Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 Please take the lactulose as the doctor prescribed....please please please....I didn't......I would only take it once a week and believe me the confustion gets really bad. I love it now because it really helps with the confusion and my family is at more ease.....they are important.........I am here for you! Lyncia My life is really different now, but it is my life. God helps us choose our path! Subject: Re: lactulose To: livercirrhosissupport Date: Tuesday, February 3, 2009, 8:41 PM Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! Diane ____________ _________ _________ __ From: crazygirlmcc <CrazygirlMCC@ hotmail.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Tuesday, February 3, 2009 7:29:44 PM Subject: lactulose The hopital started me on 45ml a day for now and will increase if they need to. I was so confused this morning when folding a shirt to put it away I just stopped and stared at the shirt thinking " what am i doing " I just put the shirt down and walked away. I took a shower and two hours later asked if i had taken a shower. it was scary to be so out of it, i'm waiting for the crap flood to take place now lol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > > Subject: Re: lactulose > To: livercirrhosissupport > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 It took a while for the bowel movements to begin, but the gas.......oh how it stinks but that I guess is the chemicals moving out.......If you are worried call and ask the doctor about the bowels movements. They gave me zophran for the nauesea (thank goodness) and then told me it WAS NOT from my liver......I don't agree.........I truly love Lactulose.........especially after the bowel movements. Getting ready to drink mine now. Lyncia My life is really different now, but it is my life. God helps us choose our path! Subject: Re: lactulose - Lyncia To: livercirrhosissupport Date: Wednesday, February 4, 2009, 8:32 AM well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Please make sure to drink water, not to over do it, but just drink enough to ensure the lactulose will work properly, and that if the bowel movements get too loose, it can cause dehydration, and that could worsen the encephalopathy. 15 ml at a time is pretty light. I have been on it for several years now, and it takes 45 ml , 3 times a day in order to work. I get nauseated sometimes after taking it, but eating lessens this. I also eat high fiber foods, like granola to help it along. It's really great, because I can go use the rest room, and come out here, and get on the computer, and type really really fast. Any other time, no way. My life revolves now around the clear/fog brain cycle. Love, Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Wednesday, February 4, 2009 7:32:36 AM Subject: Re: lactulose - Lyncia well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 It is hilariousness how you can look up all of the symptoms of liver disease. Among them are; nausea, fatigue, upper left quadrant pain, muscle weakness, immune deficiency, bone loss, and osteoporosis, etc But when ever I complain about a symptom, I get the same thing... Oh, that symptom is not likely your liver at all. If your right upper quadrant pain was attributed to your liver, then ALL cirrhosis patients would have it. Huh? Oh, NO, you need to remember that everybody is DIFFERENT. We all have different reactions to diseases. BUT- then again, if thrush were a result of liver disease, then ALL of our patients would have it. See a pattern here, ?? I finally typed out a from letter and gave it to all of my doctors and it helped at least get the record straight. Bobby has the following symptoms and signs of end stage liver disease as detailed by the National Library of Medicine and the National Institutes of Health pain in the right upper quadrant,fatigue,weakness,lethargy,exaustion nausea itching-pruritus painful, enlarged breasts (gynocomastia) pale stools difficult to control nosebleeds bloody stools PORTAL HYPERTENSION upper left quadrant pain-splenomegaly Hepatic encephalopathy-- (all these have increased in the last 6 months) inversion of sleep pattern severe clumsiness at times (ataxia) lack of fine motor skills tremors lessened ability to perform mental tasks shortened attention span easily agitated euphoria short term memory loss fluttery vision (nystagmus) visual disturbances hallucinations communication problems Love, Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Wednesday, February 4, 2009 1:38:57 PM Subject: Re: lactulose - Lyncia It took a while for the bowel movements to begin, but the gas.......oh how it stinks but that I guess is the chemicals moving out.......If you are worried call and ask the doctor about the bowels movements. They gave me zophran for the nauesea (thank goodness) and then told me it WAS NOT from my liver......I don't agree....... ..I truly love Lactulose... ......especially after the bowel movements. Getting ready to drink mine now. Lyncia My life is really different now, but it is my life. God helps us choose our path! From: crazygirlmcc <CrazygirlMCC@ hotmail.com> Subject: Re: lactulose - Lyncia To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, February 4, 2009, 8:32 AM well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 I am taking 20 grams of kristalose......once a day....... Lyncia My life is really different now, but it is my life. God helps us choose our path! Subject: Re: lactulose - Lyncia To: livercirrhosissupport Date: Wednesday, February 4, 2009, 5:06 PM Please make sure to drink water, not to over do it, but just drink enough to ensure the lactulose will work properly, and that if the bowel movements get too loose, it can cause dehydration, and that could worsen the encephalopathy. 15 ml at a time is pretty light. I have been on it for several years now, and it takes 45 ml , 3 times a day in order to work. I get nauseated sometimes after taking it, but eating lessens this. I also eat high fiber foods, like granola to help it along. It's really great, because I can go use the rest room, and come out here, and get on the computer, and type really really fast. Any other time, no way. My life revolves now around the clear/fog brain cycle. Love, Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: crazygirlmcc <CrazygirlMCC@ hotmail.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wednesday, February 4, 2009 7:32:36 AM Subject: Re: lactulose - Lyncia well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 , Three times a day is a pretty average dosage for lactulose. I know it's been over 12 hours since your post, so you most likely have had one or more BMs by now. Does this mean you're getting worse? That's hard to say. 'Worse' is a subjective term when talking about cirrhosis. There are so many ways in which you can get 'worse' with an individual symtom, yet not be any 'worse' overall. Terry's symptoms would come and go and would often seem to be getting worse but then would rebound and he would be doing so much better. The only real way to measure 'worse' is by your MELD score. If your MELD hasn't changed, then your status with regards to a transplant haven't changed. Although you may be experiencing symtoms that make you feel worse, it's that MELD that is the gold standard for measuring where you stand. And, yes sweetie, your statement about fighting away a dumber you makes perfect sense to anyone who has suffered with encephalopathy or anyone who has been a caregiver to an individual who has suffered with encephalopathy. It is actually a very good description of what Terry experienced on so many occasions. You are not alone and you are not abnormal. You are perfectly normal and the things you are going through, emotions and all, are perfectly normal. You are among friends here who love you and support you and understand you. Feel free at any time to talk or ask about anything that is on your mind. I love you sweetie. You and your precious family are in my prayers. Warm hugs............. Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, February 4, 2009 8:32:36 AM Subject: Re: lactulose - Lyncia well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 Hi everyone, I am Case from Myrtle Beach SC and this is my first post to the group. You have just described me to the T. Forgetfulness, can't even find my phone or those lists I make all day. I even spent 2 hrs. browsing a dollar store after running in to get one or was that 2 items....someone was waiting in the car for me.I try to laugh at the silly things i say or do but it scares the heck out of me, cause I am not me anymore. It's been so long I can hardly remember that woman I was: the one who worked long hrs., ran her own business, took evening courses, volunteered long hours with dog rescue, enjoyed her children and grandchildren, kept up with the house , yard, everything and still could go, go, go. Now my mind is muddled, days go by without me even going out to the mailbox..I have been taking lactose for many years. I am end stage liver disease...,I took both kinds of treatments for a total of 2.5 yrs. I have Hepc genotype 1a. I am 51 yrs old. Since treatment 10 years ago I have had my gallbladder removed, bilateral mastectomy without implants, ovaries removed along with the huge tumors on them, don't forget a complete hysterectomy. I have turned into mounds of flab, lost most of my hair and my skin in drying up. Along with the lactose I am on 15 or medications. I am not always certain if the drugs are making me worse or keeping me alive. I have portal hypertension with esophageal bleeding, and gastric bleeding in the stomach I was recent told my umbilical herniated. Dr's say I am not yet sick enough for a transplant (this is true) not an hallucination. When first starting the lactose and at times when I added a new med. to my regime, I have had to use a stool softener along with it. I also have found that fish oil seems to help and also helps with my dry skin and hair. Sorry to vent my first time..just feeling sorry for me day. My roomie, who is also my best friend is moving out soon, he took care of so much around the house, yard, kept up with my meds, drove me , etc. He has been here for almost 2 yrs. But he has a child that needs him , so he must go. I have been very down. I know I should not live alone, but not many people can deal with this disease. God Bless All, ...... Subject: Re: lactulose - Lyncia To: livercirrhosissupport Date: Wednesday, February 4, 2009, 9:32 AM well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 Hi and welcome to the group. I am so sorry you're dealing with so much right now, in addition to having your room mate and best friend moving out. I know that is terribly upsetting to you and you must be feeling very afraid of the future. It sounds as though you've been dealing with the liver disease for quite some time. Are you currently under the care of a hepatologist and are you listed for a transplant, or is that even a consideration for you? I'm sorry to be nosy, just sort of want to get a feel for what your personal goals and desires for your treatment are. Although many, if not most, people with liver disease desire a transplant, not all do. My husband was one of those who did not. It is sometimes hard for people to understand the desires of an individual who thinks differently than they do. We found that some people had a hard time accepting that my husband had chosen not to seek a transplant. It was as if they felt as though he wasn't doing all he could to help himself. Actually, nothing could have father from the truth. This is a wonderful group. I am glad you found us. I hope you find the support you need and deserve here. You are in my prayers. God bless! Hugs........... Diane ________________________________ To: livercirrhosissupport Sent: Saturday, February 7, 2009 1:15:02 PM Subject: Re: lactulose - Lyncia Hi everyone, I am Case from Myrtle Beach SC and this is my first post to the group. You have just described me to the T. Forgetfulness, can't even find my phone or those lists I make all day. I even spent 2 hrs. browsing a dollar store after running in to get one or was that 2 items....someone was waiting in the car for me.I try to laugh at the silly things i say or do but it scares the heck out of me, cause I am not me anymore. It's been so long I can hardly remember that woman I was: the one who worked long hrs., ran her own business, took evening courses, volunteered long hours with dog rescue, enjoyed her children and grandchildren, kept up with the house , yard, everything and still could go, go, go. Now my mind is muddled, days go by without me even going out to the mailbox..I have been taking lactose for many years. I am end stage liver disease...,I took both kinds of treatments for a total of 2.5 yrs. I have Hepc genotype 1a. I am 51 yrs old. Since treatment 10 years ago I have had my gallbladder removed, bilateral mastectomy without implants, ovaries removed along with the huge tumors on them, don't forget a complete hysterectomy. I have turned into mounds of flab, lost most of my hair and my skin in drying up. Along with the lactose I am on 15 or medications. I am not always certain if the drugs are making me worse or keeping me alive. I have portal hypertension with esophageal bleeding, and gastric bleeding in the stomach I was recent told my umbilical herniated. Dr's say I am not yet sick enough for a transplant (this is true) not an hallucination. When first starting the lactose and at times when I added a new med. to my regime, I have had to use a stool softener along with it. I also have found that fish oil seems to help and also helps with my dry skin and hair. Sorry to vent my first time..just feeling sorry for me day. My roomie, who is also my best friend is moving out soon, he took care of so much around the house, yard, kept up with my meds, drove me , etc. He has been here for almost 2 yrs. But he has a child that needs him , so he must go. I have been very down. I know I should not live alone, but not many people can deal with this disease. God Bless All, ...... From: crazygirlmcc <CrazygirlMCC@ hotmail.com> Subject: Re: lactulose - Lyncia To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, February 4, 2009, 9:32 AM well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Link to comment Share on other sites More sharing options...
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