Re: Decision to have explant surgery.

[Guest guest]

Hello,

I just joined tonight too I am the one who is now 46 years and got the saline implants when I was 38 yrs.....I had them removed in July of 2003; it was either do that or die. To me it was a no brainer....I had them removed with emergency surgery on a sunday and I was in the hospital for a week while they worked to remove the toxins from my body......I had a systemic poisioning. The implants had leaked and caused infection that was circulating through the blood vessels and making its was to my other organs. I am not the same person I was before the implants. I am always tired and i have gained about 100 lbs and I am irritable and have pain in my joints. I also developed seborreahic warts on my chest and my hands. I am glad I had them removed when I did.

Donna

cheriesut <cheriesut@...> wrote: Hi - I just joined this group, looking for some support. I am 45 and got saline implants when I was 37. After three years, I began to get stabbing chest pains, pains in between my shoulder blades, fatigue with sort of a burning sensation running through me, among other things. It would come and go, but for the last year and a half has become relentless. I have been diagnosed with seronegative spondyloarthropathy (arthritis) of my sternoclavicular joint, and no explanation for the pain in my shoulder blades. My rheumatologist says it is definitely not the implants, but I really feel inside that they are making me sick. The surgeon who implanted them said he will take them out, and thinks I am doing the right thing. I feel each day that I get weaker, but want to do this right. I don't even

know what support I am asking for, but just feel like crying, wanting to get better, or maybe hear someone else's story with a happy ending. Thank you.

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

Cherie,

You are doing the right thing to have your implants

removed . . . Just be sure your doctor will remove

your implants " en bloc " . . . removing the capsules

with the implants still inside so nothing spills into

your chest cavity and all the capsule is removed.

Rheumatologists are usually the worst, aside from

plastic surgeons, about admiting the problems caused

by breast implants! Most of them sound as though they

studied the same script! It's very strange!

I had dental surgery this week and am not very perky .

.. . but there are some wonderful women here who want

to help you, and all the other women sick from their

implants, get well.

Hugs and prayers,

Rogene

--- cheriesut <cheriesut@...> wrote:

> Hi - I just joined this group, looking for some

> support. I am 45 and

> got saline implants when I was 37. After three

> years, I began to get

> stabbing chest pains, pains in between my shoulder

> blades, fatigue with

> sort of a burning sensation running through me,

> among other things. It

> would come and go, but for the last year and a half

> has become

> relentless. I have been diagnosed with seronegative

>

> spondyloarthropathy (arthritis) of my

> sternoclavicular joint, and no

> explanation for the pain in my shoulder blades. My

> rheumatologist says

> it is definitely not the implants, but I really feel

> inside that they

> are making me sick. The surgeon who implanted them

> said he will take

> them out, and thinks I am doing the right thing. I

> feel each day that

> I get weaker, but want to do this right. I don't

> even know what

> support I am asking for, but just feel like crying,

> wanting to get

> better, or maybe hear someone else's story with a

> happy ending. Thank

> you.

>

>

>

[Guest guest]

Thanks for the note. Even though doctors say they aren't the

problem, I really believe they are, and can't wait to get them out.

My doctor wrote a letter to my insurance company to check on

coverage, so now I am waiting, I feel getting sicker as I do. How

did they determine you had systemic poisoning? Do you have hope

that you will get better?

Hi - I just joined this group,

looking for some support. I am 45 and

> got saline implants when I was 37. After three years, I began to

get

> stabbing chest pains, pains in between my shoulder blades, fatigue

with

> sort of a burning sensation running through me, among other

things. It

> would come and go, but for the last year and a half has become

> relentless. I have been diagnosed with seronegative

> spondyloarthropathy (arthritis) of my sternoclavicular joint, and

no

> explanation for the pain in my shoulder blades. My rheumatologist

says

> it is definitely not the implants, but I really feel inside that

they

> are making me sick. The surgeon who implanted them said he will

take

> them out, and thinks I am doing the right thing. I feel each day

that

> I get weaker, but want to do this right. I don't even know what

> support I am asking for, but just feel like crying, wanting to get

> better, or maybe hear someone else's story with a happy ending.

Thank

> you.

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given

by licensed health care professionals. Consult your physician or

licensed health care professional before commencing any medical

treatment.

>

> " Do not let either the medical authorities or the politicians

mislead you. Find out what the facts are, and make your own

decisions about how to live a happy life and how to work for a

better world. " - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963, Peace)

>

>

[Guest guest]

Thank you for the support. I'm glad I joined this group. My doctor

said he would see when he opened me up, but that sometimes by

removing the entire capsule bleeding problems can occur. Maybe I

need a second opinion.

>

> > Hi - I just joined this group, looking for some

> > support. I am 45 and

> > got saline implants when I was 37. After three

> > years, I began to get

> > stabbing chest pains, pains in between my shoulder

> > blades, fatigue with

> > sort of a burning sensation running through me,

> > among other things. It

> > would come and go, but for the last year and a half

> > has become

> > relentless. I have been diagnosed with seronegative

> >

> > spondyloarthropathy (arthritis) of my

> > sternoclavicular joint, and no

> > explanation for the pain in my shoulder blades. My

> > rheumatologist says

> > it is definitely not the implants, but I really feel

> > inside that they

> > are making me sick. The surgeon who implanted them

> > said he will take

> > them out, and thinks I am doing the right thing. I

> > feel each day that

> > I get weaker, but want to do this right. I don't

> > even know what

> > support I am asking for, but just feel like crying,

> > wanting to get

> > better, or maybe hear someone else's story with a

> > happy ending. Thank

> > you.

> >

> >

> >

[Guest guest]

You rheumatologist has no idea if it is implants. I really hate doctors who are

so 'certain' that

implants can't possibly be a problem. IT defies common sense, and every

scientific bone in

my body (and i do have a science background).

> Hi - I just joined this group, looking for some support. I am 45 and

> got saline implants when I was 37. After three years, I began to get

> stabbing chest pains, pains in between my shoulder blades, fatigue with

> sort of a burning sensation running through me, among other things. It

> would come and go, but for the last year and a half has become

> relentless. I have been diagnosed with seronegative

> spondyloarthropathy (arthritis) of my sternoclavicular joint, and no

> explanation for the pain in my shoulder blades. My rheumatologist says

> it is definitely not the implants, but I really feel inside that they

> are making me sick. The surgeon who implanted them said he will take

> them out, and thinks I am doing the right thing. I feel each day that

> I get weaker, but want to do this right. I don't even know what

> support I am asking for, but just feel like crying, wanting to get

> better, or maybe hear someone else's story with a happy ending. Thank

> you.

[Guest guest]

Cherie,

I would run, not walk, away from that surgeon and find one that will do it

right. I almost died because my plastic surgeon opened the capsule and

dumped my chest full of silicone.

Lynda

At 07:01 AM 9/23/2005, you wrote:

>Thank you for the support. I'm glad I joined this group. My doctor

>said he would see when he opened me up, but that sometimes by

>removing the entire capsule bleeding problems can occur. Maybe I

>need a second opinion.

>

> >

> > > Hi - I just joined this group, looking for some

> > > support. I am 45 and

> > > got saline implants when I was 37. After three

> > > years, I began to get

> > > stabbing chest pains, pains in between my shoulder

> > > blades, fatigue with

> > > sort of a burning sensation running through me,

> > > among other things. It

> > > would come and go, but for the last year and a half

> > > has become

> > > relentless. I have been diagnosed with seronegative

> > >

> > > spondyloarthropathy (arthritis) of my

> > > sternoclavicular joint, and no

> > > explanation for the pain in my shoulder blades. My

> > > rheumatologist says

> > > it is definitely not the implants, but I really feel

> > > inside that they

> > > are making me sick. The surgeon who implanted them

> > > said he will take

> > > them out, and thinks I am doing the right thing. I

> > > feel each day that

> > > I get weaker, but want to do this right. I don't

> > > even know what

> > > support I am asking for, but just feel like crying,

> > > wanting to get

> > > better, or maybe hear someone else's story with a

> > > happy ending. Thank

> > > you.

> > >

> > >

> > >

>

>

>

>

>Opinions expressed are NOT meant to take the place of advice given by

>licensed health care professionals. Consult your physician or licensed

>health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

>Find out what the facts are, and make your own decisions about how to live

>a happy life and how to work for a better world. " - Linus ing,

>two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>

[Guest guest]

You not only need a second opinion, you need a skilled and

knowledgeable plastic surgeon. The idea that " bleeding

problems " can " occur with a capsulectomy " is their out....it gives

them the excuse they need to avoid having to put out the extra

effort to do a proper explant. A plastic surgeon who cares about

the ultimate long term health of their patient is going to make sure

they do it right, which is to make sure they get ALL of the scar

tissue out of the body. You are reacting to the implant, and

therefore all of the implant and the scar tissue your body created

because of the implant has to go. There really are very, very few

exceptions to this policy.

Dr. Lu Feng is one of our most trusted explant surgeons. Here

is what she writes about the need for a total capsulectomy:

(Thanks very much to Dr. Lu-Feng of Cleveland Ohio for these

remarks regarding capsule removal after saline implants)

A biological capsule will form around any implant. Any saline

implant removal will require a total capsulectomy. Like anything

else in life, there are few exceptions. Here are the few exceptions

which would have to be fulfilled before I would entertain the

possibility of not removing the saline capsule.

(1) The capsule has to be tissue paper thin and without contracture.

(2) The patient has to be without any local or systemic symptoms.

(3) The saline implant has to be smooth shelled.

(4) There has to be no previous history of gel filled implant

insertion.

All these conditions have to be fulfilled before I would consider

not taking

the saline capsule out. As you can see, few patients would fulfill

these

criteria. Invariably, I take out the entire capsule around saline

implants.

Drfeng@...

You may go through alot of plastic surgeon consultations before you

find the right one to do it. That is why we created our list...it

helps narrow the field down to those who know how to do it right,

although we caution everyone to always question their doctor closely

about the explant procedure. We recommend en bloc removal or a total

capsulectomy upon removal, and drains. You will want to question

them on how many explants they have done. You don't want to use

someone who has only done a few, unless they show an intense

interest in your health and getting you better.

We've got plastic surgeons on our list from most areas of the

nation. You might have to travel....many women do to make sure they

get a PROPELY DONE explant.

Best wishes,

Patty

> >

> > > Hi - I just joined this group, looking for some

> > > support. I am 45 and

> > > got saline implants when I was 37. After three

> > > years, I began to get

> > > stabbing chest pains, pains in between my shoulder

> > > blades, fatigue with

> > > sort of a burning sensation running through me,

> > > among other things. It

> > > would come and go, but for the last year and a half

> > > has become

> > > relentless. I have been diagnosed with seronegative

> > >

> > > spondyloarthropathy (arthritis) of my

> > > sternoclavicular joint, and no

> > > explanation for the pain in my shoulder blades. My

> > > rheumatologist says

> > > it is definitely not the implants, but I really feel

> > > inside that they

> > > are making me sick. The surgeon who implanted them

> > > said he will take

> > > them out, and thinks I am doing the right thing. I

> > > feel each day that

> > > I get weaker, but want to do this right. I don't

> > > even know what

> > > support I am asking for, but just feel like crying,

> > > wanting to get

> > > better, or maybe hear someone else's story with a

> > > happy ending. Thank

> > > you.

> > >

> > >

> > >

[Guest guest]

Totally agree. Dr. Kolb, Dr. Feng, Dr. Huang are all great

choices. Please, please, please, do not believe that a capsulectomy cannot

be done safely. In the hands of a great plastic surgeon, you will have

great results and have all the capsule removed.

Lynda

At 08:19 AM 9/23/2005, you wrote:

>You not only need a second opinion, you need a skilled and

>knowledgeable plastic surgeon. The idea that " bleeding

>problems " can " occur with a capsulectomy " is their out....it gives

>them the excuse they need to avoid having to put out the extra

>effort to do a proper explant. A plastic surgeon who cares about

>the ultimate long term health of their patient is going to make sure

>they do it right, which is to make sure they get ALL of the scar

>tissue out of the body. You are reacting to the implant, and

>therefore all of the implant and the scar tissue your body created

>because of the implant has to go. There really are very, very few

>exceptions to this policy.

>

>Dr. Lu Feng is one of our most trusted explant surgeons. Here

>is what she writes about the need for a total capsulectomy:

>

>(Thanks very much to Dr. Lu-Feng of Cleveland Ohio for these

>remarks regarding capsule removal after saline implants)

>

>A biological capsule will form around any implant. Any saline

>implant removal will require a total capsulectomy. Like anything

>else in life, there are few exceptions. Here are the few exceptions

>which would have to be fulfilled before I would entertain the

>possibility of not removing the saline capsule.

>

>(1) The capsule has to be tissue paper thin and without contracture.

>

>(2) The patient has to be without any local or systemic symptoms.

>

>(3) The saline implant has to be smooth shelled.

>

>(4) There has to be no previous history of gel filled implant

>insertion.

>

>All these conditions have to be fulfilled before I would consider

>not taking

>the saline capsule out. As you can see, few patients would fulfill

>these

>criteria. Invariably, I take out the entire capsule around saline

>implants.

>

>Drfeng@...

>

>You may go through alot of plastic surgeon consultations before you

>find the right one to do it. That is why we created our list...it

>helps narrow the field down to those who know how to do it right,

>although we caution everyone to always question their doctor closely

>about the explant procedure. We recommend en bloc removal or a total

>capsulectomy upon removal, and drains. You will want to question

>them on how many explants they have done. You don't want to use

>someone who has only done a few, unless they show an intense

>interest in your health and getting you better.

>

>We've got plastic surgeons on our list from most areas of the

>nation. You might have to travel....many women do to make sure they

>get a PROPELY DONE explant.

>Best wishes,

>Patty

>

>

>

>

> > >

> > > > Hi - I just joined this group, looking for some

> > > > support. I am 45 and

> > > > got saline implants when I was 37. After three

> > > > years, I began to get

> > > > stabbing chest pains, pains in between my shoulder

> > > > blades, fatigue with

> > > > sort of a burning sensation running through me,

> > > > among other things. It

> > > > would come and go, but for the last year and a half

> > > > has become

> > > > relentless. I have been diagnosed with seronegative

> > > >

> > > > spondyloarthropathy (arthritis) of my

> > > > sternoclavicular joint, and no

> > > > explanation for the pain in my shoulder blades. My

> > > > rheumatologist says

> > > > it is definitely not the implants, but I really feel

> > > > inside that they

> > > > are making me sick. The surgeon who implanted them

> > > > said he will take

> > > > them out, and thinks I am doing the right thing. I

> > > > feel each day that

> > > > I get weaker, but want to do this right. I don't

> > > > even know what

> > > > support I am asking for, but just feel like crying,

> > > > wanting to get

> > > > better, or maybe hear someone else's story with a

> > > > happy ending. Thank

> > > > you.

> > > >

> > > >

> > > >

>

>

>

>

>Opinions expressed are NOT meant to take the place of advice given by

>licensed health care professionals. Consult your physician or licensed

>health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

>Find out what the facts are, and make your own decisions about how to live

>a happy life and how to work for a better world. " - Linus ing,

>two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>

[Guest guest]

I had a fever and I did not know what was wrong the only thing is that my right breast was getting very hard and it was warm to the touch. I was coming home from work and having chills but I did not feel flu or having a cold sick. Then I began to feel weak and like I was going to vomit or faint. My heart was beating very fast and hard, I went to emergency and told the young male Dr. what my symptoms were, I even told him my breast felt like it was infected. he sent me home with antibiotics for my ear . Three times I went to emergency because I felt so bad and I was always sent home by the same Dr. ( I felt like maybe he thought I was just trying to get him to check out my breast, it was very embarrasing). Then finally on my fourth visit another Dr. checked me out and sent me for an ultra soundm which clearly showed leakage and infected fluids in my

breast. From that point I was sent in for emergency surgery to have the implant removed. It took a while for me to get better, I thought I was going to die, but I am still here to tell my story. I went back to tell the jerk Dr. that he almost cost me my life.Cherie <cheriesut@...> wrote:

Thanks for the note. Even though doctors say they aren't the problem, I really believe they are, and can't wait to get them out. My doctor wrote a letter to my insurance company to check on coverage, so now I am waiting, I feel getting sicker as I do. How did they determine you had systemic poisoning? Do you have hope that you will get better? Hi - I just joined this group, looking for some support. I am 45 and > got saline implants when I was 37. After three years, I began to get > stabbing chest pains, pains in between my shoulder blades, fatigue with > sort of a burning sensation running through me, among other things. It > would come and go, but for the last year

and a half has become > relentless. I have been diagnosed with seronegative > spondyloarthropathy (arthritis) of my sternoclavicular joint, and no > explanation for the pain in my shoulder blades. My rheumatologist says > it is definitely not the implants, but I really feel inside that they > are making me sick. The surgeon who implanted them said he will take > them out, and thinks I am doing the right thing. I feel each day that > I get weaker, but want to do this right. I don't even know what > support I am asking for, but just feel like crying, wanting to get > better, or maybe hear someone else's story with a happy ending. Thank > you.> > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional

before commencing any medical treatment. > > "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)> >

[Guest guest]

What an idiot doctor. I swear sometimes I wonder if doctors have any education,

or where

they got it. Were doctors always this stupid, or has this just evolved over the

last number

of years????

Hi - I just joined this group,

> looking for some support. I am 45 and

> > got saline implants when I was 37. After three years, I began to

> get

> > stabbing chest pains, pains in between my shoulder blades, fatigue

> with

> > sort of a burning sensation running through me, among other

> things. It

> > would come and go, but for the last year and a half has become

> > relentless. I have been diagnosed with seronegative

> > spondyloarthropathy (arthritis) of my sternoclavicular joint, and

> no

> > explanation for the pain in my shoulder blades. My rheumatologist

> says

> > it is definitely not the implants, but I really feel inside that

> they

> > are making me sick. The surgeon who implanted them said he will

> take

> > them out, and thinks I am doing the right thing. I feel each day

> that

> > I get weaker, but want to do this right. I don't even know what

> > support I am asking for, but just feel like crying, wanting to get

> > better, or maybe hear someone else's story with a happy ending.

> Thank

> > you.

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place of advice given

> by licensed health care professionals. Consult your physician or

> licensed health care professional before commencing any medical

> treatment.

> >

> > " Do not let either the medical authorities or the politicians

> mislead you. Find out what the facts are, and make your own

> decisions about how to live a happy life and how to work for a

> better world. " - Linus ing, two-time Nobel Prize Winner (1954,

> Chemistry; 1963, Peace)

> >

> >