movickers

[Guest guest]

The Albumin, that they give Rex, may help slow down the build up

of the fluid in the abdomen...but, it is only temporary as the

amount of albumin will decrease very fast. I have never heard of them taking a

patient back off diuretics when they have sodium build up. They usually reduce

the dosage down as far as possible.

Albumin has to stay at a normal level in the blood for the leaking

of the fluid to stop from the vessels...this doesn't happen with

those who have cirrhosis. The fluid will continue to build up, no

matter what is done.

I would not be surprised that he, shortly, will become higher on

the transplant list because of this. The faster the build up of

fluid, and the more often it has to be drained, the more the

patient will need the transplant sooner. I'd just wait a little

bit. It seems like they are very concerned about his kidney

function now...they may be just trying to see if this will help

or hinder the kidneys further. He may be placed back on the

diuretics if it hasn't been beneficial.

The disease is a nightmare. Learning to take one day at a time

and to accept what goes on or happens if difficult. As long

as you can be with those who need you, the better chance of them

pulling through it all. Best wishes to you both.

[Guest guest]

Barby - for quite a while now, I have gotten messages from you which seemed

to be empty. I decided to ask if anyone else was getting the same thing.

When I opened the window to respond, there was the message you had sent.

You should be able to see it below starting with On Mon, and ending with

much love barby. I just noticed that it runs right into the message you

were responding too and wonder if google doesn't see the difference. Can

you try to send that same message with a space or two or a line between the

two messages? If this is the case, I have missed dozens of your messages.

I haven't noticed the problem with other members, but possible. Jan H

On Mon, Sep 7, 2009 at 12:22 PM, pinkmeetsblue wrote:

> i am so glad you took rex,girl,and thrilled that he is doing good,what a

> blessing!praying for the both of you,much love barby

> > >

> > > The Albumin, that they give Rex, may help slow down the build up

> > > of the fluid in the abdomen...but, it is only temporary as the

> > > amount of albumin will decrease very fast. I have never heard of them

> taking a patient back off diuretics when they have sodium build up. They

> usually reduce the dosage down as far as possible.

> > > Albumin has to stay at a normal level in the blood for the leaking

> > > of the fluid to stop from the vessels...this doesn't happen with

> > > those who have cirrhosis. The fluid will continue to build up, no

> > > matter what is done.

> > > I would not be surprised that he, shortly, will become higher on

> > > the transplant list because of this. The faster the build up of

> > > fluid, and the more often it has to be drained, the more the

> > > patient will need the transplant sooner. I'd just wait a little

> > > bit. It seems like they are very concerned about his kidney

> > > function now...they may be just trying to see if this will help

> > > or hinder the kidneys further. He may be placed back on the

> > > diuretics if it hasn't been beneficial.

> > >

> > > The disease is a nightmare. Learning to take one day at a time

> > > and to accept what goes on or happens if difficult. As long

> > > as you can be with those who need you, the better chance of them

> > > pulling through it all. Best wishes to you both.

> > >

> >

>

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

for real jan?? i havent noticed it either,i always start my messages right

in front of the in liver support hmmmmmmmmm,anyone else having this problems,i

will try it a different way ,let me know if this one gets to you ok. i know

awhile ago yahoo wasnt showing my post on my conp,unless i opened them,its still

like that unless i do a new post, but my replys i have to open them to see them

weird huh,ok let me know if you get this one much love barby

> > > >

> > > > The Albumin, that they give Rex, may help slow down the build up

> > > > of the fluid in the abdomen...but, it is only temporary as the

> > > > amount of albumin will decrease very fast. I have never heard of them

> > taking a patient back off diuretics when they have sodium build up. They

> > usually reduce the dosage down as far as possible.

> > > > Albumin has to stay at a normal level in the blood for the leaking

> > > > of the fluid to stop from the vessels...this doesn't happen with

> > > > those who have cirrhosis. The fluid will continue to build up, no

> > > > matter what is done.

> > > > I would not be surprised that he, shortly, will become higher on

> > > > the transplant list because of this. The faster the build up of

> > > > fluid, and the more often it has to be drained, the more the

> > > > patient will need the transplant sooner. I'd just wait a little

> > > > bit. It seems like they are very concerned about his kidney

> > > > function now...they may be just trying to see if this will help

> > > > or hinder the kidneys further. He may be placed back on the

> > > > diuretics if it hasn't been beneficial.

> > > >

> > > > The disease is a nightmare. Learning to take one day at a time

> > > > and to accept what goes on or happens if difficult. As long

> > > > as you can be with those who need you, the better chance of them

> > > > pulling through it all. Best wishes to you both.

> > > >

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> > Group Email: livercirrhosissupport

> > web address:

> > http://groups.yahoo.com/group/livercirrhosissupport/

> >

[Guest guest]

all right friend, i need your help, before this month i was doing pretty

good health wise, there is so much i dont understand about hep c, the bull

shit doctor i got are not explaining what i need to know either, they just

tell me dont worry i am not ready for the transplant list. While i am glad

to hear that i am having the most hurtful issues in the world and i dont

know what the hell to do with the pain. Hep c is nerve raking. I use to have

much energy now i can hardly get out of bed. i dont have the stomach

swelling i read about. but head aches, leg aches, joint pain is getting the

best of me. I have Gerd also, gastro reflux, i dont know what type of test

ot ask for. basically i dont even know the hell you guys are talking about

when you say en stage. i dont understand the hep c count yes i am lost of

this. That is one of my reason, why i will die trying to form a help group

that will reach out to hep c patient and tell it like it is. i am suppose

to see my liver doctors every 6 months for blood work. so far so good. But

at the moment i am weak as hell and agitated, nervous and head aches,

itching, shit i just dont understand, leg swelling, yes i need your help i got

to the doctor on friday, i dont know what to ask for or what to expect.

PLEASE SHINE SOME LIGHT ON THIS. YOUR GOING OUT OF MY MIND (THOMAS IN

CHICAGO)

[Guest guest]

Terry was taken off ALL diuretics when he was admitted through the ER with renal

failure, as well as liver failure, hepatic encephalopathy and

hypoglycemia.  When his kidneys began to recover some functioning, the diuretics

were added back very slowly as his renal functions began to improve.

 

Warm Hugs...........

 

Di

http://auntdisexperimentallife.blogspot.com/

________________________________

From: abijann <no_reply >

To: livercirrhosissupport

Sent: Friday, September 4, 2009 1:19:48 PM

Subject: movickers

 

The Albumin, that they give Rex, may help slow down the build up

of the fluid in the abdomen...but, it is only temporary as the

amount of albumin will decrease very fast. I have never heard of them taking a

patient back off diuretics when they have sodium build up. They usually reduce

the dosage down as far as possible.

Albumin has to stay at a normal level in the blood for the leaking

of the fluid to stop from the vessels...this doesn't happen with

those who have cirrhosis. The fluid will continue to build up, no

matter what is done.

I would not be surprised that he, shortly, will become higher on

the transplant list because of this. The faster the build up of

fluid, and the more often it has to be drained, the more the

patient will need the transplant sooner. I'd just wait a little

bit. It seems like they are very concerned about his kidney

function now...they may be just trying to see if this will help

or hinder the kidneys further. He may be placed back on the

diuretics if it hasn't been beneficial.

The disease is a nightmare. Learning to take one day at a time

and to accept what goes on or happens if difficult. As long

as you can be with those who need you, the better chance of them

pulling through it all. Best wishes to you both.

[Guest guest]

I am so thankful to hear that Rex is improved so much that he can come home. 

This is wonderful news!  A new meld of 27 should put him pretty high on the

list, I would think.  Praying that call comes very soon.

 

Warm Hugs...........

 

Di

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Monday, September 7, 2009 10:44:14 AM

Subject: Re: movickers

 

well i took Bobby's advice and I " camped " out at the hospital on Saturday

morning. Even though it is a holiday weekend his doctor still made the rounds in

the morning but without his normal entourage. I wanted to find out about the

game plan for Rex.

Well, abijann, you called it. The doctor is very concerned about the kidneys but

the lastest blood test showed a reduced creatitine level of 1.8 and he was going

to resume the diuretics. In fact he increased the dosage of the Spironolactone

to 100 mg and kept the lasix at 80 mg. Rex was finally released yesterday and

seems to be doing good. He has to get blood tests on Tuesday and Thursday. So we

will see what happens next.

His new MELD was submitted at a 27. I kidded with him that I knew he could be

inpatient but it really is not polite to keep jumping in front of so many other

people that have been waiting.

i know we have a very rocky road ahead of us and sure hope that we get " the

call " in the forseeable future.

Want to thank everyone for their support and advice. It is good to know that you

understand what is going on.

>

> The Albumin, that they give Rex, may help slow down the build up

> of the fluid in the abdomen...but, it is only temporary as the

> amount of albumin will decrease very fast. I have never heard of them taking a

patient back off diuretics when they have sodium build up. They usually reduce

the dosage down as far as possible.

> Albumin has to stay at a normal level in the blood for the leaking

> of the fluid to stop from the vessels...this doesn't happen with

> those who have cirrhosis. The fluid will continue to build up, no

> matter what is done.

> I would not be surprised that he, shortly, will become higher on

> the transplant list because of this. The faster the build up of

> fluid, and the more often it has to be drained, the more the

> patient will need the transplant sooner. I'd just wait a little

> bit. It seems like they are very concerned about his kidney

> function now...they may be just trying to see if this will help

> or hinder the kidneys further. He may be placed back on the

> diuretics if it hasn't been beneficial.

>

> The disease is a nightmare. Learning to take one day at a time

> and to accept what goes on or happens if difficult. As long

> as you can be with those who need you, the better chance of them

> pulling through it all. Best wishes to you both.

>

[Guest guest]

I've had Hep C for 26 years, got a liver transplant in January, 2008, and am now

doing treatment, which I'm almost done with. I am undetectable of the virus so

far since starting treatment. I know how you feel. The leg cramps and joint

pain are not fun, or any of the symptoms, all of which you've mentioned I've had

too. Many years before I had cirrhosis, it was hard to get out of bed or take a

shower because of the fatigue caused by the Hep C. It got worse after I had

cirrhosis. It's good you don't have the stomach swelling (ascites). That

usually happens once you have cirrhosis and are decompensated which includes

symptoms of ascites, jaundice, varices, encephalopathy, portal hypertension.

Have you had a liver biopsy? If not, you should get one so you know what stage

your liver is in. Have you done any treatment for the Hep C? That would be a

good thing to do before your liver gets into cirrhosis, if it's not already.

The Hep C count, Hepatitis C RNA Quantitative test or viral load tells how much

virus is in the blood. That test needs to be done before treatment and while on

treatment to monitor if the treatment is working. It is also used to find out

what genotype your Hep C virus is. Different genotypes tells how long you will

need to do treatment. I have genotype 1a, which is the most common in the

United States, and the hardest to treat. It requires a year long treatment,

where 2 and 3 genotypes treatments are shorter, usually 6 months. Be sure to

tell your doctor about all your symptoms.

I hope I have helped a little bit.

Penny

>

> all right friend, i need your help, before this month i was doing pretty

> good health wise, there is so much i dont understand about hep c, the bull

> shit doctor i got are not explaining what i need to know either, they just

> tell me dont worry i am not ready for the transplant list. While i am glad

> to hear that i am having the most hurtful issues in the world and i dont

> know what the hell to do with the pain. Hep c is nerve raking. I use to

have

> much energy now i can hardly get out of bed. i dont have the stomach

> swelling i read about. but head aches, leg aches, joint pain is getting the

> best of me. I have Gerd also, gastro reflux, i dont know what type of test

> ot ask for. basically i dont even know the hell you guys are talking about

> when you say en stage. i dont understand the hep c count yes i am lost of

> this. That is one of my reason, why i will die trying to form a help group

> that will reach out to hep c patient and tell it like it is. i am suppose

> to see my liver doctors every 6 months for blood work. so far so good. But

> at the moment i am weak as hell and agitated, nervous and head aches,

> itching, shit i just dont understand, leg swelling, yes i need your help i

got

> to the doctor on friday, i dont know what to ask for or what to expect.

> PLEASE SHINE SOME LIGHT ON THIS. YOUR GOING OUT OF MY MIND (THOMAS IN

> CHICAGO)

>

>

>