Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Helen, Read Vliet's books and photocopy sections that apply to you and take those to the gyn. Do not let them talk you out of it. Darbro does the Wiley protocol full blast as far as I know. Some practitioners who prescribe the full Wiley also prescribe a 1/4 version I understand. Don't know if Darbro would be willing to do that. And if you are wanting to do OO/E it is not called the Wiley protocol anymore, neither a lesser amount. You can only titrate up from the Wiley protocol and have it still be considered the Wiley protocol. Good luck, Madeleen helen9jora wrote: The WIP sent me the name of three doctors in Columbus, the nearest city, about a two hour drive to get into the city, and about as far as I want to go this winter. I'm in southeastern Ohio. Since I am still having periods at age 50, I am wondering if any doctor who is not a WP doctor would even give me the time of day re natural hormones. I had been thinking of going to see Darbro, emailed his clinic, but they aren't responding. I said I didn't want to do the full amount of hormones as in the WP and that I wanted to use olive oil due to chemical sensitivities. Perhaps that annoyed them, who knows. Later this month I'm going to see a new gyn here but have no idea if she will be any help. I'm just thinking that most doctors would say I'm not in menopause yet and don't need hormones.However, my cycle this time was only 19 days, I get migraines more and more frequently, and when I have my period I feel so sick and weak, like I've been poisoned. I have CFIDS (chronic fatigue syndrome) and have always felt esp bad during my period which is common in that disease.Back when my fibroid was discovered in 99, I got Dr. Lee's books, but progesterone did nothing for my fibroid, which grew like crazy until I got a UAE in 2000, and it does nothing for my migraines or insomnia. It seemed to me that this was all conjecture on his part and that the only real studies he had about progesterone were in relation to post-menopausal bone loss. Fibroids are supposed to be estrogen dominant but taking progesterone did nothing for mine. I don't know what the headaches are a sign of. Right now the worst ones are hitting me about day 9 or 10. I also usually get one before my period starts. Sometimes during. At first they were hitting me about day 2, back when I was 35.I get nightsweats right before and during my period. Isn't that supposed to be low estrogen? That has been going on since I was 35 also.A year and a half ago I did a saliva test. The range for premenopause was 1 to 5 pgs/ml and I got a 6, so they decided I had estrogen dominance. From what I am reading, that doesn't sound like a high number to me now. From what I've read in your archives, saliva tests are not that accurate. Any comments or ideas would be appreciated.thanks,Helen Yahoo! Personals Single? There's someone we'd like you to meet. Lots of someones, actually. Try Yahoo! Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Helen, Have you ever had your iodine level checked via 24 hour urine test? My question is the same as 's. Maybe an iodine deficiency is causing the thyroid nodule? There are new paradigms about the thyroid and iodine which are worth looking into. Also, the migraines and night sweats sure sound like estrogen withdrawal to me. A lot of us old-timers have aborted migraines by putting estradiol in olive oil on the carotid artery or behind the ear at the first sign of a migraine. Glad you found us. Lynne > > My CFIDS specialist just tested my thyroid and it's okay, despite > having had a big nodule on it for at least 20 years.> > I started getting the migraines and nightsweats at age 35. > > Do you have to have a prescription to get the stuff you are currently > taking? The 1.5 estradiol gel?> > thanks,> Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 My CFIDS specialist just tested my thyroid and it's okay, despite having had a big nodule on it for at least 20 years. Do you have the FreeT3 and FreeT4, TSH readings......would be interesting to see them. There are some Drs. that have a different outlook on the TSH and the FT3and FT4...... ck it out when you can, http://thyroid.about.com/cs/expertinterviews/a/dommisse.htm http://www.johndommissemd.com/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Dr. Lee's theories have never been able to be bourne out in peer-reviewed scientific research. I, too, read his books and used P cream for two miserable years. My bones deteriorated during that time. As I had bone loss from hyperparathyroidism, I used the damn cream religiously. The concept of "estrogen dominance" is Lee's. For menopause, it has little or no relevance. I think Lee has really done a disservice to many women, yours truly included. I don't know why people latched onto his estrogen dominance/P cream theories. I am also very suspect of estradiol creams. There are studies about estradiol in cream form not working systemically. I use estriol cream on my face. It penetrates the most outer layers and does a good job. I am also very suspect of compounded hormones. For the most part, they have not been subjected to rigorous testing, or for that matter, to probably any testing. I used compounded sublingual tri-est and compounded oral micronized progesterone for five crying, miserable months. At the end of that time, testing showed estradiol = <15 (i.e., ziltch) and progesterone = 26. It is no wonder I was miserable. At your age, it is very likely that you're getting low E. Have you always gotten the headaches or is this relatively new? Again, low estrogen comes to mind. Also, low thyroid is a possibility. I have not read any studies that validate the use of saliva tests for female hormones. You can go get your own tests at www.lef.org or at http://www.healthcheckusa.com/ You should get your estradiol tested. It wouldn't hurt to also get tested for TSH, FREE T3 and FREE T4. Those four tests would give you an excellent idea of where you are. I use 1.5 mg estradiol gel which I buy online for $7 a month. It is the same as the US EstroGel. I rub it on a fat part once/day. I never feel it "going in" or "coming out." It takes 72 hours to build a base. Then I use either oral Prometrium (200 mg) or vaginal P suppository (50 mg) for 10-12 days/month. I'm trying to decide which I prefer. I stop the estradiol gel when a bleed comes and do not feel low estrogen for 4 or 5 days. It could be that those who feel Estrogel "coming in" or "going out" too fast may be applying it to thin skin. Val -----Original Message-----From: rhythmicliving [mailto:rhythmicliving ]On Behalf Of helen9joraBack when my fibroid was discovered in 99, I got Dr. Lee's books, but progesterone did nothing for my fibroid, which grew like crazy until I got a UAE in 2000, and it does nothing for my migraines or insomnia. It seemed to me that this was all conjecture on his part and that the only real studies he had about progesterone were in relation to post-menopausal bone loss. Fibroids are supposed to be estrogen dominant but taking progesterone did nothing for mine. I don't know what the headaches are a sign of. Right now the worst ones are hitting me about day 9 or 10. I also usually get one before my period starts. Sometimes during. At first they were hitting me about day 2, back when I was 35.I get nightsweats right before and during my period. Isn't that supposed to be low estrogen? That has been going on since I was 35 also.A year and a half ago I did a saliva test. The range for premenopause was 1 to 5 pgs/ml and I got a 6, so they decided I had estrogen dominance. From what I am reading, that doesn't sound like a high number to me now. From what I've read in your archives, saliva tests are not that accurate. Any comments or ideas would be appreciated.thanks,Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 -Hi Val: Thank you. My CFIDS specialist just tested my thyroid and it's okay, despite having had a big nodule on it for at least 20 years. I started getting the migraines and nightsweats at age 35. Do you have to have a prescription to get the stuff you are currently taking? The 1.5 estradiol gel? thanks, Helen -- In rhythmicliving , " Valarie " <val@w...> wrote: > > Dr. Lee's theories have never been able to be bourne out in peer- reviewed > scientific research. I, too, read his books and used P cream for two > miserable years. My bones deteriorated during that time. As I had bone > loss from hyperparathyroidism, I used the damn cream religiously. The > concept of " estrogen dominance " is Lee's. For menopause, it has little or > no relevance. I think Lee has really done a disservice to many women, yours > truly included. I don't know why people latched onto his estrogen > dominance/P cream theories. > > I am also very suspect of estradiol creams. There are studies about > estradiol in cream form not working systemically. I use estriol cream on my > face. It penetrates the most outer layers and does a good job. I am also > very suspect of compounded hormones. For the most part, they have not been > subjected to rigorous testing, or for that matter, to probably any testing. > I used compounded sublingual tri-est and compounded oral micronized > progesterone for five crying, miserable months. At the end of that time, > testing showed estradiol = <15 (i.e., ziltch) and progesterone = 26. It is > no wonder I was miserable. > > At your age, it is very likely that you're getting low E. Have you always > gotten the headaches or is this relatively new? Again, low estrogen comes > to mind. Also, low thyroid is a possibility. > > I have not read any studies that validate the use of saliva tests for female > hormones. You can go get your own tests at www.lef.org or at > http://www.healthcheckusa.com/ You should get your estradiol tested. It > wouldn't hurt to also get tested for TSH, FREE T3 and FREE T4. Those four > tests would give you an excellent idea of where you are. > > I use 1.5 mg estradiol gel which I buy online for $7 a month. It is the > same as the US EstroGel. I rub it on a fat part once/day. I never feel it > " going in " or " coming out. " It takes 72 hours to build a base. Then I use > either oral Prometrium (200 mg) or vaginal P suppository (50 mg) for 10-12 > days/month. I'm trying to decide which I prefer. I stop the estradiol gel > when a bleed comes and do not feel low estrogen for 4 or 5 days. It could > be that those who feel Estrogel " coming in " or " going out " too fast may be > applying it to thin skin. > > Val > -----Original Message----- > From: rhythmicliving > [mailto:rhythmicliving ]On Behalf Of helen9jora > > > Back when my fibroid was discovered in 99, I got Dr. Lee's books, but > progesterone did nothing for my fibroid, which grew like crazy until > I got a UAE in 2000, and it does nothing for my migraines or > insomnia. It seemed to me that this was all conjecture on his part > and that the only real studies he had about progesterone were in > relation to post-menopausal bone loss. > > Fibroids are supposed to be estrogen dominant but taking progesterone > did nothing for mine. > > I don't know what the headaches are a sign of. Right now the worst > ones are hitting me about day 9 or 10. I also usually get one before > my period starts. Sometimes during. At first they were hitting me > about day 2, back when I was 35. > > I get nightsweats right before and during my period. Isn't that > supposed to be low estrogen? That has been going on since I was 35 > also. > > A year and a half ago I did a saliva test. The range for premenopause > was 1 to 5 pgs/ml and I got a 6, so they decided I had estrogen > dominance. From what I am reading, that doesn't sound like a high > number to me now. From what I've read in your archives, saliva tests > are not that accurate. > > Any comments or ideas would be appreciated. > > thanks, > Helen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Madeleen: Thank you. I took Sex, Lies and Menopause back to the library and checked out Screaming to be Heard and the Sexy Years. Did ILL request for books by Reiss and . So I'm doing my homework! Wouldn't 1/4 the WP still be a lot? Helen > The WIP sent me the name of three doctors in Columbus, the nearest > city, about a two hour drive to get into the city, and about as far > as I want to go this winter. I'm in southeastern Ohio. > > Since I am still having periods at age 50, I am wondering if any > doctor who is not a WP doctor would even give me the time of day re > natural hormones. > > I had been thinking of going to see Darbro, emailed his clinic, but > they aren't responding. I said I didn't want to do the full amount of > hormones as in the WP and that I wanted to use olive oil due to > chemical sensitivities. Perhaps that annoyed them, who knows. > > Later this month I'm going to see a new gyn here but have no idea if > she will be any help. I'm just thinking that most doctors would say > I'm not in menopause yet and don't need hormones. > > However, my cycle this time was only 19 days, I get migraines more > and more frequently, and when I have my period I feel so sick and > weak, like I've been poisoned. I have CFIDS (chronic fatigue > syndrome) and have always felt esp bad during my period which is > common in that disease. > > Back when my fibroid was discovered in 99, I got Dr. Lee's books, but > progesterone did nothing for my fibroid, which grew like crazy until > I got a UAE in 2000, and it does nothing for my migraines or > insomnia. It seemed to me that this was all conjecture on his part > and that the only real studies he had about progesterone were in > relation to post-menopausal bone loss. > > Fibroids are supposed to be estrogen dominant but taking progesterone > did nothing for mine. > > I don't know what the headaches are a sign of. Right now the worst > ones are hitting me about day 9 or 10. I also usually get one before > my period starts. Sometimes during. At first they were hitting me > about day 2, back when I was 35. > > I get nightsweats right before and during my period. Isn't that > supposed to be low estrogen? That has been going on since I was 35 > also. > > A year and a half ago I did a saliva test. The range for premenopause > was 1 to 5 pgs/ml and I got a 6, so they decided I had estrogen > dominance. From what I am reading, that doesn't sound like a high > number to me now. From what I've read in your archives, saliva tests > are not that accurate. > > Any comments or ideas would be appreciated. > > thanks, > Helen > > > > > > click here for our webpage http://rhythmicliving.com/ > > **The group conversation is informational in nature and is not intended as medical advice.** > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 How could thyroid be okay if there is a big nodule on it? > > > > Dr. Lee's theories have never been able to be bourne out in peer- > reviewed > > scientific research. I, too, read his books and used P cream for > two > > miserable years. My bones deteriorated during that time. As I had > bone > > loss from hyperparathyroidism, I used the damn cream religiously. > The > > concept of " estrogen dominance " is Lee's. For menopause, it has > little or > > no relevance. I think Lee has really done a disservice to many > women, yours > > truly included. I don't know why people latched onto his estrogen > > dominance/P cream theories. > > > > I am also very suspect of estradiol creams. There are studies about > > estradiol in cream form not working systemically. I use estriol > cream on my > > face. It penetrates the most outer layers and does a good job. I > am also > > very suspect of compounded hormones. For the most part, they have > not been > > subjected to rigorous testing, or for that matter, to probably any > testing. > > I used compounded sublingual tri-est and compounded oral micronized > > progesterone for five crying, miserable months. At the end of that > time, > > testing showed estradiol = <15 (i.e., ziltch) and progesterone = > 26. It is > > no wonder I was miserable. > > > > At your age, it is very likely that you're getting low E. Have you > always > > gotten the headaches or is this relatively new? Again, low > estrogen comes > > to mind. Also, low thyroid is a possibility. > > > > I have not read any studies that validate the use of saliva tests > for female > > hormones. You can go get your own tests at www.lef.org or at > > http://www.healthcheckusa.com/ You should get your estradiol > tested. It > > wouldn't hurt to also get tested for TSH, FREE T3 and FREE T4. > Those four > > tests would give you an excellent idea of where you are. > > > > I use 1.5 mg estradiol gel which I buy online for $7 a month. It > is the > > same as the US EstroGel. I rub it on a fat part once/day. I never > feel it > > " going in " or " coming out. " It takes 72 hours to build a base. > Then I use > > either oral Prometrium (200 mg) or vaginal P suppository (50 mg) > for 10-12 > > days/month. I'm trying to decide which I prefer. I stop the > estradiol gel > > when a bleed comes and do not feel low estrogen for 4 or 5 days. > It could > > be that those who feel Estrogel " coming in " or " going out " too fast > may be > > applying it to thin skin. > > > > Val > > -----Original Message----- > > From: rhythmicliving > > [mailto:rhythmicliving ]On Behalf Of helen9jora > > > > > > Back when my fibroid was discovered in 99, I got Dr. Lee's books, > but > > progesterone did nothing for my fibroid, which grew like crazy > until > > I got a UAE in 2000, and it does nothing for my migraines or > > insomnia. It seemed to me that this was all conjecture on his part > > and that the only real studies he had about progesterone were in > > relation to post-menopausal bone loss. > > > > Fibroids are supposed to be estrogen dominant but taking > progesterone > > did nothing for mine. > > > > I don't know what the headaches are a sign of. Right now the worst > > ones are hitting me about day 9 or 10. I also usually get one > before > > my period starts. Sometimes during. At first they were hitting me > > about day 2, back when I was 35. > > > > I get nightsweats right before and during my period. Isn't that > > supposed to be low estrogen? That has been going on since I was 35 > > also. > > > > A year and a half ago I did a saliva test. The range for > premenopause > > was 1 to 5 pgs/ml and I got a 6, so they decided I had estrogen > > dominance. From what I am reading, that doesn't sound like a high > > number to me now. From what I've read in your archives, saliva > tests > > are not that accurate. > > > > Any comments or ideas would be appreciated. > > > > thanks, > > Helen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 The concept of "estrogen dominance" is Lee's. For menopause, it has little or no relevance. I think Lee has really done a disservice to many women, Great advice Val! I second the Lee idiocy also. Lee never did valid research on anything, he had a theory, practiced it on his patients, wrote a book and the fad began. In the years I worked as a Gyn nurse we had more women develop P overdose from trying otc creams and smearing them all over themselves. Many doctors who were experimental also got sucked in, Uzzie Reiss at one time was half on the bandwagon. I trust he knows better now. Lee, like Wiley never put their theories to any scrutiny in any testable population. Like Wiley some of Lee's papers that he cites were questionable at best and non applicable to the hypothesis at worse. Sammie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 I don't know, but my blood tests are normal. They ran some kind of radioactive test on it ten years ago and it ran hot, like I was hyperthyroid, but then the blood tests were normal, so they left me alone. Fine with me, I don't want my thyroid fried or whatever they do to it when you are hyperthyroid. The nodule hasn't changed that I know of. It's just sitting there. One doctor spotted it twenty years ago, Cheney spotted it ten years ago, and last summer he spotted it again. So he had some blood tests run and my local doc is keeping an eye on it as well. Symptomwise I have some of hyperthyroid and some of low. Have tried the Basal thermometer test, it always ran at the top of the normal range or a little more. Yet I feel cold most of the time. But that's something that happens in CFIDS with diastolic heart failure and circulation problems, I learned this summer. Helen > > > > > > Dr. Lee's theories have never been able to be bourne out in peer- > > reviewed > > > scientific research. I, too, read his books and used P cream > for > > two > > > miserable years. My bones deteriorated during that time. As I > had > > bone > > > loss from hyperparathyroidism, I used the damn cream > religiously. > > The > > > concept of " estrogen dominance " is Lee's. For menopause, it has > > little or > > > no relevance. I think Lee has really done a disservice to many > > women, yours > > > truly included. I don't know why people latched onto his > estrogen > > > dominance/P cream theories. > > > > > > I am also very suspect of estradiol creams. There are studies > about > > > estradiol in cream form not working systemically. I use estriol > > cream on my > > > face. It penetrates the most outer layers and does a good job. > I > > am also > > > very suspect of compounded hormones. For the most part, they > have > > not been > > > subjected to rigorous testing, or for that matter, to probably > any > > testing. > > > I used compounded sublingual tri-est and compounded oral > micronized > > > progesterone for five crying, miserable months. At the end of > that > > time, > > > testing showed estradiol = <15 (i.e., ziltch) and progesterone = > > 26. It is > > > no wonder I was miserable. > > > > > > At your age, it is very likely that you're getting low E. Have > you > > always > > > gotten the headaches or is this relatively new? Again, low > > estrogen comes > > > to mind. Also, low thyroid is a possibility. > > > > > > I have not read any studies that validate the use of saliva > tests > > for female > > > hormones. You can go get your own tests at www.lef.org or at > > > http://www.healthcheckusa.com/ You should get your estradiol > > tested. It > > > wouldn't hurt to also get tested for TSH, FREE T3 and FREE T4. > > Those four > > > tests would give you an excellent idea of where you are. > > > > > > I use 1.5 mg estradiol gel which I buy online for $7 a month. > It > > is the > > > same as the US EstroGel. I rub it on a fat part once/day. I > never > > feel it > > > " going in " or " coming out. " It takes 72 hours to build a base. > > Then I use > > > either oral Prometrium (200 mg) or vaginal P suppository (50 mg) > > for 10-12 > > > days/month. I'm trying to decide which I prefer. I stop the > > estradiol gel > > > when a bleed comes and do not feel low estrogen for 4 or 5 > days. > > It could > > > be that those who feel Estrogel " coming in " or " going out " too > fast > > may be > > > applying it to thin skin. > > > > > > Val > > > -----Original Message----- > > > From: rhythmicliving > > > [mailto:rhythmicliving ]On Behalf Of helen9jora > > > > > > > > > Back when my fibroid was discovered in 99, I got Dr. Lee's > books, > > but > > > progesterone did nothing for my fibroid, which grew like crazy > > until > > > I got a UAE in 2000, and it does nothing for my migraines or > > > insomnia. It seemed to me that this was all conjecture on his > part > > > and that the only real studies he had about progesterone were > in > > > relation to post-menopausal bone loss. > > > > > > Fibroids are supposed to be estrogen dominant but taking > > progesterone > > > did nothing for mine. > > > > > > I don't know what the headaches are a sign of. Right now the > worst > > > ones are hitting me about day 9 or 10. I also usually get one > > before > > > my period starts. Sometimes during. At first they were hitting > me > > > about day 2, back when I was 35. > > > > > > I get nightsweats right before and during my period. Isn't that > > > supposed to be low estrogen? That has been going on since I > was 35 > > > also. > > > > > > A year and a half ago I did a saliva test. The range for > > premenopause > > > was 1 to 5 pgs/ml and I got a 6, so they decided I had estrogen > > > dominance. From what I am reading, that doesn't sound like a > high > > > number to me now. From what I've read in your archives, saliva > > tests > > > are not that accurate. > > > > > > Any comments or ideas would be appreciated. > > > > > > thanks, > > > Helen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Hi Lynne: I am sure glad I found you guys too. Back in 95 Cheney had me do some kind of overnight urine test called an ION test, I should see if there was an iodine level in there. Or ask him about it next time I talk to him. Somewhere I read about some skin test I could do myself, you put iodine from the drugstore on yourself and see how fast it absorbs. If it's fast then you are deficient. I need to look the exact details up if I can remember where I read about it. Am reading the Uzzi Reiss interview in the Sexy Years right now. He talks about body types. Twiggy types are low estrogen and testosterone. I was a definite Twiggy type, who gained 20 lbs last year. All of it fat. People tell me I look better but they can't see my fat sagging butt, LOL! For many years I was a vegetarian, eating eggs and dairy for protein, both of which I turned out to be allergic to, of course. I started eating chicken occasionally in mid thirties but I bet it wasn't enough protein to get my hormones going, plus having CFIDS is a tremendous drain and disruption upon all body systems. I thought I'd hit menopause at 45 but I'm still chugging along with poison type periods at 50, feeling worse every year. So when I started having those nightsweats and migraines in my mid thirties, I bet it was low estrogen and still is. thanks for all of your help, Helen > > > Helen, > > > Have you ever had your iodine level checked via 24 hour urine test? My > question is the same as 's. Maybe an iodine deficiency is causing the thyroid > nodule? There are new paradigms about the thyroid and iodine which are worth > looking into. > > Also, the migraines and night sweats sure sound like estrogen withdrawal to > me. A lot of us old-timers have aborted migraines by putting estradiol in > olive oil on the carotid artery or behind the ear at the first sign of a > migraine. > > Glad you found us. > > Lynne > > > > > My CFIDS specialist just tested my thyroid and it's okay, despite > > having had a big nodule on it for at least 20 years. > > > > I started getting the migraines and nightsweats at age 35. > > > > Do you have to have a prescription to get the stuff you are > currently > > taking? The 1.5 estradiol gel? > > > > thanks, > > Helen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2005 Report Share Posted December 5, 2005 You know Lynne - I hear lots of women with " nodules " on their thyroid gland. All their doctors " watch " ! > > > Helen, > > > Have you ever had your iodine level checked via 24 hour urine test? My > question is the same as 's. Maybe an iodine deficiency is causing the thyroid > nodule? There are new paradigms about the thyroid and iodine which are worth > looking into. > > Also, the migraines and night sweats sure sound like estrogen withdrawal to > me. A lot of us old-timers have aborted migraines by putting estradiol in > olive oil on the carotid artery or behind the ear at the first sign of a > migraine. > > Glad you found us. > > Lynne > > > > > My CFIDS specialist just tested my thyroid and it's okay, despite > > having had a big nodule on it for at least 20 years. > > > > I started getting the migraines and nightsweats at age 35. > > > > Do you have to have a prescription to get the stuff you are > currently > > taking? The 1.5 estradiol gel? > > > > thanks, > > Helen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2005 Report Share Posted December 5, 2005 >Maybe an iodine deficiency is causing the thyroid > nodule? There are new paradigms about the thyroid >and iodine which are worth looking into. Goiters and nodules are usually treated successfully with the right type of thyroid hormones and iodine, and sometimes female hormones. Goiters and nodules are basically from a sick thyroid gland working overtime " trying " to produce enough thyroid hormones to keep it's transportation device (the human body) alive. When the root of the problem is addressed correctly, the nodules and goiters stop being an issue. > > My CFIDS specialist just tested my thyroid and it's okay, Did I ever respond to this? The fact that your " numbers " (probably T4 and TSH) are " within normal range " does not mean you're ok. You have a big nodule on your thyroid. I figure it might be the 'elephant in the living room' to your dr. Sam (thyroid-less, ovary-less and Armour-ized) k9gang@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 I dug out my tests, can't find one of them, T4 is .99. From what I remember the TSH was 2.5 or right in the middle of the range. I have worse problems than my thyroid, it may have gotten the nodule in reaction to what else was going on with the CFIDS, which is considered to be a viral attack on my heart. http://thyroid.about.com/gi/dynamic/offsite.htm?zi=1/XJ & sdn=thyroid & zu=http%3A%2F%2Fwww.thyroid-info.com%2Farticles%2Fdommisse.htm Helen, I think you may find this article very enlightening about thyroid. Dr. Dommisse is helping me right now, he's a wealth of knowledge.....let me know what you think, http://www.johndommissemd.com/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 Thank you. I need to find the results of the test my local doctor did last spring, because it has all this information on it, I think.Then I would know where I was, at least.Thanks for the website!Helen Helen, that will be good to compare to, BUT won't help you much for the RIGHT NOW, LOL So much to learn, but nice to see there are Drs. out there, that do have a clue, hope you find Dr. Dommisse info helpful, can print it out and take it with you, or for notes to look at later, good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 I dug out my tests, can't find one of them, T4 is .99. From what I remember the TSH was 2.5 or right in the middle of the range. I have worse problems than my thyroid, it may have gotten the nodule in reaction to what else was going on with the CFIDS, which is considered to be a viral attack on my heart. Still waiting for treatment for that. Cheney is looking at the heart as the elephant in the living room. I remember him saying something like my low DHEA level might be to slow my thyroid down, back in 95. Whatever goes on in CFIDS is well-known to disrupt most systems in the body, endocrine being one of them. Helen > > >Maybe an iodine deficiency is causing the thyroid > > nodule? There are new paradigms about the thyroid > >and iodine which are worth looking into. > > Goiters and nodules are usually treated successfully with the right type of > thyroid hormones and iodine, and sometimes female hormones. Goiters and > nodules are basically from a sick thyroid gland working overtime " trying " to > produce enough thyroid hormones to keep it's transportation device (the > human body) alive. When the root of the problem is addressed correctly, the > nodules and goiters stop being an issue. > > > > My CFIDS specialist just tested my thyroid and it's okay, > > Did I ever respond to this? The fact that your " numbers " (probably T4 and > TSH) are " within normal range " does not mean you're ok. You have a big > nodule on your thyroid. I figure it might be the 'elephant in the living > room' to your dr. > > Sam > (thyroid-less, ovary-less and Armour-ized) > k9gang@o... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 Thank you. I need to find the results of the test my local doctor did last spring, because it has all this information on it, I think. Then I would know where I was, at least. Thanks for the website! Helen > > > In a message dated 12/6/2005 6:19:17 AM Pacific Standard Time, > helenjora@h... writes: > > I dug out my tests, can't find one of them, T4 is .99. From what I > remember the TSH was 2.5 or right in the middle of the range. I have > worse problems than my thyroid, it may have gotten the nodule in > reaction to what else was going on with the CFIDS, which is > considered to be a viral attack on my heart. > > > _http://thyroid.about.com/gi/dynamic/offsite.htm? zi=1/XJ & sdn=thyroid & zu=http%3 > A%2F%2Fwww.thyroid-info.com%2Farticles%2Fdommisse.htm_ > (http://thyroid.about.com/gi/dynamic/offsite.htm? zi=1/XJ & sdn=thyroid & zu=http://www.thyroid-info.com/a > rticles/dommisse.htm) > > Helen, I think you may find this article very enlightening about thyroid. > Dr. Dommisse is helping me right now, he's a wealth of knowledge.....let me know > what you think, > > _http://www.johndommissemd.com/index.html_ > (http://www.johndommissemd.com/index.html) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 see this doc is in Tuczon and I'm in Ohio. Oh well. I generally just go places within a day's drive. Cheney is 7 hours. But I will mull this over and check out the iodine.thank you!Helen He does phone consults too............do you know your Free T3 and your Free T4 #'s ??? When my TSH got up to 1.90 I was very hypo in my symptoms, even at 1.18 . Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 I found it, the TSH was 2.22. My local doctor was not concerned with that but she wants to keep an eye on my thyroid. I can print that article out and take it to her next time which will be a while, unfortunately. Cheney would be more the one to ask, except he's focused on this heart issue that has been discovered to nearly the exclusion of everything else, seems like. I see this doc is in Tuczon and I'm in Ohio. Oh well. I generally just go places within a day's drive. Cheney is 7 hours. But I will mull this over and check out the iodine. thank you! Helen > > > In a message dated 12/6/2005 10:46:14 AM Pacific Standard Time, > helenjora@h... writes: > > Thank you. I need to find the results of the test my local doctor did > last spring, because it has all this information on it, I think. > > Then I would know where I was, at least. > > Thanks for the website! > > Helen > > > > Helen, that will be good to compare to, BUT > won't help you much for the RIGHT NOW, LOL > So much to learn, but nice to see there are Drs. out there, > that do have a clue, > hope you find Dr. Dommisse info helpful, > can print it out and take it with you, > or for notes to look at later, good luck, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 helen9jora wrote: I found it, the TSH was 2.22. My local doctor was not concerned with that but she wants to keep an eye on my thyroid. I see this doc is in Tuczon and I'm in Ohio. Oh well. I generally just go places within a day's drive. Cheney is 7 hours. Helen, I understand he will be happy to do phone consults. He is not cheap however and does very thorough testing - I believe his initial fee is somewhere around $430! The more I read his information, the more I think he has a LOT to offer. He may even be able to help you with your heart issue??? if Cheney can't. Madeleen >> > In a message dated 12/6/2005 10:46:14 AM Pacific Standard Time, > helenjora@h... writes:> > Thank you. I need to find the results of the test my local doctor did > last spring, because it has all this information on it, I think.> > Then I would know where I was, at least.> > Thanks for the website!> > Helen> > > > Helen, that will be good to compare to, BUT > won't help you much for the RIGHT NOW, LOL> So much to learn, but nice to see there are Drs. out there, > that do have a clue, > hope you find Dr. Dommisse info helpful, > can print it out and take it with you, > or for notes to look at later, good luck, >click here for our webpage http://rhythmicliving.com/**The group conversation is informational in nature and is not intended as medical advice.** Yahoo! DSL Something to write home about. Just $16.99/mo. or less Yahoo! Personals Let fate take it's course directly to your email. See who's waiting for you Yahoo! Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 Well, I'll check it out. Waiting on this drug therapy from Cheney right now and he's waiting on the $!$!!! FDA to allow the drug in from Canada, it's porcine heart stem cells, yummy. Very complicated scenario. But he thinks he's found the cause and cure at long last. We shall see. thanks, Helen > > > > > > In a message dated 12/6/2005 10:46:14 AM Pacific Standard Time, > > helenjora@h... writes: > > > > Thank you. I need to find the results of the test my local doctor > did > > last spring, because it has all this information on it, I think. > > > > Then I would know where I was, at least. > > > > Thanks for the website! > > > > Helen > > > > > > > > Helen, that will be good to compare to, BUT > > won't help you much for the RIGHT NOW, LOL > > So much to learn, but nice to see there are Drs. out there, > > that do have a clue, > > hope you find Dr. Dommisse info helpful, > > can print it out and take it with you, > > or for notes to look at later, good luck, > > > > > > > > > click here for our webpage http://rhythmicliving.com/ > > **The group conversation is informational in nature and is not intended as medical advice.** > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 my T4 is .99. Don't know what that means. Helen > > > In a message dated 12/6/2005 12:41:17 PM Pacific Standard Time, > helenjora@h... writes: > > see this doc is in Tuczon and I'm in Ohio. Oh well. I generally > just go places within a day's drive. Cheney is 7 hours. > > But I will mull this over and check out the iodine. > > thank you! > > Helen > > > > He does phone consults too............do you know your Free T3 and your Free > T4 #'s ??? > When my TSH got up to 1.90 I was very hypo in my symptoms, even at 1.18 . > Take care, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 helen9jora wrote: FDA to allow the drug in from Canada, it's porcine heart stem cells, yummy. Helen, tell us more about that. Sounds interesting. Madeleen> >> > > > In a message dated 12/6/2005 10:46:14 AM Pacific Standard Time, > > helenjora@h... writes:> > > > Thank you. I need to find the results of the test my local doctor > did > > last spring, because it has all this information on it, I think.> > > > Then I would know where I was, at least.> > > > Thanks for the website!> > > > Helen> > > > > > > > Helen, that will be good to compare to, BUT > > won't help you much for the RIGHT NOW, LOL> > So much to learn, but nice to see there are Drs. out there, > > that do have a clue, > > hope you find Dr. Dommisse info helpful, > > can print it out and take it with you, > > or for notes to look at later, good luck, > >> > > > > > > click here for our webpage http://rhythmicliving.com/> > **The group conversation is informational in nature and is not intended as medical advice.** > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 CoQ10. He Yes, and COQ-10 should be taken with statin drugs as statins deplete Q-10 even further. Sammie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Helen, I was just reading your story and thought I'd mention this. You might already know it but just in case. I was at a conference a few weeks ago and heard a cardiologist, Langsjoen, discuss CoQ10. He said most of us are deficient because we rarely eat organ meat. I've upped CoQ10 from a desiccated heart supplement although he said he just uses a costco brand. (I tend to use whole foods whenever possible). Below is one of his studies: http://faculty.washington.edu/ely/coenzq10abs.html Lynn Abstract: Coenzyme Q10 (CoQ10) is indispensable in mitochondrial bioenergetics and for human life to exist. 88/115 patients completed a trial of therapy with CoQ10 for cardiomyopathy. Patients were selected on the basis of clinical criteria, X- rays, electrocardiograms, echocardiography, and coronary angiography. Responses were monitored by ejection fractions, cardiac output, and improvements in functional classifications (NYHA). Of the 88 patients 75%-85% showed statistically significant increases in two monitored cardiac parameters. Patients with the lowest ejection fractions (approx. 10%-30%) showed the highest increases (115 delta %-210 delta %) and those with higher ejection fractions (50%-80%) showed increases of approx. 10 delta %-25 delta % on therapy. By functional classification, 17/21 in class IV, 52/62 in class III, and 4/5 in class II improved to lower classes. Clinical responses appeared over variable times, and are presumably based on mechanisms of DNA-RNA-protein synthesis of apoenzymes which restore levels of CoQ10 enzymes in a deficiency state. 10/21 (48%) of patients in class IV, 26/62 (42%) in class III, and 2/5 (40%) in class II had exceptionally low control blood levels of CoQ10. Clinical responses on therapy with CoQ10 appear maximal with blood levels of approx. 2.5 micrograms CoQ10/ml and higher during therapy. > > > > > > In a message dated 12/7/2005 7:10:16 AM Pacific Standard Time, > > helenjora@h... writes: > > > > It's very complicated. I got a video of Cheney talking to CFIDS > > patients last June, it runs three and a half hours. I saw him also > in > > June and he went five hours, mostly telling me about this stuff. > > > > > > > > OMG ....Helen, WOWOWOWOW what can I say, BUT I wish you would send > that same > > note to Dr. Dommisse, with a big SOS.........couldn't hurt to have > him read > > your note.......He may or may not respond, worth a shot. I know > adrenals do > > alot of the things you mentioned as do thyroid, and if you are put > on too much > > T3 it will have that palps effect with low adrenals too.....I > would send the > > story to Domm, and see what he says.......please fw the response > to us,if you > > get one, I'd loved to know more about this, XOXOXOX > > > > _john@j..._ (mailto:john@j...) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Thanks, Lynne: Cheney has been advocating CoQ10 for some time and it is in one of the supplements I take, the Ultimate Meal, that he put me on this summer. Helen > > > > > > > > > In a message dated 12/7/2005 7:10:16 AM Pacific Standard Time, > > > helenjora@h... writes: > > > > > > It's very complicated. I got a video of Cheney talking to CFIDS > > > patients last June, it runs three and a half hours. I saw him > also > > in > > > June and he went five hours, mostly telling me about this stuff. > > > > > > > > > > > > OMG ....Helen, WOWOWOWOW what can I say, BUT I wish you would > send > > that same > > > note to Dr. Dommisse, with a big SOS.........couldn't hurt to > have > > him read > > > your note.......He may or may not respond, worth a shot. I know > > adrenals do > > > alot of the things you mentioned as do thyroid, and if you are > put > > on too much > > > T3 it will have that palps effect with low adrenals too.....I > > would send the > > > story to Domm, and see what he says.......please fw the > response > > to us,if you > > > get one, I'd loved to know more about this, XOXOXOX > > > > > > _john@j..._ (mailto:john@j...) > > > > > > Quote Link to comment Share on other sites More sharing options...
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