Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 I haven't gone through the process of meeting with a transplant team yet..It is kind of freaky how much power these doc's have. Literally life or death. That's bull**** about the pain med's. My liver doc said he would prescribe something for my arthritis, but would not because of my history. My primary doc. did, though. Last time I saw my liver doc. I didn't tell him, but this time the liver doc. knows, because I gave his nurse a full list of my med's. And I see him coming up on Nov. 6th...will be interesting to hear what he says about it. The chips will fall where they fall I suppose. Guess if he says I will be denied, because of the pain med's, I will quit them and live with the pain. It just kind of reinforces what I have known for years. A lot of doctors see us with addiction problems as second class citizens. Not all, but some, along with society at large. Not all, but some. Stay strong, try to relax, this shall pass. I totally understand. It is true most doc's do not trust us. And I have to say rightfully so. Addictive types have to prove theirselves over and over, and this will not change. What's the saying.. " accept the things we cannot change " . peace and comfort, Dave ________________________________ To: livercirrhosissupport Sent: Tue, October 6, 2009 6:40:56 PM Subject: Today Hi Group, I had a bad experience today. My gastro doctor who has been my doctor for the past 2 years since I was hospitalized with bleeding varices quit the practice so I had to find a new one. I met the new doctor today for the first time. He proceeded to tell me that I already have 2 strikes against me concerning receiving a transplant. 1) I have a history of alcohol abuse (I haven't drank in 3 years) and 2) I am on pain medication. He said 3 strikes and your out! I said, do I just live with the pain. He basically said yes millions of people have arthritus and are in pain. Then he wants me to supply him with proof of my attendance to AA meetings and get a letter every month from my sponsor. I already did all this for Baylor and had to fill out a sheet each time I went for 6 months. I completed this months ago for Baylor and now I have to do it for him? I left this meeting totally boggled. I came home and cried like a baby. Not sure exactly why this bothered me so much. I just wanted to get some feed back on this episode. Thanks! Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Roni, I'm sorry you had such a bad experience. It's like how long do we have to pay for past mistakes. I can understand their concern as far as the alcohol goes but the concern should only go so far. Yes, a recovering alcoholic can relapse even after 20 yrs. but then again there's always a chance that someone who is 60 and never drank can start and then become an alcoholic. And what's up with the pain med? I mean that's why they make the stuff is for pain right? Anything can be abused and anything can become addictive. I'm addicted to Chapstick but I don't abuse it. I can understand you being upset by all this. I got Hep C from IV drug use back in 1974. That was 35 yrs. ago but I still get the " oh, you abused drugs? " deal with my medical providers. I could lie to them, tell them I never used drugs, tell them I got it from a blood transfusion but I've always been honest with my doctors and sometimes I've come away feeling second rate all because of something I USED to do. I know it will be frustrating but just continue to give them the documentation they require. What's most important is that you know the work you've done to change and always continue to be proud! Don't let anyone take that away from you. Tell the doc that instead of " three strikes you're out " , that you prefer to look at it as " third time's a charm " ...Best wishes~~~Debbie > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 I agree with you, Dave...Ed's hepatologist has never said anything about the pain meds. He has a list of all the meds Ed takes and last week when we were there said he would start the process when Ed's MELD reaches 14 or 15.....he said they do it then so that he's not caught off guard when his MELD is 17 or 18 when they transplant. Ed doctor is a hepatic specialist ( who is the assistant head of the gastroenterology and hepatic disease dept and also on the transplant team), not just a gastroenterlogist. What kind of doc are you seeing? Now my orthopedic surgeon says that before he does my total knee replacements, I will have to go off of ALL my pain meds for 2 or 3 weeks before surgery. If I don't, the meds I will get afterwards will not work very well....but then I take percocet and morphine everyday. That will be a tough 2-3 weeks! I can't believe your doc told you that, Roni. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Tuesday, October 6, 2009 8:46:46 PM Subject: Re: Today I haven't gone through the process of meeting with a transplant team yet..It is kind of freaky how much power these doc's have. Literally life or death. That's bull**** about the pain med's. My liver doc said he would prescribe something for my arthritis, but would not because of my history. My primary doc. did, though. Last time I saw my liver doc. I didn't tell him, but this time the liver doc. knows, because I gave his nurse a full list of my med's. And I see him coming up on Nov. 6th...will be interesting to hear what he says about it. The chips will fall where they fall I suppose. Guess if he says I will be denied, because of the pain med's, I will quit them and live with the pain. It just kind of reinforces what I have known for years. A lot of doctors see us with addiction problems as second class citizens. Not all, but some, along with society at large. Not all, but some. Stay strong, try to relax, this shall pass. I totally understand. It is true most doc's do not trust us. And I have to say rightfully so. Addictive types have to prove theirselves over and over, and this will not change. What's the saying.. " accept the things we cannot change " . peace and comfort, Dave ____________ _________ _________ __ From: Rhonda <rhondasemail@ cox.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Tue, October 6, 2009 6:40:56 PM Subject: Today Hi Group, I had a bad experience today. My gastro doctor who has been my doctor for the past 2 years since I was hospitalized with bleeding varices quit the practice so I had to find a new one. I met the new doctor today for the first time. He proceeded to tell me that I already have 2 strikes against me concerning receiving a transplant. 1) I have a history of alcohol abuse (I haven't drank in 3 years) and 2) I am on pain medication. He said 3 strikes and your out! I said, do I just live with the pain. He basically said yes millions of people have arthritus and are in pain.. Then he wants me to supply him with proof of my attendance to AA meetings and get a letter every month from my sponsor. I already did all this for Baylor and had to fill out a sheet each time I went for 6 months. I completed this months ago for Baylor and now I have to do it for him? I left this meeting totally boggled. I came home and cried like a baby. Not sure exactly why this bothered me so much. I just wanted to get some feed back on this episode. Thanks! Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Just my 2cents,,,actually just 1/2 cents in today's economy but I say BS! to the holier than thou docs who want to make me feel bad for being stupid 35 yrs. ago knowing that there is no telling what goes on in their private lives. As far as doctors go I feel like, HEY, I've got Hep C, I've been held accountable and responsible for it so treat me as a person or don't treat me at all. Doctors have some of the highest addiction rates in the country along with psychiatrists having the highest suicide rates. Yes, I want a doctor who is going to factor in my PAST addiction in the equation because I want to count on him to help make sure I don't relapse BUT I don't need him to judge me. And, I will even grant him a little understanding about his concern but that's all I'm willing to give. If they think I'm abusing my meds then count the pills in my bottle which is exactly what I always offer them to do. NONE ever have taken me up on it. Now that I'm going to a pain management doctor I will be drug tested each time and that's fine. That I can understand, but don't judge me on something I didn't HAVE to tell you in the first place. I always tell techs getting ready to take blood that I have HEP C and they either say ok, or thank me but I don't care what they think of me. I care what I think of me so I would never think of not telling them. Uhhgg...let me stop here. This is just ticking me off thinking of how some people can be such morons...Best wishes~~~Debbie > > I haven't gone through the process of meeting with a transplant team yet..It is kind of freaky how much power these doc's have. Literally life or death. That's bull**** about the pain med's. My liver doc said he would prescribe something for my arthritis, but would not because of my history. My primary doc. did, though. Last time I saw my liver doc. I didn't tell him, but this time the liver doc. knows, because I gave his nurse a full list of my med's. And I see him coming up on Nov. 6th...will be interesting to hear what he says about it. The chips will fall where they fall I suppose. Guess if he says I will be denied, because of the pain med's, I will quit them and live with the pain. It just kind of reinforces what I have known for years. A lot of doctors see us with addiction problems as second class citizens. Not all, but some, along with society at large. Not all, but some. Stay strong, try to relax, this shall pass. I > totally understand. It is true most doc's do not trust us. And I have to say rightfully so. Addictive types have to prove theirselves over and over, and this will not change. What's the saying.. " accept the things we cannot change " . peace and comfort, > Dave > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, October 6, 2009 6:40:56 PM > Subject: Today > > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Yea, Debbie.... when people find out Ed has cirrohsis( evn his own mother!) the first thing out of their mouth is " But I didn't realize Ed drank " He doesn't, never did.......people are just don't thjnk before they speak.. And, Roni...one thing I've learned myself on this forum is to reinforce that we cannot be judgemental! Your doc could learn alot. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Tuesday, October 6, 2009 8:51:20 PM Subject: Re: Today Roni, I'm sorry you had such a bad experience. It's like how long do we have to pay for past mistakes. I can understand their concern as far as the alcohol goes but the concern should only go so far. Yes, a recovering alcoholic can relapse even after 20 yrs. but then again there's always a chance that someone who is 60 and never drank can start and then become an alcoholic. And what's up with the pain med? I mean that's why they make the stuff is for pain right? Anything can be abused and anything can become addictive. I'm addicted to Chapstick but I don't abuse it. I can understand you being upset by all this. I got Hep C from IV drug use back in 1974. That was 35 yrs. ago but I still get the " oh, you abused drugs? " deal with my medical providers. I could lie to them, tell them I never used drugs, tell them I got it from a blood transfusion but I've always been honest with my doctors and sometimes I've come away feeling second rate all because of something I USED to do. I know it will be frustrating but just continue to give them the documentation they require. What's most important is that you know the work you've done to change and always continue to be proud! Don't let anyone take that away from you. Tell the doc that instead of " three strikes you're out " , that you prefer to look at it as " third time's a charm " ....Best wishes~~~Debbie > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Debbie, I go to a pain medicine doctor...he also does random drug testing. I can understand that. He wants to make sure the drug is in your system.....actually, he's only done 1 on me in 8 months. I think it scares him when Ed goes with me dressed in his uniform! AND Roni, get your doc on this forum---we'll set him straight! Let us at him!! LOL ! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Tuesday, October 6, 2009 9:09:11 PM Subject: Re: Today Just my 2cents,,,actually just 1/2 cents in today's economy but I say BS! to the holier than thou docs who want to make me feel bad for being stupid 35 yrs. ago knowing that there is no telling what goes on in their private lives. As far as doctors go I feel like, HEY, I've got Hep C, I've been held accountable and responsible for it so treat me as a person or don't treat me at all. Doctors have some of the highest addiction rates in the country along with psychiatrists having the highest suicide rates. Yes, I want a doctor who is going to factor in my PAST addiction in the equation because I want to count on him to help make sure I don't relapse BUT I don't need him to judge me. And, I will even grant him a little understanding about his concern but that's all I'm willing to give. If they think I'm abusing my meds then count the pills in my bottle which is exactly what I always offer them to do. NONE ever have taken me up on it. Now that I'm going to a pain management doctor I will be drug tested each time and that's fine. That I can understand, but don't judge me on something I didn't HAVE to tell you in the first place. I always tell techs getting ready to take blood that I have HEP C and they either say ok, or thank me but I don't care what they think of me. I care what I think of me so I would never think of not telling them. Uhhgg...let me stop here. This is just ticking me off thinking of how some people can be such morons...Best wishes~~~Debbie > > I haven't gone through the process of meeting with a transplant team yet..It is kind of freaky how much power these doc's have. Literally life or death. That's bull**** about the pain med's. My liver doc said he would prescribe something for my arthritis, but would not because of my history. My primary doc. did, though. Last time I saw my liver doc. I didn't tell him, but this time the liver doc. knows, because I gave his nurse a full list of my med's. And I see him coming up on Nov. 6th...will be interesting to hear what he says about it. The chips will fall where they fall I suppose. Guess if he says I will be denied, because of the pain med's, I will quit them and live with the pain. It just kind of reinforces what I have known for years. A lot of doctors see us with addiction problems as second class citizens. Not all, but some, along with society at large. Not all, but some. Stay strong, try to relax, this shall pass. I > totally understand. It is true most doc's do not trust us. And I have to say rightfully so. Addictive types have to prove theirselves over and over, and this will not change. What's the saying.. " accept the things we cannot change " . peace and comfort, > Dave > > > > > ____________ _________ _________ __ > From: Rhonda <rhondasemail@ ...> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tue, October 6, 2009 6:40:56 PM > Subject: Today > > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Jeepers Jill! Is Ed a cop?...LOL. I just went to my first appt. last mo. and they had me do a urine drop which is fine. I figured it was to only make sure that there was nothing else in my system and I never stopped to think of those who might get the drugs to sell and not actually even take. Like you said, that's understandable and I can handle that. And yeah, we should get the name and address of Roni's doc and we'll all write to him!!!! Just call Ed in for backup~~~Best wishes, Debbie > > > > I haven't gone through the process of meeting with a transplant team yet..It is kind of freaky how much power these doc's have. Literally life or death. That's bull**** about the pain med's. My liver doc said he would prescribe something for my arthritis, but would not because of my history. My primary doc. did, though. Last time I saw my liver doc. I didn't tell him, but this time the liver doc. knows, because I gave his nurse a full list of my med's. And I see him coming up on Nov. 6th...will be interesting to hear what he says about it. The chips will fall where they fall I suppose. Guess if he says I will be denied, because of the pain med's, I will quit them and live with the pain. It just kind of reinforces what I have known for years. A lot of doctors see us with addiction problems as second class citizens. Not all, but some, along with society at large. Not all, but some. Stay strong, try to relax, this shall pass. I > > totally understand. It is true most doc's do not trust us. And I have to say rightfully so. Addictive types have to prove theirselves over and over, and this will not change. What's the saying.. " accept the things we cannot change " . peace and comfort, > > Dave > > > > > > > > > > ____________ _________ _________ __ > > From: Rhonda <rhondasemail@ ...> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Tue, October 6, 2009 6:40:56 PM > > Subject: Today > > > > > > Hi Group, > > > > I had a bad experience today. My gastro doctor who has been my doctor > > for the past 2 years since I was hospitalized with bleeding varices > > quit the practice so I had to find a new one. I met the new doctor > > today for the first time. He proceeded to tell me that I already have > > 2 strikes against me concerning receiving a transplant. 1) I have a > > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > > pain medication. He said 3 strikes and your out! I said, do I just > > live with the pain. He basically said yes millions of people have > > arthritus and are in pain. Then he wants me to supply him with proof > > of my attendance to AA meetings and get a letter every month from my > > sponsor. I already did all this for Baylor and had to fill out a > > sheet each time I went for 6 months. I completed this months ago for > > Baylor and now I have to do it for him? I left this meeting totally > > boggled. I came home and cried like a baby. Not sure exactly why > > this bothered me so much. I just wanted to get some feed back on this > > episode. > > > > Thanks! > > Roni > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Yeo ! He's the chief in our little town. LOL !! Okay , we'll use him for back up when we get Roni's doc! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Tuesday, October 6, 2009 9:22:12 PM Subject: Re: Today Jeepers Jill! Is Ed a cop?...LOL. I just went to my first appt. last mo. and they had me do a urine drop which is fine. I figured it was to only make sure that there was nothing else in my system and I never stopped to think of those who might get the drugs to sell and not actually even take. Like you said, that's understandable and I can handle that. And yeah, we should get the name and address of Roni's doc and we'll all write to him!!!! Just call Ed in for backup~~~Best wishes, Debbie > > > > I haven't gone through the process of meeting with a transplant team yet..It is kind of freaky how much power these doc's have. Literally life or death. That's bull**** about the pain med's. My liver doc said he would prescribe something for my arthritis, but would not because of my history. My primary doc. did, though. Last time I saw my liver doc. I didn't tell him, but this time the liver doc. knows, because I gave his nurse a full list of my med's. And I see him coming up on Nov. 6th...will be interesting to hear what he says about it. The chips will fall where they fall I suppose. Guess if he says I will be denied, because of the pain med's, I will quit them and live with the pain. It just kind of reinforces what I have known for years. A lot of doctors see us with addiction problems as second class citizens. Not all, but some, along with society at large. Not all, but some. Stay strong, try to relax, this shall pass. I > > totally understand. It is true most doc's do not trust us. And I have to say rightfully so. Addictive types have to prove theirselves over and over, and this will not change. What's the saying.. " accept the things we cannot change " . peace and comfort, > > Dave > > > > > > > > > > ____________ _________ _________ __ > > From: Rhonda <rhondasemail@ ...> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Tue, October 6, 2009 6:40:56 PM > > Subject: Today > > > > > > Hi Group, > > > > I had a bad experience today. My gastro doctor who has been my doctor > > for the past 2 years since I was hospitalized with bleeding varices > > quit the practice so I had to find a new one. I met the new doctor > > today for the first time. He proceeded to tell me that I already have > > 2 strikes against me concerning receiving a transplant. 1) I have a > > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > > pain medication. He said 3 strikes and your out! I said, do I just > > live with the pain. He basically said yes millions of people have > > arthritus and are in pain. Then he wants me to supply him with proof > > of my attendance to AA meetings and get a letter every month from my > > sponsor. I already did all this for Baylor and had to fill out a > > sheet each time I went for 6 months. I completed this months ago for > > Baylor and now I have to do it for him? I left this meeting totally > > boggled. I came home and cried like a baby. Not sure exactly why > > this bothered me so much. I just wanted to get some feed back on this > > episode. > > > > Thanks! > > Roni > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 There you go Debbie! Third times a charm! Yeah I left there feeling very second class and like I was a drug addict. I felt guilty for even being there. Haha. Sorry.....I'll go crawl back in my hole and die. Thats what I get for being honest. I don't think he even believed I haven't drank in 3 years. He said do you have documented proof. Next visit he wants me to bring all my pills to him in a bag. I miss my old gastro! Sheesh. > Roni, I'm sorry you had such a bad experience. It's like how long do > we have to pay for past mistakes. I can understand their concern as > far as the alcohol goes but the concern should only go so far. Yes, > a recovering alcoholic can relapse even after 20 yrs. but then again > there's always a chance that someone who is 60 and never drank can > start and then become an alcoholic. And what's up with the pain med? > I mean that's why they make the stuff is for pain right? Anything > can be abused and anything can become addictive. I'm addicted to > Chapstick but I don't abuse it. I can understand you being upset by > all this. I got Hep C from IV drug use back in 1974. That was 35 > yrs. ago but I still get the " oh, you abused drugs? " deal with my > medical providers. I could lie to them, tell them I never used > drugs, tell them I got it from a blood transfusion but I've always > been honest with my doctors and sometimes I've come away feeling > second rate all because of something I USED to do. I know it will be > frustrating but just continue to give them the documentation they > require. What's most important is that you know the work you've done > to change and always continue to be proud! Don't let anyone take > that away from you. Tell the doc that instead of " three strikes > you're out " , that you prefer to look at it as " third time's a > charm " ...Best wishes~~~Debbie > > > > > > Hi Group, > > > > I had a bad experience today. My gastro doctor who has been my > doctor > > for the past 2 years since I was hospitalized with bleeding varices > > quit the practice so I had to find a new one. I met the new doctor > > today for the first time. He proceeded to tell me that I already > have > > 2 strikes against me concerning receiving a transplant. 1) I have a > > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > > pain medication. He said 3 strikes and your out! I said, do I just > > live with the pain. He basically said yes millions of people have > > arthritus and are in pain. Then he wants me to supply him with proof > > of my attendance to AA meetings and get a letter every month from my > > sponsor. I already did all this for Baylor and had to fill out a > > sheet each time I went for 6 months. I completed this months ago for > > Baylor and now I have to do it for him? I left this meeting totally > > boggled. I came home and cried like a baby. Not sure exactly why > > this bothered me so much. I just wanted to get some feed back on > this > > episode. > > > > Thanks! > > Roni > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 I agree Dave. It is freaky. They don't really know you and yet if you take pain pills and the next guy doesn't.......he gets the liver, not you. I know there is alot more to it than that, but basically that is what my new gastro said. Some of the greatest people I have personally met at one time were addicted to something. They overcame it. I do hate to stop taking the pain pills because.....well, I'm in pain when I don't and it's hard to get through the day. Is it addictive.....yes it is. Anything that makes you feel better is addictive. Chocolate for instance. I'm not abusing it and have no desire to. I don't even get a buzz. Thanks Dave, I'm feeling more peace about it and really its all in Gods hands in spite of what I do. Roni > I haven't gone through the process of meeting with a transplant team > yet..It is kind of freaky how much power these doc's have. > Literally life or death. That's bull**** about the pain med's. My > liver doc said he would prescribe something for my arthritis, but > would not because of my history. My primary doc. did, though. Last > time I saw my liver doc. I didn't tell him, but this time the liver > doc. knows, because I gave his nurse a full list of my med's. And I > see him coming up on Nov. 6th...will be interesting to hear what he > says about it. The chips will fall where they fall I suppose. > Guess if he says I will be denied, because of the pain med's, I will > quit them and live with the pain. It just kind of reinforces what I > have known for years. A lot of doctors see us with addiction > problems as second class citizens. Not all, but some, along with > society at large. Not all, but some. Stay strong, try to relax, > this shall pass. I > totally understand. It is true most doc's do not trust us. And I > have to say rightfully so. Addictive types have to prove > theirselves over and over, and this will not change. What's the > saying.. " accept the things we cannot change " . peace and comfort, > Dave > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, October 6, 2009 6:40:56 PM > Subject: Today > > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Jill I went to see a gastroenterologist. What kind of pain meds is Ed on? Where are you located? My other gastro didn't have a problem with my pain medication. Roni > I agree with you, Dave...Ed's hepatologist has never said > anything about the pain meds. He has a list of all the meds Ed > takes and last week when we were there said he would start the > process when Ed's MELD reaches 14 or 15.....he said they do it then > so that he's not caught off guard when his MELD is 17 or 18 when > they transplant. Ed doctor is a hepatic specialist ( who is the > assistant head of the gastroenterology and hepatic disease dept and > also on the transplant team), not just a gastroenterlogist. What > kind of doc are you seeing? > Now my orthopedic surgeon says that before he does my total > knee replacements, I will have to go off of ALL my pain meds for 2 > or 3 weeks before surgery. If I don't, the meds I will get > afterwards will not work very well....but then I take percocet and > morphine everyday. That will be a tough 2-3 weeks! I can't believe > your doc told you that, Roni. > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Tuesday, October 6, 2009 8:46:46 PM > Subject: Re: Today > > > I haven't gone through the process of meeting with a transplant team > yet..It is kind of freaky how much power these doc's have. > Literally life or death. That's bull**** about the pain med's. My > liver doc said he would prescribe something for my arthritis, but > would not because of my history. My primary doc. did, though. Last > time I saw my liver doc. I didn't tell him, but this time the liver > doc. knows, because I gave his nurse a full list of my med's. And I > see him coming up on Nov. 6th...will be interesting to hear what he > says about it. The chips will fall where they fall I suppose. > Guess if he says I will be denied, because of the pain med's, I will > quit them and live with the pain. It just kind of reinforces what I > have known for years. A lot of doctors see us with addiction > problems as second class citizens. Not all, but some, along with > society at large. Not all, but some. Stay strong, try to relax, > this shall pass. I > totally understand. It is true most doc's do not trust us. And I > have to say rightfully so. Addictive types have to prove > theirselves over and over, and this will not change. What's the > saying.. " accept the things we cannot change " . peace and comfort, > Dave > > ____________ _________ _________ __ > From: Rhonda <rhondasemail@ cox.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tue, October 6, 2009 6:40:56 PM > Subject: Today > > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain.. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 LOL Jill, I'll send him a link! As soon as I get the tests done I need to be sent to Baylor, I'm finding a new gastro. Roni > Debbie, I go to a pain medicine doctor...he also does random drug > testing. I can understand that. He wants to make sure the drug is in > your system.....actually, he's only done 1 on me in 8 months. I > think it scares him when Ed goes with me dressed in his uniform! > AND Roni, get your doc on this forum---we'll set him straight! Let > us at him!! LOL ! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Tuesday, October 6, 2009 9:09:11 PM > Subject: Re: Today > > > Just my 2cents,,,actually just 1/2 cents in today's economy but I > say BS! to the holier than thou docs who want to make me feel bad > for being stupid 35 yrs. ago knowing that there is no telling what > goes on in their private lives. As far as doctors go I feel like, > HEY, I've got Hep C, I've been held accountable and responsible for > it so treat me as a person or don't treat me at all. Doctors have > some of the highest addiction rates in the country along with > psychiatrists having the highest suicide rates. Yes, I want a doctor > who is going to factor in my PAST addiction in the equation because > I want to count on him to help make sure I don't relapse BUT I don't > need him to judge me. And, I will even grant him a little > understanding about his concern but that's all I'm willing to give. > If they think I'm abusing my meds then count the pills in my bottle > which is exactly what I always offer them to do. NONE ever have > taken me up on it. Now that I'm going to a > pain management doctor I will be drug tested each time and that's > fine. That I can understand, but don't judge me on something I > didn't HAVE to tell you in the first place. I always tell techs > getting ready to take blood that I have HEP C and they either say > ok, or thank me but I don't care what they think of me. I care what > I think of me so I would never think of not telling them. > Uhhgg...let me stop here. This is just ticking me off thinking of > how some people can be such morons...Best wishes~~~Debbie > > > > > > I haven't gone through the process of meeting with a transplant > team yet..It is kind of freaky how much power these doc's have. > Literally life or death. That's bull**** about the pain med's. My > liver doc said he would prescribe something for my arthritis, but > would not because of my history. My primary doc. did, though. Last > time I saw my liver doc. I didn't tell him, but this time the liver > doc. knows, because I gave his nurse a full list of my med's. And I > see him coming up on Nov. 6th...will be interesting to hear what he > says about it. The chips will fall where they fall I suppose. > Guess if he says I will be denied, because of the pain med's, I will > quit them and live with the pain. It just kind of reinforces what I > have known for years. A lot of doctors see us with addiction > problems as second class citizens. Not all, but some, along with > society at large. Not all, but some. Stay strong, try to relax, > this shall pass. I > > totally understand. It is true most doc's do not trust us. And I > have to say rightfully so. Addictive types have to prove > theirselves over and over, and this will not change. What's the > saying.. " accept the things we cannot change " . peace and comfort, > > Dave > > > > > > > > > > ____________ _________ _________ __ > > From: Rhonda <rhondasemail@ ...> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Tue, October 6, 2009 6:40:56 PM > > Subject: Today > > > > > > Hi Group, > > > > I had a bad experience today. My gastro doctor who has been my > doctor > > for the past 2 years since I was hospitalized with bleeding varices > > quit the practice so I had to find a new one. I met the new doctor > > today for the first time. He proceeded to tell me that I already > have > > 2 strikes against me concerning receiving a transplant. 1) I have a > > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > > pain medication. He said 3 strikes and your out! I said, do I just > > live with the pain. He basically said yes millions of people have > > arthritus and are in pain. Then he wants me to supply him with proof > > of my attendance to AA meetings and get a letter every month from my > > sponsor. I already did all this for Baylor and had to fill out a > > sheet each time I went for 6 months. I completed this months ago for > > Baylor and now I have to do it for him? I left this meeting totally > > boggled. I came home and cried like a baby. Not sure exactly why > > this bothered me so much. I just wanted to get some feed back on > this > > episode. > > > > Thanks! > > Roni > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Hello Rhonda,as I sit here and wish I had a magic button to press for Diane's grief and heartache and there isn't one,I can sure tell you a bit I know for a fact...Tomorrow I go to my last alldayer appointment at the hospital for transplant and have met with everyone and had every test imaginable except for meeting with the surgeon,and financial coordinator,and according to my herpetologist and the transplant nurse I have a green light (knock on wood)and I also am an alcoholic, only sober not quite 2 yrs,and advised by my herpetologist to go to pain management.These doctors all think they can go by there own standards,I never even was going to consider the transplant evaluation a year and a half ago because i thought they didn't give " US " one,but then I came along I doctor that didn't even know me and asked me why I wasn't on a list,and I didn't have an answer,except I thought " why not? " and if it weren't for him I would have never quit drinking,and not writing this,and unfortunately be dead...I still think of him as my angel from above,he had come in my room just being nosey looking at my chart.For some reason some Doctors have Like the big book says some drunk ol' aunt or uncle that they secretly are ashamed of,and it rubs off on there personal duty as a physician.Wait till Bobby reads this!!!! Trust me they made me think in the beginning it was gonna be like jumping the grand canyon,and I too have cryed a lot!You go ahead and hold your head up,and make the proper appointments and take it from there.I live in Ohio and was told I had to be sober 2 yrs before they would even consider me,and then I talked to Bobby and he said he didn't think so,and " HE was right " its only 6 months, as you know it's really the rest of your life,but you understand what I mean.I could rant and rave about this all night. I will post tomorrow and let everyone know how my appointment went ,I was told that they meet twice a month to make the decision about adding people to the list. Giant Hugs Subject: Today To: livercirrhosissupport Date: Tuesday, October 6, 2009, 7:40 PM Hi Group, I had a bad experience today. My gastro doctor who has been my doctor for the past 2 years since I was hospitalized with bleeding varices quit the practice so I had to find a new one. I met the new doctor today for the first time. He proceeded to tell me that I already have 2 strikes against me concerning receiving a transplant. 1) I have a history of alcohol abuse (I haven't drank in 3 years) and 2) I am on pain medication. He said 3 strikes and your out! I said, do I just live with the pain. He basically said yes millions of people have arthritus and are in pain. Then he wants me to supply him with proof of my attendance to AA meetings and get a letter every month from my sponsor. I already did all this for Baylor and had to fill out a sheet each time I went for 6 months. I completed this months ago for Baylor and now I have to do it for him? I left this meeting totally boggled. I came home and cried like a baby. Not sure exactly why this bothered me so much. I just wanted to get some feed back on this episode. Thanks! Roni ------------------------------------ Group Email: livercirrhosissupport web address: http://groups.yahoo.com/group/livercirrhosissupport/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 LOL.....you guys are too funny! > Yeo ! He's the chief in our little town. LOL !! Okay , we'll use > him for back up when we get Roni's doc! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Tuesday, October 6, 2009 9:22:12 PM > Subject: Re: Today > > > Jeepers Jill! Is Ed a cop?...LOL. I just went to my first appt. last > mo. and they had me do a urine drop which is fine. I figured it was > to only make sure that there was nothing else in my system and I > never stopped to think of those who might get the drugs to sell and > not actually even take. Like you said, that's understandable and I > can handle that. And yeah, we should get the name and address of > Roni's doc and we'll all write to him!!!! Just call Ed in for > backup~~~Best wishes, Debbie > > > > > > > > I haven't gone through the process of meeting with a transplant > team yet..It is kind of freaky how much power these doc's have. > Literally life or death. That's bull**** about the pain med's. My > liver doc said he would prescribe something for my arthritis, but > would not because of my history. My primary doc. did, though. Last > time I saw my liver doc. I didn't tell him, but this time the liver > doc. knows, because I gave his nurse a full list of my med's. And I > see him coming up on Nov. 6th...will be interesting to hear what he > says about it. The chips will fall where they fall I suppose. > Guess if he says I will be denied, because of the pain med's, I will > quit them and live with the pain. It just kind of reinforces what I > have known for years. A lot of doctors see us with addiction > problems as second class citizens. Not all, but some, along with > society at large. Not all, but some. Stay strong, try to relax, > this shall > pass. I > > > totally understand. It is true most doc's do not trust us. And > I have to say rightfully so. Addictive types have to prove > theirselves over and over, and this will not change. What's the > saying.. " accept the things we cannot change " . peace and comfort, > > > Dave > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: Rhonda <rhondasemail@ ...> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Tue, October 6, 2009 6:40:56 PM > > > Subject: Today > > > > > > > > > Hi Group, > > > > > > I had a bad experience today. My gastro doctor who has been my > doctor > > > for the past 2 years since I was hospitalized with bleeding > varices > > > quit the practice so I had to find a new one. I met the new doctor > > > today for the first time. He proceeded to tell me that I already > have > > > 2 strikes against me concerning receiving a transplant. 1) I > have a > > > history of alcohol abuse (I haven't drank in 3 years) and 2) I > am on > > > pain medication. He said 3 strikes and your out! I said, do I just > > > live with the pain. He basically said yes millions of people have > > > arthritus and are in pain. Then he wants me to supply him with > proof > > > of my attendance to AA meetings and get a letter every month > from my > > > sponsor. I already did all this for Baylor and had to fill out a > > > sheet each time I went for 6 months. I completed this months ago > for > > > Baylor and now I have to do it for him? I left this meeting > totally > > > boggled. I came home and cried like a baby. Not sure exactly why > > > this bothered me so much. I just wanted to get some feed back on > this > > > episode. > > > > > > Thanks! > > > Roni > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 He's on Neurontin now...he has diabetic neuropathy. We live in Ohio...Ed sees a hepatic specialist at The Cleveland Clinic Foundation. He's awesome.. I'm sorry you're having a bad experience with your new one. That's juat awful. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Tuesday, October 6, 2009 10:19:57 PM Subject: Re: Today Jill I went to see a gastroenterologist. What kind of pain meds is Ed on? Where are you located? My other gastro didn't have a problem with my pain medication. Roni > I agree with you, Dave...Ed's hepatologist has never said > anything about the pain meds. He has a list of all the meds Ed > takes and last week when we were there said he would start the > process when Ed's MELD reaches 14 or 15.....he said they do it then > so that he's not caught off guard when his MELD is 17 or 18 when > they transplant. Ed doctor is a hepatic specialist ( who is the > assistant head of the gastroenterology and hepatic disease dept and > also on the transplant team), not just a gastroenterlogist. What > kind of doc are you seeing? > Now my orthopedic surgeon says that before he does my total > knee replacements, I will have to go off of ALL my pain meds for 2 > or 3 weeks before surgery. If I don't, the meds I will get > afterwards will not work very well....but then I take percocet and > morphine everyday. That will be a tough 2-3 weeks! I can't believe > your doc told you that, Roni. > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our breath away. > > ____________ _________ _________ __ > From: dave dodds <daveliltoeyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, October 6, 2009 8:46:46 PM > Subject: Re: Today > > > I haven't gone through the process of meeting with a transplant team > yet..It is kind of freaky how much power these doc's have. > Literally life or death. That's bull**** about the pain med's. My > liver doc said he would prescribe something for my arthritis, but > would not because of my history. My primary doc. did, though. Last > time I saw my liver doc. I didn't tell him, but this time the liver > doc. knows, because I gave his nurse a full list of my med's. And I > see him coming up on Nov. 6th....will be interesting to hear what he > says about it. The chips will fall where they fall I suppose. > Guess if he says I will be denied, because of the pain med's, I will > quit them and live with the pain. It just kind of reinforces what I > have known for years. A lot of doctors see us with addiction > problems as second class citizens. Not all, but some, along with > society at large. Not all, but some. Stay strong, try to relax, > this shall pass. I > totally understand. It is true most doc's do not trust us. And I > have to say rightfully so. Addictive types have to prove > theirselves over and over, and this will not change. What's the > saying.. " accept the things we cannot change " . peace and comfort, > Dave > > ____________ _________ _________ __ > From: Rhonda <rhondasemail@ cox.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tue, October 6, 2009 6:40:56 PM > Subject: Today > > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one.. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain.. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Good girl...there's no sense in going to a doctor that you don't click with ( notice how nicely I'm saying that!) . You have to like them and trust their judgement..especially when your life is literaly in their hands! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Tuesday, October 6, 2009 10:23:13 PM Subject: Re: Today LOL Jill, I'll send him a link! As soon as I get the tests done I need to be sent to Baylor, I'm finding a new gastro. Roni > Debbie, I go to a pain medicine doctor...he also does random drug > testing. I can understand that. He wants to make sure the drug is in > your system.....actually , he's only done 1 on me in 8 months. I > think it scares him when Ed goes with me dressed in his uniform! > AND Roni, get your doc on this forum---we'll set him straight! Let > us at him!! LOL ! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our breath away. > > ____________ _________ _________ __ > From: drgonflyblue <pita54meyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, October 6, 2009 9:09:11 PM > Subject: Re: Today > > > Just my 2cents,,,actually just 1/2 cents in today's economy but I > say BS! to the holier than thou docs who want to make me feel bad > for being stupid 35 yrs. ago knowing that there is no telling what > goes on in their private lives. As far as doctors go I feel like, > HEY, I've got Hep C, I've been held accountable and responsible for > it so treat me as a person or don't treat me at all.. Doctors have > some of the highest addiction rates in the country along with > psychiatrists having the highest suicide rates. Yes, I want a doctor > who is going to factor in my PAST addiction in the equation because > I want to count on him to help make sure I don't relapse BUT I don't > need him to judge me. And, I will even grant him a little > understanding about his concern but that's all I'm willing to give. > If they think I'm abusing my meds then count the pills in my bottle > which is exactly what I always offer them to do. NONE ever have > taken me up on it. Now that I'm going to a > pain management doctor I will be drug tested each time and that's > fine. That I can understand, but don't judge me on something I > didn't HAVE to tell you in the first place. I always tell techs > getting ready to take blood that I have HEP C and they either say > ok, or thank me but I don't care what they think of me. I care what > I think of me so I would never think of not telling them. > Uhhgg...let me stop here. This is just ticking me off thinking of > how some people can be such morons...Best wishes~~~Debbie > > > > > > I haven't gone through the process of meeting with a transplant > team yet..It is kind of freaky how much power these doc's have. > Literally life or death. That's bull**** about the pain med's. My > liver doc said he would prescribe something for my arthritis, but > would not because of my history. My primary doc. did, though. Last > time I saw my liver doc. I didn't tell him, but this time the liver > doc. knows, because I gave his nurse a full list of my med's. And I > see him coming up on Nov. 6th...will be interesting to hear what he > says about it. The chips will fall where they fall I suppose. > Guess if he says I will be denied, because of the pain med's, I will > quit them and live with the pain. It just kind of reinforces what I > have known for years. A lot of doctors see us with addiction > problems as second class citizens. Not all, but some, along with > society at large. Not all, but some. Stay strong, try to relax, > this shall pass. I > > totally understand. It is true most doc's do not trust us. And I > have to say rightfully so. Addictive types have to prove > theirselves over and over, and this will not change. What's the > saying.. " accept the things we cannot change " . peace and comfort, > > Dave > > > > > > > > > > ____________ _________ _________ __ > > From: Rhonda <rhondasemail@ ...> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Tue, October 6, 2009 6:40:56 PM > > Subject: Today > > > > > > Hi Group, > > > > I had a bad experience today. My gastro doctor who has been my > doctor > > for the past 2 years since I was hospitalized with bleeding varices > > quit the practice so I had to find a new one. I met the new doctor > > today for the first time. He proceeded to tell me that I already > have > > 2 strikes against me concerning receiving a transplant. 1) I have a > > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > > pain medication. He said 3 strikes and your out! I said, do I just > > live with the pain. He basically said yes millions of people have > > arthritus and are in pain. Then he wants me to supply him with proof > > of my attendance to AA meetings and get a letter every month from my > > sponsor. I already did all this for Baylor and had to fill out a > > sheet each time I went for 6 months. I completed this months ago for > > Baylor and now I have to do it for him? I left this meeting totally > > boggled. I came home and cried like a baby. Not sure exactly why > > this bothered me so much. I just wanted to get some feed back on > this > > episode. > > > > Thanks! > > Roni > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Which hospital are you going to,? Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Tuesday, October 6, 2009 10:23:45 PM Subject: Re: Today Hello Rhonda,as I sit here and wish I had a magic button to press for Diane's grief and heartache and there isn't one,I can sure tell you a bit I know for a fact...Tomorrow I go to my last alldayer appointment at the hospital for transplant and have met with everyone and had every test imaginable except for meeting with the surgeon,and financial coordinator, and according to my herpetologist and the transplant nurse I have a green light (knock on wood)and I also am an alcoholic, only sober not quite 2 yrs,and advised by my herpetologist to go to pain management.These doctors all think they can go by there own standards,I never even was going to consider the transplant evaluation a year and a half ago because i thought they didn't give " US " one,but then I came along I doctor that didn't even know me and asked me why I wasn't on a list,and I didn't have an answer,except I thought " why not? " and if it weren't for him I would have never quit drinking,and not writing this,and unfortunately be dead...I still think of him as my angel from above,he had come in my room just being nosey looking at my chart.For some reason some Doctors have Like the big book says some drunk ol' aunt or uncle that they secretly are ashamed of,and it rubs off on there personal duty as a physician.Wait till Bobby reads this!!!! Trust me they made me think in the beginning it was gonna be like jumping the grand canyon,and I too have cryed a lot!You go ahead and hold your head up,and make the proper appointments and take it from there.I live in Ohio and was told I had to be sober 2 yrs before they would even consider me,and then I talked to Bobby and he said he didn't think so,and " HE was right " its only 6 months, as you know it's really the rest of your life,but you understand what I mean.I could rant and rave about this all night. I will post tomorrow and let everyone know how my appointment went ,I was told that they meet twice a month to make the decision about adding people to the list. Giant Hugs From: Rhonda <rhondasemail@ cox.net> Subject: Today To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Tuesday, October 6, 2009, 7:40 PM Hi Group, I had a bad experience today. My gastro doctor who has been my doctor for the past 2 years since I was hospitalized with bleeding varices quit the practice so I had to find a new one. I met the new doctor today for the first time. He proceeded to tell me that I already have 2 strikes against me concerning receiving a transplant. 1) I have a history of alcohol abuse (I haven't drank in 3 years) and 2) I am on pain medication. He said 3 strikes and your out! I said, do I just live with the pain. He basically said yes millions of people have arthritus and are in pain. Then he wants me to supply him with proof of my attendance to AA meetings and get a letter every month from my sponsor. I already did all this for Baylor and had to fill out a sheet each time I went for 6 months.. I completed this months ago for Baylor and now I have to do it for him? I left this meeting totally boggled. I came home and cried like a baby. Not sure exactly why this bothered me so much. I just wanted to get some feed back on this episode. Thanks! Roni ------------ --------- --------- ------ Group Email: livercirrhosissuppo rtyahoogroups (DOT) com web address: http://groups. yahoo.com/ group/livercirrh osissupport/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Bless your heart . You know I remember when I was right were you are now.....lying in the hospital and them telling me I have end stage liver disease and will need a transplant. I knew that there was no way they would even consider me because of my history and it seemed so hopeless. I will be thinking about you tommorrow and saying a prayer for you. You know you made me realize I really shouldn't be complaining too much and just be thankful for what I have now. I'm so glad you've found sobriety and we are sisters in recovery. Roni > Hello Rhonda,as I sit here and wish I had a magic button to press > for Diane's grief and heartache and there isn't one,I can sure tell > you a bit I know for a fact...Tomorrow I go to my last alldayer > appointment at the hospital for transplant and have met with > everyone and had every test imaginable except for meeting with the > surgeon,and financial coordinator,and according to my herpetologist > and the transplant nurse I have a green light (knock on wood)and I > also am an alcoholic, only sober not quite 2 yrs,and advised by my > herpetologist to go to pain management.These doctors all think they > can go by there own standards,I never even was going to consider the > transplant evaluation a year and a half ago because i thought they > didn't give " US " one,but then I came along I doctor that didn't even > know me and asked me why I wasn't on a list,and I didn't have an > answer,except I thought " why not? " and if it weren't for him I would > have never quit drinking,and not > writing this,and unfortunately be dead...I still think of him as my > angel from above,he had come in my room just being nosey looking at > my chart.For some reason some Doctors have Like the big book says > some drunk ol' aunt or uncle that they secretly are ashamed of,and > it rubs off on there personal duty as a physician.Wait till Bobby > reads this!!!! Trust me they made me think in the beginning it was > gonna be like jumping the grand canyon,and I too have cryed a lot! > You go ahead and hold your head up,and make the proper appointments > and take it from there.I live in Ohio and was told I had to be sober > 2 yrs before they would even consider me,and then I talked to Bobby > and he said he didn't think so,and " HE was right " its only 6 months, > as you know it's really the rest of your life,but you understand > what I mean.I could rant and rave about this all night. I will post > tomorrow and let everyone know how my appointment went ,I was told > that they meet twice a > month to make the decision about adding people to the list. Giant > Hugs > > > > > Subject: Today > To: livercirrhosissupport > Date: Tuesday, October 6, 2009, 7:40 PM > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > > ------------------------------------ > > Group Email: livercirrhosissupport > web address: > http://groups.yahoo.com/group/livercirrhosissupport/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Roni, if you REALLY don't like him then when you go back and open up your bag of meds have an empty whiskey bottle in there and just say ooppss...LOL...it would be funny except for the fact that it's not. Tell him to call Jill...she's wanting to talk to him and she has reinforcements big time!~~~Best wishes, Debbie > > > > > > Hi Group, > > > > > > I had a bad experience today. My gastro doctor who has been my > > doctor > > > for the past 2 years since I was hospitalized with bleeding varices > > > quit the practice so I had to find a new one. I met the new doctor > > > today for the first time. He proceeded to tell me that I already > > have > > > 2 strikes against me concerning receiving a transplant. 1) I have a > > > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > > > pain medication. He said 3 strikes and your out! I said, do I just > > > live with the pain. He basically said yes millions of people have > > > arthritus and are in pain. Then he wants me to supply him with proof > > > of my attendance to AA meetings and get a letter every month from my > > > sponsor. I already did all this for Baylor and had to fill out a > > > sheet each time I went for 6 months. I completed this months ago for > > > Baylor and now I have to do it for him? I left this meeting totally > > > boggled. I came home and cried like a baby. Not sure exactly why > > > this bothered me so much. I just wanted to get some feed back on > > this > > > episode. > > > > > > Thanks! > > > Roni > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Roni,my prayers are with you also,if you don't mind me asking,How old are you? I'm 42 now,I have Hep C to boot,but my meld is only 10,but when I was in the hospital it was 14. > > > Subject: Today > To: livercirrhosissupport > Date: Tuesday, October 6, 2009, 7:40 PM > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > > ------------------------------------ > > Group Email: livercirrhosissupport > web address: > http://groups.yahoo.com/group/livercirrhosissupport/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Hey Roni, actually you do get a buzz off of chocolate but it's good for you and legal too ;-)...But then again, just in case they've recently made chocolate illegal keep it on the downlow, Jill's hubby is a cop...sshhh...~~~Debbie > > > I haven't gone through the process of meeting with a transplant team > > yet..It is kind of freaky how much power these doc's have. > > Literally life or death. That's bull**** about the pain med's. My > > liver doc said he would prescribe something for my arthritis, but > > would not because of my history. My primary doc. did, though. Last > > time I saw my liver doc. I didn't tell him, but this time the liver > > doc. knows, because I gave his nurse a full list of my med's. And I > > see him coming up on Nov. 6th...will be interesting to hear what he > > says about it. The chips will fall where they fall I suppose. > > Guess if he says I will be denied, because of the pain med's, I will > > quit them and live with the pain. It just kind of reinforces what I > > have known for years. A lot of doctors see us with addiction > > problems as second class citizens. Not all, but some, along with > > society at large. Not all, but some. Stay strong, try to relax, > > this shall pass. I > > totally understand. It is true most doc's do not trust us. And I > > have to say rightfully so. Addictive types have to prove > > theirselves over and over, and this will not change. What's the > > saying.. " accept the things we cannot change " . peace and comfort, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Tue, October 6, 2009 6:40:56 PM > > Subject: Today > > > > > > Hi Group, > > > > I had a bad experience today. My gastro doctor who has been my doctor > > for the past 2 years since I was hospitalized with bleeding varices > > quit the practice so I had to find a new one. I met the new doctor > > today for the first time. He proceeded to tell me that I already have > > 2 strikes against me concerning receiving a transplant. 1) I have a > > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > > pain medication. He said 3 strikes and your out! I said, do I just > > live with the pain. He basically said yes millions of people have > > arthritus and are in pain. Then he wants me to supply him with proof > > of my attendance to AA meetings and get a letter every month from my > > sponsor. I already did all this for Baylor and had to fill out a > > sheet each time I went for 6 months. I completed this months ago for > > Baylor and now I have to do it for him? I left this meeting totally > > boggled. I came home and cried like a baby. Not sure exactly why > > this bothered me so much. I just wanted to get some feed back on this > > episode. > > > > Thanks! > > Roni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 I'm 48 . My meld was 9 last time they checked. It fluxuates alot. Roni > Roni,my prayers are with you also,if you don't mind me asking,How > old are you? I'm 42 now,I have Hep C to boot,but my meld is only > 10,but when I was in the hospital it was 14. > > > > > > > Subject: Today > > To: livercirrhosissupport > > Date: Tuesday, October 6, 2009, 7:40 PM > > > > Hi Group, > > > > I had a bad experience today. My gastro doctor who has been my > doctor > > for the past 2 years since I was hospitalized with bleeding varices > > quit the practice so I had to find a new one. I met the new doctor > > today for the first time. He proceeded to tell me that I already > have > > 2 strikes against me concerning receiving a transplant. 1) I > have a > > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > > pain medication. He said 3 strikes and your out! I said, do I just > > live with the pain. He basically said yes millions of people have > > arthritus and are in pain. Then he wants me to supply him with > proof > > of my attendance to AA meetings and get a letter every month from my > > sponsor. I already did all this for Baylor and had to fill out a > > sheet each time I went for 6 months. I completed this months ago > for > > Baylor and now I have to do it for him? I left this meeting totally > > boggled. I came home and cried like a baby. Not sure exactly why > > this bothered me so much. I just wanted to get some feed back on > this > > episode. > > > > Thanks! > > Roni > > > > ------------------------------------ > > > > Group Email: livercirrhosissupport > > web address: > > http://groups.yahoo.com/group/livercirrhosissupport/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Roni, I think you and I are the only ones in this area. Thanks be to God for he creates our tomorrows Love, Lyncia ________________________________ To: livercirrhosissupport Sent: Tue, October 6, 2009 9:19:57 PM Subject: Re: Today Jill I went to see a gastroenterologist. What kind of pain meds is Ed on? Where are you located? My other gastro didn't have a problem with my pain medication. Roni > I agree with you, Dave...Ed's hepatologist has never said > anything about the pain meds. He has a list of all the meds Ed > takes and last week when we were there said he would start the > process when Ed's MELD reaches 14 or 15.....he said they do it then > so that he's not caught off guard when his MELD is 17 or 18 when > they transplant. Ed doctor is a hepatic specialist ( who is the > assistant head of the gastroenterology and hepatic disease dept and > also on the transplant team), not just a gastroenterlogist. What > kind of doc are you seeing? > Now my orthopedic surgeon says that before he does my total > knee replacements, I will have to go off of ALL my pain meds for 2 > or 3 weeks before surgery. If I don't, the meds I will get > afterwards will not work very well....but then I take percocet and > morphine everyday. That will be a tough 2-3 weeks! I can't believe > your doc told you that, Roni. > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our breath away. > > ____________ _________ _________ __ > From: dave dodds <daveliltoeyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, October 6, 2009 8:46:46 PM > Subject: Re: Today > > > I haven't gone through the process of meeting with a transplant team > yet..It is kind of freaky how much power these doc's have. > Literally life or death. That's bull**** about the pain med's. My > liver doc said he would prescribe something for my arthritis, but > would not because of my history. My primary doc. did, though. Last > time I saw my liver doc. I didn't tell him, but this time the liver > doc. knows, because I gave his nurse a full list of my med's. And I > see him coming up on Nov. 6th...will be interesting to hear what he > says about it. The chips will fall where they fall I suppose. > Guess if he says I will be denied, because of the pain med's, I will > quit them and live with the pain. It just kind of reinforces what I > have known for years. A lot of doctors see us with addiction > problems as second class citizens. Not all, but some, along with > society at large. Not all, but some. Stay strong, try to relax, > this shall pass. I > totally understand. It is true most doc's do not trust us. And I > have to say rightfully so. Addictive types have to prove > theirselves over and over, and this will not change. What's the > saying.. " accept the things we cannot change " . peace and comfort, > Dave > > ____________ _________ _________ __ > From: Rhonda <rhondasemail@ cox.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tue, October 6, 2009 6:40:56 PM > Subject: Today > > > Hi Group, > > I had a bad experience today. My gastro doctor who has been my doctor > for the past 2 years since I was hospitalized with bleeding varices > quit the practice so I had to find a new one. I met the new doctor > today for the first time. He proceeded to tell me that I already have > 2 strikes against me concerning receiving a transplant. 1) I have a > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > pain medication. He said 3 strikes and your out! I said, do I just > live with the pain. He basically said yes millions of people have > arthritus and are in pain.. Then he wants me to supply him with proof > of my attendance to AA meetings and get a letter every month from my > sponsor. I already did all this for Baylor and had to fill out a > sheet each time I went for 6 months. I completed this months ago for > Baylor and now I have to do it for him? I left this meeting totally > boggled. I came home and cried like a baby. Not sure exactly why > this bothered me so much. I just wanted to get some feed back on this > episode. > > Thanks! > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Roni, I know that you are going to Baylor......I am going to the transplant center at Central Methodist. It only took me 4 months to be listed. Thanks be to God for he creates our tomorrows Love, Lyncia ________________________________ To: livercirrhosissupport Sent: Tue, October 6, 2009 9:24:54 PM Subject: Re: Today LOL.....you guys are too funny! > Yeo ! He's the chief in our little town. LOL !! Okay , we'll use > him for back up when we get Roni's doc! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our breath away. > > ____________ _________ _________ __ > From: drgonflyblue <pita54meyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, October 6, 2009 9:22:12 PM > Subject: Re: Today > > > Jeepers Jill! Is Ed a cop?...LOL. I just went to my first appt. last > mo. and they had me do a urine drop which is fine. I figured it was > to only make sure that there was nothing else in my system and I > never stopped to think of those who might get the drugs to sell and > not actually even take. Like you said, that's understandable and I > can handle that. And yeah, we should get the name and address of > Roni's doc and we'll all write to him!!!! Just call Ed in for > backup~~~Best wishes, Debbie > > > > > > > > I haven't gone through the process of meeting with a transplant > team yet..It is kind of freaky how much power these doc's have. > Literally life or death. That's bull**** about the pain med's. My > liver doc said he would prescribe something for my arthritis, but > would not because of my history. My primary doc. did, though. Last > time I saw my liver doc. I didn't tell him, but this time the liver > doc. knows, because I gave his nurse a full list of my med's. And I > see him coming up on Nov. 6th...will be interesting to hear what he > says about it. The chips will fall where they fall I suppose. > Guess if he says I will be denied, because of the pain med's, I will > quit them and live with the pain. It just kind of reinforces what I > have known for years. A lot of doctors see us with addiction > problems as second class citizens. Not all, but some, along with > society at large. Not all, but some. Stay strong, try to relax, > this shall > pass. I > > > totally understand. It is true most doc's do not trust us. And > I have to say rightfully so. Addictive types have to prove > theirselves over and over, and this will not change. What's the > saying.. " accept the things we cannot change " . peace and comfort, > > > Dave > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: Rhonda <rhondasemail@ ...> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Tue, October 6, 2009 6:40:56 PM > > > Subject: Today > > > > > > > > > Hi Group, > > > > > > I had a bad experience today. My gastro doctor who has been my > doctor > > > for the past 2 years since I was hospitalized with bleeding > varices > > > quit the practice so I had to find a new one. I met the new doctor > > > today for the first time. He proceeded to tell me that I already > have > > > 2 strikes against me concerning receiving a transplant. 1) I > have a > > > history of alcohol abuse (I haven't drank in 3 years) and 2) I > am on > > > pain medication. He said 3 strikes and your out! I said, do I just > > > live with the pain. He basically said yes millions of people have > > > arthritus and are in pain. Then he wants me to supply him with > proof > > > of my attendance to AA meetings and get a letter every month > from my > > > sponsor. I already did all this for Baylor and had to fill out a > > > sheet each time I went for 6 months. I completed this months ago > for > > > Baylor and now I have to do it for him? I left this meeting > totally > > > boggled. I came home and cried like a baby. Not sure exactly why > > > this bothered me so much. I just wanted to get some feed back on > this > > > episode. > > > > > > Thanks! > > > Roni > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Debbie...you are too funny! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Tuesday, October 6, 2009 11:02:11 PM Subject: Re: Today Hey Roni, actually you do get a buzz off of chocolate but it's good for you and legal too ;-)...But then again, just in case they've recently made chocolate illegal keep it on the downlow, Jill's hubby is a cop...sshhh. ..~~~Debbie > > > I haven't gone through the process of meeting with a transplant team > > yet..It is kind of freaky how much power these doc's have. > > Literally life or death. That's bull**** about the pain med's. My > > liver doc said he would prescribe something for my arthritis, but > > would not because of my history. My primary doc. did, though. Last > > time I saw my liver doc. I didn't tell him, but this time the liver > > doc. knows, because I gave his nurse a full list of my med's. And I > > see him coming up on Nov. 6th...will be interesting to hear what he > > says about it. The chips will fall where they fall I suppose. > > Guess if he says I will be denied, because of the pain med's, I will > > quit them and live with the pain. It just kind of reinforces what I > > have known for years. A lot of doctors see us with addiction > > problems as second class citizens.. Not all, but some, along with > > society at large. Not all, but some. Stay strong, try to relax, > > this shall pass. I > > totally understand. It is true most doc's do not trust us. And I > > have to say rightfully so. Addictive types have to prove > > theirselves over and over, and this will not change. What's the > > saying.. " accept the things we cannot change " . peace and comfort, > > Dave > > > > ____________ _________ _________ __ > > From: Rhonda <rhondasemail@ ...> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Tue, October 6, 2009 6:40:56 PM > > Subject: Today > > > > > > Hi Group, > > > > I had a bad experience today. My gastro doctor who has been my doctor > > for the past 2 years since I was hospitalized with bleeding varices > > quit the practice so I had to find a new one. I met the new doctor > > today for the first time. He proceeded to tell me that I already have > > 2 strikes against me concerning receiving a transplant. 1) I have a > > history of alcohol abuse (I haven't drank in 3 years) and 2) I am on > > pain medication. He said 3 strikes and your out! I said, do I just > > live with the pain. He basically said yes millions of people have > > arthritus and are in pain. Then he wants me to supply him with proof > > of my attendance to AA meetings and get a letter every month from my > > sponsor. I already did all this for Baylor and had to fill out a > > sheet each time I went for 6 months. I completed this months ago for > > Baylor and now I have to do it for him? I left this meeting totally > > boggled. I came home and cried like a baby. Not sure exactly why > > this bothered me so much. I just wanted to get some feed back on this > > episode. > > > > Thanks! > > Roni > > > > Quote Link to comment Share on other sites More sharing options...
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