Re: new pictures!/

[Guest guest]

, I hear your deep pain. I felt the same pain when I lost my dad. It

was awful! It took me a good three years to start thinking that I would see him

come in from fishing any day. When I started thinking that way, I knew I had

gotten through the worst part of loosing him.

I hope you can think the same way, soon.

Imogene

In a message dated 3/18/2007 4:41:01 PM Central Standard Time,

cautionblondethinkin@... writes:

Hi ,

My dad is constantly working. His hands are always in the air

grabbing or working at something. My mom bought him some stuffed

animals and she gives those to him so he can hold on to something. He

thinks it is a tool. If he doesnt' have that he uses his covers. We

talk to him and ask him what he is doing sometimes we can't

understand what he is saying but other times he says something clear

and makes us laugh. He also gets the biggest kick out of something he

is saying. His smile brings a smile to all those around him.

While I was home last month we had all the family there the Sunday

before I left. It was his birthday the following week so we all sing

Happy Birthday to him. He joined in and started singing Happy

Birthday. My mom and I were standing beside him and we looked at each

other with tears in our eyes because he could still remember the

words. We laughed and that made our whole day.

Thank you for your kind words it means a lot. The pictures I have

looked I can see the same look in my dads eyes as his progression

with LBD gets further along.

I miss my daddy. I miss his arms around me telling me everything will

be ok. I just tell myself that my daddy loved me and still does. When

I was home last my I told him that he was the BEST Daddy in the whole

world. He replied, " Golly " and smiled. I think he knew who I was, but

if he didn't he knew I thought that about him.

My pain goes deep because of the loss of my dad, even though we

haven't physically lost him, I still feel that loss.

Thank you and take care.... You and yours are in my thoughts and

prayers.

Desert Hot Spgs, CA

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[Guest guest]

Dear ,

I thank you for sharing your journey in words as well as with the pictures.

They touched

my heart deeply as I could see my mother in the look on your dad's face, the

raised arm

with hand suspended. She would try scratching her face, and end up not

succeeding,

hand becoming suspended in midair on its way down. Thankfully you had such a

meaningful conversation with your dad Christmas 2005. A memory to be cherished.

One

blessing of LBD is to appreciate those moments as they happen. I am glad that

did

happen for you.

I feel your pain as you write, but am glad you shared with us.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

> >

> > I appreciate the new pictures sent in recently.

> Cautionblondthinkin, a great collection. I

> > didn't respond sooner because I hesitated using your id name. It's

> always meaningful to

> > see another's journey with LBD.

>

[Guest guest]

Hi ,

My dad is constantly working. His hands are always in the air

grabbing or working at something. My mom bought him some stuffed

animals and she gives those to him so he can hold on to something. He

thinks it is a tool. If he doesnt' have that he uses his covers. We

talk to him and ask him what he is doing sometimes we can't

understand what he is saying but other times he says something clear

and makes us laugh. He also gets the biggest kick out of something he

is saying. His smile brings a smile to all those around him.

While I was home last month we had all the family there the Sunday

before I left. It was his birthday the following week so we all sing

Happy Birthday to him. He joined in and started singing Happy

Birthday. My mom and I were standing beside him and we looked at each

other with tears in our eyes because he could still remember the

words. We laughed and that made our whole day.

Thank you for your kind words it means a lot. The pictures I have

looked I can see the same look in my dads eyes as his progression

with LBD gets further along.

I miss my daddy. I miss his arms around me telling me everything will

be ok. I just tell myself that my daddy loved me and still does. When

I was home last my I told him that he was the BEST Daddy in the whole

world. He replied, " Golly " and smiled. I think he knew who I was, but

if he didn't he knew I thought that about him.

My pain goes deep because of the loss of my dad, even though we

haven't physically lost him, I still feel that loss.

Thank you and take care.... You and yours are in my thoughts and

prayers.

Desert Hot Spgs, CA

> > >

> > > I appreciate the new pictures sent in recently.

> > Cautionblondthinkin, a great collection. I

> > > didn't respond sooner because I hesitated using your id name.

It's

> > always meaningful to

> > > see another's journey with LBD.

> >

>

[Guest guest]

Hi Imogene,

When I left daddy to come home a few weeks ago, I didn't fall apart

like I had done last July. I took my pictures, talked to him and

cried the night before I left. He tried to put his arms around me but

couldn't quiet do it. He didn't know why I was crying, but that is

ok. He always hated when I flew back to California. He would always

ask me to move back.

The day I was leaving I told him I was flying back to California, he

said ok, but " please don't block him in, because he was going to

Barbara's house. " We said ok and laughed. Barbara is his older sister

who lives in Atlanta. He was talking about his sister a lot that

morning. I didn't cry when I left, because I knew for the first time

that I would see him again. Even if it wasn't here physically, I

would see him one day in heaven. I know daddy will be waiting for me

when it is my time.

Thank you for your encouragement. It means a lot. You and yours are

in my thoughts and prayers.

Take care,

Desert Hot Springs, CA

>

>

>

> , I hear your deep pain. I felt the same pain when I lost my

dad. It

> was awful! It took me a good three years to start thinking that I

would see him

> come in from fishing any day. When I started thinking that way, I

knew I had

> gotten through the worst part of loosing him.

>

> I hope you can think the same way, soon.

> Imogene

>

>

> In a message dated 3/18/2007 4:41:01 PM Central Standard Time,

> cautionblondethinkin@... writes:

>

> Hi ,

>

> My dad is constantly working. His hands are always in the air

> grabbing or working at something. My mom bought him some stuffed

> animals and she gives those to him so he can hold on to something.

He

> thinks it is a tool. If he doesnt' have that he uses his covers.

We

> talk to him and ask him what he is doing sometimes we can't

> understand what he is saying but other times he says something

clear

> and makes us laugh. He also gets the biggest kick out of something

he

> is saying. His smile brings a smile to all those around him.

>

> While I was home last month we had all the family there the Sunday

> before I left. It was his birthday the following week so we all

sing

> Happy Birthday to him. He joined in and started singing Happy

> Birthday. My mom and I were standing beside him and we looked at

each

> other with tears in our eyes because he could still remember the

> words. We laughed and that made our whole day.

>

> Thank you for your kind words it means a lot. The pictures I have

> looked I can see the same look in my dads eyes as his progression

> with LBD gets further along.

>

> I miss my daddy. I miss his arms around me telling me everything

will

> be ok. I just tell myself that my daddy loved me and still does.

When

> I was home last my I told him that he was the BEST Daddy in the

whole

> world. He replied, " Golly " and smiled. I think he knew who I was,

but

> if he didn't he knew I thought that about him.

>

> My pain goes deep because of the loss of my dad, even though we

> haven't physically lost him, I still feel that loss.

>

> Thank you and take care.... You and yours are in my thoughts and

> prayers.

>

>

> Desert Hot Spgs, CA

>

>

>

>

>

>

>

> ************************************** AOL now offers free email to

everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

>

>

[Guest guest]

: Welcome to the board. I am on the other list

and read your mother's posts. She seems so kind and

very Christian and takes very good care of your

father. It is too bad you are far away, but this day

and age with air flights, generally people can get

somewhere in a few hours to a day (if they can catch a

flight).

--- Caution_BlondeThinkin

wrote:

> Hi ,

>

> My dad is constantly working. His hands are always

> in the air

> grabbing or working at something. My mom bought him

> some stuffed

> animals and she gives those to him so he can hold on

> to something. He

> thinks it is a tool. If he doesnt' have that he uses

> his covers. We

> talk to him and ask him what he is doing sometimes

> we can't

> understand what he is saying but other times he says

> something clear

> and makes us laugh. He also gets the biggest kick

> out of something he

> is saying. His smile brings a smile to all those

> around him.

>

> While I was home last month we had all the family

> there the Sunday

> before I left. It was his birthday the following

> week so we all sing

> Happy Birthday to him. He joined in and started

> singing Happy

> Birthday. My mom and I were standing beside him and

> we looked at each

> other with tears in our eyes because he could still

> remember the

> words. We laughed and that made our whole day.

>

> Thank you for your kind words it means a lot. The

> pictures I have

> looked I can see the same look in my dads eyes as

> his progression

> with LBD gets further along.

>

> I miss my daddy. I miss his arms around me telling

> me everything will

> be ok. I just tell myself that my daddy loved me and

> still does. When

> I was home last my I told him that he was the BEST

> Daddy in the whole

> world. He replied, " Golly " and smiled. I think he

> knew who I was, but

> if he didn't he knew I thought that about him.

>

> My pain goes deep because of the loss of my dad,

> even though we

> haven't physically lost him, I still feel that loss.

>

>

> Thank you and take care.... You and yours are in my

> thoughts and

> prayers.

>

>

> Desert Hot Spgs, CA

>

>

> > >

> > > Hi ,

> > >

> > > Thank you for taking the time and looking at the

> pictures I

> posted. I

> > > had just got back from Louisiana recently where

> my mom and dad

> live.

> > > I do not get to go home but a couple of times a

> year. So time

> with my

> > > family is very precious. I haven't written

> anything in a long

> time on

> > > LBD site so I will give a little bit about my

> dad and his journey

> > > with LBD. Two years ago, Feb 22nd my dad was

> diagnosed at the

> Mayo

> > > Clinic in ville, FL. We took my dad to

> Florida because on

> of

> > > his doctors in Shreveport, LA suggested it. They

> could not

> diagnose

> > > him with what was wrong with him. I flew to

> Louisiana and we

> drove to

> > > Florida. At the time we thought this was the

> worst time in our

> lives.

> > > Little did we know what the coming years were to

> bring.

> > >

> > > My dad was diagnosed within 10 minutes of seeing

> the doctor. We

> had

> > > no idea what Diffuse Lewy Body Disease was. So

> we did research

> online

> > > that night in the hotel. We searched everything

> we could find

> about

> > > the disease, we even went to bookstores trying

> to find books

> about

> > > LBD. There wasn't much about it. What we did

> find online

> devestated

> > > our family. We found that most life expectancy

> for people who

> suffer

> > > with LBD usually only suffer with it for 5-8

> years. We started

> > > thinking back to the symptoms and realized that

> my dad had been

> > > suffering with it for much longer than we

> thought. We traced it

> back

> > > to 2000.

> > >

> > > We decided we would cherish what time we had

> with daddy. Before

> we

> > > drove to Florida I made reservations at a Hotel

> right by the

> beach.

> > > My dad loved to Ocean, especially the Atlantic

> as he had spent

> much

> > > of his life raised by the Atlantic. We got to

> walk along the

> beach

> > > with Daddy. Mama and I collected sea shells. We

> even got some of

> the

> > > sand from ville Beach as souvenior. We

> have now put that

> sand

> > > and shells in jars to remember our time with

> daddy in Florida.

> > >

> > > I was able to come home for Christmas in 2005. I

> hadn't had

> Christmas

> > > in Louisiana with my family since I moved to

> California but one

> time

> > > in 17 years. I knew that it would probably be

> the last Christmas

> my

> > > dad would remember us. My dad and I had our last

> father/daughter

> talk

> > > Christmas Eve. We didn't know that six months

> from then he would

> > > start declining so bad that he would barely

> remember who we were.

> The

> > > father/daughter talk we had will always stick

> with me. We were in

> the

> > > sitting room my dad had built for my mom years

> before. I sat on

> the

> > > floor by his feet and he in the chair. I told

> him how much I

>

=== message truncated ===

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[Guest guest]

Thank you for your welcome. I joined in 2005 but have been going to

school full-time, along with working, and taking care of kids, so I

hadn't had much time to write on the board.

Yes, mama is one of the kindest, sweetest and most caring person.

Yes, she takes very good care of my dad, but she likes to question

herself whether she is doing the right thing or not. She sees how

others progress with the LBD and dad isn't like the others. I told

her she is doing the best that she can. Daddy is getting better

treatment from her care then if he was anywhere else. Mama deep down

knows this. She has her faith and understanding of the Lord and that

helps her to get through this tough time.

Yes, we can get anywhere fast if need be. Being a single parent it is

hard to just take off, but if mama really needed me right then she

knows I would be there.

Thank you for your words of welcome and encouragement.

Desert Hot Springs, CA

> > > >

> > > > Hi ,

> > > >

> > > > Thank you for taking the time and looking at the

> > pictures I

> > posted. I

> > > > had just got back from Louisiana recently where

> > my mom and dad

> > live.

> > > > I do not get to go home but a couple of times a

> > year. So time

> > with my

> > > > family is very precious. I haven't written

> > anything in a long

> > time on

> > > > LBD site so I will give a little bit about my

> > dad and his journey

> > > > with LBD. Two years ago, Feb 22nd my dad was

> > diagnosed at the

> > Mayo

> > > > Clinic in ville, FL. We took my dad to

> > Florida because on

> > of

> > > > his doctors in Shreveport, LA suggested it. They

> > could not

> > diagnose

> > > > him with what was wrong with him. I flew to

> > Louisiana and we

> > drove to

> > > > Florida. At the time we thought this was the

> > worst time in our

> > lives.

> > > > Little did we know what the coming years were to

> > bring.

> > > >

> > > > My dad was diagnosed within 10 minutes of seeing

> > the doctor. We

> > had

> > > > no idea what Diffuse Lewy Body Disease was. So

> > we did research

> > online

> > > > that night in the hotel. We searched everything

> > we could find

> > about

> > > > the disease, we even went to bookstores trying

> > to find books

> > about

> > > > LBD. There wasn't much about it. What we did

> > find online

> > devestated

> > > > our family. We found that most life expectancy

> > for people who

> > suffer

> > > > with LBD usually only suffer with it for 5-8

> > years. We started

> > > > thinking back to the symptoms and realized that

> > my dad had been

> > > > suffering with it for much longer than we

> > thought. We traced it

> > back

> > > > to 2000.

> > > >

> > > > We decided we would cherish what time we had

> > with daddy. Before

> > we

> > > > drove to Florida I made reservations at a Hotel

> > right by the

> > beach.

> > > > My dad loved to Ocean, especially the Atlantic

> > as he had spent

> > much

> > > > of his life raised by the Atlantic. We got to

> > walk along the

> > beach

> > > > with Daddy. Mama and I collected sea shells. We

> > even got some of

> > the

> > > > sand from ville Beach as souvenior. We

> > have now put that

> > sand

> > > > and shells in jars to remember our time with

> > daddy in Florida.

> > > >

> > > > I was able to come home for Christmas in 2005. I

> > hadn't had

> > Christmas

> > > > in Louisiana with my family since I moved to

> > California but one

> > time

> > > > in 17 years. I knew that it would probably be

> > the last Christmas

> > my

> > > > dad would remember us. My dad and I had our last

> > father/daughter

> > talk

> > > > Christmas Eve. We didn't know that six months

> > from then he would

> > > > start declining so bad that he would barely

> > remember who we were.

> > The

> > > > father/daughter talk we had will always stick

> > with me. We were in

> > the

> > > > sitting room my dad had built for my mom years

> > before. I sat on

> > the

> > > > floor by his feet and he in the chair. I told

> > him how much I

> >

> === message truncated ===

>

>

>

>

>

______________________________________________________________________

______________

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>

[Guest guest]

I looked at your pictures after I wrote the first

post, and his picture looks so much like my husband's

was when he was in the hospital. He changed from

being completely functional physically and having some

cognition at the beginning of 2006 and was gone by

November. It's unbelievable how this disease can

work.

June

--- Caution_BlondeThinkin

wrote:

> Thank you for your welcome. I joined in 2005 but

> have been going to

> school full-time, along with working, and taking

> care of kids, so I

> hadn't had much time to write on the board.

>

> Yes, mama is one of the kindest, sweetest and most

> caring person.

> Yes, she takes very good care of my dad, but she

> likes to question

> herself whether she is doing the right thing or not.

> She sees how

> others progress with the LBD and dad isn't like the

> others. I told

> her she is doing the best that she can. Daddy is

> getting better

> treatment from her care then if he was anywhere

> else. Mama deep down

> knows this. She has her faith and understanding of

> the Lord and that

> helps her to get through this tough time.

>

> Yes, we can get anywhere fast if need be. Being a

> single parent it is

> hard to just take off, but if mama really needed me

> right then she

> knows I would be there.

>

> Thank you for your words of welcome and

> encouragement.

>

>

> Desert Hot Springs, CA

>

>

> > > > >

> > > > > Hi ,

> > > > >

> > > > > Thank you for taking the time and looking at

> the

> > > pictures I

> > > posted. I

> > > > > had just got back from Louisiana recently

> where

> > > my mom and dad

> > > live.

> > > > > I do not get to go home but a couple of

> times a

> > > year. So time

> > > with my

> > > > > family is very precious. I haven't written

> > > anything in a long

> > > time on

> > > > > LBD site so I will give a little bit about

> my

> > > dad and his journey

> > > > > with LBD. Two years ago, Feb 22nd my dad was

> > > diagnosed at the

> > > Mayo

> > > > > Clinic in ville, FL. We took my dad

> to

> > > Florida because on

> > > of

> > > > > his doctors in Shreveport, LA suggested it.

> They

>

=== message truncated ===

________________________________________________________________________________\

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[Guest guest]

June,

You are right from when I saw my dad in Dec of 2005, to June of 2006

the difference was amazing. It progresses so fast and then all of a

sudden it slows down. It is heartbreaking to see.

Desert Hot Springs, CA

Daddy, Don 76, suffers LBD

> > > > > >

> > > > > > Hi ,

> > > > > >

> > > > > > Thank you for taking the time and looking at

> > the

> > > > pictures I

> > > > posted. I

> > > > > > had just got back from Louisiana recently

> > where

> > > > my mom and dad

> > > > live.

> > > > > > I do not get to go home but a couple of

> > times a

> > > > year. So time

> > > > with my

> > > > > > family is very precious. I haven't written

> > > > anything in a long

> > > > time on

> > > > > > LBD site so I will give a little bit about

> > my

> > > > dad and his journey

> > > > > > with LBD. Two years ago, Feb 22nd my dad was

> > > > diagnosed at the

> > > > Mayo

> > > > > > Clinic in ville, FL. We took my dad

> > to

> > > > Florida because on

> > > > of

> > > > > > his doctors in Shreveport, LA suggested it.

> > They

> >

> === message truncated ===

>

>

>

>

>

______________________________________________________________________

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