty

> > Before my explant 2 yrs. ago, I had constant burning, itching

> > vaginal problems. I went to a dozen Dr.s who gave me either

yeast

> > creams or antibiotics-nothing worked. I would put cold, plain

> yogurt

> > down there and just sit in the bath for hours. When I had my

> explant-

> > the problem went away totally for 2 yrs.! 6 days ago it came

back

> > and it's so painful. I went to my holistic Dr. who gave me

> > Penicillin and it isn't working. He told me to use a Masingill

> (sp?)

> > douche to clear things up but I wanted to get your advice first-

I

> > had always heard that those douches were not good for us. Who

the

> > heck knows? I'm so confused.

> >

> > I'm really at a low point right now-I've paid thousands of

Dollars

> > to this holistic Dr. who has me on 9 liquid supplements. It has

> > helped a little bit with my endometriosis pain but my fibro pain

> and

> > fatigue is still awful. Now I have a bad cold and this vaginal

> > thing! I can't even sit still, it hurts so much! Sometimes, I

feel

> > like I am being punished for something. I have no control over

my

> > own body.

> >

> > I'm listening to these hypnotherapy CD's (another expensive

group

> I

> > joined to try to lose weight and get off sugar) that are

supposed

> to

> > curb my sugar cravings. I feel like I've tried everything to get

> rid

> > of this Candida. I know that I have a Mycroplasma problem but

> don't

> > know a Dr. to help me with it.

> >

> > I wish that I was rich and could fly the right Dr. to my house

> and

> > have him stay here with me every day to moniter me and make sure

> > that I eat only the correct things and take all the right

> > supplements. I feel like every day lately has been a struggle.

> >

> > Sorry to go on and on-getting this vaginal problem back after

all

> > this time really feels like a defeat. When I was feeling bad, I

> used

> > to think, Well, at least my vagina is healthy.......any advice?

> > Love, Daryl

[Guest guest]

Hi Kathy,

Do you have Interstitial Cystitis as well? I have IC and have kept it pretty much under control through supplements and diet. I have wondered if I also have vulvadynia but have never been checked for it. What are its symptoms? I’ll do a Google for the vulvarpainfoundation.

Thank you!

Kenda

Hi. I just wanted to inform all of you that vulvadynia feels like a

yeast infection and actually most women think that is what they

have. I had the exact same problem about 10 years ago. It can make

you want to kill yourself. I was ready to actually take a cancer

cream to that area or have a mutilating surgery. I found out about

these idiotic procedures through magazine articles. God only knows

how many women went these awful routes. Then by the grace of God,

my brotherinlaw was watching a talk show where they talked about

vulvadynia. He got the number because he thought my sister had

this. She gave it to me. I hooked up with the vpf

vulvarpainfoundation. They have a website. they saved my life!!!

I went on an oxalate free diet, started on calcium citrate, and

immediately felt some improvements. I also found that I actually

had a very low level of yeast that constantly irritated my tissues.

I started using oral nystatin powder as a douche. One tsp. in a

pint of water. That never irritated me. My gyne happily prescribed

it. For the last ten years I have used it anywhere from once a

month to once a week and it has enabled me to pretty pain free. It

doesn't irritate the way all other yeast killers do. I think it is

because it is so mild and nonsensitizing. The research done by Dr.

Clive connects vulvadynia to fibromyalgia. A huge

proportion of people with vulvadynia also have fms. Dr.St Amand

knows this too and has said that his guaifenisen therapy makes

vulvadynia go away. I think anyone who has chronic problems in this

area should go to the vulvar pain website. I only recommend this

site. I have seen others, and I can tell you that theirs has the

best recovery rate. I still support that group and a member.

Hugs, kathy

> I don't know if Daryl will write soon or not, but I got a call

from

> her today and wanted to share this.... She tried the Monistat

cream

> and it actually made things WORSE--she said she is raw and totally

> in pain now! It doesn't sound like a yeast infection at this

point.

>

> I remember a number of years ago I was having some vaginal

trouble.

> I kept going back to the gynecologist (this was before implants)

and

> he kept giving me creams. None of them worked. I must have dealt

> with this infection for almost 6 months or more when finally I

> decided to go to a new gynecologist. She cultured the infection

on

> my first appointment, rather than just throwing things at me to

try.

> Amazingly, the lab results showed a strep infection! No matter

how

> many anti-fungal creams that other doctor was throwing at me, they

> were not going to work. I needed an antibiotic!

> Patty

>

> --- In , Rogene S <saxony01@y...>

wrote:

> > Daryl,

> >

> > He gave you Penicillin for a yeast infection? That's

> > nuts! That will make a yeast infection worse in the

> > long run. It kills the good organisms that keep yeast

> > under control along with the bad organisms.

> >

> > You can get Monistat cream over the counter now . . .

> > I'd suggest using that.

> >

> > Your diet is key to getting better . . . I know it's

> > tough. But, just take one day at a time. I know you

> > can do it! It can't be any more difficult than feeling

> > so bad all the time!

> >

> > Hugs,

> >

> > Rogene

Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment.

" Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

Kenda

Luckily I dont have IC though at one time I felt like I was

developing it. It is part and parcel of the same problem---as is

irritable bowel. The low oxalate calcium citrate may help that

too. I haven't been on the site for a couple of years so don't

currently know what is happening. I used to get their newsletter

through the mail. Their founder is very knowledgable. To this day,

if I eat pepper I start burning down there again. I know Dr. Amand

believes that all of that and fms will disappear with the guai

treatment. I started on the gaui right before I got very very

sick. I now wonder if it released so many toxins that I couldn't

get rid of that it blew the lid off my illness. I have always

thought some day I would go back to it. But I am currently a little

fearful. Dr.Amand believes that something builds up in the cells

(possibly phospates) and makes the cells toxic. For some reason

people with fms can't eliminate it. Since it is at the cellular

level, it affects everything in your body. He has good success but

there are significant and prolonged herxes on the guai. It does make

sense, but I also think that our cells will detox if we provide them

with enough of the right ingredients. That is my current approach.

I have talked to some people though who the gaufenisen treatment

completely changed their lives.

kathy

> >>> > > Daryl,

> >>> > >

> >>> > > He gave you Penicillin for a yeast infection? That's

> >>> > > nuts! That will make a yeast infection worse in the

> >>> > > long run. It kills the good organisms that keep yeast

> >>> > > under control along with the bad organisms.

> >>> > >

> >>> > > You can get Monistat cream over the counter now . . .

> >>> > > I'd suggest using that.

> >>> > >

> >>> > > Your diet is key to getting better . . . I know it's

> >>> > > tough. But, just take one day at a time. I know you

> >>> > > can do it! It can't be any more difficult than feeling

> >>> > > so bad all the time!

> >>> > >

> >>> > > Hugs,

> >>> > >

> >>> > > Rogene

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place of advice

given by licensed

> > health care professionals. Consult your physician or licensed

health care

> > professional before commencing any medical treatment.

> >

> > " Do not let either the medical authorities or the politicians

mislead you.

> > Find out what the facts are, and make your own decisions about

how to live a

> > happy life and how to work for a better world. " - Linus ing,

two-time

> > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

> >

[Guest guest]

Hi Kathy,

My IC cleared up 90% with diet change and supplementation alone but it has flared up now for some reason. I wonder now if what I don’t have is vulvadynia because the pain isn’t up high in my bladder. I have been bad, drinking Starbucks a couple of times a week for a few months but that alone wouldn’t usually trigger a reaction. I am taking all of my bladder things from Dr. Leu now but will try to alkanalize myself too to see if that helps. I know the coffee is probably making my body too acidic. What does the calcium citrate do?

Kenda

Kenda

Luckily I dont have IC though at one time I felt like I was

developing it. It is part and parcel of the same problem---as is

irritable bowel. The low oxalate calcium citrate may help that

too. I haven't been on the site for a couple of years so don't

currently know what is happening. I used to get their newsletter

through the mail. Their founder is very knowledgable. To this day,

if I eat pepper I start burning down there again. I know Dr. Amand

believes that all of that and fms will disappear with the guai

treatment. I started on the gaui right before I got very very

sick. I now wonder if it released so many toxins that I couldn't

get rid of that it blew the lid off my illness. I have always

thought some day I would go back to it. But I am currently a little

fearful. Dr.Amand believes that something builds up in the cells

(possibly phospates) and makes the cells toxic. For some reason

people with fms can't eliminate it. Since it is at the cellular

level, it affects everything in your body. He has good success but

there are significant and prolonged herxes on the guai. It does make

sense, but I also think that our cells will detox if we provide them

with enough of the right ingredients. That is my current approach.

I have talked to some people though who the gaufenisen treatment

completely changed their lives.

kathy

> >>> > > Daryl,

> >>> > >

> >>> > > He gave you Penicillin for a yeast infection? That's

> >>> > > nuts! That will make a yeast infection worse in the

> >>> > > long run. It kills the good organisms that keep yeast

> >>> > > under control along with the bad organisms.

> >>> > >

> >>> > > You can get Monistat cream over the counter now . . .

> >>> > > I'd suggest using that.

> >>> > >

> >>> > > Your diet is key to getting better . . . I know it's

> >>> > > tough. But, just take one day at a time. I know you

> >>> > > can do it! It can't be any more difficult than feeling

> >>> > > so bad all the time!

> >>> > >

> >>> > > Hugs,

> >>> > >

> >>> > > Rogene

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place of advice

given by licensed

> > health care professionals. Consult your physician or licensed

health care

> > professional before commencing any medical treatment.

> >

> > " Do not let either the medical authorities or the politicians

mislead you.

> > Find out what the facts are, and make your own decisions about

how to live a

> > happy life and how to work for a better world. " - Linus ing,

two-time

> > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

> >

[Guest guest]

Kenda

I copied and pasted some info from their site. I used to have all

of their newsletters in a file, but threw it away a year or two ago

as i didn't need it anymore. The calcium citrate is timed to take

when your urine has a high amount of oxalate in it. Not sure

anymore what it actually does. They also use NAG and other

therapies. IC is thought to be a sister disorder. Here is some

info from their site:

The Vulvar Pain Foundation (VPF) was incorporated in the United

States (North Carolina) as a nonprofit organization in October 1992.

It was started to end the isolation of women suffering from vulvar

pain and related disorders, and to give them reliable information,

hope, support, safety, and success in their search for freedom from

pain.

In February 1993, the Foundation instituted a membership

program for women experiencing vulvar pain and related disorders,

their families and friends, and interested health care

professionals. Subsequently, medical doctors, nurses, physical

therapists, nutritionists, and other professionals joined the VPF

along with women and their loved ones.

The Foundation's immediate purposes in 1993 were to reach

large

numbers of women suffering from vulvar pain, and to create public

awareness of chronic vulvar pain as separate from and more serious

than a " yeast infection. " During the next ten years, as a

result of

publications in the New York Times, Ladies' Home Journal,

Women's

Health Digest, The Scientist, Taber's Medical Dictionary,

broadcasts

of The Bertice Berry Show, NBC Nightly News, Voice of America, the

Internet and more, over 50,000 people have contacted the VPF for

information.

The VPF sponsored 32 Research Seminars throughout the United

States and Canada between December 1992 and October 2004. Nationally

recognized researchers, clinicians, and therapists educated 1,787

women, spouses, partners, and health care professionals, resulting

in recovery for the majority.

Since 1993 the Foundation has published 24 issues of The Vulvar

Pain Newsletter. The Newsletter features articles on treatments

which actually work, as reported first-hand by large numbers of

women who recovered. Successful treatments include those related to

oxalate metabolism and connective tissue stabilization (low oxalate

diet, timed calcium citrate, Ox-Absorb, NAG, HTO) available through

a research project known as The Pain Project; topical estrogen,

physical therapy, especially pelvic floor muscle rehabilitation;

natural therapies, including emu oil; and guaifenesin.

Based on research and overall treatment responses reported by

thousands of women, it has become evident that vulvar pain is

associated with a connective tissues disorder which also involves

urological, intestinal, muscle, and cognitive discomfort

(interstitial cystitis, irritable bowel syndrome, fibromyalgia).

Many women with vulvar pain symptoms also report urological

symptoms: urgency and frequency, bladder or urethral burning, and

red blood cells in urine in the absence of infection. This

constellation of urological symptoms also fits the diagnosis of

interstitial cystitis (IC).

Other typically reported symptoms include rectal itching and

burning and frequent bowel movements associated with irritable bowel

syndrome; burning mouth and tongue syndrome; and dry eyes and mouth

associated with Sjogren's syndrome.

Another disorder frequently diagnosed in women who have vulvar

pain is fibromyalgia (formerly known as " fibrositis " ). Characterized

by tender, sore, stiff muscles, fibromyalgia is usually accompanied

by chronic fatigue and a cascade of full body symptoms that coincide

with those reported by vulvar pain sufferers. Sinusitis, headaches,

allergies, and chemical sensitivities are reported by fibromyalgics

and vulvar pain sufferers alike.

> >>>>>>> > >>> > > Daryl,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > He gave you Penicillin for a yeast infection?

That's

> >>>>>>> > >>> > > nuts! That will make a yeast infection worse in

the

> >>>>>>> > >>> > > long run. It kills the good organisms that keep

yeast

> >>>>>>> > >>> > > under control along with the bad organisms.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > You can get Monistat cream over the counter

now . . .

> >>>>>>> > >>> > > I'd suggest using that.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Your diet is key to getting better . . . I know

it's

> >>>>>>> > >>> > > tough. But, just take one day at a time. I know

you

> >>>>>>> > >>> > > can do it! It can't be any more difficult than

feeling

> >>>>>>> > >>> > > so bad all the time!

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Hugs,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Rogene

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> > > Opinions expressed are NOT meant to take the place of

advice

> > given by licensed

> >>> > > health care professionals. Consult your physician or

licensed

> > health care

> >>> > > professional before commencing any medical treatment.

> >>> > >

> >>> > > " Do not let either the medical authorities or the

politicians

> > mislead you.

> >>> > > Find out what the facts are, and make your own decisions

about

> > how to live a

> >>> > > happy life and how to work for a better world. " - Linus

ing,

> > two-time

> >>> > > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >>> > >

> >>> > >

[Guest guest]

Thank you, Kathy. This definitely sounds like me. I’ll dig more into it today!

Kenda

Kenda

I copied and pasted some info from their site. I used to have all

of their newsletters in a file, but threw it away a year or two ago

as i didn't need it anymore. The calcium citrate is timed to take

when your urine has a high amount of oxalate in it. Not sure

anymore what it actually does. They also use NAG and other

therapies. IC is thought to be a sister disorder. Here is some

info from their site:

The Vulvar Pain Foundation (VPF) was incorporated in the United

States (North Carolina) as a nonprofit organization in October 1992.

It was started to end the isolation of women suffering from vulvar

pain and related disorders, and to give them reliable information,

hope, support, safety, and success in their search for freedom from

pain.

In February 1993, the Foundation instituted a membership

program for women experiencing vulvar pain and related disorders,

their families and friends, and interested health care

professionals. Subsequently, medical doctors, nurses, physical

therapists, nutritionists, and other professionals joined the VPF

along with women and their loved ones.

The Foundation's immediate purposes in 1993 were to reach

large

numbers of women suffering from vulvar pain, and to create public

awareness of chronic vulvar pain as separate from and more serious

than a " yeast infection. " During the next ten years, as a

result of

publications in the New York Times, Ladies' Home Journal,

Women's

Health Digest, The Scientist, Taber's Medical Dictionary,

broadcasts

of The Bertice Berry Show, NBC Nightly News, Voice of America, the

Internet and more, over 50,000 people have contacted the VPF for

information.

The VPF sponsored 32 Research Seminars throughout the United

States and Canada between December 1992 and October 2004. Nationally

recognized researchers, clinicians, and therapists educated 1,787

women, spouses, partners, and health care professionals, resulting

in recovery for the majority.

Since 1993 the Foundation has published 24 issues of The Vulvar

Pain Newsletter. The Newsletter features articles on treatments

which actually work, as reported first-hand by large numbers of

women who recovered. Successful treatments include those related to

oxalate metabolism and connective tissue stabilization (low oxalate

diet, timed calcium citrate, Ox-Absorb, NAG, HTO) available through

a research project known as The Pain Project; topical estrogen,

physical therapy, especially pelvic floor muscle rehabilitation;

natural therapies, including emu oil; and guaifenesin.

Based on research and overall treatment responses reported by

thousands of women, it has become evident that vulvar pain is

associated with a connective tissues disorder which also involves

urological, intestinal, muscle, and cognitive discomfort

(interstitial cystitis, irritable bowel syndrome, fibromyalgia).

Many women with vulvar pain symptoms also report urological

symptoms: urgency and frequency, bladder or urethral burning, and

red blood cells in urine in the absence of infection. This

constellation of urological symptoms also fits the diagnosis of

interstitial cystitis (IC).

Other typically reported symptoms include rectal itching and

burning and frequent bowel movements associated with irritable bowel

syndrome; burning mouth and tongue syndrome; and dry eyes and mouth

associated with Sjogren's syndrome.

Another disorder frequently diagnosed in women who have vulvar

pain is fibromyalgia (formerly known as " fibrositis " ). Characterized

by tender, sore, stiff muscles, fibromyalgia is usually accompanied

by chronic fatigue and a cascade of full body symptoms that coincide

with those reported by vulvar pain sufferers. Sinusitis, headaches,

allergies, and chemical sensitivities are reported by fibromyalgics

and vulvar pain sufferers alike.

> >>>>>>> > >>> > > Daryl,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > He gave you Penicillin for a yeast infection?

That's

> >>>>>>> > >>> > > nuts! That will make a yeast infection worse in

the

> >>>>>>> > >>> > > long run. It kills the good organisms that keep

yeast

> >>>>>>> > >>> > > under control along with the bad organisms.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > You can get Monistat cream over the counter

now . . .

> >>>>>>> > >>> > > I'd suggest using that.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Your diet is key to getting better . . . I know

it's

> >>>>>>> > >>> > > tough. But, just take one day at a time. I know

you

> >>>>>>> > >>> > > can do it! It can't be any more difficult than

feeling

> >>>>>>> > >>> > > so bad all the time!

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Hugs,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Rogene

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> > > Opinions expressed are NOT meant to take the place of

advice

> > given by licensed

> >>> > > health care professionals. Consult your physician or

licensed

> > health care

> >>> > > professional before commencing any medical treatment.

> >>> > >

> >>> > > " Do not let either the medical authorities or the

politicians

> > mislead you.

> >>> > > Find out what the facts are, and make your own decisions

about

> > how to live a

> >>> > > happy life and how to work for a better world. " - Linus

ing,

> > two-time

> >>> > > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >>> > >

> >>> > >

[Guest guest]

Hi Kathy,

Thank you so much for this information. Where do you get your calcium citrate and NAG? Dr. Leu is out of town speaking at a conference so I can’t phone him.

Kenda

Kenda

I copied and pasted some info from their site. I used to have all

of their newsletters in a file, but threw it away a year or two ago

as i didn't need it anymore. The calcium citrate is timed to take

when your urine has a high amount of oxalate in it. Not sure

anymore what it actually does. They also use NAG and other

therapies. IC is thought to be a sister disorder. Here is some

info from their site:

The Vulvar Pain Foundation (VPF) was incorporated in the United

States (North Carolina) as a nonprofit organization in October 1992.

It was started to end the isolation of women suffering from vulvar

pain and related disorders, and to give them reliable information,

hope, support, safety, and success in their search for freedom from

pain.

In February 1993, the Foundation instituted a membership

program for women experiencing vulvar pain and related disorders,

their families and friends, and interested health care

professionals. Subsequently, medical doctors, nurses, physical

therapists, nutritionists, and other professionals joined the VPF

along with women and their loved ones.

The Foundation's immediate purposes in 1993 were to reach

large

numbers of women suffering from vulvar pain, and to create public

awareness of chronic vulvar pain as separate from and more serious

than a " yeast infection. " During the next ten years, as a

result of

publications in the New York Times, Ladies' Home Journal,

Women's

Health Digest, The Scientist, Taber's Medical Dictionary,

broadcasts

of The Bertice Berry Show, NBC Nightly News, Voice of America, the

Internet and more, over 50,000 people have contacted the VPF for

information.

The VPF sponsored 32 Research Seminars throughout the United

States and Canada between December 1992 and October 2004. Nationally

recognized researchers, clinicians, and therapists educated 1,787

women, spouses, partners, and health care professionals, resulting

in recovery for the majority.

Since 1993 the Foundation has published 24 issues of The Vulvar

Pain Newsletter. The Newsletter features articles on treatments

which actually work, as reported first-hand by large numbers of

women who recovered. Successful treatments include those related to

oxalate metabolism and connective tissue stabilization (low oxalate

diet, timed calcium citrate, Ox-Absorb, NAG, HTO) available through

a research project known as The Pain Project; topical estrogen,

physical therapy, especially pelvic floor muscle rehabilitation;

natural therapies, including emu oil; and guaifenesin.

Based on research and overall treatment responses reported by

thousands of women, it has become evident that vulvar pain is

associated with a connective tissues disorder which also involves

urological, intestinal, muscle, and cognitive discomfort

(interstitial cystitis, irritable bowel syndrome, fibromyalgia).

Many women with vulvar pain symptoms also report urological

symptoms: urgency and frequency, bladder or urethral burning, and

red blood cells in urine in the absence of infection. This

constellation of urological symptoms also fits the diagnosis of

interstitial cystitis (IC).

Other typically reported symptoms include rectal itching and

burning and frequent bowel movements associated with irritable bowel

syndrome; burning mouth and tongue syndrome; and dry eyes and mouth

associated with Sjogren's syndrome.

Another disorder frequently diagnosed in women who have vulvar

pain is fibromyalgia (formerly known as " fibrositis " ). Characterized

by tender, sore, stiff muscles, fibromyalgia is usually accompanied

by chronic fatigue and a cascade of full body symptoms that coincide

with those reported by vulvar pain sufferers. Sinusitis, headaches,

allergies, and chemical sensitivities are reported by fibromyalgics

and vulvar pain sufferers alike.

> >>>>>>> > >>> > > Daryl,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > He gave you Penicillin for a yeast infection?

That's

> >>>>>>> > >>> > > nuts! That will make a yeast infection worse in

the

> >>>>>>> > >>> > > long run. It kills the good organisms that keep

yeast

> >>>>>>> > >>> > > under control along with the bad organisms.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > You can get Monistat cream over the counter

now . . .

> >>>>>>> > >>> > > I'd suggest using that.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Your diet is key to getting better . . . I know

it's

> >>>>>>> > >>> > > tough. But, just take one day at a time. I know

you

> >>>>>>> > >>> > > can do it! It can't be any more difficult than

feeling

> >>>>>>> > >>> > > so bad all the time!

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Hugs,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Rogene

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> > > Opinions expressed are NOT meant to take the place of

advice

> > given by licensed

> >>> > > health care professionals. Consult your physician or

licensed

> > health care

> >>> > > professional before commencing any medical treatment.

> >>> > >

> >>> > > " Do not let either the medical authorities or the

politicians

> > mislead you.

> >>> > > Find out what the facts are, and make your own decisions

about

> > how to live a

> >>> > > happy life and how to work for a better world. " - Linus

ing,

> > two-time

> >>> > > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >>> > >

> >>> > >

[Guest guest]

Kathy,

I hate to start taking guafenisen since it is a prescription drug. I’d like to steer clear of drugs if at all possible. The problem isn’t usually bad at all but is right now. I have had great success with detoxing alone but the low oxalate calcium citrate is something I’d like to try. I have always felt that my urine is too acidic, maybe this will help?

Kenda

Kenda

Luckily I dont have IC though at one time I felt like I was

developing it. It is part and parcel of the same problem---as is

irritable bowel. The low oxalate calcium citrate may help that

too. I haven't been on the site for a couple of years so don't

currently know what is happening. I used to get their newsletter

through the mail. Their founder is very knowledgable. To this day,

if I eat pepper I start burning down there again. I know Dr. Amand

believes that all of that and fms will disappear with the guai

treatment. I started on the gaui right before I got very very

sick. I now wonder if it released so many toxins that I couldn't

get rid of that it blew the lid off my illness. I have always

thought some day I would go back to it. But I am currently a little

fearful. Dr.Amand believes that something builds up in the cells

(possibly phospates) and makes the cells toxic. For some reason

people with fms can't eliminate it. Since it is at the cellular

level, it affects everything in your body. He has good success but

there are significant and prolonged herxes on the guai. It does make

sense, but I also think that our cells will detox if we provide them

with enough of the right ingredients. That is my current approach.

I have talked to some people though who the gaufenisen treatment

completely changed their lives.

kathy

> >>> > > Daryl,

> >>> > >

> >>> > > He gave you Penicillin for a yeast infection? That's

> >>> > > nuts! That will make a yeast infection worse in the

> >>> > > long run. It kills the good organisms that keep yeast

> >>> > > under control along with the bad organisms.

> >>> > >

> >>> > > You can get Monistat cream over the counter now . . .

> >>> > > I'd suggest using that.

> >>> > >

> >>> > > Your diet is key to getting better . . . I know it's

> >>> > > tough. But, just take one day at a time. I know you

> >>> > > can do it! It can't be any more difficult than feeling

> >>> > > so bad all the time!

> >>> > >

> >>> > > Hugs,

> >>> > >

> >>> > > Rogene

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place of advice

given by licensed

> > health care professionals. Consult your physician or licensed

health care

> > professional before commencing any medical treatment.

> >

> > " Do not let either the medical authorities or the politicians

mislead you.

> > Find out what the facts are, and make your own decisions about

how to live a

> > happy life and how to work for a better world. " - Linus ing,

two-time

> > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

> >

[Guest guest]

guafenisen - What is it exactly & how does it work? I looked it up and saw that

it was

prescribed for fibro, but that its primary or original use was for eliminating

mucus in sinus

problems! What does it do for fibro?

I have fibro, along with all the other stuff....groan.

I am trying to find anything that will help with energy, focus, joint pain and

losing weight.

The latter I figure I am just going to have to grin & diet. But anythign to

help pain &

energy I'm all for.

> >>>>>>> > >>> > > Daryl,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > He gave you Penicillin for a yeast infection? That's

> >>>>>>> > >>> > > nuts! That will make a yeast infection worse in the

> >>>>>>> > >>> > > long run. It kills the good organisms that keep yeast

> >>>>>>> > >>> > > under control along with the bad organisms.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > You can get Monistat cream over the counter now . . .

> >>>>>>> > >>> > > I'd suggest using that.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Your diet is key to getting better . . . I know it's

> >>>>>>> > >>> > > tough. But, just take one day at a time. I know you

> >>>>>>> > >>> > > can do it! It can't be any more difficult than feeling

> >>>>>>> > >>> > > so bad all the time!

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Hugs,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Rogene

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> > > Opinions expressed are NOT meant to take the place of advice

> > given by licensed

> >>> > > health care professionals. Consult your physician or licensed

> > health care

> >>> > > professional before commencing any medical treatment.

> >>> > >

> >>> > > " Do not let either the medical authorities or the politicians

> > mislead you.

> >>> > > Find out what the facts are, and make your own decisions about

> > how to live a

> >>> > > happy life and how to work for a better world. " - Linus ing,

> > two-time

> >>> > > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >>> > >

> >>> > >

[Guest guest]

Hello,

Guafenisen is used to treat sinus problems and colds. It loosens the

mucus. Very effective for that. For Fibro....you have to avoid alot

of products. I don't have the name of them off the top of my head

but there are a number.

Also guafenisen called be purchased over the counter. It is called

mucinex.

> > >>>>>>> > >>> > > Daryl,

> > >>>>>>> > >>> > >

> > >>>>>>> > >>> > > He gave you Penicillin for a yeast infection?

That's

> > >>>>>>> > >>> > > nuts! That will make a yeast infection worse in

the

> > >>>>>>> > >>> > > long run. It kills the good organisms that keep

yeast

> > >>>>>>> > >>> > > under control along with the bad organisms.

> > >>>>>>> > >>> > >

> > >>>>>>> > >>> > > You can get Monistat cream over the counter

now . . .

> > >>>>>>> > >>> > > I'd suggest using that.

> > >>>>>>> > >>> > >

> > >>>>>>> > >>> > > Your diet is key to getting better . . . I know

it's

> > >>>>>>> > >>> > > tough. But, just take one day at a time. I know

you

> > >>>>>>> > >>> > > can do it! It can't be any more difficult than

feeling

> > >>>>>>> > >>> > > so bad all the time!

> > >>>>>>> > >>> > >

> > >>>>>>> > >>> > > Hugs,

> > >>>>>>> > >>> > >

> > >>>>>>> > >>> > > Rogene

> > >>> > >

> > >>> > >

> > >>> > >

> > >>> > >

> > >>> > > Opinions expressed are NOT meant to take the place of

advice

> > > given by licensed

> > >>> > > health care professionals. Consult your physician or

licensed

> > > health care

> > >>> > > professional before commencing any medical treatment.

> > >>> > >

> > >>> > > " Do not let either the medical authorities or the

politicians

> > > mislead you.

> > >>> > > Find out what the facts are, and make your own decisions

about

> > > how to live a

> > >>> > > happy life and how to work for a better world. " - Linus

ing,

> > > two-time

> > >>> > > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> > >>> > >

> > >>> > >

[Guest guest]

Molly,

I've found deep, therapeutic massage the best thing

ever for pain. . . With FM, the tissue covering the

muscle (fascia) becomes very tight. This causes pain

in the muscles and joints. . . A good massage

therapist stretches this tissue. If feels like being

cut with a knife. But only momentarily. Then the pain

relief comes, and lasts longer than anything else I've

tried.

Some suggestions . . . take a hot bath or long, hot

shower before massage . . . take a pain pill . . . and

give the massage therapist permission to go as deeply

as necessary to do the job. As time goes by, and the

tissue stays stretched, the massages become far less

painful as the therapist can work the deeper muscles.

I have an incredible massage therapist! I see her

every two weeks. For the first time in years, when I

saw her, I haven't had a pain anywhere. . . She still

finds spots that need work though.

If you become a regular customer, you can often

negotiate a lower price than the going rate!

Also, infrared saunas are incredible! . . . Do a web

search for " far infrared therapy " . The infrared light

penetrates the tissues up to two inches. The sweat

from far infrared shows more toxins are released than

with dry or steam saunas. The air temp in far infrared

is not that high . . . basically, it's heating the

tissue, mobilizing the body's defenses as it would if

you had a fever.

Your energy levels will begin building as you

exercise. . . Deep breathing exercise will help too.

It's one step at a time. You're going to get there

though! I KNOW you will! You've already come a long

way.

Hugs,

Rogene

[Guest guest]

Kenda

I think you can buy them both online. I don't really have a problem

anymore so I dont' take them anymore. What helped me almost

immediately was the low oxalate diet. I cut out pepper, chocolate,

and other high oxalate foods. Did you go to their website? I

havent been on it for awhile to see any updates. I also used

estrace--another recommended treatment for awhile. It seemed to

help. You use about the amount that you would put on a toothbrush

and rub into that area nightly. It takes a few days to a few weeks

to notice an improvement. Some people experience more irritation at

first. I did and then there was improvement. Never use cortisone

creams which most docs try to prescribe. Or testosterone which I

had a doctor give me too. I don't know if you can still talk to

Joanne Yount--the founder of the organization, but she is really

helpful and knowledgeable. The phone number is listed on the

website. To be the most effective, people were

recommended to get a 24 hour urine test from Clive 's

practice. It has to be a special test. Then he was able to see

peak times that oxalates were excreted and timed the taking (and

dosage) of calcium citrate to that. I never had that done, I just

started on what most people took and it seemed to work for me. I

would highly recommend joining that organization. Here is info on

that:

Network memberships are for current and former sufferers of vulvar

pain and related disorders. The yearly fee for Network memberships

is $40.00.* However, if you are experiencing extreme financial

hardship, please let us know, and you may give whatever is possible

for you at this time. You may also pay your fee in installments.

Vulvar pain is a private disorder. The Foundation maintains

confidentiality in all of its work. The VPF does not disclose or

sell its database or mailing list to anyone. Participation in the

VPF Support Network is voluntary. (Please see Network Membership

form.)

If you live in Canada or Mexico, add $5.00 to your basic membership

fee for postage. If you live in other countries, add $10.00 to your

basic membership fee for international postage. Please make checks

or money orders payable in U.S. Dollars or the equivalent.

Your Membership entitles you to:

The Vulvar Pain Newsletter

Invitations to Regional VPF Seminars

Opportunities to participate in the VPF Support Network and

VPF Support Group activities

Educational resources at special low prices

— Videotapes of VPF Seminars

— The Low Oxalate Cookbook

— Bibliography of scientific and medical journal articles

— Supplemental materials

Opportunities to participate in research studies and surveys

Contact information on interested health care professionals

Distribution of information to health care professionals on your

request

It really is a great organization and the newsletters are very

comprehensive, often dealing with husbands and how to help them

understand and support their wives as vulvadynia often affects

sexual relationships due to pain, irritation, urethral symptoms,

etc.

Hugs, kathy

> >>>>>>>>>>>> > >>>>>>> > >>> > > Daryl,

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > He gave you Penicillin for a

yeast infection?

> > That's

> >>>>>>>>>>>> > >>>>>>> > >>> > > nuts! That will make a yeast

infection worse in

> > the

> >>>>>>>>>>>> > >>>>>>> > >>> > > long run. It kills the good

organisms that keep

> > yeast

> >>>>>>>>>>>> > >>>>>>> > >>> > > under control along with the bad

organisms.

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > You can get Monistat cream over

the counter

> > now . . .

> >>>>>>>>>>>> > >>>>>>> > >>> > > I'd suggest using that.

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > Your diet is key to getting

better . . . I know

> > it's

> >>>>>>>>>>>> > >>>>>>> > >>> > > tough. But, just take one day at

a time. I know

> > you

> >>>>>>>>>>>> > >>>>>>> > >>> > > can do it! It can't be any more

difficult than

> > feeling

> >>>>>>>>>>>> > >>>>>>> > >>> > > so bad all the time!

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > Hugs,

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > Rogene

> >>>>>>> > >>> > >

> >>>>>>> > >>> > >

> >>>>>>> > >>> > >

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Opinions expressed are NOT meant to take the

place of

> > advice

> >>> > > given by licensed

> >>>>>>> > >>> > > health care professionals. Consult your

physician or

> > licensed

> >>> > > health care

> >>>>>>> > >>> > > professional before commencing any medical

treatment.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > " Do not let either the medical authorities or the

> > politicians

> >>> > > mislead you.

> >>>>>>> > >>> > > Find out what the facts are, and make your own

decisions

> > about

> >>> > > how to live a

> >>>>>>> > >>> > > happy life and how to work for a better world. " -

Linus

> > ing,

> >>> > > two-time

> >>>>>>> > >>> > > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >>>>>>> > >>> > >

> >>>>>>> > >>> > >

[Guest guest]

When we have a little extra cash, I am going to do that. I have had massage

therapist

before, and they were wonderful. I would love to do that again.

I am starting to stretch and exercise a little. Getting in the pool helps.

Thanks for the encouragement, Rogene.

> Molly,

>

> I've found deep, therapeutic massage the best thing

> ever for pain. . . With FM, the tissue covering the

> muscle (fascia) becomes very tight. This causes pain

> in the muscles and joints. . . A good massage

> therapist stretches this tissue. If feels like being

> cut with a knife. But only momentarily. Then the pain

> relief comes, and lasts longer than anything else I've

> tried.

>

> Some suggestions . . . take a hot bath or long, hot

> shower before massage . . . take a pain pill . . . and

> give the massage therapist permission to go as deeply

> as necessary to do the job. As time goes by, and the

> tissue stays stretched, the massages become far less

> painful as the therapist can work the deeper muscles.

>

> I have an incredible massage therapist! I see her

> every two weeks. For the first time in years, when I

> saw her, I haven't had a pain anywhere. . . She still

> finds spots that need work though.

>

> If you become a regular customer, you can often

> negotiate a lower price than the going rate!

>

> Also, infrared saunas are incredible! . . . Do a web

> search for " far infrared therapy " . The infrared light

> penetrates the tissues up to two inches. The sweat

> from far infrared shows more toxins are released than

> with dry or steam saunas. The air temp in far infrared

> is not that high . . . basically, it's heating the

> tissue, mobilizing the body's defenses as it would if

> you had a fever.

>

> Your energy levels will begin building as you

> exercise. . . Deep breathing exercise will help too.

>

> It's one step at a time. You're going to get there

> though! I KNOW you will! You've already come a long

> way.

>

> Hugs,

>

> Rogene

[Guest guest]

Hi Kathy,

I think it is my hormones that is causing the irritation. I am on an aromatase inhibitor to dump excess estrogen, just started it a few weeks ago. I am getting hot flashes now but Dr. Leu said that is normal because my hormone balance is changing. The aromatase inhibitor should dump the estrogen but allow my testosterone to stay a bit high, which he considers healthy. I’m glad you mentioned the hormone connection because at least I have a reason to associate with this increase in symptoms. Up until now, my bladder symptoms have been totally controlled by diet.

Kenda

It could, and so could a very alkalinizing diet. Seriously, you

might want to consider that Miracle 2 Neutralizer and soap. First

the soap is only a mixture of mag/calc/potass/otherminerals/ash of

decadyl I think, energised water(eloptic I think they said). It is

completely non irritating and has allowed me to take a bubble bath

in it which I haven't done since a kid because of irritation to

private parts. The neutralzier can be put on any irritation and

also taken internally. Apparently the products have an extremely

high alkalinzation of like over 9.0 thus the effect on the body.

All I can say is they are helping me overcome herx effects when

NOTHING else would. I love these products. Guaifenisen is sold as

a prescription buy also over the counter. I think it is really

pretty safe. It, like everything else, really works for some

people, and works partially for others. It has no serious side

effects, only nuisance ones like possible nausea dizziness, etc and

the drug is described as having a wide margin of safety. Many

people with fms have used it. It might be something to keep in mind

if other things don't work.

Also, I think that vulvadynia, IC, and others get worse around

perimenopause and menopause due to fluctuating hormone levels which

estrogen especially affects the strength and integrity of our

tissues. That is why one of the treatments is to use estrace cream

on the outside of the genitals. It strengthens them and makes them

less likely to suffer trauma from irritation, sex, just about

anything. Good luck.

Hugs, kathy

> >>>>>>> > >>> > > Daryl,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > He gave you Penicillin for a yeast infection?

That's

> >>>>>>> > >>> > > nuts! That will make a yeast infection worse in

the

> >>>>>>> > >>> > > long run. It kills the good organisms that keep

yeast

> >>>>>>> > >>> > > under control along with the bad organisms.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > You can get Monistat cream over the counter

now . . .

> >>>>>>> > >>> > > I'd suggest using that.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Your diet is key to getting better . . . I know

it's

> >>>>>>> > >>> > > tough. But, just take one day at a time. I know

you

> >>>>>>> > >>> > > can do it! It can't be any more difficult than

feeling

> >>>>>>> > >>> > > so bad all the time!

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Hugs,

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Rogene

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> > > Opinions expressed are NOT meant to take the place of

advice

> > given by licensed

> >>> > > health care professionals. Consult your physician or

licensed

> > health care

> >>> > > professional before commencing any medical treatment.

> >>> > >

> >>> > > " Do not let either the medical authorities or the

politicians

> > mislead you.

> >>> > > Find out what the facts are, and make your own decisions

about

> > how to live a

> >>> > > happy life and how to work for a better world. " - Linus

ing,

> > two-time

> >>> > > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >>> > >

> >>> > >

[Guest guest]

Thank you, Kathy. I have spent quite a bit of time on the website. I was looking for a “typical” time schedule for calcium citrate but haven’t been able to find it anywhere. Do you recall what times of day you took it? My problems seem most aggravated at night. I’ll check and see if Dr. Leu does the Oxalate test when he gets back from his seminar. He’s a world famous doc now, he’s speaking at a Xymogen conference this weekend. He has also been asked to be on the board of a supplement manufacturer to help them with developing new supplements. I hope he develops some especially for me.

Kenda

On 9/30/05 11:14 AM, " mikat828 " <mikat828@...> wrote:

Kenda

I think you can buy them both online. I don't really have a problem

anymore so I dont' take them anymore. What helped me almost

immediately was the low oxalate diet. I cut out pepper, chocolate,

and other high oxalate foods. Did you go to their website? I

havent been on it for awhile to see any updates. I also used

estrace--another recommended treatment for awhile. It seemed to

help. You use about the amount that you would put on a toothbrush

and rub into that area nightly. It takes a few days to a few weeks

to notice an improvement. Some people experience more irritation at

first. I did and then there was improvement. Never use cortisone

creams which most docs try to prescribe. Or testosterone which I

had a doctor give me too. I don't know if you can still talk to

Joanne Yount--the founder of the organization, but she is really

helpful and knowledgeable. The phone number is listed on the

website. To be the most effective, people were

recommended to get a 24 hour urine test from Clive 's

practice. It has to be a special test. Then he was able to see

peak times that oxalates were excreted and timed the taking (and

dosage) of calcium citrate to that. I never had that done, I just

started on what most people took and it seemed to work for me. I

would highly recommend joining that organization. Here is info on

that:

Network memberships are for current and former sufferers of vulvar

pain and related disorders. The yearly fee for Network memberships

is $40.00.* However, if you are experiencing extreme financial

hardship, please let us know, and you may give whatever is possible

for you at this time. You may also pay your fee in installments.

Vulvar pain is a private disorder. The Foundation maintains

confidentiality in all of its work. The VPF does not disclose or

sell its database or mailing list to anyone. Participation in the

VPF Support Network is voluntary. (Please see Network Membership

form.)

If you live in Canada or Mexico, add $5.00 to your basic membership

fee for postage. If you live in other countries, add $10.00 to your

basic membership fee for international postage. Please make checks

or money orders payable in U.S. Dollars or the equivalent.

Your Membership entitles you to:

The Vulvar Pain Newsletter

Invitations to Regional VPF Seminars

Opportunities to participate in the VPF Support Network and

VPF Support Group activities

Educational resources at special low prices

˜ Videotapes of VPF Seminars

˜ The Low Oxalate Cookbook

˜ Bibliography of scientific and medical journal articles

˜ Supplemental materials

Opportunities to participate in research studies and surveys

Contact information on interested health care professionals

Distribution of information to health care professionals on your

request

It really is a great organization and the newsletters are very

comprehensive, often dealing with husbands and how to help them

understand and support their wives as vulvadynia often affects

sexual relationships due to pain, irritation, urethral symptoms,

etc.

Hugs, kathy

> >>>>>>>>>>>> > >>>>>>> > >>> > > Daryl,

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > He gave you Penicillin for a

yeast infection?

> > That's

> >>>>>>>>>>>> > >>>>>>> > >>> > > nuts! That will make a yeast

infection worse in

> > the

> >>>>>>>>>>>> > >>>>>>> > >>> > > long run. It kills the good

organisms that keep

> > yeast

> >>>>>>>>>>>> > >>>>>>> > >>> > > under control along with the bad

organisms.

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > You can get Monistat cream over

the counter

> > now . . .

> >>>>>>>>>>>> > >>>>>>> > >>> > > I'd suggest using that.

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > Your diet is key to getting

better . . . I know

> > it's

> >>>>>>>>>>>> > >>>>>>> > >>> > > tough. But, just take one day at

a time. I know

> > you

> >>>>>>>>>>>> > >>>>>>> > >>> > > can do it! It can't be any more

difficult than

> > feeling

> >>>>>>>>>>>> > >>>>>>> > >>> > > so bad all the time!

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > Hugs,

> >>>>>>>>>>>> > >>>>>>> > >>> > >

> >>>>>>>>>>>> > >>>>>>> > >>> > > Rogene

> >>>>>>> > >>> > >

> >>>>>>> > >>> > >

> >>>>>>> > >>> > >

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > Opinions expressed are NOT meant to take the

place of

> > advice

> >>> > > given by licensed

> >>>>>>> > >>> > > health care professionals. Consult your

physician or

> > licensed

> >>> > > health care

> >>>>>>> > >>> > > professional before commencing any medical

treatment.

> >>>>>>> > >>> > >

> >>>>>>> > >>> > > " Do not let either the medical authorities or the

> > politicians

> >>> > > mislead you.

> >>>>>>> > >>> > > Find out what the facts are, and make your own

decisions

> > about

> >>> > > how to live a

> >>>>>>> > >>> > > happy life and how to work for a better world. " -

Linus

> > ing,

> >>> > > two-time

> >>>>>>> > >>> > > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >>>>>>> > >>> > >

> >>>>>>> > >>> > >

[Guest guest]

Wow Molly . . . Pool exercise is some of the best! . .

.. You can get a great werobic workout with minimum

joint impact! . . . Do you have some noodles or pool

dumb bells to work out with?

You're going to be amazed at how fast you come along!

Hugs,

Rogene

[Guest guest]

What are noodles ? (other than what one mixes with stroganoff)

pool dumb bells?

> Wow Molly . . . Pool exercise is some of the best! . .

> . You can get a great werobic workout with minimum

> joint impact! . . . Do you have some noodles or pool

> dumb bells to work out with?

>

> You're going to be amazed at how fast you come along!

>

> Hugs,

>

> Rogene

[Guest guest]

Molly,

Noodles are long foam tubes . . . They have a lot of

use in water aerobics. You can push water with one for

resistance, or sit astride one to kick your feet, put

one behind you with your arms over it to support you

as you kick. . . . anything your imagination can come

up with.

Pool dumb bells are styrofoam dumb bells that are used

for resistance exercises. . . pushing down, pushing

forward in a paddle motion, doing jumping jacks, etc.

The noodles are easy to find . . . kids love them, so

you can find them at almost any dollar store. . . You

can find pool dumb bells with an online search. They

come in assorted sizes . . . start small and build up!

Between the two, you can put a lot of work into a

short workout!

Hugs,

Rogene