Bea's online chat request

[Guest guest]

Oh,Bea...I just read this post and saw that you are Tyke 224. I declined you on

my instant chat because I didn't know anyone by that name. Ask me again and I

will accept you. My name is Jill and my husband was diagnosed with ESLD with

compensated liver fuction 3 years ago. He sees a specialist at THe Cleveland

Clinic Foundation...in fact the same specialist that Barby sees,if I remember

correctly! We live each day one at a time and try to make each day a good one.

Liver disease is hard...not just on the patient but also on the ones who love

him.You are so welcome here. Here you will get

support,information,love,hugs,sympathy,empathy and just about anything else you

need. We are a family and we're all on this journey together.

 

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

Subject: Re: I Need Help..

To: livercirrhosissupport

Date: Sunday, September 6, 2009, 7:46 PM

 

oh you are tyke224 i saw it on my chat,send me another request and i will accept

it girl,one of my many brain farts today lol. bea you do not sound crazy,i have

been with bobby glenn for over half my life,hes been my back bone ,literally

when i broke my back 15 yrs. ago, hes always been the one constant in my

life,hes never let me down,always made me laugh, raised the kids with me, and

some of the grandkids too,always has a shoulder for me to cry on,gives me

anything i want and some stuff i dont lol, hes my right arm,i love him with all

my heart and soul, and i too weep thinking of my life without him,when they

tested me for hep.c and was concerned i was kinda angry i said we are here for

him not me, and i told the dr. if i had hep.from my husband i couldnt think of

better way to get it,he looked shocked. like the songs says ,and when he goes i

wanna go to,so i totally understand,i tested neg.for the hep,that made bobby

glenn very happy that he hadnt

made me sick.true love is hard to find and once weve found it its hard to think

about the what if's.so hang in there get tested ,get daves byopsy done, get him

home if thats ya alls wish! love him hold onto him,and in the mean time we are

here for you.much love barby

> >

> > I Would like to introduce Myself, my name is Beatrice but my Friends call

me Bea.

> > This a Very Short Version of the Last Eight Weeks. My World has falling

apart and would like to find some Hope Somewhere.

> > Eight Weeks ago, My Husband was Diagnosed as having 4th Stage 'End Stage'

Bottom of the Heap Liver Failure. Completely Shock the both of us. My Husband,

Dave was being Followed by a Physician for 15 years and this Doctor didn't

inform either one of us about his Condition. Dave Doctor said he was having a

Bad Reaction to a Blood Pressure Medicine, then it was low Potassium and Anemia.

We Found out by the Emergency' s Room at the Local Hospital. that he had Acute

Hepatitis C and End Stage Liver Failure. Next thing I Knew, Dave was Transport

to Emory and then release to Hospice.  I Have been fighting to get Dave Released

from Hospice and have managed in the last 2 weeks to get Hospice Medications

decreased to some degree. Dave is much more Clearer Thinking and able to take a

few Steps with some asstitance now. I also have been tested  for Hepatitis C and

it was Positive.. Is there any Hope for some kind of  Life or is this the End..

Doctors haven't

> said

> > when just that he will die soon, but I have notice Dave is improving by

Leaps and Bounds. Dave is off the ventalotor, feeding tube, Talking and making

sense alittle, Walking a few steps just since Hospice meds have been

Decreased... Am I Wrong to have Hope and bring him Home and detoxic Hospice

meds ? I'm really Lost and don't know what to do.......... .... 

> >

> > I Need Help..

> > Bea 

> >

> >

> >

> >

> >