Re: getting well

[Guest guest]

I am following her instructions to a T and Iam relieved I am now not alone in this pioneering landof HRT.Happy new year to you all. Danna

GOOD FOR YOU, YEAH!!!!!!!!!!!!!!!!!!!!!! one made it to the otherside:)).

What dose is your Dot?????

I seemed to use my patch up in a day or two.....

glad you're doing so well )

[Guest guest]

Hi Danna,

congratulations to such a success, keept it going! And

thanks so much for your sharing it with us ! I Wish we all had access to

such a Pro as you have in Dr. Vliet. Since you hadn't had periods for a long

time (?), I wonder how you /Dr. Vliet determined when to start those 12 days

of prometrium. Are you using the " crinone " /now " prochieve " gel? and how much

per might ? I have recently had a uterine scan which showed 10mm, and since

otherwise I seem to be okay hormone & energywise,

I decided to go with the prochieve, lowest dose since I seem to be

" progesterone dominant " , I still don't know when to start the 12 days to

hopefully get a shedding effect going... ? How many months did you do the

12-day thing until you had the bleeding ?

Cheereo,

Charlotte

getting well

> Hey guys,

>

> About three months ago, I got tired of flailing around

> in fear and doubt and speculating and adjusting doses

> of hormones randomly myself after going off the Wiley

> Protocol because all the docs I had tried hadn't

> really helped my intense fatigue, depression, low

> energy, uterine hyperplasia, weird symptoms, so I

> decided to go with an expert, Dr. Vliet. My

> estradiol in 3 months went from about 50 to 144 at

> last reading, TSH came down to normal, T3 and T4 are

> ok, and I feel like I am coming alive again. What is

> working for me is Vivelle Dot (estradiol) a patch

> which delivers a steady dose of estradiol and I don't

> seem to have those roller coaster fluctuations with

> the cycled Wiley Protocol and other cycled protocols I

> was trying. And so nice not to have to be a slave to

> the clock and those creams! I use Prometrium

> vaginally 12 days out of the month or every 6 weeks.

> On Synthroid for thyroid and now starting

> testosterone since she feels my estradiol is now

> stabilized. It makes sense to me that regular steady

> doses beat the cycling style because I find my mood

> and mental function now are almost consistently in the

> ballpark (no depression) instead of fluctuating and

> making me nuts. A few months ago I had an ultra

> sound and uterine biopsy that revealed a 2 centimeter

> endometrial growth that I couldn't shed despite

> several different hormone protocols prescribed by

> several docs. I never had a good bleed that shed the

> lining for years. The past two months I've had 2 good

> bleeds with red blood and clots......hooray, finally

> shedding the overgrowth. I've been using blood

> values to check levels, not saliva. I could

> speculate about what works and what doesn't till the

> cows come home but the proof of the pudding for me is

> hard facts: Altho all my symptoms haven't completely

> abated I feel much better than I have in a long time

> and it is worth the expense to work with somebody I

> trust. I am following her instructions to a T and I

> am relieved I am now not alone in this pioneering land

> of HRT.

>

> Happy new year to you all. Danna

>

>

>

>

> __________________________________

> Yahoo! for Good - Make a difference this year.

> http://brand.yahoo.com/cybergivingweek2005/

>

>

>

> click here for our webpage http://rhythmicliving.com/

>

> **The group conversation is informational in nature and is not intended as

> medical advice.**

>

[Guest guest]

Hi Dana, Thanks so much for sharing this! How often do you put the Vivelle dot on? Congrats on the bleed and to be on the way to feel better. Tell us more how you like Vliet herself. I am envious! Happy New Year to you too! Madeleen Dana Buckner wrote: Hey guys,About three months ago, I got tired of flailing aroundin fear and doubt and speculating and adjusting dosesof hormones randomly myself after going off the WileyProtocol because all the docs I had tried hadn'treally helped my intense fatigue, depression, lowenergy, uterine hyperplasia, weird symptoms, so Idecided to go with an expert, Dr. Vliet. Myestradiol in 3 months went from about 50 to 144 atlast reading, TSH came down

to normal, T3 and T4 areok, and I feel like I am coming alive again. What isworking for me is Vivelle Dot (estradiol) a patchwhich delivers a steady dose of estradiol and I don'tseem to have those roller coaster fluctuations withthe cycled Wiley Protocol and other cycled protocols Iwas trying. And so nice not to have to be a slave tothe clock and those creams! I use Prometriumvaginally 12 days out of the month or every 6 weeks. On Synthroid for thyroid and now startingtestosterone since she feels my estradiol is nowstabilized. It makes sense to me that regular steadydoses beat the cycling style because I find my moodand mental function now are almost consistently in theballpark (no depression) instead of fluctuating andmaking me nuts. A few months ago I had an ultrasound and uterine biopsy that revealed a 2 centimeterendometrial growth that I couldn't shed

despiteseveral different hormone protocols prescribed byseveral docs. I never had a good bleed that shed thelining for years. The past two months I've had 2 goodbleeds with red blood and clots......hooray, finallyshedding the overgrowth. I've been using bloodvalues to check levels, not saliva. I couldspeculate about what works and what doesn't till thecows come home but the proof of the pudding for me ishard facts: Altho all my symptoms haven't completelyabated I feel much better than I have in a long timeand it is worth the expense to work with somebody Itrust. I am following her instructions to a T and Iam relieved I am now not alone in this pioneering landof HRT.Happy new year to you all. Danna __________________________________ Yahoo! for

Good - Make a difference this year. http://brand.yahoo.com/cybergivingweek2005/

Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

[Guest guest]

Happy New Year Everyone,

I am so grateful this year for you all who have shared

so much of yourselves, done so much valuable research

that I didn't have time or inclination to do myself,

and grateful for the Wiley Protocol that helped move

me to a place of desperation so I could mobilize to

find competent help.

I want to answer the questions you guys put out in

response to my report about the protocol Dr. Vliet has

put me on.

Vivelle Dot dose: 0.1mg estradiol patches --changing

them three times weekly. Since I am still having mild

hot flashes some nights and what I think is a PMS

reaction at the end of Prometrium dosing, she

suggested in addition I use EstroGel, one pump at

night while on estradiol alone and one pump two times

daily when I am on the 12 day a month Prometrium. She

suggested I may be still coming down from high WP

doses which I quit 3 months ago. I asked her if I

could keep the old patch on for a couple days more

after I have applied a new one and she said that was

fine.

In regard to Prometrium I am using 100mg vaginally.

(Those little orange round capsules are really meant

to be oral but Vliet suggested using them vaginally

(more direct to uterus and less systemic effect that

way) She said I could start the 12 day cycle every 4

to 6 weeks. Some do it only every 3 months or so but

with my fibroids she said this regimen would be

better. I got a good bleed starting about 4 days

after I stopped the Prometrium on my first cycle, 2

days of red clotty blood and a couple days more of

tapering down. Same thing next cycle. Twice now. She

said the two day full bleed was enough.

The woman herself. My subjective impressions:

Dignified, competent, thorough, available to address

questions and concerns, attractive, certainly fills a

room with a presence of authority that comes with long

experience. She wants to come to communities to speak

to people who are interested and invites anyone to

organize presentations in their cities.

I share this with you if there is anything of value in

it that may help, but please don't assume that the

regimin I am on is for you. I think this has been a

danger on internet sites, lay people giving advice to

other lay people that may be totally erroneous. I

really thought I may have been finished, that at 60

years old I was winding down to some kind of death.

But the Great Spirit has a way of surprising me,

sometimes at the 13th

hour.................................

May you all find peace and healing.

Danna

__________________________________

Yahoo! for Good - Make a difference this year.

http://brand.yahoo.com/cybergivingweek2005/

[Guest guest]

Thanks much for your information.

Dana, still one question. What did Dr. Vliet tell you to do during the bleeds? Do you go off all estradiol during that time?

I found 100 mg Prometrium vaginally gave me severe OD symptoms (sore breasts, etc.). Now, I'm using 50 mg progesterone suppository for 10 days. I need to get another ultrasound and then may stretch the cycles out. I hate being off Estrogel for 5 - 7 days a month.

Val

-----Original Message-----From: rhythmicliving [mailto:rhythmicliving ]On Behalf Of Dana BucknerHappy New Year Everyone,I am so grateful this year for you all who have sharedso much of yourselves, done so much valuable researchthat I didn't have time or inclination to do myself,and grateful for the Wiley Protocol that helped moveme to a place of desperation so I could mobilize tofind competent help.I want to answer the questions you guys put out inresponse to my report about the protocol Dr. Vliet hasput me on.Vivelle Dot dose: 0.1mg estradiol patches --changingthem three times weekly. Since I am still having mildhot flashes some nights and what I think is a PMSreaction at the end of Prometrium dosing, shesuggested in addition I use EstroGel, one pump atnight while on estradiol alone and one pump two timesdaily when I am on the 12 day a month Prometrium. Shesuggested I may be still coming down from high WPdoses which I quit 3 months ago. I asked her if Icould keep the old patch on for a couple days moreafter I have applied a new one and she said that wasfine.In regard to Prometrium I am using 100mg vaginally. (Those little orange round capsules are really meantto be oral but Vliet suggested using them vaginally(more direct to uterus and less systemic effect thatway) She said I could start the 12 day cycle every 4to 6 weeks. Some do it only every 3 months or so butwith my fibroids she said this regimen would bebetter. I got a good bleed starting about 4 daysafter I stopped the Prometrium on my first cycle, 2days of red clotty blood and a couple days more oftapering down. Same thing next cycle. Twice now. Shesaid the two day full bleed was enough.The woman herself. My subjective impressions: Dignified, competent, thorough, available to addressquestions and concerns, attractive, certainly fills aroom with a presence of authority that comes with longexperience. She wants to come to communities to speakto people who are interested and invites anyone toorganize presentations in their cities.I share this with you if there is anything of value init that may help, but please don't assume that theregimin I am on is for you. I think this has been adanger on internet sites, lay people giving advice toother lay people that may be totally erroneous. Ireally thought I may have been finished, that at 60years old I was winding down to some kind of death.But the Great Spirit has a way of surprising me,sometimes at the 13thhour.................................May you all find peace and healing.Danna

[Guest guest]

Hi Dana,

I would love to see Dr. Vliet. If I added up all the expenses for the Dr.s I saw

in my local

area (NY) I probably could have paid to fly out and see her. I am currently also

on Vivelle

..1mg (change it about every 2 days) and I take some extra E2 (transdermal) and

have not

taken any P for a few months now. I did get a period without the P (still have

working

ovaries 44) but now I am about 2 mos without and just started taking a little P

gel to bring

on the period.

I am waiting for Vliets book on PCOS to be released and I think I would like to

see her

sometime in the Spring.

I am glad you posted in regard to Vliet because I have been really thinking

about seeing

her and didn't really want to spend the money but I think in the long run its

worth it.

Once she sees you in person can you deal with her over the phone after that?

Thanks Karin

>

> Happy New Year Everyone,

>

> I am so grateful this year for you all who have shared

> so much of yourselves, done so much valuable research

> that I didn't have time or inclination to do myself,

> and grateful for the Wiley Protocol that helped move

> me to a place of desperation so I could mobilize to

> find competent help.

>

> I want to answer the questions you guys put out in

> response to my report about the protocol Dr. Vliet has

> put me on.

>

> Vivelle Dot dose: 0.1mg estradiol patches --changing

> them three times weekly. Since I am still having mild

> hot flashes some nights and what I think is a PMS

> reaction at the end of Prometrium dosing, she

> suggested in addition I use EstroGel, one pump at

> night while on estradiol alone and one pump two times

> daily when I am on the 12 day a month Prometrium. She

> suggested I may be still coming down from high WP

> doses which I quit 3 months ago. I asked her if I

> could keep the old patch on for a couple days more

> after I have applied a new one and she said that was

> fine.

>

> In regard to Prometrium I am using 100mg vaginally.

> (Those little orange round capsules are really meant

> to be oral but Vliet suggested using them vaginally

> (more direct to uterus and less systemic effect that

> way) She said I could start the 12 day cycle every 4

> to 6 weeks. Some do it only every 3 months or so but

> with my fibroids she said this regimen would be

> better. I got a good bleed starting about 4 days

> after I stopped the Prometrium on my first cycle, 2

> days of red clotty blood and a couple days more of

> tapering down. Same thing next cycle. Twice now. She

> said the two day full bleed was enough.

>

> The woman herself. My subjective impressions:

> Dignified, competent, thorough, available to address

> questions and concerns, attractive, certainly fills a

> room with a presence of authority that comes with long

> experience. She wants to come to communities to speak

> to people who are interested and invites anyone to

> organize presentations in their cities.

>

> I share this with you if there is anything of value in

> it that may help, but please don't assume that the

> regimin I am on is for you. I think this has been a

> danger on internet sites, lay people giving advice to

> other lay people that may be totally erroneous. I

> really thought I may have been finished, that at 60

> years old I was winding down to some kind of death.

>

> But the Great Spirit has a way of surprising me,

> sometimes at the 13th

> hour.................................

>

> May you all find peace and healing.

>

> Danna

>

>

>

>

> __________________________________

> Yahoo! for Good - Make a difference this year.

> http://brand.yahoo.com/cybergivingweek2005/

>

[Guest guest]

Danna,

THANK YOU so much for posting your info and visit with Dr. Vliet.

I was also glad to hear her acknowledge, that you may be still coming down off WP.

She has helped me SO much, thru her books, coming off WP.

It is so good to hear all you share,

HAPPY and HEALTH NEW YEAR,

[Guest guest]

I'm tempted to ask for a patch myself but I'm such a sensitive allergic person that I know that glue will really bother me.

I'm VERY sensitive too, have to even cut lables out of my clothes, LOL. I have tried the Dot, estraderm, climara...........the climara had the stickiest back, couldn't use them.The .1mg V. Dot was the nicest, BUT didn't give me enough E, but two may work.....I could ONLY use them on my legs. I thought my butt would be OK, but NO....couldn't use the other spots they recomend either, THIS may be why I whipped thru um fast too, lasted a day to day and 1/2. Same with the estraderm, the estraderm has more E but doen't stay put as well.......I still use the estraderm now and then, you can get them online too. Worth a shot.....you may love them? OH I get good to high readings with the OOE, how much were you using?? and how often?? I am good at 2mgs. in 5-6 hour intervals.....I range from 8-12 mgs. a day. My Dr. has me weaning off WP slowly, at 6 mgs. a day I start to loose hair, like a dog shedding, but 8-12 I do good. No P, don't have parts, Good luck, don't give up,

[Guest guest]

but why did I bleed so heavily?

>if your thyroid is off it will mess up your periods too,

>yours may not be normal for YOU, even though it is in range.

>do you have any old labs, from when you felt good?

>

[Guest guest]

the more I think about this, the more it makes sense. I'm tempted

to get myself on a patch. I've had it. The E creams and OO I've

used seem to have NO effect on me whatsoever. My estradiol levels

are always in the 30s! I'm tempted to ask for a patch myself but

I'm such a sensitive allergic person that I know that glue will

really bother me. This gyno I saw the other day would not

prescribed Prometrium. He wanted to give me Megace to stop the

bleeding. He looked at me cross-eyed when I told him I wouldn't use

anything synthetic. ly, I was just too tired to explain to

him. I used my Crinone Gel and the bleeding stopped.

>

> Hey guys,

>

> About three months ago, I got tired of flailing around

> in fear and doubt and speculating and adjusting doses

> of hormones randomly myself after going off the Wiley

> Protocol because all the docs I had tried hadn't

> really helped my intense fatigue, depression, low

> energy, uterine hyperplasia, weird symptoms, so I

> decided to go with an expert, Dr. Vliet. My

> estradiol in 3 months went from about 50 to 144 at

> last reading, TSH came down to normal, T3 and T4 are

> ok, and I feel like I am coming alive again. What is

> working for me is Vivelle Dot (estradiol) a patch

> which delivers a steady dose of estradiol and I don't

> seem to have those roller coaster fluctuations with

> the cycled Wiley Protocol and other cycled protocols I

> was trying. And so nice not to have to be a slave to

> the clock and those creams! I use Prometrium

> vaginally 12 days out of the month or every 6 weeks.

> On Synthroid for thyroid and now starting

> testosterone since she feels my estradiol is now

> stabilized. It makes sense to me that regular steady

> doses beat the cycling style because I find my mood

> and mental function now are almost consistently in the

> ballpark (no depression) instead of fluctuating and

> making me nuts. A few months ago I had an ultra

> sound and uterine biopsy that revealed a 2 centimeter

> endometrial growth that I couldn't shed despite

> several different hormone protocols prescribed by

> several docs. I never had a good bleed that shed the

> lining for years. The past two months I've had 2 good

> bleeds with red blood and clots......hooray, finally

> shedding the overgrowth. I've been using blood

> values to check levels, not saliva. I could

> speculate about what works and what doesn't till the

> cows come home but the proof of the pudding for me is

> hard facts: Altho all my symptoms haven't completely

> abated I feel much better than I have in a long time

> and it is worth the expense to work with somebody I

> trust. I am following her instructions to a T and I

> am relieved I am now not alone in this pioneering land

> of HRT.

>

> Happy new year to you all. Danna

>

>

>

>

> __________________________________

> Yahoo! for Good - Make a difference this year.

> http://brand.yahoo.com/cybergivingweek2005/

>

[Guest guest]

.. The E creams and OO I've

used seem to have NO effect on me whatsoever. My estradiol levels

are always in the 30s!

, I used the creams and OO, and using 12mg per day, got a level of 112.

My doc had no trouble writing the script at all, and in fact I use a bit

more than that now. You are using far less and getting far less satisfaction

and your levels show it. I wanted to use less, and tried for many months. I

did not get any relief until I used 9mg per day. Is your doc limiting you

even with a level of 30?

nne

[Guest guest]

Yup -but why did I bleed so heavily? How could my uterine lining

build up if I'm getting hot flashes from low E? I can't think of

why I would bleed other than too MUCH E.

It makes no sense!

>

> . The E creams and OO I've

> used seem to have NO effect on me whatsoever. My estradiol levels

> are always in the 30s!

>

> , I used the creams and OO, and using 12mg per day, got a

level of 112.

> My doc had no trouble writing the script at all, and in fact I use

a bit

> more than that now. You are using far less and getting far less

satisfaction

> and your levels show it. I wanted to use less, and tried for many

months. I

> did not get any relief until I used 9mg per day. Is your doc

limiting you

> even with a level of 30?

> nne

>

[Guest guest]

Grrrrrrr. It's hopeless!!

>

>

> In a message dated 1/4/2006 12:44:28 PM Pacific Standard Time,

> merryr@u... writes:

>

> I'm tempted to ask for a patch myself but

> I'm such a sensitive allergic person that I know that glue will

> really bother me.

>

>

> I'm VERY sensitive too, have to even cut lables out of my

clothes,

> LOL. I have tried the Dot, estraderm, climara...........the

climara had the

> stickiest back, couldn't use them.The .1mg V. Dot was the nicest,

BUT didn't

> give me enough E, but two may work.....I could ONLY use them on my

legs. I

> thought my butt would be OK, but NO....couldn't use the other

spots they recomend

> either, THIS may be why I whipped thru um fast too, lasted a day

to day and

> 1/2. Same with the estraderm, the estraderm has more E but doen't

stay put as

> well.......I still use the estraderm now and then, you can get

them online

> too. Worth a shot.....you may love them? OH I get good to high

readings with the

> OOE, how much were you using?? and how often?? I am good at 2mgs.

in 5-6

> hour intervals.....I range from 8-12 mgs. a day. My Dr. has me

weaning off WP

> slowly, at 6 mgs. a day I start to loose hair, like a dog

shedding, but 8-12 I

> do good. No P, don't have parts, Good luck, don't give up,

>

[Guest guest]

wrote: the more I think about this, the more it makes sense. I'm tempted to get myself on a patch. I've had it. The E creams and OO I've used seem to have NO effect on me whatsoever. My estradiol levels are always in the 30s! No surpise there with the 90mgP you are doing you are probably blocking E. I do use a patch at times if I feel I need more stabilization and I am tempted to get Vivelle dot patches for regular use so there is always some E coming through steady. Madeleen > __________________________________ > Yahoo! for Good - Make a

difference this year. > http://brand.yahoo.com/cybergivingweek2005/>

Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

[Guest guest]

wrote: Yup -but why did I bleed so heavily? How could my uterine lining build up if I'm getting hot flashes from low E? I can't think of why I would bleed other than too MUCH E.It makes no sense! >> . The E creams and OO I've > used seem to have NO effect on me whatsoever. My estradiol levels > are always in the 30s! > > , I used the creams and OO, and using 12mg per day, got a level of 112.> My doc had no trouble writing the script at all, and in fact I use a bit> more than that now. You are using far less and getting far less satisfaction> and your

levels show it. I wanted to use less, and tried for many months. I> did not get any relief until I used 9mg per day. Is your doc limiting you> even with a level of 30?> nne>

Yahoo! DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

He's not happy that I'm using 4 mgs a day. And you should have seen

the gyno's face when I told him that. I wish they would " get with

the program " and do some investigating on these creams so they can

advise their patients! I feel like some kind of pioneer in their

offices because I turn down their synthetics. This is the 21st

Century isn't it?

>

> . The E creams and OO I've

> used seem to have NO effect on me whatsoever. My estradiol levels

> are always in the 30s!

>

> , I used the creams and OO, and using 12mg per day, got a

level of 112.

> My doc had no trouble writing the script at all, and in fact I use

a bit

> more than that now. You are using far less and getting far less

satisfaction

> and your levels show it. I wanted to use less, and tried for many

months. I

> did not get any relief until I used 9mg per day. Is your doc

limiting you

> even with a level of 30?

> nne

>

[Guest guest]

As I recall, you were on P cream?

Val

-----Original Message-----From: rhythmicliving [mailto:rhythmicliving ]On Behalf Of beth

I was told at the time I had the cancer that the only way to get it was unopposed E. But my levels had never been checked AND I was on compounded P. So either the P didn't do squat or it caused it to grow. How high have you gone on the OOE?

Liz

[Guest guest]

Yes, but I don't remember how much. I used it 2 weeks out of the month

From: rhythmicliving [mailto:rhythmicliving ] On Behalf Of Valarie Sent: Wednesday, January 25, 2006 3:45 PMTo: rhythmicliving Subject: RE: Re: getting well

As I recall, you were on P cream?

Val

-----Original Message-----From: rhythmicliving [mailto:rhythmicliving ]On Behalf Of beth

I was told at the time I had the cancer that the only way to get it was unopposed E. But my levels had never been checked AND I was on compounded P. So either the P didn't do squat or it caused it to grow. How high have you gone on the OOE?

Liz

[Guest guest]

I have read research that 32% of women on P cream develop hyperplasia.

Val

-----Original Message-----From: rhythmicliving [mailto:rhythmicliving ]On Behalf Of beth

Yes, but I don't remember how much. I used it 2 weeks out of the month

From: rhythmicliving [mailto:rhythmicliving ] On Behalf Of Valarie

As I recall, you were on P cream?

-----Original Message-----From: rhythmicliving [mailto:rhythmicliving ]On Behalf Of beth

I was told at the time I had the cancer that the only way to get it was unopposed E. But my levels had never been checked AND I was on compounded P. So either the P didn't do squat or it caused it to grow. How high have you gone on the OOE?

[Guest guest]

And the dr's deprived me of E for 5 years!!! (Though I only lasted 2)

From: rhythmicliving [mailto:rhythmicliving ] On Behalf Of Valarie Sent: Wednesday, January 25, 2006 5:27 PMTo: rhythmicliving Subject: RE: Re: getting well

I have read research that 32% of women on P cream develop hyperplasia.

Val

-----Original Message-----From: rhythmicliving [mailto:rhythmicliving ]On Behalf Of beth

Yes, but I don't remember how much. I used it 2 weeks out of the month

From: rhythmicliving [mailto:rhythmicliving ] On Behalf Of Valarie

As I recall, you were on P cream?

-----Original Message-----From: rhythmicliving [mailto:rhythmicliving ]On Behalf Of beth

I was told at the time I had the cancer that the only way to get it was unopposed E. But my levels had never been checked AND I was on compounded P. So either the P didn't do squat or it caused it to grow. How high have you gone on the OOE?

[Guest guest]

Take note: I did NOT have hot flashes using that Wiley base cream. So it's dermatitis or bust!

, you may just need MORE OOE to do the job.....

can't get more clean than that, LOL.

It seems most on the OOE use 10-12 mgs a day......BUT

that woud be only be 5 to 6 mgs.BID WP......

so way down from the old days, LOL. And at that dose,

most blood work comes in at 200+......worth a try????????

Here rooting for ya,

[Guest guest]

I never got higher than 4 mgs a day on OOE. See this is what

worries me about NATURAL hormones. Who knows what the compounders

are mixing in there? Only the compounders. Unless we have friends

who work in a lab and can analyze it, how would we know for SURE

what we are getting in the creams? I've used several different

pharmacies and I get the same lousy results - no relief from meno

symptoms and very low E levels.

And doctors would like to BELIEVE the only way you can get cancer is

unopposed E, but you can get it ANYWAY if you are prone to it. I

swear I think it's just the luck of the draw (family history, etc).

This makes me want to just give up on using any hormones, but that

is certainly NOT living well. I am just unable to function with all

my symptoms.

One thing is for sure. NOT using any hormones is not an option for

me. When I wasn't using anything, I got such a hormonal imbalance,

that I was bleeding to death, developing tons of fibroids that the

doctors blamed for the bleeding. So I had a uterine artery

embolization to stop all blood flow to the fibroids that was

supposed to shrink them and stop my bleeding. I figured okay this

is it- no more bleeding. WRONG. My ovaries were affected because

of this cute little procedure and they found that it actually was

NOT the fibroids causing my bleeding, but my unbalance hormones!!!

So having that procedure helped throw me into sudden menopause and

hot flashes (never had a hot flash in my life before that damned

UAE) and I was STILL bleeding to death! All guessing games.

I throw my hands up into the air. I have no idea what to do at this

point.

> > >

> > > . The E creams and OO I've

> > > used seem to have NO effect on me whatsoever. My estradiol

> levels

> > > are always in the 30s!

> > >

> > > , I used the creams and OO, and using 12mg per day, got a

> > level of 112.

> > > My doc had no trouble writing the script at all, and in fact I

> use

> > a bit

> > > more than that now. You are using far less and getting far

less

> > satisfaction

> > > and your levels show it. I wanted to use less, and tried for

> many

> > months. I

> > > did not get any relief until I used 9mg per day. Is your doc

> > limiting you

> > > even with a level of 30?

> > > nne

> > >

> >

> >

> >

> >

> >

> >

> > click here for our webpage http://rhythmicliving.com/

> >

> > **The group conversation is informational in nature and is not

> intended as

> > medical advice.**

> >

> >

> >

> >

> >

[Guest guest]

Val - I had great results using 8 mgs a day of E. My numbers

FINALLY went up! But my doc has put the fear of God into me about

using too much E. Another thing that occurs to me is that maybe

those preservatives that were causing our dermatitis and other

allergic reactions, also made the E work better.

>

> , it is obvious you are not absorbing your E. Your 32 may be

your level

> without any outside E. You and your doc ought to be looking at

results

> instead of the amount of cream slathered on. There is research

that shows E

> is not well absorbed through a cream. I posted it here a few

months ago.

>

> Val

>

> Re: getting well

>

>

> I think it's takes 12 mgs to FEEL anything through the creams and

> OO. Sorry but it just doesn't get into the bloodstream that

> easily. But the doctors get crazy when they hear the amounts.

Why

> not just look at our labs??? They are proof! 4 mgs a day of E and

> all I get is a lousy <32???

>

>

>

>

>

[Guest guest]

So Val, you only use Estrogel and prometrium? You've never used

creams?

>

> I have read research that 32% of women on P cream develop

hyperplasia.

>

> Val

> -----Original Message-----

> From: rhythmicliving

> [mailto:rhythmicliving ]On Behalf Of beth

>

>

> Yes, but I don't remember how much. I used it 2 weeks out of the

month

>

>

> From: rhythmicliving

> [mailto:rhythmicliving ] On Behalf Of Valarie

>

> As I recall, you were on P cream?

> -----Original Message-----

> From: rhythmicliving

> [mailto:rhythmicliving ]On Behalf Of beth

>

>

> I was told at the time I had the cancer that the only way to

get it was

> unopposed E. But my levels had never been checked AND I was on

compounded P.

> So either the P didn't do squat or it caused it to grow. How high

have you

> gone on the OOE?

>

[Guest guest]

Oh - I hated the OO. It's so inconvenient to carry around and

it can become a mess. I don't know. I guess I could give it a

shot. I'm now waiting for a new load of E in the natural base from

my new pharmacy. I'm using Estrogel now and applying it in little

dabs all day long! I'm not even measuring. When I feel a hot

flash, I take out the tube and apply a little bit on my wrist.

>

>

> In a message dated 1/26/2006 6:10:14 AM Pacific Standard Time,

> ctlaurag@y... writes:

>

> Take note: I did

> NOT have hot flashes using that Wiley base cream. So it's

> dermatitis or bust!

>

>

>

>

>

> , you may just need MORE OOE to do the job.....

> can't get more clean than that, LOL.

> It seems most on the OOE use 10-12 mgs a day......BUT

> that woud be only be 5 to 6 mgs.BID WP......

> so way down from the old days, LOL. And at that dose,

> most blood work comes in at 200+......worth a try????????

> Here rooting for ya,

>