RE: starting support group in my area

[Guest guest]

Hello everyone,

I have been through several weeks of tests, all normal except the

positive lupus ana, and antiphospholipid syndrome. I am losing my mind

with my chest pain, fatigue and all but ONE doctor believing it is in

my head. I saw a Rheumatologist today that said she didn't believe I

had lupus but that maybe it is costochondritis related to the

implants? Or that I just don't recover well from upper respiratory

infections that quick (it's been five months just with these set of

symptoms!). I wanted to know if anyone had any ideas about how to

start a support group in my area? I would love to hear a voice or see

a face of someone I could relate to. I appreciate the support I have

received from all of you here...

Thanks,

Carol

[Guest guest]

Carol,

A support group sounds wonderful.

Contact your local TV, radio stations, and newspaper.

Don't take " No " for an answer. Get as many interviews

as possible. Insist they hear you out! Find a place to

meet - a church perhaps? and get going!

We used have groups that physically met . . . I don't

know that any of them are still in place. But, with

the new " crop " of women coming along, there's going to

be an even greater need for support groups!

God Bless,

Rogene

--- hennywin <hennywin@...> wrote:

> Hello everyone,

> I have been through several weeks of tests, all

> normal except the

> positive lupus ana, and antiphospholipid syndrome.

> I am losing my mind

> with my chest pain, fatigue and all but ONE doctor

> believing it is in

> my head. I saw a Rheumatologist today that said she

> didn't believe I

> had lupus but that maybe it is costochondritis

> related to the

> implants? Or that I just don't recover well from

> upper respiratory

> infections that quick (it's been five months just

> with these set of

> symptoms!). I wanted to know if anyone had any

> ideas about how to

> start a support group in my area? I would love to

> hear a voice or see

> a face of someone I could relate to. I appreciate

> the support I have

> received from all of you here...

> Thanks,

> Carol

>

>

>