Fw: Fractures....from the MM group:

[Guest guest]

Dearest Friends:

I belong to the MM group and have had two fractures. This troubles me

because I'm positive for MGUS. My doctors have treated me with Biaxin

(Antibiotic) because they believe that MGUS should be treated. Now that I am

on Coumadin they can no longer give me this antibiotic.

Kenda, you might have some information on the drugs that are given to MM

patients. I was on Primrose oil and massive doses of vitamin D which helped

me so much. At this time I am on no oils.

Thank you....love to all....Lea

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fractures

>>>

>>> Dear All

>>> I do not seem to read about fractures, although this is

>> a hazard of MM. I

>>> have fractured my femur. What are the best ways to avoid

>> any further

>>> fractures please? I have been taking by mouth,

>> Bonefos(bisphosphonate}, not

>>> used in the US. Does radiation actually prevent

>> fractures when experiencing

>>> bone pain?

>>

>> Dear Shirley,

>> When my wife was first dx'd she was prescribed oral Sodium

>> Clodronate (bisphosphonate group). She has not suffered any

>> fractures. After taking the tablets for about 6 weeks I

>> learned (from our listserv) about Aredia (pamidronate) and

>> Zometa.. the infused bisphosonates. I found info stating

>> that the infused meds are many hundreds of times more potent

>> than oral meds so I asked the consultant to prescribe

>> Aredia, this was done. Three months later The Aredia was

>> replaced with Zometa. I found out that for some reason

>> Zometa is not given while the patient is taking Thalidomide,

>> but Aredia is (that is the applied protocol here in UK)

>> As to prevention of further fractures I would advise you to

>> talk to your consultant about using one of the above

>> mentioned infused meds. I'm sure there are more informed

>> list members who can give you the benefit of their wisdom

>> regarding fractures. Also, you might want to check the

>> archives since I recall fracture topics emerging in the

>> couple of years that I've been reading the posts.

>>

>> Regards

>>

>> Tony

>> Carer/husband to Margaret dx'd 08/03. IgG Kappa. BMB 35%

>> tumour burden.Lesions. pp level at dx 56 g/L. (5600 in US).

>> Commenced 6 x 21 day rounds of CTD [Cyclophosphamide,

>> Thalidomide. Dexamethasone] chemo 09/03. BMB (02/04) results

>> showed no MM present in bone sample.Auto SCT March 3 (2004)

>> Last blood & urine lab reports (04/05) showed slight trace

>> paraprotein. Blood numbers within normal ranges. Last BMB

>> 08/04, No detectable trace of MM. In CR since SCT March 01

>> 2004. QOL excellent

>>

>> [To Join or Leave the list, go to => http://www.acor.org/myeloma.html ]

>> [Web Archives => http://listserv.acor.org/archives/myeloma.html ]

>> [international Myeloma Foundation => http://www.myeloma.org ]

>>

>

> [To Join or Leave the list, go to => http://www.acor.org/myeloma.html ]

> [Web Archives => http://listserv.acor.org/archives/myeloma.html ]

> [international Myeloma Foundation => http://www.myeloma.org ]

>

[Guest guest]

Dearest Kathy:

Thank you for your support. I pray that I do not get Multiple Myeloma, but

it is a constant concern. My doctors do the SPEP and UPEP every few months.

When I found out that I was positive for MGUS I though that my life was

over. I have a friend in Toronto who has full blown MM and her doctors have

given her just a few months to live. She had her ruptured silicone breast

implants removed by Dr. Feng just after she called me. We hope that she gets

better, she is such a lovely lady. Dr. Blais is helping her.

I do love cottage cheese, but I have never tried flaxseed oil. This

information is great, I will look up the doctor that you mentioned.

Thank you again...love always...Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

fractures

>> >>>

>> >>> Dear All

>> >>> I do not seem to read about fractures, although this is

>> >> a hazard of MM. I

>> >>> have fractured my femur. What are the best ways to avoid

>> >> any further

>> >>> fractures please? I have been taking by mouth,

>> >> Bonefos(bisphosphonate}, not

>> >>> used in the US. Does radiation actually prevent

>> >> fractures when experiencing

>> >>> bone pain?

>> >>

>> >> Dear Shirley,

>> >> When my wife was first dx'd she was prescribed oral Sodium

>> >> Clodronate (bisphosphonate group). She has not suffered any

>> >> fractures. After taking the tablets for about 6 weeks I

>> >> learned (from our listserv) about Aredia (pamidronate) and

>> >> Zometa.. the infused bisphosonates. I found info stating

>> >> that the infused meds are many hundreds of times more potent

>> >> than oral meds so I asked the consultant to prescribe

>> >> Aredia, this was done. Three months later The Aredia was

>> >> replaced with Zometa. I found out that for some reason

>> >> Zometa is not given while the patient is taking Thalidomide,

>> >> but Aredia is (that is the applied protocol here in UK)

>> >> As to prevention of further fractures I would advise you to

>> >> talk to your consultant about using one of the above

>> >> mentioned infused meds. I'm sure there are more informed

>> >> list members who can give you the benefit of their wisdom

>> >> regarding fractures. Also, you might want to check the

>> >> archives since I recall fracture topics emerging in the

>> >> couple of years that I've been reading the posts.

>> >>

>> >> Regards

>> >>

>> >> Tony

>> >> Carer/husband to Margaret dx'd 08/03. IgG Kappa. BMB 35%

>> >> tumour burden.Lesions. pp level at dx 56 g/L. (5600 in US).

>> >> Commenced 6 x 21 day rounds of CTD [Cyclophosphamide,

>> >> Thalidomide. Dexamethasone] chemo 09/03. BMB (02/04) results

>> >> showed no MM present in bone sample.Auto SCT March 3 (2004)

>> >> Last blood & urine lab reports (04/05) showed slight trace

>> >> paraprotein. Blood numbers within normal ranges. Last BMB

>> >> 08/04, No detectable trace of MM. In CR since SCT March 01

>> >> 2004. QOL excellent

>> >>

>> >> [To Join or Leave the list, go to =>

> http://www.acor.org/myeloma.html ]

>> >> [Web Archives =>

> http://listserv.acor.org/archives/myeloma.html ]

>> >> [international Myeloma Foundation =>

> http://www.myeloma.org ]

>> >>

>> >

>> > [To Join or Leave the list, go to =>

> http://www.acor.org/myeloma.html ]

>> > [Web Archives =>

> http://listserv.acor.org/archives/myeloma.html ]

>> > [international Myeloma Foundation => http://www.myeloma.org ]

>> >

>

>

>

>

>

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>

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you. Find out what the facts are, and make your own decisions about how to

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two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

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