Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 Thanks! Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: abijann <no_reply > Subject: Lyncia To: livercirrhosissupport Date: Tuesday, January 6, 2009, 9:41 AM Considering you have a liver problem, it would not be to your benefit to take an anti depressant. These drugs tend to make you more sleepy, there are only a few that don't. With the tiredness you already feel, this is not a good thing. They also could effect your breathing and your condition of encephalopathy. I would ask the doctor more about this to be on the safe side. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 They had done 22 successful kidney and liver transplants here in Texas. I am just waiting. I am going to look for an apartment ro==for my non working son and I and move away from my dil before I ruin her marriage, She is a sweetie. I must admit I miss having a sweetie. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: abijann <no_reply > Subject: Lyncia To: livercirrhosissupport Date: Wednesday, January 7, 2009, 11:10 PM Do you have any loved ones or friends that would be willing to donate their kidney to you? If you have someone who wants to donate their organ to you... but you don't match blood types...there is still a chance for you to receive an kidney organ. It is known as " cross matching " . Say you are type B positive (patient) and someone wants to donate an organ to you, But they are A positive (donor). What they do, is find another couple of people who have the same blood types only opposite: A positive (patient) and B positive (donor). There is a surgeon at s Hopkins Hospital, known as Montgomery and his transplant team that has done this a number of times. In matter of fact, they have done all of them at once. They did a total of 3 recipents and 3 donors and then 6 recipents and 6 donors. One of the people didn't have a donor and a lady came forward to be hers who she didn't even know. http://dsc.discover y.com/fansites/ surgery/follow- up/kidney/ montgomery. ht\ ml <http://dsc.discover y.com/fansites/ surgery/follow- up/kidney/ montgomery. h\ tml> They have also done plasmapheresis. This will explain more about that: http://www.hopkinsm edicine.org/ transplant/ Programs/ InKTP/blood_ type.html <http://www.hopkinsm edicine.org/ transplant/ Programs/ InKTP/blood_ type.htm\ l> This is just something to keep in mind, if you happen to have someone willing to be your donor. Some transplant centers will consider this and other will not, as this is just new in the last few years back...Dr. Montgomery is trying to see if this can be expanded at other transplant centers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Dallas, Ft. Wroth, Houston, and Dallas. Big area..........want to check into the dual listing. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Subject: lyncia To: livercirrhosissupport Date: Thursday, January 8, 2009, 12:48 AM God Bless you and congrats on the listing! i pray that all goes well for you. what is area 4? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 He used to take Alprazolam at night. It was one of the drugs he took before all this happened. They took all his old meds away and started him on a complete new system. The other day I see he had found that bottle and took one at bedtime. Said he slept so much better!! The Dr told him not to take those. I thought I had gotten rid of most of the ones from before but he had a bottle I guess. Said it helped alot more that the benedryl. They said his liver beings it's not functioning properly can't handle certain drugs . He'd been up and down every hour at night before so he was getting frustrated to not be able to rest longer. ________________________________ To: livercirrhosissupport Sent: Saturday, January 17, 2009 3:07:44 PM Subject: Re: Bonnie Praying for you!!! Pamela From: Bonnie Luebbe <blouleyahoo (DOT) com> Subject: Re: Bonnie To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, January 17, 2009, 10:21 AM It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and that doesn't seem to help now. and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 9:47:29 AM Subject: Re: Bonnie Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. Love and hugs to you and your hubby....... ....... Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 8:33:08 AM Subject: Re: Bonnie I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 6:32:09 AM Subject: Re: Bonnie I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Friday, January 16, 2009 8:49:48 PM Subject: Bonnie I never heard of doing multiple paracentesis causing liver scarring... it is just removing the fluid from the abdomen and the doctor can state how much fluid can be removed at a time. Usually, they worry that it might cause infection from the opening in the abdomen. Bacteria can enter and then it can cause serious complications. Your husband should be able to be on short term or long term disability now with his company, if he paid into it with his employer. He should also be able to get Social Security disability if he applies for it and can prove he is not able to work. However, going back to work on his own like this...may have a direct bearing now on whether they think he is able to work or not and they might not give it to him if they now thinks he can work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 they told me benydral but that doesn't work. He now has me on Ambien and that doesn't work........so I sleep when I can......Thanks! Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: Bonnie Luebbe <blouleyahoo (DOT) com> Subject: Re: Bonnie To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, January 17, 2009, 10:21 AM It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and that doesn't seem to help now. and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 9:47:29 AM Subject: Re: Bonnie Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. Love and hugs to you and your hubby....... ....... Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 8:33:08 AM Subject: Re: Bonnie I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 6:32:09 AM Subject: Re: Bonnie I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Friday, January 16, 2009 8:49:48 PM Subject: Bonnie I never heard of doing multiple paracentesis causing liver scarring... it is just removing the fluid from the abdomen and the doctor can state how much fluid can be removed at a time. Usually, they worry that it might cause infection from the opening in the abdomen. Bacteria can enter and then it can cause serious complications. Your husband should be able to be on short term or long term disability now with his company, if he paid into it with his employer. He should also be able to get Social Security disability if he applies for it and can prove he is not able to work. However, going back to work on his own like this...may have a direct bearing now on whether they think he is able to work or not and they might not give it to him if they now thinks he can work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 I've heard about weird things people do when placed on Ambion. Kind of scared of that med. One guy said he would get up at night and not know it. Would try to eat stuff that wasn't eatable! Put peanut butter on his phone to eat, etc. And some have gotten violent and changed their personality. I know alot of people take it. It probably just effects some that way . He said the benydral doesn't work for him at all either so he quit taking it. ________________________________ To: livercirrhosissupport Sent: Saturday, January 17, 2009 4:33:56 PM Subject: Re: Lyncia they told me benydral but that doesn't work. He now has me on Ambien and that doesn't work........ so I sleep when I can......Thanks! Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: Bonnie Luebbe <blouleyahoo (DOT) com> Subject: Re: Bonnie To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, January 17, 2009, 10:21 AM It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and that doesn't seem to help now. and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 9:47:29 AM Subject: Re: Bonnie Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. Love and hugs to you and your hubby....... ....... Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 8:33:08 AM Subject: Re: Bonnie I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 6:32:09 AM Subject: Re: Bonnie I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Friday, January 16, 2009 8:49:48 PM Subject: Bonnie I never heard of doing multiple paracentesis causing liver scarring... it is just removing the fluid from the abdomen and the doctor can state how much fluid can be removed at a time. Usually, they worry that it might cause infection from the opening in the abdomen. Bacteria can enter and then it can cause serious complications. Your husband should be able to be on short term or long term disability now with his company, if he paid into it with his employer. He should also be able to get Social Security disability if he applies for it and can prove he is not able to work. However, going back to work on his own like this...may have a direct bearing now on whether they think he is able to work or not and they might not give it to him if they now thinks he can work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 I have been on ambien before I was sick and did the weird things.........now it doesn't even let me sleep........Wonder if those meals that I cooked when I was sleeping were good? Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: Bonnie Luebbe <blouleyahoo (DOT) com> Subject: Re: Bonnie To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, January 17, 2009, 10:21 AM It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and that doesn't seem to help now. and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 9:47:29 AM Subject: Re: Bonnie Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. Love and hugs to you and your hubby....... ....... Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 8:33:08 AM Subject: Re: Bonnie I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 6:32:09 AM Subject: Re: Bonnie I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Friday, January 16, 2009 8:49:48 PM Subject: Bonnie I never heard of doing multiple paracentesis causing liver scarring... it is just removing the fluid from the abdomen and the doctor can state how much fluid can be removed at a time. Usually, they worry that it might cause infection from the opening in the abdomen. Bacteria can enter and then it can cause serious complications. Your husband should be able to be on short term or long term disability now with his company, if he paid into it with his employer. He should also be able to get Social Security disability if he applies for it and can prove he is not able to work. However, going back to work on his own like this...may have a direct bearing now on whether they think he is able to work or not and they might not give it to him if they now thinks he can work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 I went off the Ambien and started taking my Xanax to sleep and it does the trick. I know that it is supposedly a " bad " drug, but I don't do crazy things from taking it! I am just lucky I have a doctor who will prescribe it! Bonnie I never heard of doing multiple paracentesis causing liver scarring... it is just removing the fluid from the abdomen and the doctor can state how much fluid can be removed at a time. Usually, they worry that it might cause infection from the opening in the abdomen. Bacteria can enter and then it can cause serious complications. Your husband should be able to be on short term or long term disability now with his company, if he paid into it with his employer. He should also be able to get Social Security disability if he applies for it and can prove he is not able to work. However, going back to work on his own like this...may have a direct bearing now on whether they think he is able to work or not and they might not give it to him if they now thinks he can work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 That's funny!! It effected you that way too then. I've heard so many weird stories that I don't think I'd ever want to try them.. ________________________________ To: livercirrhosissupport Sent: Saturday, January 17, 2009 5:32:51 PM Subject: Re: Lyncia I have been on ambien before I was sick and did the weird things...... ...now it doesn't even let me sleep....... .Wonder if those meals that I cooked when I was sleeping were good? Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: Bonnie Luebbe <blouleyahoo (DOT) com> Subject: Re: Bonnie To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, January 17, 2009, 10:21 AM It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and that doesn't seem to help now.. and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 9:47:29 AM Subject: Re: Bonnie Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. Love and hugs to you and your hubby....... ....... Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 8:33:08 AM Subject: Re: Bonnie I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 6:32:09 AM Subject: Re: Bonnie I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Friday, January 16, 2009 8:49:48 PM Subject: Bonnie I never heard of doing multiple paracentesis causing liver scarring... it is just removing the fluid from the abdomen and the doctor can state how much fluid can be removed at a time. Usually, they worry that it might cause infection from the opening in the abdomen. Bacteria can enter and then it can cause serious complications. Your husband should be able to be on short term or long term disability now with his company, if he paid into it with his employer. He should also be able to get Social Security disability if he applies for it and can prove he is not able to work. However, going back to work on his own like this...may have a direct bearing now on whether they think he is able to work or not and they might not give it to him if they now thinks he can work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Bonnie - I take alprazolam or xanax, the brand name. before I started it, I mostly was up until 4 in the morning or so, I am at stage four in my liver journey, and many doctors know I am taking it. I can take up to two a day, but I usually just take one when I intend to go to sleep. I won't take Benedry because it keeps from sleeping, and makes me very hyper after taking for a couple of days. I tell doctors it makes me feel as if I want to climb the walls, they look at me as if I am speaking a strange language or crazy, or both. Sometimes when I have gone to a specialist, they change all my meds. Usually they don't work as well as what I had been taking before. I think different doctors have their pet drugs they prescribe for almost everybody. When I get back to the regular, referring doctor, eventually I get back on the old ones and feel better again. they tell me my liver is totally scarred. If it wasn't going to work because of the damaged liver, then it shouldn't make any difference to me if I take it or not, but there is a definite difference. And sometimes even my doctors say I have to take some meds which do cause problems with my liver, when I need a med for something and there really isn't any choice. Jan H > He used to take Alprazolam at night. It was one of the drugs he took > before all this happened. They took all his old meds away and started him on > a complete new system. The other day I see he had found that bottle and > took one at bedtime. Said he slept so much better!! The Dr told him not to > take those. I thought I had gotten rid of most of the ones from before but > he had a bottle I guess. Said it helped alot more that the benedryl. They > said his liver beings it's not functioning properly can't handle certain > drugs . He'd been up and down every hour at night before so he was getting > frustrated to not be able to rest longer. > > ________________________________ > From: Pamela on <ohanafive@... <ohanafive%40yahoo.com>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Saturday, January 17, 2009 3:07:44 PM > Subject: Re: Bonnie > > Praying for you!!! > > Pamela > > > > From: Bonnie Luebbe <blouleyahoo (DOT) com> > Subject: Re: Bonnie > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Saturday, January 17, 2009, 10:21 AM > > It is amazing how our body can keep going sometimes. I know I don't care > for mine the best I could either. He says now he doesn't know why he drank > all that time as " he really didn't like it " !! He's had high triglycerides > for years ,high blood pressure and cholesterol. No diabetes yet but they > keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid > cleaned out on the left side of his neck acouple years ago. They also found > other blockages at the time of his heart surgery but wanted to care for his > heart first. He also has the blocked arteries in his legs and they can't do > surgery on them but said to keep walking as it will help build some > capullaries out feeding them some. Sometimes he says he has no feeling in > his feet or legs but then the next day he can feel some in them again. He's > been through so much the last few years in the hospital he doesn't want to > go back. At first coming home from the hospital this last time his mind > was so confused but now it's alot better and we can communicate for now > anyway. He takes the lactulose acouple times of day. He was very yellow in > the hospital and when first coming home. I don't notice it now though. There > are times he says things totally off the wall and can't seem to concentrate > on things. I told him he probably needs more lactulose. I always line up > all the pills daily along with the lactulose to make sure he gets all he > needs. He was taking so much tylenol before this last stay in the hospital > and the Dr. told him he shouldn't be taking those as it could do harm with > the liver and especially with the alcohol. That was a habit he'd gotten > used to popping acouple when he had an ache so I put those where he couldn't > see them for now. He still wants to take others and got some aleve and > aspirin. I try to have him limit those too as the Dr told him not to be > taking them. They did give him proxyphene to take for his back pain and > that doesn't seem to help now. and benedryl to help sleep but he said that > doesn't help either. Have to talk to the Dr and see if there are others that > would help him that won't be hurting his body to take. Something stronger . > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 9:47:29 AM > Subject: Re: Bonnie > > Bonnie, thank you so much for your prayers and support. I know you and > your hubby have been through a difficult time yourself. It's amazing the > things we put our bodies through and think we can get away with it. My > hubby has had type II diabetes for years and elevated cholesterol and > triglyceride levels. He has taken meds but has refused to watch what he > eats. The cummulative effects of that and a genetic disorder have destroyed > his liver. He has been a wonderful husband and provider and friend, just > not so good at taking care of himself! He is a bit better this morning, a > tiny bit more lucid. I've learned to take one day at a time and just count > my blessings, casue no matter how bad things seem, I still have so much to > be thankful for. > > Love and hugs to you and your hubby....... ....... > Diane > > ____________ _________ _________ __ > From: Bonnie Luebbe <blouleyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 8:33:08 AM > Subject: Re: Bonnie > > I think you are both right,. It had to be because of the infection he could > possibly get with each paracentesis. Don't know how we both got in in our > minds about the liver damage with it! Thanks for the responses on it. Now I > can understand that. > > Diane--So sorry to read about your loved one. Hope you can get some rest in > between so you keep your health. A person doesn't realize how stressed out > you are and then it catches up with you. Glad you have hospice to help you > and take some of the pressure off. How long has your husband been ill with > the disease? My husbands is from alcohol. He drank for years and finally > quit completely last april when he was in the hospital for the ascites. He'd > try to go off of it and did pretty good but as soon as he was around someone > drinking at a party or get together that set it off and he would start to > drink daily again. He drank maybe 7 cans a day sometimes more on the > weekends. Amazed me that he could get up and get to work every day and even > function but always did. He thought he could quit and it would all be > fine-didn't realize he should have done that years ago. My thoughts and > prayers are with you. When my dauaghter was ill acouple years ago they had a > prayer chain going through the church & friends & I felt such a calming > feeling knowing that. It was like I could feel all the prayers helping her > get well--and she did!! > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 6:32:09 AM > Subject: Re: Bonnie > > I've never heard of this either. Our doctor told us that the paracentesis > doesn't affect the liver at all. It is a simple abdominal puncture to drain > fluid. The liver is never touched. Bonnie, I wonder if you may have > confused paracentesis with liver biopsy? > > ____________ _________ _________ __ > From: abijann <no_reply@yahoogrou p s.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Friday, January 16, 2009 8:49:48 PM > Subject: Bonnie > > I never heard of doing multiple paracentesis causing liver scarring... > it is just removing the fluid from the abdomen and the doctor can > state how much fluid can be removed at a time. Usually, they > worry that it might cause infection from the opening in the abdomen. > Bacteria can enter and then it can cause serious complications. > > Your husband should be able to be on short term or long term disability > now with his company, if he paid into it with his employer. He > should also be able to get Social Security disability if he > applies for it and can prove he is not able to work. However, > going back to work on his own like this...may have a direct > bearing now on whether they think he is able to work or not and > they might not give it to him if they now thinks he can work. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 He said he got to the point that he needed to take the alprazolam again. Just couldn't get any rest without them. He needed his rest so I didn't say anything when he started to take them again. It seemed to help him feel better that he got some sleep at night. He just takes one at night and getting by with that for now. He quit the benydryl all together. Yes, it does seem like the different Drs will change his . I know when he went to the hospital they said they took him off of all his meds and started new ones thinking some were not working good together and then when transfered to the VA in Omaha they gave him different ones before he was released to start taking. Now he's back with his regular Dr. and he gave him acouple more new ones. ________________________________ To: livercirrhosissupport Sent: Saturday, January 17, 2009 7:07:17 PM Subject: Re: Lyncia Bonnie - I take alprazolam or xanax, the brand name. before I started it, I mostly was up until 4 in the morning or so, I am at stage four in my liver journey, and many doctors know I am taking it. I can take up to two a day, but I usually just take one when I intend to go to sleep. I won't take Benedry because it keeps from sleeping, and makes me very hyper after taking for a couple of days. I tell doctors it makes me feel as if I want to climb the walls, they look at me as if I am speaking a strange language or crazy, or both. Sometimes when I have gone to a specialist, they change all my meds. Usually they don't work as well as what I had been taking before. I think different doctors have their pet drugs they prescribe for almost everybody. When I get back to the regular, referring doctor, eventually I get back on the old ones and feel better again. they tell me my liver is totally scarred. If it wasn't going to work because of the damaged liver, then it shouldn't make any difference to me if I take it or not, but there is a definite difference. And sometimes even my doctors say I have to take some meds which do cause problems with my liver, when I need a med for something and there really isn't any choice. Jan H On Sat, Jan 17, 2009 at 2:44 PM, Bonnie Luebbe <blouleyahoo (DOT) com> wrote: > He used to take Alprazolam at night. It was one of the drugs he took > before all this happened. They took all his old meds away and started him on > a complete new system. The other day I see he had found that bottle and > took one at bedtime. Said he slept so much better!! The Dr told him not to > take those. I thought I had gotten rid of most of the ones from before but > he had a bottle I guess. Said it helped alot more that the benedryl. They > said his liver beings it's not functioning properly can't handle certain > drugs . He'd been up and down every hour at night before so he was getting > frustrated to not be able to rest longer. > > ____________ _________ _________ __ > From: Pamela on <ohanafiveyahoo (DOT) com <ohanafive%40yahoo. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%40yahoogroup s.com> > Sent: Saturday, January 17, 2009 3:07:44 PM > Subject: Re: Bonnie > > Praying for you!!! > > Pamela > > > > From: Bonnie Luebbe <blouleyahoo (DOT) com> > Subject: Re: Bonnie > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Saturday, January 17, 2009, 10:21 AM > > It is amazing how our body can keep going sometimes. I know I don't care > for mine the best I could either. He says now he doesn't know why he drank > all that time as " he really didn't like it " !! He's had high triglycerides > for years ,high blood pressure and cholesterol. No diabetes yet but they > keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid > cleaned out on the left side of his neck acouple years ago. They also found > other blockages at the time of his heart surgery but wanted to care for his > heart first. He also has the blocked arteries in his legs and they can't do > surgery on them but said to keep walking as it will help build some > capullaries out feeding them some. Sometimes he says he has no feeling in > his feet or legs but then the next day he can feel some in them again. He's > been through so much the last few years in the hospital he doesn't want to > go back. At first coming home from the hospital this last time his mind > was so confused but now it's alot better and we can communicate for now > anyway. He takes the lactulose acouple times of day. He was very yellow in > the hospital and when first coming home. I don't notice it now though.. There > are times he says things totally off the wall and can't seem to concentrate > on things. I told him he probably needs more lactulose. I always line up > all the pills daily along with the lactulose to make sure he gets all he > needs. He was taking so much tylenol before this last stay in the hospital > and the Dr. told him he shouldn't be taking those as it could do harm with > the liver and especially with the alcohol. That was a habit he'd gotten > used to popping acouple when he had an ache so I put those where he couldn't > see them for now. He still wants to take others and got some aleve and > aspirin. I try to have him limit those too as the Dr told him not to be > taking them. They did give him proxyphene to take for his back pain and > that doesn't seem to help now. and benedryl to help sleep but he said that > doesn't help either. Have to talk to the Dr and see if there are others that > would help him that won't be hurting his body to take. Something stronger . > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 9:47:29 AM > Subject: Re: Bonnie > > Bonnie, thank you so much for your prayers and support. I know you and > your hubby have been through a difficult time yourself. It's amazing the > things we put our bodies through and think we can get away with it. My > hubby has had type II diabetes for years and elevated cholesterol and > triglyceride levels. He has taken meds but has refused to watch what he > eats. The cummulative effects of that and a genetic disorder have destroyed > his liver. He has been a wonderful husband and provider and friend, just > not so good at taking care of himself! He is a bit better this morning, a > tiny bit more lucid. I've learned to take one day at a time and just count > my blessings, casue no matter how bad things seem, I still have so much to > be thankful for. > > Love and hugs to you and your hubby....... ....... > Diane > > ____________ _________ _________ __ > From: Bonnie Luebbe <blouleyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 8:33:08 AM > Subject: Re: Bonnie > > I think you are both right,. It had to be because of the infection he could > possibly get with each paracentesis. Don't know how we both got in in our > minds about the liver damage with it! Thanks for the responses on it. Now I > can understand that. > > Diane--So sorry to read about your loved one. Hope you can get some rest in > between so you keep your health. A person doesn't realize how stressed out > you are and then it catches up with you. Glad you have hospice to help you > and take some of the pressure off. How long has your husband been ill with > the disease? My husbands is from alcohol. He drank for years and finally > quit completely last april when he was in the hospital for the ascites. He'd > try to go off of it and did pretty good but as soon as he was around someone > drinking at a party or get together that set it off and he would start to > drink daily again. He drank maybe 7 cans a day sometimes more on the > weekends. Amazed me that he could get up and get to work every day and even > function but always did. He thought he could quit and it would all be > fine-didn't realize he should have done that years ago. My thoughts and > prayers are with you. When my dauaghter was ill acouple years ago they had a > prayer chain going through the church & friends & I felt such a calming > feeling knowing that. It was like I could feel all the prayers helping her > get well--and she did!! > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 6:32:09 AM > Subject: Re: Bonnie > > I've never heard of this either. Our doctor told us that the paracentesis > doesn't affect the liver at all. It is a simple abdominal puncture to drain > fluid. The liver is never touched. Bonnie, I wonder if you may have > confused paracentesis with liver biopsy? > > ____________ _________ _________ __ > From: abijann <no_reply@yahoogrou p s.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Friday, January 16, 2009 8:49:48 PM > Subject: Bonnie > > I never heard of doing multiple paracentesis causing liver scarring... > it is just removing the fluid from the abdomen and the doctor can > state how much fluid can be removed at a time. Usually, they > worry that it might cause infection from the opening in the abdomen. > Bacteria can enter and then it can cause serious complications. > > Your husband should be able to be on short term or long term disability > now with his company, if he paid into it with his employer. He > should also be able to get Social Security disability if he > applies for it and can prove he is not able to work. However, > going back to work on his own like this...may have a direct > bearing now on whether they think he is able to work or not and > they might not give it to him if they now thinks he can work. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Xaxan works a little better. Maybe I need to do more exercise daily. I just stayed so very tired. Thanks. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: Bonnie Luebbe <blouleyahoo (DOT) com> Subject: Re: Bonnie To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, January 17, 2009, 10:21 AM It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and that doesn't seem to help now. and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 9:47:29 AM Subject: Re: Bonnie Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. Love and hugs to you and your hubby....... ....... Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 8:33:08 AM Subject: Re: Bonnie I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 6:32:09 AM Subject: Re: Bonnie I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Friday, January 16, 2009 8:49:48 PM Subject: Bonnie I never heard of doing multiple paracentesis causing liver scarring... it is just removing the fluid from the abdomen and the doctor can state how much fluid can be removed at a time. Usually, they worry that it might cause infection from the opening in the abdomen. Bacteria can enter and then it can cause serious complications. Your husband should be able to be on short term or long term disability now with his company, if he paid into it with his employer. He should also be able to get Social Security disability if he applies for it and can prove he is not able to work. However, going back to work on his own like this...may have a direct bearing now on whether they think he is able to work or not and they might not give it to him if they now thinks he can work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 I could tell you so many funny funny stories............I was always mad at my BILs. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: Bonnie Luebbe <blouleyahoo (DOT) com> Subject: Re: Bonnie To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, January 17, 2009, 10:21 AM It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and that doesn't seem to help now.. and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 9:47:29 AM Subject: Re: Bonnie Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. Love and hugs to you and your hubby....... ....... Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 8:33:08 AM Subject: Re: Bonnie I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 6:32:09 AM Subject: Re: Bonnie I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Friday, January 16, 2009 8:49:48 PM Subject: Bonnie I never heard of doing multiple paracentesis causing liver scarring... it is just removing the fluid from the abdomen and the doctor can state how much fluid can be removed at a time. Usually, they worry that it might cause infection from the opening in the abdomen. Bacteria can enter and then it can cause serious complications. Your husband should be able to be on short term or long term disability now with his company, if he paid into it with his employer. He should also be able to get Social Security disability if he applies for it and can prove he is not able to work. However, going back to work on his own like this...may have a direct bearing now on whether they think he is able to work or not and they might not give it to him if they now thinks he can work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 These doctors....... Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! > > From: Bonnie Luebbe <blouleyahoo (DOT) com> > Subject: Re: Bonnie > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Saturday, January 17, 2009, 10:21 AM > > It is amazing how our body can keep going sometimes. I know I don't care > for mine the best I could either. He says now he doesn't know why he drank > all that time as " he really didn't like it " !! He's had high triglycerides > for years ,high blood pressure and cholesterol. No diabetes yet but they > keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid > cleaned out on the left side of his neck acouple years ago. They also found > other blockages at the time of his heart surgery but wanted to care for his > heart first. He also has the blocked arteries in his legs and they can't do > surgery on them but said to keep walking as it will help build some > capullaries out feeding them some. Sometimes he says he has no feeling in > his feet or legs but then the next day he can feel some in them again. He's > been through so much the last few years in the hospital he doesn't want to > go back. At first coming home from the hospital this last time his mind > was so confused but now it's alot better and we can communicate for now > anyway. He takes the lactulose acouple times of day. He was very yellow in > the hospital and when first coming home. I don't notice it now though.. There > are times he says things totally off the wall and can't seem to concentrate > on things. I told him he probably needs more lactulose. I always line up > all the pills daily along with the lactulose to make sure he gets all he > needs. He was taking so much tylenol before this last stay in the hospital > and the Dr. told him he shouldn't be taking those as it could do harm with > the liver and especially with the alcohol. That was a habit he'd gotten > used to popping acouple when he had an ache so I put those where he couldn't > see them for now. He still wants to take others and got some aleve and > aspirin. I try to have him limit those too as the Dr told him not to be > taking them. They did give him proxyphene to take for his back pain and > that doesn't seem to help now. and benedryl to help sleep but he said that > doesn't help either. Have to talk to the Dr and see if there are others that > would help him that won't be hurting his body to take. Something stronger . > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 9:47:29 AM > Subject: Re: Bonnie > > Bonnie, thank you so much for your prayers and support. I know you and > your hubby have been through a difficult time yourself. It's amazing the > things we put our bodies through and think we can get away with it. My > hubby has had type II diabetes for years and elevated cholesterol and > triglyceride levels. He has taken meds but has refused to watch what he > eats. The cummulative effects of that and a genetic disorder have destroyed > his liver. He has been a wonderful husband and provider and friend, just > not so good at taking care of himself! He is a bit better this morning, a > tiny bit more lucid. I've learned to take one day at a time and just count > my blessings, casue no matter how bad things seem, I still have so much to > be thankful for. > > Love and hugs to you and your hubby....... ....... > Diane > > ____________ _________ _________ __ > From: Bonnie Luebbe <blouleyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 8:33:08 AM > Subject: Re: Bonnie > > I think you are both right,. It had to be because of the infection he could > possibly get with each paracentesis. Don't know how we both got in in our > minds about the liver damage with it! Thanks for the responses on it. Now I > can understand that. > > Diane--So sorry to read about your loved one. Hope you can get some rest in > between so you keep your health. A person doesn't realize how stressed out > you are and then it catches up with you. Glad you have hospice to help you > and take some of the pressure off. How long has your husband been ill with > the disease? My husbands is from alcohol. He drank for years and finally > quit completely last april when he was in the hospital for the ascites. He'd > try to go off of it and did pretty good but as soon as he was around someone > drinking at a party or get together that set it off and he would start to > drink daily again. He drank maybe 7 cans a day sometimes more on the > weekends. Amazed me that he could get up and get to work every day and even > function but always did. He thought he could quit and it would all be > fine-didn't realize he should have done that years ago. My thoughts and > prayers are with you. When my dauaghter was ill acouple years ago they had a > prayer chain going through the church & friends & I felt such a calming > feeling knowing that. It was like I could feel all the prayers helping her > get well--and she did!! > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 6:32:09 AM > Subject: Re: Bonnie > > I've never heard of this either. Our doctor told us that the paracentesis > doesn't affect the liver at all. It is a simple abdominal puncture to drain > fluid. The liver is never touched. Bonnie, I wonder if you may have > confused paracentesis with liver biopsy? > > ____________ _________ _________ __ > From: abijann <no_reply@yahoogrou p s.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Friday, January 16, 2009 8:49:48 PM > Subject: Bonnie > > I never heard of doing multiple paracentesis causing liver scarring... > it is just removing the fluid from the abdomen and the doctor can > state how much fluid can be removed at a time. Usually, they > worry that it might cause infection from the opening in the abdomen. > Bacteria can enter and then it can cause serious complications. > > Your husband should be able to be on short term or long term disability > now with his company, if he paid into it with his employer. He > should also be able to get Social Security disability if he > applies for it and can prove he is not able to work. However, > going back to work on his own like this...may have a direct > bearing now on whether they think he is able to work or not and > they might not give it to him if they now thinks he can work. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Its good for a person to laugh too. We talk about stuff too he's done and at times get to laughing. It wasn't funny at the time but looking back on it we can see humor in it now . ________________________________ To: livercirrhosissupport Sent: Saturday, January 17, 2009 7:39:17 PM Subject: Re: Lyncia I could tell you so many funny funny stories..... .......I was always mad at my BILs. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: Bonnie Luebbe <blouleyahoo (DOT) com> Subject: Re: Bonnie To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, January 17, 2009, 10:21 AM It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and that doesn't seem to help now... and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 9:47:29 AM Subject: Re: Bonnie Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. Love and hugs to you and your hubby....... ....... Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 8:33:08 AM Subject: Re: Bonnie I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, January 17, 2009 6:32:09 AM Subject: Re: Bonnie I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Friday, January 16, 2009 8:49:48 PM Subject: Bonnie I never heard of doing multiple paracentesis causing liver scarring... it is just removing the fluid from the abdomen and the doctor can state how much fluid can be removed at a time. Usually, they worry that it might cause infection from the opening in the abdomen. Bacteria can enter and then it can cause serious complications. Your husband should be able to be on short term or long term disability now with his company, if he paid into it with his employer. He should also be able to get Social Security disability if he applies for it and can prove he is not able to work. However, going back to work on his own like this...may have a direct bearing now on whether they think he is able to work or not and they might not give it to him if they now thinks he can work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2009 Report Share Posted January 18, 2009 I have been on ambien for months and it does quit working. What helps me is only taking it if I need to get up the next day, then it seems to knock me out since I probably haven't slept good for days. I recently changed my eating habits to 90% raw vegan foods and I haven't needed ambien in over a week!! It feels good to not depend on that drug. I also have a script for alprazolam and it takes about 100mg for me to feel it's sedative affects. Over the counter sleeping pills have helped once in a while. Try cutting out some sugars in the diet if you safely can, especially late at night. check out raw vegan food if you want to know more. > > From: Bonnie Luebbe <blouleyahoo (DOT) com> > Subject: Re: Bonnie > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Saturday, January 17, 2009, 10:21 AM > > It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind > was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and > that doesn't seem to help now... and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 9:47:29 AM > Subject: Re: Bonnie > > Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. > > Love and hugs to you and your hubby....... ....... > Diane > > ____________ _________ _________ __ > From: Bonnie Luebbe <blouleyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 8:33:08 AM > Subject: Re: Bonnie > > I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. > > Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a > prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 6:32:09 AM > Subject: Re: Bonnie > > I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? > > ____________ _________ _________ __ > From: abijann <no_reply@yahoogrou p s.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Friday, January 16, 2009 8:49:48 PM > Subject: Bonnie > > I never heard of doing multiple paracentesis causing liver scarring... > it is just removing the fluid from the abdomen and the doctor can > state how much fluid can be removed at a time. Usually, they > worry that it might cause infection from the opening in the abdomen. > Bacteria can enter and then it can cause serious complications. > > Your husband should be able to be on short term or long term disability > now with his company, if he paid into it with his employer. He > should also be able to get Social Security disability if he > applies for it and can prove he is not able to work. However, > going back to work on his own like this...may have a direct > bearing now on whether they think he is able to work or not and > they might not give it to him if they now thinks he can work. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2009 Report Share Posted January 18, 2009 Thanks, I will. I have found that I really don't like protein as much now. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Subject: Re: Lyncia To: livercirrhosissupport Date: Sunday, January 18, 2009, 9:43 AM I have been on ambien for months and it does quit working. What helps me is only taking it if I need to get up the next day, then it seems to knock me out since I probably haven't slept good for days. I recently changed my eating habits to 90% raw vegan foods and I haven't needed ambien in over a week!! It feels good to not depend on that drug. I also have a script for alprazolam and it takes about 100mg for me to feel it's sedative affects. Over the counter sleeping pills have helped once in a while. Try cutting out some sugars in the diet if you safely can, especially late at night. check out raw vegan food if you want to know more. > > From: Bonnie Luebbe <blouleyahoo (DOT) com> > Subject: Re: Bonnie > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Saturday, January 17, 2009, 10:21 AM > > It is amazing how our body can keep going sometimes. I know I don't care for mine the best I could either. He says now he doesn't know why he drank all that time as " he really didn't like it " !! He's had high triglycerides for years ,high blood pressure and cholesterol. No diabetes yet but they keep testing for it. He had a quadruple bypass 3 years ago and a cartaroid cleaned out on the left side of his neck acouple years ago. They also found other blockages at the time of his heart surgery but wanted to care for his heart first. He also has the blocked arteries in his legs and they can't do surgery on them but said to keep walking as it will help build some capullaries out feeding them some. Sometimes he says he has no feeling in his feet or legs but then the next day he can feel some in them again. He's been through so much the last few years in the hospital he doesn't want to go back. At first coming home from the hospital this last time his mind > was so confused but now it's alot better and we can communicate for now anyway. He takes the lactulose acouple times of day. He was very yellow in the hospital and when first coming home. I don't notice it now though. There are times he says things totally off the wall and can't seem to concentrate on things. I told him he probably needs more lactulose. I always line up all the pills daily along with the lactulose to make sure he gets all he needs. He was taking so much tylenol before this last stay in the hospital and the Dr. told him he shouldn't be taking those as it could do harm with the liver and especially with the alcohol. That was a habit he'd gotten used to popping acouple when he had an ache so I put those where he couldn't see them for now. He still wants to take others and got some aleve and aspirin. I try to have him limit those too as the Dr told him not to be taking them. They did give him proxyphene to take for his back pain and > that doesn't seem to help now... and benedryl to help sleep but he said that doesn't help either. Have to talk to the Dr and see if there are others that would help him that won't be hurting his body to take. Something stronger . > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 9:47:29 AM > Subject: Re: Bonnie > > Bonnie, thank you so much for your prayers and support. I know you and your hubby have been through a difficult time yourself. It's amazing the things we put our bodies through and think we can get away with it. My hubby has had type II diabetes for years and elevated cholesterol and triglyceride levels. He has taken meds but has refused to watch what he eats. The cummulative effects of that and a genetic disorder have destroyed his liver. He has been a wonderful husband and provider and friend, just not so good at taking care of himself! He is a bit better this morning, a tiny bit more lucid. I've learned to take one day at a time and just count my blessings, casue no matter how bad things seem, I still have so much to be thankful for. > > Love and hugs to you and your hubby....... ....... > Diane > > ____________ _________ _________ __ > From: Bonnie Luebbe <blouleyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 8:33:08 AM > Subject: Re: Bonnie > > I think you are both right,. It had to be because of the infection he could possibly get with each paracentesis. Don't know how we both got in in our minds about the liver damage with it! Thanks for the responses on it. Now I can understand that. > > Diane--So sorry to read about your loved one. Hope you can get some rest in between so you keep your health. A person doesn't realize how stressed out you are and then it catches up with you. Glad you have hospice to help you and take some of the pressure off. How long has your husband been ill with the disease? My husbands is from alcohol. He drank for years and finally quit completely last april when he was in the hospital for the ascites. He'd try to go off of it and did pretty good but as soon as he was around someone drinking at a party or get together that set it off and he would start to drink daily again. He drank maybe 7 cans a day sometimes more on the weekends. Amazed me that he could get up and get to work every day and even function but always did. He thought he could quit and it would all be fine-didn't realize he should have done that years ago. My thoughts and prayers are with you. When my dauaghter was ill acouple years ago they had a > prayer chain going through the church & friends & I felt such a calming feeling knowing that. It was like I could feel all the prayers helping her get well--and she did!! > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, January 17, 2009 6:32:09 AM > Subject: Re: Bonnie > > I've never heard of this either. Our doctor told us that the paracentesis doesn't affect the liver at all. It is a simple abdominal puncture to drain fluid. The liver is never touched. Bonnie, I wonder if you may have confused paracentesis with liver biopsy? > > ____________ _________ _________ __ > From: abijann <no_reply@yahoogrou p s.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Friday, January 16, 2009 8:49:48 PM > Subject: Bonnie > > I never heard of doing multiple paracentesis causing liver scarring... > it is just removing the fluid from the abdomen and the doctor can > state how much fluid can be removed at a time. Usually, they > worry that it might cause infection from the opening in the abdomen. > Bacteria can enter and then it can cause serious complications. > > Your husband should be able to be on short term or long term disability > now with his company, if he paid into it with his employer. He > should also be able to get Social Security disability if he > applies for it and can prove he is not able to work. However, > going back to work on his own like this...may have a direct > bearing now on whether they think he is able to work or not and > they might not give it to him if they now thinks he can work. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 I am having trouble with google. Three times I have received a notice that I am being blocked from sending and receiving email because of something I have supposedly done, and that I could be blocked for 24 hours. or more. I haven't done any of the things, such as getting too much mail at a time, or sending too much mail, or having multiple copies of gmail open at the same time. I do occasionally have two copies open but not at the time or anywhere around the time they block me. Now I was notified that my server is going to be using Gmail to deliver my emails through the server. So, wondering what type of mess that might end up to be. I have never used a Hotmail or Yahoo address but might have to open an account just to make sure I will be able to get email. I am in touch with Bobby on Yahoo chat, so if I do get blocked for the full 24 hours or more, will let him know. Jan H On Sat, Feb 28, 2009 at 9:01 AM, abijann <no_reply > wrote: > So glad you are with us again. Sometimes I wonder about Yahoo and > the things that happen on it. Not complaining, though, since they > are really good to have a group like this and at no cost at all. > Hope you are doing good. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 I swear, I love the internet but sometimes it just makes me angry! Well, maybe frustrated is a better word. Anyway, we won't lose you! We'll hunt you down if we have to! Warm Hugs........... Diane http://auntdisexperimentallife.blogspot.com/ ________________________________ To: livercirrhosissupport Sent: Saturday, February 28, 2009 2:08:54 PM Subject: Re: Lyncia I am having trouble with google. Three times I have received a notice that I am being blocked from sending and receiving email because of something I have supposedly done, and that I could be blocked for 24 hours. or more. I haven't done any of the things, such as getting too much mail at a time, or sending too much mail, or having multiple copies of gmail open at the same time. I do occasionally have two copies open but not at the time or anywhere around the time they block me. Now I was notified that my server is going to be using Gmail to deliver my emails through the server. So, wondering what type of mess that might end up to be. I have never used a Hotmail or Yahoo address but might have to open an account just to make sure I will be able to get email. I am in touch with Bobby on Yahoo chat, so if I do get blocked for the full 24 hours or more, will let him know. Jan H On Sat, Feb 28, 2009 at 9:01 AM, abijann <no_reply@yahoogroup s.com> wrote: > So glad you are with us again. Sometimes I wonder about Yahoo and > the things that happen on it. Not complaining, though, since they > are really good to have a group like this and at no cost at all. > Hope you are doing good. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 Thanks. Bobby has my number unless he has lost it. (Bobby - you said you were going to call, haven't heard from you) I used to teach computers, and as my hair got thinner and thinner, I told people that was why, computers were so frustrating I had been pulling it out. Actually, from my thyroid condition and my meds, liver I guess too can cause hair loss. Love my wigs though, Just got two more, supposed to be the same, but have different characteristics. My favorites of the 7 or 8 I have purchased so far. And these wigs are cheaper than getting my hair cut and curled three times a year. Jan H On Sat, Feb 28, 2009 at 6:26 PM, diane chandler wrote: > I swear, I love the internet but sometimes it just makes me > angry! Well, maybe frustrated is a better word. Anyway, we won't lose > you! We'll hunt you down if we have to! > > > > Warm Hugs........... > > Diane > http://auntdisexperimentallife.blogspot.com/ > > ________________________________ > From: Jan Holman <janholman@... <janholman%40gmail.com>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Saturday, February 28, 2009 2:08:54 PM > Subject: Re: Lyncia > > I am having trouble with google. Three times I have received a notice that > I am being blocked from sending and receiving email because of something I > have supposedly done, and that I could be blocked for 24 hours. or more. I > haven't done any of the things, such as getting too much mail at a time, or > sending too much mail, or having multiple copies of gmail open at the same > time. I do occasionally have two copies open but not at the time or > anywhere around the time they block me. Now I was notified that my server > is going to be using Gmail to deliver my emails through the server. So, > wondering what type of mess that might end up to be. I have never used a > Hotmail or Yahoo address but might have to open an account just to make > sure > I will be able to get email. I am in touch with Bobby on Yahoo chat, so if > I do get blocked for the full 24 hours or more, will let him know. Jan H > > On Sat, Feb 28, 2009 at 9:01 AM, abijann <no_reply@yahoogroup s.com> > wrote: > > > So glad you are with us again. Sometimes I wonder about Yahoo and > > the things that happen on it. Not complaining, though, since they > > are really good to have a group like this and at no cost at all. > > Hope you are doing good. > > > > > > > > -- > Jan H > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2009 Report Share Posted March 1, 2009 I'm sorry I havnt called. I have been self centered lately. Not only am I dealing with an ear infection, but I was supposed to go to the opthamologist on Friday, and have this sty in my eye lanced, but I woke with such terrible abdominal pain, I couldn't go on the handicap bus. At first I attributed it to the morphine my pain doc wrote me for, as opposed to my normal oxycodone. (There is a nationwide shortage of oxycodone) which can slow down your bowels, so you need to keep up on colace and lactulose, I've been told. But, even though the lactulose had worked, and the bowel movement was loose, I had no control of my muscles, kind of like when pain pills make it hard to pee. Sometimes you see dr House md self catheterize, because he can't pee, because he eats handfulls of vicodin every day. I know some pain patoents who have Chiari like Sharon who have to self cath just to be able to pee. Well, I have been able to pee, and managed to have 4 bowel movements yesterday, but ran a fever last night, and my abdomen feels like I never went, in fact it feels like terrible gas pain, the worst. I am dreading the ER, because they always ridicule me anytime I go there, but I am packed and ready. I just need to catch Sharon at the right moment, or call an ambulance. If the pain gets any worse, or the fever goes above 102, I'm outta here. Love, Bobby Sent via BlackBerry from T-Mobile Re: Lyncia > > I am having trouble with google. Three times I have received a notice that > I am being blocked from sending and receiving email because of something I > have supposedly done, and that I could be blocked for 24 hours. or more. I > haven't done any of the things, such as getting too much mail at a time, or > sending too much mail, or having multiple copies of gmail open at the same > time. I do occasionally have two copies open but not at the time or > anywhere around the time they block me. Now I was notified that my server > is going to be using Gmail to deliver my emails through the server. So, > wondering what type of mess that might end up to be. I have never used a > Hotmail or Yahoo address but might have to open an account just to make > sure > I will be able to get email. I am in touch with Bobby on Yahoo chat, so if > I do get blocked for the full 24 hours or more, will let him know. Jan H > > On Sat, Feb 28, 2009 at 9:01 AM, abijann <no_reply@yahoogroup s.com> > wrote: > > > So glad you are with us again. Sometimes I wonder about Yahoo and > > the things that happen on it. Not complaining, though, since they > > are really good to have a group like this and at no cost at all. > > Hope you are doing good. > > > > > > > > -- > Jan H > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2009 Report Share Posted March 1, 2009 Oh Bobby, please don't wait too long! Get in there and let them find out what's going on. I'm praying for ya, hun! Warm Hugs........... Diane http://auntdisexperimentallife.blogspot.com/ ________________________________ To: Livercirrhosissupport <livercirrhosissupport > Sent: Sunday, March 1, 2009 4:51:49 AM Subject: Re: Lyncia I'm sorry I havnt called. I have been self centered lately. Not only am I dealing with an ear infection, but I was supposed to go to the opthamologist on Friday, and have this sty in my eye lanced, but I woke with such terrible abdominal pain, I couldn't go on the handicap bus. At first I attributed it to the morphine my pain doc wrote me for, as opposed to my normal oxycodone. (There is a nationwide shortage of oxycodone) which can slow down your bowels, so you need to keep up on colace and lactulose, I've been told. But, even though the lactulose had worked, and the bowel movement was loose, I had no control of my muscles, kind of like when pain pills make it hard to pee. Sometimes you see dr House md self catheterize, because he can't pee, because he eats handfulls of vicodin every day. I know some pain patoents who have Chiari like Sharon who have to self cath just to be able to pee. Well, I have been able to pee, and managed to have 4 bowel movements yesterday, but ran a fever last night, and my abdomen feels like I never went, in fact it feels like terrible gas pain, the worst. I am dreading the ER, because they always ridicule me anytime I go there, but I am packed and ready. I just need to catch Sharon at the right moment, or call an ambulance. If the pain gets any worse, or the fever goes above 102, I'm outta here. Love, Bobby Sent via BlackBerry from T-Mobile Re: Lyncia > > I am having trouble with google. Three times I have received a notice that > I am being blocked from sending and receiving email because of something I > have supposedly done, and that I could be blocked for 24 hours. or more. I > haven't done any of the things, such as getting too much mail at a time, or > sending too much mail, or having multiple copies of gmail open at the same > time. I do occasionally have two copies open but not at the time or > anywhere around the time they block me. Now I was notified that my server > is going to be using Gmail to deliver my emails through the server. So, > wondering what type of mess that might end up to be. I have never used a > Hotmail or Yahoo address but might have to open an account just to make > sure > I will be able to get email. I am in touch with Bobby on Yahoo chat, so if > I do get blocked for the full 24 hours or more, will let him know. Jan H > > On Sat, Feb 28, 2009 at 9:01 AM, abijann <no_reply@yahoogrou p s.com> > wrote: > > > So glad you are with us again. Sometimes I wonder about Yahoo and > > the things that happen on it. Not complaining, though, since they > > are really good to have a group like this and at no cost at all. > > Hope you are doing good. > > > > > > > > -- > Jan H > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2009 Report Share Posted March 1, 2009 How are you fairing these days, hun? I am suprised to find you awake. Sent via BlackBerry from T-Mobile Re: Lyncia > > I am having trouble with google. Three times I have received a notice that > I am being blocked from sending and receiving email because of something I > have supposedly done, and that I could be blocked for 24 hours. or more. I > haven't done any of the things, such as getting too much mail at a time, or > sending too much mail, or having multiple copies of gmail open at the same > time. I do occasionally have two copies open but not at the time or > anywhere around the time they block me. Now I was notified that my server > is going to be using Gmail to deliver my emails through the server. So, > wondering what type of mess that might end up to be. I have never used a > Hotmail or Yahoo address but might have to open an account just to make > sure > I will be able to get email. I am in touch with Bobby on Yahoo chat, so if > I do get blocked for the full 24 hours or more, will let him know. Jan H > > On Sat, Feb 28, 2009 at 9:01 AM, abijann <no_reply@yahoogrou p s.com> > wrote: > > > So glad you are with us again. Sometimes I wonder about Yahoo and > > the things that happen on it. Not complaining, though, since they > > are really good to have a group like this and at no cost at all. > > Hope you are doing good. > > > > > > > > -- > Jan H > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2009 Report Share Posted March 1, 2009 Things are pretty tough right now. The emotional stuff is still pretty raw and I suspect that isn't going to change a whole lot for a while yet. I'm having these problems because my gastric pacer has died on me. I knew pretty well for sure it had even before Terry passed, but there was nothing I could do about it. It's just that, the longer I am without the help it gives me, the worse the pain, nausea and vomiting become. Also, I feel for you because my bowels are now slowing down as well. That is usual with my situation. I have needed the pacer replaced for at least 4 months I think, but I knew I couldn't get it done cause I couldn't leave Terry long enough to get the surgery. So, the paperwork is now underway with Medicare and I'm waiting for their goodwill and pleasure to decide when I can get it done. I'll tell you for sure, it's not a good time to have to be dealing with all this! But, then again, it never has been and I'm sure never will be. I sure hope you are feeling better soon. I've had a hard time trying to sleep overnight. I guess it's just a combination of my tummy issues as well as the emotional stuff I have going on now as well. I'll be fine, it's just gonna take time. I'm still praying for you Bobby and for Sharon as well. Warm Hugs........... Diane http://auntdisexperimentallife.blogspot.com/ ________________________________ To: Livercirrhosissupport <livercirrhosissupport > Sent: Sunday, March 1, 2009 5:01:42 AM Subject: Re: Lyncia How are you fairing these days, hun? I am suprised to find you awake. Sent via BlackBerry from T-Mobile Re: Lyncia > > I am having trouble with google. Three times I have received a notice that > I am being blocked from sending and receiving email because of something I > have supposedly done, and that I could be blocked for 24 hours. or more. I > haven't done any of the things, such as getting too much mail at a time, or > sending too much mail, or having multiple copies of gmail open at the same > time. I do occasionally have two copies open but not at the time or > anywhere around the time they block me. Now I was notified that my server > is going to be using Gmail to deliver my emails through the server. So, > wondering what type of mess that might end up to be. I have never used a > Hotmail or Yahoo address but might have to open an account just to make > sure > I will be able to get email. I am in touch with Bobby on Yahoo chat, so if > I do get blocked for the full 24 hours or more, will let him know. Jan H > > On Sat, Feb 28, 2009 at 9:01 AM, abijann <no_reply@yahoogrou p s.com> > wrote: > > > So glad you are with us again. Sometimes I wonder about Yahoo and > > the things that happen on it. Not complaining, though, since they > > are really good to have a group like this and at no cost at all. > > Hope you are doing good. > > > > > > > > -- > Jan H > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2009 Report Share Posted March 1, 2009 Bobby - don't know how you are or where you are right now since I was sleeping last night, hope things have improved since this post. Don't worry about the call to me, I was just teasing you. Will right more, but have to put my teeth in and hair on and get to church. God Love you Jan > I'm sorry I havnt called. I have been self centered lately. Not only am > I dealing with an ear infection, but I was supposed to go to the > opthamologist on Friday, and have this sty in my eye lanced, but I woke with > such terrible abdominal pain, I couldn't go on the handicap bus. At first I > attributed it to the morphine my pain doc wrote me for, as opposed to my > normal oxycodone. (There is a nationwide shortage of oxycodone) which can > slow down your bowels, so you need to keep up on colace and lactulose, I've > been told. But, even though the lactulose had worked, and the bowel movement > was loose, I had no control of my muscles, kind of like when pain pills make > it hard to pee. Sometimes you see dr House md self catheterize, because he > can't pee, because he eats handfulls of vicodin every day. I know some pain > patoents who have Chiari like Sharon who have to self cath just to be able > to pee. Well, I have been able to pee, and managed to have 4 bowel movements > yesterday, but ran a fever last night, and my abdomen feels like I never > went, in fact it feels like terrible gas pain, the worst. I am dreading the > ER, because they always ridicule me anytime I go there, but I am packed and > ready. I just need to catch Sharon at the right moment, or call an > ambulance. If the pain gets any worse, or the fever goes above 102, I'm > outta here. Love, Bobby > Sent via BlackBerry from T-Mobile > > Re: Lyncia > > > > I am having trouble with google. Three times I have received a notice > that > > I am being blocked from sending and receiving email because of something > I > > have supposedly done, and that I could be blocked for 24 hours. or more. > I > > haven't done any of the things, such as getting too much mail at a time, > or > > sending too much mail, or having multiple copies of gmail open at the > same > > time. I do occasionally have two copies open but not at the time or > > anywhere around the time they block me. Now I was notified that my server > > > is going to be using Gmail to deliver my emails through the server. So, > > wondering what type of mess that might end up to be. I have never used a > > Hotmail or Yahoo address but might have to open an account just to make > > sure > > I will be able to get email. I am in touch with Bobby on Yahoo chat, so > if > > I do get blocked for the full 24 hours or more, will let him know. Jan H > > > > On Sat, Feb 28, 2009 at 9:01 AM, abijann <no_reply@yahoogroup s.com> > > wrote: > > > > > So glad you are with us again. Sometimes I wonder about Yahoo and > > > the things that happen on it. Not complaining, though, since they > > > are really good to have a group like this and at no cost at all. > > > Hope you are doing good. > > > > > > > > > > > > > -- > > Jan H > > > > Quote Link to comment Share on other sites More sharing options...
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