Re: Happy Monday!/Anita!

[Guest guest]

Love, Anita, to you and to those kids--all of you, n Rojas

Happy Monday!

Hello everyone! Thank you for the responses to my recent posts. I appreciate them so much. I hope that everyone is having a relatively good day. Very interesting to read the posts about skin burning. Mine seems to be at a different time...when my DH is laying beside me and he starts to *gently* rub my arm or hand. Very sweet, but within 30 seconds, I swear he is rubing me down with smoking hot sandpaper! It's hard to ask him to stop, since his intentions are not to hurt me...but pain usually wins out. It's hard to explain that just that little stroke can HURT! I started a journal the other day, to try to find some rhyme or reason to when my symptoms hit. Fatigue seems to be major factor. I volunteered to help at a bead show for 3 1/2 hours, then went shopping with my family afterwards, for back-to-school supplies (meaning: hauling around 3 uncooperative kids from store to store). Wow. I was stunned to discover at lunch that my hand tremor was so bad that I could barely get salad on my fork! What a mess! Today, I can barely function, I seem to keep falling back into my bed...nothing is getting done. Does fatigue seem to mke your symptoms worse? I so appreciate everyone listening to my rants. I have only told my husband about my fears...I am keeping it from friends and family until things seem to fall into line, after my Dr apt. It's a heavy weight on my shoulders, but I don't want to panic everyone until I know more myself.

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