It's so good to be home!!!

January 8, 2009

Hey everybody! Wow, it is good to be home! I have been trying to catch up on

my rest and finally feel better! Terry is breathing much better, but is

absolutely zapped. His care following the procedure was not what it should have

been. They did no IV electrolite replacement, no albumin, nothing. It won't

happen again though, we have taken care of that!

The Hospice Case Manager visited this morning and got us set up for Hospice Home

Care. She was an absolutely wonderful woman whom I love already. The nurse

will visit tomorrow to do her initial assesment and then will visit at least

once weekly and more often as needed. I now have a 24/7 emergency contact

number which is a great relief to me.

They have started him on Fentenyl patches for pain relief, which are due to

arrive tomorrow. Many of his previous meds have been discontinued. He is on

about one half of the meds he was formerly on which makes it so much easier for

him to take his meds now.

She says he will need to have the fluid drawn off again in 2-4 weeks. At that

time, they will order the procedure, make the arrangements and and he will go

for the procedure and come home in the same day. They will also pre-order an IV

to replace albumin and electrolites before he leaves the hospital. This is just

going to be so much easier on Terry and on me. I am already feeling the relief

of having help available.

Thank you all for your prayers and support. This has been a difficult couple of

days, but I feel better about where we are right now because of the Hospice

care. Terry was not crazy about the idea of Hospice visits, but he said after

the Case Manager was here that he really liked her and that he hoped the nurse

would be as nice. So, I see him already being more comfortable with it. I am

so relieved and happy about that!

Got to run now. I love you guys and I am so thankful to have you all here to

talk to. I don't know if I could have made it through these last several months

without your love and support. I know our journey is going to get harder, but I

also know I have you all to turn to. I thank the Lord every day for that.

Hugs.......

Diane

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