Re: could my saline implants be related to lupus diagnosis?

[Guest guest]

Hennywin,

Welcome to our group. I'm sorry you need us, but happy

you've found your way here. We have a bunch of

wonderful women who want to help you get better. We

have a tremendous amount of information to share!

Everything you describe is typical of a woman who has

had breast implants! . . . Many women have been

diagnosed with Lupus-like illnesses. But the good news

is that, for most of the women, the symptoms leave

after getting their implants removed and detoxing.

Antibiotics can actually make matters worse. Most of

us have systemic Candida/fungal problems because of

the medications we've taken and from having a

suppressed immune system that has grown weary of

fighting the implants.

You are very fortunate that your child hasn't been

affected. I started a group for the families of

children affected by silicone implants earlier this

year. While the parents are not discussing much on the

group, I am getting messages from parents whose

children are born with deformed sex organs, deformed

extremities . . . suffer from Lupus, joint and bone

pain, Scleroderma, rashes, digestive problems and

mental and cognitive problems - and more!

Unfortunately neither the medical profession or the

government chose to recognize the plight of so many

women and children. After fourty years, you would

think someone would have studied the after-effects of

breast implants.

There is a study in the making . . . contact Deb

Pettitt, dpettitt@... for details. She

heads a clinical research organization that is taking

on the job of conducting a study to find out why women

get sick after implants.

It's unlikely you will find a doctor who agrees your

implants are causing your health problems. There is no

test to prove it! However, if you are like the vast

majority of women who come to the group, you can get

your life back once you get rid of your implants!

Hugs and prayers,

Rogene

[Guest guest]

I would most definitely get the implants removed. It will be your

best chance at regaining health. We have had women on this group

who have had high ANA titres and/or lupus diagnoses that have been

reversed after explant and a serious detoxification focus.

It's sad but true...implants do cause illness, as much as the

doctors want to believe otherwise.

Welcome to our group. Of course, I wish you didn't have to be here,

but it is our hope that we can help you learn to deal with this

health tragedy and turn it around and get a good measure of your

health back.

Patty

--- In , " hennywin " <hennywin@y...>

wrote:

> To anyone kind enough to give me advice,

> I had saline implants put in October 1996. Three years later I

> started having severe fatigue, muscle aches and flu-like

symptoms. I

> saw several doctors who said I had RA (because my titer was high),

then

> it was Eppstein-Barr. While trying to get pregnant I had ACA

syndrome

> (a clotting disorder which causes miscarriages)and after taking

baby

> asprin and progesterone I had a successful pregnancy and healthy

> child. I had a child in 1995 (before my implants)and never had

any

> such trouble as I did getting pregnant with the second baby.

After I

> had my second child in Septenber 2002 I felt great and then BANG

it hit

> me again this April. All the pain is in my chest this time,

severe

> fatigue, too. I saw a pulmonologist after four rounds of

antibiotics

> who drew blood for a Lupus screening; it came back positive

1:160. I

> saw a rhuematologist today who, said given my history, diagnosed

my

> with lupus. I am just feeling doubts about whether or not

removing my

> implants will make any difference? I don't care about being small-

> chested any more, I just want to feel better and maybe see that

there

> is hope...

> Thanks,

> Hennywin

[Guest guest]

Hi and welcome to our site. I definitely think your implants need

to come out. We have had women with lupus or lupuslike symptoms get

better after explant. One thing is for sure--leaving the implants

in will only lead to more and more problems. Once we start having

symptoms from implants, they only continue to evolve into more and

more serious complaints. I think virtually everyone here would

agree that once the symptoms started, they only continued to get

worse and more diverse, as time went on. You will probably have

doctors try to tell you that your implants aren't involved and that

getting them out won't make a difference. Again, many women here

have been told the same thing, yet we learned differently post

explant. There is hope! Just by reading the posts from the last

couple of days, you will find alot of good info on getting implants

removed " en bloc " and what to look for in an explanting surgeon.

Feel free to ask any questions you might have. There is a very

knowledgeable and supportive group.

Hugs, kathy

--- In , " hennywin " <hennywin@y...>

wrote:

> To anyone kind enough to give me advice,

> I had saline implants put in October 1996. Three years later I

> started having severe fatigue, muscle aches and flu-like

symptoms. I

> saw several doctors who said I had RA (because my titer was high),

then

> it was Eppstein-Barr. While trying to get pregnant I had ACA

syndrome

> (a clotting disorder which causes miscarriages)and after taking

baby

> asprin and progesterone I had a successful pregnancy and healthy

> child. I had a child in 1995 (before my implants)and never had

any

> such trouble as I did getting pregnant with the second baby.

After I

> had my second child in Septenber 2002 I felt great and then BANG

it hit

> me again this April. All the pain is in my chest this time,

severe

> fatigue, too. I saw a pulmonologist after four rounds of

antibiotics

> who drew blood for a Lupus screening; it came back positive

1:160. I

> saw a rhuematologist today who, said given my history, diagnosed

my

> with lupus. I am just feeling doubts about whether or not

removing my

> implants will make any difference? I don't care about being small-

> chested any more, I just want to feel better and maybe see that

there

> is hope...

> Thanks,

> Hennywin

[Guest guest]

Hi Hennywin,

You may want to send McDonough ( " " on the Waltons) an email

through her website www.intheknow.org. She also was diagnosed with

Lupus after having breast implants put in. The good news is that

she seemingly leads a normal life and is able to work, as well as be

a visible advocate for the breast implant/illness issue. I just

wanted to tell you that you are not alone, and it never hurts to be

put in touch with others who have had a similar experience.

did have her implants removed, by the way.

Best wishes,

Kacey

I had saline implants for 2 years and was diagnosed with Rheumatoid

Arthritis, Fibromyalgia, and Chronic Fatigue syndrome among others.

--- In , " hennywin " <hennywin@y...>

wrote:

> To anyone kind enough to give me advice,

> I had saline implants put in October 1996. Three years later I

> started having severe fatigue, muscle aches and flu-like

symptoms. I

> saw several doctors who said I had RA (because my titer was high),

then

> it was Eppstein-Barr. While trying to get pregnant I had ACA

syndrome

> (a clotting disorder which causes miscarriages)and after taking

baby

> asprin and progesterone I had a successful pregnancy and healthy

> child. I had a child in 1995 (before my implants)and never had

any

> such trouble as I did getting pregnant with the second baby.

After I

> had my second child in Septenber 2002 I felt great and then BANG

it hit

> me again this April. All the pain is in my chest this time,

severe

> fatigue, too. I saw a pulmonologist after four rounds of

antibiotics

> who drew blood for a Lupus screening; it came back positive

1:160. I

> saw a rhuematologist today who, said given my history, diagnosed

my

> with lupus. I am just feeling doubts about whether or not

removing my

> implants will make any difference? I don't care about being small-

> chested any more, I just want to feel better and maybe see that

there

> is hope...

> Thanks,

> Hennywin

[Guest guest]

Hi Hennywin,

You may want to send McDonough ( " " on the Waltons) an email

through her website www.intheknow.org. She also was diagnosed with

Lupus after having breast implants put in. The good news is that

she seemingly leads a normal life and is able to work, as well as be

a visible advocate for the breast implant/illness issue. I just

wanted to tell you that you are not alone, and it never hurts to be

put in touch with others who have had a similar experience.

did have her implants removed, by the way.

Best wishes,

Kacey

I had saline implants for 2 years and was diagnosed with Rheumatoid

Arthritis, Fibromyalgia, and Chronic Fatigue syndrome among others.

--- In , " hennywin " <hennywin@y...>

wrote:

> To anyone kind enough to give me advice,

> I had saline implants put in October 1996. Three years later I

> started having severe fatigue, muscle aches and flu-like

symptoms. I

> saw several doctors who said I had RA (because my titer was high),

then

> it was Eppstein-Barr. While trying to get pregnant I had ACA

syndrome

> (a clotting disorder which causes miscarriages)and after taking

baby

> asprin and progesterone I had a successful pregnancy and healthy

> child. I had a child in 1995 (before my implants)and never had

any

> such trouble as I did getting pregnant with the second baby.

After I

> had my second child in Septenber 2002 I felt great and then BANG

it hit

> me again this April. All the pain is in my chest this time,

severe

> fatigue, too. I saw a pulmonologist after four rounds of

antibiotics

> who drew blood for a Lupus screening; it came back positive

1:160. I

> saw a rhuematologist today who, said given my history, diagnosed

my

> with lupus. I am just feeling doubts about whether or not

removing my

> implants will make any difference? I don't care about being small-

> chested any more, I just want to feel better and maybe see that

there

> is hope...

> Thanks,

> Hennywin