Re: poll questions on this website

[Guest guest]

I just wanted to comment/suggest that the poll question asking the

reason for implantion should have one more option added to the

possible answers. All of my surgeries, and there have been way too

many, were done because I was born with a birth defect called

Poland's Syndrome. It was reconstruction of the chest wall due to a

missing pectoral muscle and I've learned over the years that it's

more common than I ever realized when I was younger. I also didn't

notice an answer to that poll concerning breast reconstruction

following mastectomy. So I just thought I'd suggest adding an

answer that applies to reconstruction, whether it's congenital or

from cancer.

One of these days, when I find the time, I'm going to tell you all

my horror story with silicone AND saline implants that has been

going on now for about 20 years. Right now, I'm on SS Disability

and Medicaid, at the age of 45, and I'm trying to find a doctor who

will finally do an explant. I don't even care anymore if I end up

going back to the deformity I grew up with. At this point, I just

want some hope of getting my life back. I guess I just haven't told

this group my story because it's a VERY long one. I am planning to

get in touch with Deb Pettitt so I can get in on her explant study.

I also need to do more research on getting involved in a suit for

saline implant problems. My most recent surgery was done this April

(I had a silicone implant removed and replaced with saline...I

wanted the doctor to remove both implants and put nothing back but

he wouldn't do it!). Well, the saline implant is infected already

and I'm on antibiotics until I find someone to do an explant. By

the way, I ended up having implants on both sides even though the

birth defect was only on the left...the doctors convinced me back in

1985 that it was necessary.

That's a start to " my story " . I'll write more again another day.

Thanks for listening and for this website.

Dianne in PA

[Guest guest]

Last I heard, Dr. Huang of Denver took Medicaid for explant. Most will

not. You can find her website at: www.lindahuangmd.com

BTW, I ended up on SS Disability and Medicaid from my implant also.

Lynda

At 08:57 PM 7/11/2005, you wrote:

>I just wanted to comment/suggest that the poll question asking the

>reason for implantion should have one more option added to the

>possible answers. All of my surgeries, and there have been way too

>many, were done because I was born with a birth defect called

>Poland's Syndrome. It was reconstruction of the chest wall due to a

>missing pectoral muscle and I've learned over the years that it's

>more common than I ever realized when I was younger. I also didn't

>notice an answer to that poll concerning breast reconstruction

>following mastectomy. So I just thought I'd suggest adding an

>answer that applies to reconstruction, whether it's congenital or

>from cancer.

>

>One of these days, when I find the time, I'm going to tell you all

>my horror story with silicone AND saline implants that has been

>going on now for about 20 years. Right now, I'm on SS Disability

>and Medicaid, at the age of 45, and I'm trying to find a doctor who

>will finally do an explant. I don't even care anymore if I end up

>going back to the deformity I grew up with. At this point, I just

>want some hope of getting my life back. I guess I just haven't told

>this group my story because it's a VERY long one. I am planning to

>get in touch with Deb Pettitt so I can get in on her explant study.

>I also need to do more research on getting involved in a suit for

>saline implant problems. My most recent surgery was done this April

>(I had a silicone implant removed and replaced with saline...I

>wanted the doctor to remove both implants and put nothing back but

>he wouldn't do it!). Well, the saline implant is infected already

>and I'm on antibiotics until I find someone to do an explant. By

>the way, I ended up having implants on both sides even though the

>birth defect was only on the left...the doctors convinced me back in

>1985 that it was necessary.

>

>That's a start to " my story " . I'll write more again another day.

>Thanks for listening and for this website.

>

>Dianne in PA

>

>

>

>

>Opinions expressed are NOT meant to take the place of advice given by

>licensed health care professionals. Consult your physician or licensed

>health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

>Find out what the facts are, and make your own decisions about how to live

>a happy life and how to work for a better world. " - Linus ing,

>two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>

[Guest guest]

Dianne,

Welcome to the group! I'm so sorry you've had so many

problems! . . . It makes it really hard to trust

doctor's. Doesn't it?

We have women in their twenties who are on SSDI and

Medicaid! . . . So tragic. Such wasted lives! . . .

Not to mention the health problems their children

have!

We have a wonderful group of ladies here. If you have

any questions, ask away! . . . We want you to get well

almost as much as you do! . . . You have an excellent

chance of getting your life back!

Hugs and prayers,

Rogene