~*Carol*~

[Guest guest]

Carol,

First off let me say YES you should be here. There are many here without a dead pat dx. This group even though it says Fibro Support is for anyone with chronic pain or anyone wanting to learn about fibro who has someone in their life with it. Also students come in here occasionally to do school papers on info about fibro so we have a large aray of folks here. So NO ONE is out of place here, just as NO TOPIC is off Topic. If it affects our lives it is topic. We share it all! SO WELCOME WITH OPEN ARMS!

I am also 46 and a 5 time cancer survivior including breast. I too am cancer free at the present time! It is a hard fight I know! I am a 35 yr. veterain of Fibro! I know my exact trigger that brought it on and I will try to share it sometime soon with all. It's just hard to share that part of my life.

Also another thing we have in common is our adopting children. Out of 13 pregnancies 1 set of twins so 14 children I had 3 that survived. My oldest birth child was 30 this year, A wonderful young Man! The second that lived is a girl turned 27 this last spring, And last but not least my baby boy who is 25 now, it was a VERY HARD BATTLE with him. I had cancer of the uterus while I carried him. So they finally had to take him C-Section or loose us both. It was an 18 month battle of touch and go with him. When he was born he had Hylenmembrain (<-- SP?) lung desiese that is where the babies lungs are not formed yet. He was over a month old when I was allowed to bring him home and he weighed 3lbs. 2 and 1/2 ozs. and was 13 inches long. I had to have a Hyst. at age 21 after he was born. However the first 18 months of his life he was in the Hospital no less than a week out of the month, sometimes 2 or 3 weeks. So that was a VERY hard battle. To look at him now you would never know he was sick. He weights over 200 lbs. and has 5 kids. So anyway back to the adoption part. Every time I lost a child I adopted one or more. The first set of 4 siblings I adopted were age ranged from 14 down to 3. I was 18 at the time. Seemed like a big difference then between the 14 yr. old and me but now even though she still calls me MAMA we are best of friends as well. People have always looked at us like we were nuts anyway when she called me MAMA we were even confronted a few times about it. I remember 1 hilarious time however. We were in a Gibson store in Corsicana Tx.. We were in the checkout line and Marie said OH MAMA I forgot I need notebook paper. I told her to go quick and get it. When she got back with it we were up to the checker ready to check out. The checker turned to Marie and said I thought I heard you call her Mama. Marie said you did this IS my Mother. The checker said NO WAY! Marie said YES SHE IS. The lady countered with the question I don't mean to be rude but how old are you? Before I could say anything Marie jumped in and said she's 36. I about died because I was 19 at the time. The woman said Oh My God I hope I look like you at 36!!!!!!!! Marie and I were both about to burst laughing but we held it until we got outside then the dam broke and we laughed so hard we had tears running down our faces. She was always good at telling whoopers with a straight face and making you believe them. Her and I have always been extremly close. Anyway I ended up 14 more, most of which were problem children (Defects mental, crippled, ect.) The last one turned 18 the last of last year and moved out the first part of this year. I thought my kid raising days were over. I did have a VERY BAD case of empty nest syndrome BAD! Then in March the Lord seen fit to put another child in my lap. A 10 yr. old deaf child. In all actuality he is my Nephew, my brother had 5 children and I have adopted everyone of them. He is truly a blessing however. He's a good child with a heart of gold. I am teaching him to sign at home as I am a lisenced sign language instructor. He has went deaf over his whole life and can still hear a little out of left ear however he is legally deaf. He is speaking because it has came upon him so slow. And he also reads lips very good. So to see him and talk to him you would never know that he was deaf. He is really fighting me on getting hearing aids. I guess he feels that others will make fun of him and that he would not be allowed to play sports and he is a great soccer player.

Now to ATTEMPT to help you with this severe pain. I will do My SALONPAS SPEECH 1 more time LOL as I am sure you have heard different ones talking about them. Sweetie there is a very cheap, small item at Wal-Mart or your local drugs store that is a fibromites BEST FRIEND! Go to the isle that Icy Hot & Bengay and such is on! If it's Wal-Mart it will probably be bottom shelf almost hidden will be a little White & Green Box with a Blue stripe across middle with the word SALONPAS in it! To the left on the box is a person back toward you with all the fibro trigger points marked with little red dots! They are under $5.00. At Wal-Mart $3.83 for a box of 40! They are a little pain patch that works giant miracles! Most all in this group will tell you same as I RUN NOW FAST AS YOU CAN AND GRAB A BOX!!!!!!!!!! Put a patch where ever you are having pain it will lesson if not go away all together. If you are not getting a lot of relief put another in the same general area! I PROMISE this will help! Like I said they are our BEST FRIEND! And what makes me SOOOOOOO MAD is they are so simple and so cheap and work wonders in our lives but yet NO doctor or Pharmacist will tell you about them! I keep 3 or 4 boxes at all times! Sometimes I look like a mummy from Salonpas if it's a bad day! Sometimes I have from 10-20 on at a time! And what makes it even better is no matter how many you use YOU CAN NEVER OVERDOSE ON SALONPAS AND THEY ARE NOT HABIT FORMING! Now mind you the pain relief may be habit forming LOL but not the patch it self!!!!!!!!!!!!!!!! Also they never have any effect on meds you are taking. Because they are external so they do not interact with meds you take in. You can look in the photo section of the group and you will find a photo of the front of the box so you know exactly what you are looking for! SO RUN HURRY GRAB THE SALONPAS AND SIGH WITH RELIEF!!!!!!!!!!!!!!!!!!!!! A couple days ago my Hubby laughed at me every time he saw me. My head was just POUNDING and sinuses driving me nuts so I had a piece of one below my nose like a mustache, part of one on each sinus cavity, part of one on each temple, 1/2 of one on my forehead and another half on the back of my neck. I never looked in the mirror but I do bet I was a sight to see LMAO.

I saw a post from you about the little one. Hun I had that same problem. I just had to sit her down and say to her "Sweetie Mommie is very sick today so I need you to help me. I need you to be extra good today. And Mommie can't carry you today so I need you to help Mommie, can you be a big girl and hold my hand and help me to go where I need to go so Mommie won't fall down, can you do that for me." I found this way they feel big and like they are helping you. It worked very well when I would have to do it and then when you are felling well enough give them extra loving and closeness. Reward the child for being so good and helping you like a big girl. It usually really boosts their selfastime. Also they seem to understand a little more. And getting to help you on occation they feel like they are special because you picked them to be your helper. So I hope this helps you!

As for home schooling I tried it some and I just couldn't do it because I have such bad days that I couldn't keep the child on a shcedule and they thought oh I don't have to try hard this is Mama not a real teacher. So I just had no luck with it. If you try I hope you all the luck in the world. I did have some homebound at times after surgery or such, but the teacher came to the house. The kids hated it and seemed to recover faster so they could get back to school.

Love & God Bless!

/Wolf~President

I'm diagonally parked in a parallel universe.

"Therefore encourage one another and build each other up, just as in fact you are doing." 1 Thessalonians 5:11Now as I always say this at the end of my e-mails:

IF GOD BRINGS YOU TO IT.

HE WILL BRING YOU THROUGH IT.

This has became my philosophy.