RE: McCarthy

[Guest guest]

This is what I'm talking about..another family with a child who has recovered. It's wonderful and it gives me so much hope!

Subject: Re: McCarthyTo: mb12 valtrex Date: Monday, November 17, 2008, 9:31 PM

hum, you must not have been around very long, there are now THOUSANDS of recovered kids, mine is also one, he lost his dx in oct of 2007 and had autism for 5 years confirmed by MANY people, places, adgencies, and the dx was removed by someone who confirmed it 3 years earlier, so not a difference of opinions either.....it IS treatable and recoverable, it's medical things gone wrong showing symptoms we CLASSIFY as autism

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace. com/christelkinghttp://foggyrock. com/MyPage/ recoveringwisheshttp://www.facebook .com/profile. php?id=677063169

Re: McCarthy

I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.

This is my thought and frustration.

Matt

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[Guest guest]

I believe in the idea of hope too! I am not new to autism, this group or . supports and works for TACA which is "Talk About Curing Autism" and has said the term "cure" in both print and tv interviews. Recovery and cure are different and I agree, however, she continues to promote both which is not accurate. Autism cannot be cured, which is not desputed by any expert.

My opinion is she has done a lot of good with autism awareness but the fact remains, she confuses recovery with cure which sends out a message to the general public, not the families in the know by real life experience, that all austism is curable. This is misleading and sets up a terrible image that parents who's children who are not cured are doing something wrong which is most certainly not the case!

It is ok to question the effectiveness of the messenger and how they go about delivering the message. Hope is great and is needed, but, reality, determination and fortitude are the real drivers toward providing our children with the resources to push through this diagnosis.

From: Matt Howes <matthewahowes@ yahoo.com>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Monday, November 17, 2008, 9:16 PM

I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.

This is my thought and frustration.

Matt

[Guest guest]

Actually, she has made the analogy, which I believe was Stan’s

originally, that said you cannot be cured from being hit by a bus, but you can

recover from it. I have seen her talk about her son being recovered, but

I have not seen her talk about him being cured. Please correct me if I am

wrong.

I agree that she has done a lot of good with autism awareness

and I am thankful for what she has done in this regard. I no longer sound like

a freak when I am talking – and people actually listen to me now.

But, I also think that a lot of misinformation has been put

forth about the term “recovered” – I’ve seen it used in

stories in which the child is indistinguishable from his peers and not on any

kind of supplements, diet, etc –and on the other hand have seen it

written about a child who has had their autism diagnosis removed while still being

on many supplements, special diets, etc. The term itself is very vague

and misleading to many.

Many of us, I think, are hoping for better than recovered –

so if “cured” is the word to define what we’re working for,

fine.. cured it is. To me, my definition of cured is the same as my

definition of recovery… no diet, no special supplements, no hbot, no

therapies, no autism diagnosis. Every day is proof that we’ll get

there one day.

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Matt Howes

Sent: Tuesday, November 18, 2008 1:12 AM

To: mb12 valtrex

Subject: Re: McCarthy

I believe in the idea of hope too! I am not new to

autism, this group or . supports and works for TACA which is

" Talk About Curing Autism " and has said the term " cure "

in both print and tv interviews. Recovery and cure are different and I

agree, however, she continues to promote both which is not accurate.

Autism cannot be cured, which is not desputed by any expert.

My opinion is she has done a lot of good with autism

awareness but the fact remains, she confuses recovery with cure which sends

out a message to the general public, not the families in the know by real

life experience, that all austism is curable. This is misleading and

sets up a terrible image that parents who's children who are not

cured are doing something wrong which is most certainly not the case!

It is ok to question the effectiveness of the messenger

and how they go about delivering the message. Hope is great and is

needed, but, reality, determination and fortitude are the real drivers toward

providing our children with the resources to push through this diagnosis.

From: Matt Howes

<matthewahowes@ yahoo.com>

Subject: Re: McCarthy

To: mb12 valtrex@ yahoogroups. com

Date: Monday, November 17, 2008, 9:16 PM

I have to say one thing that is frustrating is 's

claims of curing her son's autism. Plain and simple, autism is not

curable. Symptoms can be treated but autism

is not curable. Saying autism is curable, I believe, is

irresponsible and gives the impression to the general public that every

child with autism is the same and curable. Austims is a spectrum

disorder with varying levels of function, symptoms and response to

therapy. I believe this message hurts all the organizations

that due great work in autism awareness and research.

This is my thought and frustration.

Matt

[Guest guest]

Hi Matt,

What frustrates me is how opponents of the biomedical movement use

this semantic issue to refute evidence presented by doctors,

clinicians, and present, while ignoring the increasingly vague label

of " autism " that is the centerpiece of the debate.

It has been established that a significant number of " autism " cases

are based, at least in part, to an autoimmune disorder. Please

explain in precise language why it should be impossible for a child o

be cured of an autoimmune disorder once pathogens, toxins, and so

forth are eliminated from the body.

--penumbra

[Guest guest]

IMO, there is a difference between cure and recovery but, hey, I'll take either one.So much is happening in the world and I see so many new things every day with kids that I am not comfortable telling someone that they cannot Cure their child.Subject: Re: McCarthyTo: mb12 valtrex Date: Tuesday, November 18, 2008, 12:31 AM

hum, you must not have been around very long, there are now THOUSANDS of recovered kids, mine is also one, he lost his dx in oct of 2007 and had autism for 5 years confirmed by MANY people, places, adgencies, and the dx was removed by someone who confirmed it 3 years earlier, so not a difference of opinions either.....it IS treatable and recoverable, it's medical things gone wrong showing symptoms we CLASSIFY as autism

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace. com/christelkinghttp://foggyrock. com/MyPage/ recoveringwisheshttp://www.facebook .com/profile. php?id=677063169

Re: McCarthy

I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.

This is my thought and frustration.

Matt

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.175 / Virus Database: 270.9.4/1795 - Release Date: 11/17/2008 5:24 PM

[Guest guest]

And what stigma would that be? The fact that the media is now taking the time to cover any of this, is bringing much needed attention that our children have medical problems and need treatment, not the old way of thinking that its something that is not treatable and not covered by insurance because of such. I have neighbors and friends who won't even make any attempt to help their children. They say they don't have the time, and whatever their local psychiatrist says is all that they do. Their children are hopped up on psych meds, disabled and some sent away. Even though they see my children are recovered. They say they do not have the time to take away wheat or drive an hour and a half to a doctor that knows how to treat autism. One says that she knows she will have to take care of them forever and that is what she is used to, so she won't try. Thus, is this the stigma you are talking about? Maybe they all won't recover, I don't know, but I do know that we need to keep this movement going so more kids will get treatment, just in case they may can be recovered or cured or improved, or whatever anyone wants to call it.

Love and prayers,

Heidi N

From Matt:

Using those same terms to the general public and media events confuses people and then sets a stigma for those parents and kids who do not recover.Get the Moviefone Toolbar. Showtimes, theaters, movie news more!

[Guest guest]

Why argue over cure or recovered, it worked for her child. It must be one of those days huh? I have them too...lol

R. Dailey

From: michelle0471 <michelle0471@ hotmail.co. uk>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Tuesday, November 18, 2008, 8:04 AM

Hi MattI just wanted to comment that McCarthy doesn't say her son is CURED she actually says he is RECOVERED, she also says it is like being hit by a car you don't get a cure for that but you can recover. >> I'm sorry but I disagree with your post. I have friends who have children who have been undiagnosed and you wouldn't know they have autism without being told. We are learning so much compared to the fridge parent concept from long ago. Some kids can get better with diet, supplements etc. Whereas some kids don't respond. We don't know the lone "cause" so how can say there is no cure ? I also think McCarthy has brought a huge level of awareness to Autism with her books and because she feels she has cured her son based on where he

was and what is viewed as typical is projecting hopefulllness to other parents and the autism community not hurtfullness. > Sent via BlackBerry by AT & T> > Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of

function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

cured - recovered - cured - recovered; you know, when your kid has a serious issue and you work hard at remediating it and it's no longer an issue, your mind says "THANK GOD, IT'S GONE!" It's gone, replaced with more positive results/behaviors and to that parent/family it doesn't matter whether it's classified as cured or recovered. Your kid is better and that's all that counts.

From: michelle0471 <michelle0471@ hotmail.co. uk>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Tuesday, November 18, 2008, 8:04 AM

Hi MattI just wanted to comment that McCarthy doesn't say her son is CURED she actually says he is RECOVERED, she also says it is like being hit by a car you don't get a cure for that but you can recover. >> I'm sorry but I disagree with your post. I have friends who have children who have been undiagnosed and you wouldn't know they have autism without being told. We are learning so much compared to the fridge parent concept from long ago. Some kids can get better with diet, supplements etc. Whereas some kids don't respond. We don't know the lone "cause" so how can say there is no cure ? I also think McCarthy has brought a huge level of awareness to Autism with her books and because she feels she has cured her son based on where he

was and what is viewed as typical is projecting hopefulllness to other parents and the autism community not hurtfullness. > Sent via BlackBerry by AT & T> > Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of

function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

I think if a child no longer needs special services in school and

will be able to lead an indipendant adult life..who cares what its

called.

Personally if my child progresses passed where he is..I am happy.

We all dream of recovery or cure for our children and that may

mean a totally different thing for each family based on where

the child started from. If we want to get all technical on eachother

here, its defeating the purpose of showing the world we have found

a way to make our children " happier " and " better " ...Thats alot

more than what mainstream medical Dr's are offering. has helped

open the eyes of many many people ...parents and Dr's. We hold so

much love, hope, pride and a strong will to help our children reach their

highest potential. Lets not argue over something so trivial. Cure, recovery..

are only words..our kids are more than words.

38 and Mom to threeTasha 23..new Mommy ( means I am a Grammy )Casey-Mae 13..sweet as pieElijah 2.. ASD and beautiful

To: mb12 valtrex Sent: Tuesday, November 18, 2008 9:55:25 AMSubject: Re: Re: McCarthy

Why argue over cure or recovered, it worked for her child. It must be one of those days huh? I have them too...lol

R. Dailey

From: michelle0471 <michelle0471@ hotmail.co. uk>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Tuesday, November 18, 2008, 8:04 AM

Hi MattI just wanted to comment that McCarthy doesn't say her son is CURED she actually says he is RECOVERED, she also says it is like being hit by a car you don't get a cure for that but you can recover. >> I'm sorry but I disagree with your post. I have friends who have children who have been undiagnosed and you wouldn't know they have autism without being told. We are learning so much compared to the fridge parent concept from long ago. Some kids can get better with diet, supplements etc. Whereas some kids don't respond. We don't know the lone "cause" so how can say there is no cure ? I also think McCarthy has brought a huge level of awareness to Autism with her books and because she

feels she has cured her son based on where he was and what is viewed as typical is projecting hopefulllness to other parents and the autism community not hurtfullness. > Sent via BlackBerry by AT & T> > Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with

autism is the same and curable. Austims is a spectrum disorder with varying levels of function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

Dear Matt,

Before June 2007, you would have never convinced me (an autistic adult), my sister (an autistic adult) or anyone else in my family that one could recover from Autism.

In June 2007, I did several searches on Google for Autism and found a link on Mercury. I kept searching and then found information on Chelation which lead me to these Yahoo groups. My daughter's recovery has been non-stop since then.

I had a cousin named Melvin who recently passed at the age of 50 who was diagnosed with Mental Retardation. Most people I know believe that Mental Retardation is from birth but my grandmother and great aunts and uncles believe that you could "get it" because cousin Melvin somehow "got it". I'm told that his birth was normal but as he got older he was a little slower than others but he could read to a degree and walk with a little stumble by the time he was 5. He attended school in Newnan, GA until he was 12; at this time, I'm told he was actually sent home from school because he was not improving (maybe even regressing) and there was not a program in that area for him (they were told). When he stopped going to school, he started deteriorating and by the time I met him when I was 12 (he was around 25) we were on the same level.

So, fast forward, I have my daughter and everything seems to be fine (to a degree) then she starts to have the same traits as my cousin. The older folks didn't say anything to me because who wants to hear that? On most occasions, I think they were actually avoiding me. Up until June 2007, my daughter seemed to get worse every year; eyes sunken in, irregular gait (the way she walked and held her hands, everyone thought she had CP) and she'd lost the little language she had acquired. In April 2007 we started Floortime DIR and in July 2007, we started the Biomed/Supplement path and although we still have a long way to go, you can stand my daughter in line with a bunch of NT kids and she will look like the healthiest one in the group! No more sunken in (raccoon eyes), normal gait and we get more and more words everyday.

When I'm on this list, I feel so Green and Niave because there is so much I have yet to learn but when I visit my relatives, I am the Queen Bee. (smile) I get really good feelings when I visit and it's an emotional time. I try not to visit for long periods of time because I can tell that my older relatives are somewhat sad because they believe they hadn't done enough for my cousin. My mom feels as though she didn't do enough for me; my sister and I didn't know we are were autistic until we were diagnosed in the military!! We were Vegans growing up not because of Autism but because that was the only way my mother was assured we would be more focused and our stemming would decrease.

Coming from someone who is Autistic and didn't believe in Recovery to now believing in recovery and a possible Cure (if one hasn't already been found); I wouldn't want to be that one to discourage someone. If someone wants to use Cure or Recover, let them; if your child has lost the diagnosis, who am I to tell you your child is not Cured.

It's also odd to have this type of conversation about what can and cannot be achieved when I get this from the Mainstream doctors all the time, "You cannot recover from Autism!" (shaking my head)

S.

From: Dana Read <gdreadcomcast (DOT) net>Subject: RE: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Tuesday, November 18, 2008, 9:47 AM

Early on in her first media blitz she used the word cured, then switched to recovered. Personally, I don't care about what words parents use to describe their children's progress. Some people have a problem with "autistic" vs. "a child with autism". Again, I have my preferences but I am not offended if someone says something different. What is important is that we all support each other in our efforts and our choices and sometimes agree to disagree.

Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of

function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

is the reason why I stopped being in denial about my daughter's symptoms. Once I saw her on Oprah I realized there was something I might be able to DO for my child. I am so very thankful to her. My daughter will be 3 in January and was 20 months when we decided to step it up and do something...without and all the hoopla on the news I don't think I would've been where we are today.

Kim

[Guest guest]

I agree. In our community and groups this makes sense. From a big picture audience perspective, I think the message of recovery is getting misunderstood. This is what I am saying and I believe it. Not everyone is going to read the literature and studies as diligently as us. With that said, cursory reviews set out misconceptions in the public about the need to combat autism.

My son has autism and I want him to have the most full life he can possibly have. Tolerance and acceptance is one of the many things he will need. A misunderstood message about cures vs recovery does not help that. Using the hit by car and bus anology is great but when the general public only catches 20% of what she says, she needs to be much more careful and choosy in her words.

From: michelle0471 <michelle0471@ hotmail.co. uk>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Tuesday, November 18, 2008, 8:04 AM

Hi MattI just wanted to comment that McCarthy doesn't say her son is CURED she actually says he is RECOVERED, she also says it is like being hit by a car you don't get a cure for that but you can recover. >> I'm sorry but I disagree with your post. I have friends who have children who have been undiagnosed and you wouldn't know they have autism without being told. We are learning so much compared to the fridge parent concept from long ago. Some kids can get better with diet, supplements etc. Whereas some kids don't respond. We don't know the lone "cause" so how can say there is no cure ? I also think McCarthy has brought a huge level of awareness to Autism with her books and because she feels she has cured her son based on where he

was and what is viewed as typical is projecting hopefulllness to other parents and the autism community not hurtfullness. > Sent via BlackBerry by AT & T> > Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of

function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

I agree. In our community and groups this makes sense. From a big picture audience perspective, I think the message of recovery is getting misunderstood. This is what I am saying and I believe it. Not everyone is going to read the literature and studies as diligently as us. With that said, cursory reviews set out misconceptions in the public about the need to combat autism.

My son has autism and I want him to have the most full life he can possibly have. Tolerance and acceptance is one of the many things he will need. A misunderstood message about cures vs recovery does not help that. Using the hit by car and bus anology is great but when the general public only catches 20% of what she says, she needs to be much more careful and choosy in her words.

From: michelle0471 <michelle0471@ hotmail.co. uk>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Tuesday, November 18, 2008, 8:04 AM

Hi MattI just wanted to comment that McCarthy doesn't say her son is CURED she actually says he is RECOVERED, she also says it is like being hit by a car you don't get a cure for that but you can recover. >> I'm sorry but I disagree with your post. I have friends who have children who have been undiagnosed and you wouldn't know they have autism without being told. We are learning so much compared to the fridge parent concept from long ago. Some kids can get better with diet, supplements etc. Whereas some kids don't respond. We don't know the lone "cause" so how can say there is no cure ? I also think McCarthy has brought a huge level of awareness to Autism with her books and because she feels she has cured her son based on where he

was and what is viewed as typical is projecting hopefulllness to other parents and the autism community not hurtfullness. > Sent via BlackBerry by AT & T> > Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of

function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

Again, this proves my point. In our group the understanding and research is different. In the general public of people with very little interaction with autism the message is getting mixed and misunderstood.

Subject: Re: McCarthyTo: mb12 valtrex Date: Tuesday, November 18, 2008, 11:15 AM

is the reason why I stopped being in denial about my daughter's symptoms. Once I saw her on Oprah I realized there was something I might be able to DO for my child. I am so very thankful to her. My daughter will be 3 in January and was 20 months when we decided to step it up and do something... without and all the hoopla on the news I don't think I would've been where we are today.

Kim

[Guest guest]

,

You are missing the point. We are in the autism community since we have direct family members affected. Non-autism families and such, are getting a mixed and misunderstood message. Like a diet change, some meds and herbs will rectify autism and cure. This is not the case. Seperate yourself from the community and think of the general public.

Matt

From: Dana Read <gdreadcomcast (DOT) net>Subject: RE: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Tuesday, November 18, 2008, 9:47 AM

Early on in her first media blitz she used the word cured, then switched to recovered. Personally, I don't care about what words parents use to describe their children's progress. Some people have a problem with "autistic" vs. "a child with autism". Again, I have my preferences but I am not offended if someone says something different. What is important is that we all support each other in our efforts and our choices and sometimes agree to disagree.

Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of

function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

in all the interviews I have seen of her she emphasis recovery not cure, on one occation she slipped and said cured and corrected herself, everytime she uses the hit by the bus experience saying you AREN'T CURED but recover just like from the injury of the bus hitting you, you have scares of where you have been and you don't get back to just like you never got hit, but you can recover from the injury

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Monday, November 17, 2008, 9:16 PM

I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.

This is my thought and frustration.

Matt

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.4/1795 - Release Date: 11/17/2008 5:24 PM

[Guest guest]

Yes, the "larger audience" is misunderstanding the point. Just take a few moments to read any user comments on line and you'll whip yourself into a frenzy and then into depression because the "larger audience" appears to be hateful, dense, rude - pick your poison.

I'm resolved to SHOW results rather than talk about them. I don't care what others have to say or think unless they are directly standing in my way. I didn't know (dare I say 'care') about autism much until it hit me directly. My immediate circle of friends and family doesn't truly get it but they are seeing that bio-medical interventions improve our condition.

Messaging to the masses is not going to influence people to suddenly believe that autism has a biological base and that the condition can be improved. All politics is local - I take my messaging to one person at a time and let the results speak for themselves.

takes a lot of flack from those that don't believe. She may be the un-official spokesperson for our community but I don't hold her responsible for what she says or how she says it. I'm just glad that she's out there, loud and proud.

From: michelle0471 <michelle0471@ hotmail.co. uk>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Tuesday, November 18, 2008, 8:04 AM

Hi MattI just wanted to comment that McCarthy doesn't say her son is CURED she actually says he is RECOVERED, she also says it is like being hit by a car you don't get a cure for that but you can recover. >> I'm sorry but I disagree with your post. I have friends who have children who have been undiagnosed and you wouldn't know they have autism without being told. We are learning so much compared to the fridge parent concept from long ago. Some kids can get better with diet, supplements etc. Whereas some kids don't respond. We don't know the lone "cause" so how can say there is no cure ? I also think McCarthy has brought a huge level of awareness to Autism with her books and because she feels she has cured her son based on where he

was and what is viewed as typical is projecting hopefulllness to other parents and the autism community not hurtfullness. > Sent via BlackBerry by AT & T> > Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of

function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

never said she cured Evan's autism. I recommend you

go to the Generation Rescue site to become more informed. www.generationresuce.org

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Matt Howes

Sent: Tuesday, November 18, 2008 12:17 AM

To: mb12 valtrex

Subject: Re: McCarthy

I have to say one thing that is frustrating is 's

claims of curing her son's autism. Plain and simple, autism is not

curable. Symptoms can be treated but autism

is not curable. Saying autism is curable, I believe, is irresponsible

and gives the impression to the general public that every child with autism

is the same and curable. Austims is a spectrum disorder with varying

levels of function, symptoms and response to therapy. I

believe this message hurts all the organizations that due great work in

autism awareness and research.

This is my thought and frustration.

Matt

[Guest guest]

Dear Matt

I have met five cured people that are now 41, 22, 13, 10 and 10. They

were diagnosed with autism as young children and now you would never no

that they even had the diagnosis. They lead very normal lives with no

special diets in place and no clues to the diagnosis of autism. I

would say that is cured. I am looking at my twins now and I would say

they are in managed recovery. But I have seen cured kids. Some people

get cured of cancer and some only go into remission, and some die from

it. Does that mean, cancers are not curable. Autism is curable. Is

it the same protocol for every child, no. Autism is a collection of

symptoms from an underlying disorder, not a disease. Treat the

disorder and the symptoms disappear. Cure is possible.

Matt Howes wrote:

I believe in the idea of hope too! I am not new to

autism, this group or . supports and works for TACA which

is "Talk About Curing Autism" and has said the term "cure" in both

print and tv interviews. Recovery and cure are different and I agree,

however, she continues to promote both which is not accurate. Autism

cannot be cured, which is not desputed by any expert.

My opinion is she has done a lot of good with autism

awareness but the fact remains, she confuses recovery with cure which

sends out a message to the general public, not the families in the know

by real life experience, that all austism is curable. This is

misleading and sets up a terrible image that parents who's children

who are not cured are doing something wrong which is most certainly not

the case!

It is ok to question the effectiveness of the messenger

and how they go about delivering the message. Hope is great and is

needed, but, reality, determination and fortitude are the real drivers

toward providing our children with the resources to push through this

diagnosis.

From: Matt Howes

<matthewahowes@ yahoo.com>

Subject: Re: McCarthy

To: mb12 valtrex@ yahoogroups. com

Date: Monday, November 17, 2008, 9:16 PM

I have to say one thing that is

frustrating is 's claims of curing her son's autism. Plain and

simple, autism is not curable. Symptoms can be treated but autism is

not curable. Saying autism is curable, I believe, is irresponsible and

gives the impression to the general public that every child with autism

is the same and curable. Austims is a spectrum disorder with varyi

ng levels of function, symptoms and response to therapy. I

believe this message hurts all the organizations that due great work in

autism awareness and research.

This is my thought and frustration.

Matt

[Guest guest]

Very well said!

From: Matt Howes <matthewahowes@ yahoo.com>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Monday, November 17, 2008, 9:16 PM

I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varyi ng levels of function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.

This is my thought and frustration.

Matt

[Guest guest]

With medical certainty by experts in the field, autism is not curable. See any Children's Hspital study on autism. Cancer and autism are very different and the comparison is not fair to a child dx with autism or the treatment, studies and challenges of both. Also, you forgot to mention most cancers go into remission, which possibly could be the same for some people with autism? I am not sure.

Cancer is also dx with objectifiable testing while autism is dx with behavioral testing. With PANDAS and mis diagnosis for autism when it is actually apraxia, or something, lends to a number of people who are mis diagnosed. With all this said, this leaves your theory of autism being curable not plausible.

I am not saying I do not wish there was a cure. I do. I do not enjoy watching my son fight to get words out, stim until 2-3am in the morning, or long to eat the non gluten free foods of his peers, or fight thru nearly 40 hours of therapy a week and wonder if the state will pull this all away with budget cuts. I do. I think as a group autism, autism awareness is important but telling the non-autism experienced public it is curable and giving the impression a special diet, speech and OT will cure it is wrong in my eyes. There needs to be more of a unified message on how hard this process is for families and the children affected. Also, there needs to be more emphasis on the resources and our fight to get the resources needed to tx our babies. You can disagree with my idea and write up but the concrete proof of a cure is not an accurate statement. A unified message of acceptance, tolerance and resources

should be out there. It isn't and until it is we have an uphill battle for resources, understanding and tolerence.

Subject: Re: McCarthyTo: mb12 valtrex Date: Tuesday, November 18, 2008, 10:41 PM

Dear MattI have met five cured people that are now 41, 22, 13, 10 and 10. They were diagnosed with autism as young children and now you would never no that they even had the diagnosis. They lead very normal lives with no special diets in place and no clues to the diagnosis of autism. I would say that is cured. I am looking at my twins now and I would say they are in managed recovery. But I have seen cured kids. Some people get cured of cancer and some only go into remission, and some die from it. Does that mean, cancers are not curable. Autism is curable. Is it the same protocol for every child, no. Autism is a collection of symptoms from an underlying disorder, not a disease. Treat the disorder and the symptoms disappear. Cure is possible.Matt Howes wrote:

I believe in the idea of hope too! I am not new to autism, this group or . supports and works for TACA which is "Talk About Curing Autism" and has said the term "cure" in both print and tv interviews. Recovery and cure are different and I agree, however, she continues to promote both which is not accurate. Autism cannot be cured, which is not desputed by any expert.

My opinion is she has done a lot of good with autism awareness but the fact remains, she confuses recovery with cure which sends out a message to the general public, not the families in the know by real life experience, that all austism is curable. This is misleading and sets up a terrible image that parents who's children who are not cured are doing something wrong which is most certainly not the case!

It is ok to question the effectiveness of the messenger and how they go about delivering the message. Hope is great and is needed, but, reality, determination and fortitude are the real drivers toward providing our children with the resources to push through this diagnosis.

From: Matt Howes <matthewahowes@ yahoo.com>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Monday, November 17, 2008, 9:16 PM

I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varyi ng levels of function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.

This is my thought and frustration.

Matt

[Guest guest]

Check youtube. She has said it has recently as April 2008.

From: michelle0471 <michelle0471@ hotmail.co. uk>Subject: Re: McCarthyTo: mb12 valtrex@ yahoogroups. comDate: Tuesday, November 18, 2008, 8:04 AM

Hi MattI just wanted to comment that McCarthy doesn't say her son is CURED she actually says he is RECOVERED, she also says it is like being hit by a car you don't get a cure for that but you can recover. >> I'm sorry but I disagree with your post. I have friends who have children who have been undiagnosed and you wouldn't know they have autism without being told. We are learning so much compared to the fridge parent concept from long ago. Some kids can get better with diet, supplements etc. Whereas some kids don't respond. We don't know the lone "cause" so how can say there is no cure ? I also think McCarthy has brought a huge level of awareness to Autism with her books and because she feels she has cured her son based on where he

was and what is viewed as typical is projecting hopefulllness to other parents and the autism community not hurtfullness. > Sent via BlackBerry by AT & T> > Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of

function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.175 / Virus Database: 270.9.6/1797 - Release Date: 11/18/2008 11:23 AM

[Guest guest]

Understanding and education is just as important as healing. Mounting up a unified front maybe even more important considering the source of most of our babies tx. Lawmakers in our respective states. In the autism groups and communities there is understanding and educating outside the community is super important. I want my son to go to a Red Sox game and not always have to worry about his stimming, yelping and that people just do not understand. Or, no matter what the activity. Education in a unified manner is huge! This inturn gives hope, understanding, more money for research and more options of valuable effective care! This is a postive conversation.

Subject: Re: Re: McCarthyTo: mb12 valtrex Date: Tuesday, November 18, 2008, 1:16 PM

Perfect response, couldn't have made a better point..So, now we need to regroup and not let this negativity invade so much.WE know what's working for our kids.WE know what we are doing CAN be successful.WE need to acknowledge the ones who look at us with scorn or disbelief and MOVE PAST THEM.Our children need us, we should be working on them with each other, not defending the truth.(Not that I don't, but I fight these fights on other sites and keep this for serious business)Sorry, just my two cents. This topic has taken up a lot of posts and energy that could have been spent sharing healing information.

From: Dana Read <gdreadcomcast (DOT) net>To: mb12 valtrex@ yahoogroups. comSent: Tuesday, November 18, 2008 9:47:47 AMSubject: RE: Re: McCarthy

Early on in her first media blitz she used the word cured, then switched to recovered. Personally, I don't care about what words parents use to describe their children's progress. Some people have a problem with "autistic" vs. "a child with autism". Again, I have my preferences but I am not offended if someone says something different. What is important is that we all support each other in our efforts and our choices and sometimes agree to disagree.

Re: McCarthy> > > > I have to say one thing that is frustrating is 's claims of curing her son's autism. Plain and simple, autism is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. Austims is a spectrum disorder with varying levels of

function, symptoms and response to therapy. I believe this message hurts all the organizations that due great work in autism awareness and research.> > This is my thought and frustration. > > Matt> >

[Guest guest]

Why are you in this group? We don't have time for this. We are here to

recover our kids, not argue over McCarthy semantics. Who cares

if she used the word " cure " ? There are kids out there who are pretty

much cured, but you can't use that word or the mainstream world loses

it's mind.

Not sure why you're here to be honest, seems like you're just stirring

up drama.

> >

> > I'm sorry but I disagree with your post. I have friends who have

> children who have been undiagnosed and you wouldn't know they have

> autism without being told. We are learning so much compared to the

> fridge parent concept from long ago. Some kids can get better with

> diet, supplements etc. Whereas some kids don't respond. We don't know

> the lone " cause " so how can say there is no cure ? I also think

> McCarthy has brought a huge level of awareness to Autism with

> her books and because she feels she has cured her son based on where

> he was and what is viewed as typical is projecting hopefulllness to

> other parents and the autism community not hurtfullness.

> > Sent via BlackBerry by AT & T

> >

> > Re: McCarthy

> >

> >

> >

> > I have to say one thing that is frustrating is 's claims of

> curing her son's autism. Plain and simple, autism is not curable.

> Symptoms can be treated but autism is not curable. Saying autism is

> curable, I believe, is irresponsible and gives the impression to the

> general public that every child with autism is the same and curable.

> Austims is a spectrum disorder with varying levels of function,

> symptoms and response to therapy. I believe this message hurts all

> the organizations that due great work in autism awareness and

> research.

> >

> > This is my thought and frustration.

> >

> > Matt

> >

> >

>

>

>

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg. com

> Version: 8.0.175 / Virus Database: 270.9.6/1797 - Release Date:

11/18/2008 11:23 AM

>