Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 But... I will say mom leaned forward when shuffling and it was when she was seated that she'd lean to the side... I also question if it has something to do with Visuoperceptual Impairment (another symptom of LBD) b/c I think mom FELT she was straight and it felt like leaning when she was straight... Just a few observations... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 OK - one more thought... Mom had the lean during shuffling so it must be a symptom... and it was just exacerbated b/c of the anti- psychotics... and her sensitivity to them... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Hi I totally agree with you on the Lewy Lean. My mom had the lean the whole time she was with me and still does to this day. I now realize that so many things that she does are more likely than not from the drugs she took. She was on Risperdal and Clonzapam for almost a year. Of course, I had no idea at the time, that these were doing her more harm than good. I was just following Doctors orders. By the time I figured it out, it was too late. The damage was done. She is now almost frozen in her body. Her legs do not bend etc... And she almost always leans to the same side, her right. I certainly hope that very soon, doctors will re-evaluate all the drugs that they prescribe, as many are not helping at all. Dena in So Cal Mother (84) Living with LBD in NH --- wrote: > Some of my thoughts on the " Lewy Lean " > > First I want to say that many with Lewy show > Parkinsonism - here's > the definition of the Parkinsonism Gait: > > " Parkinson's Gait – a common walk of somebody with > Parkinson's > disease. It includes shuffling, head down, shoulders > drooped, lack of > arm swing, and leaning backwards or forwards > unnaturally. Initiating > walking is difficult and freezing mid-stride is > common. " > > But with Lewy Body - it's often that the lean is > side to side. Why? > > First I wonder -- is it drug-induced. (I'd have to > confidently say > with my mom, she leaned forward when she was well > enough to walk > (shuffle) but the extreme leaning over to the side > (w/in her > wheelchair) was due to the anti-psychotics. She > didn't have the lean > when the anti-psychotics were removed.) > > So I found this: > > Pisa syndrome: A condition in which there is > sustained involuntary > flexion of the body and head to one side and slight > rotation of the > trunk so the person appears to lean like the Leaning > Tower of Pisa. > > The Pisa syndrome is an adverse effect (a > side-effect) of some > medications. It occurs sometimes following the > long-term use of > narcoleptics (drugs used to treat schizophrenia) or > cholinesterase > inhibitors (a class of drugs used to treat Alzheimer > disease). > > (In mom's case, I believe it was the > anti-psychotics. She didn't have > the Lewy Lean when she was given Exelon > (cholinesterase inhibitor). > > Here's another article: > http://ajp.psychiatryonline.org/cgi/content/full/161/2/373 > > So it bears to question -- does our LO's Lewy Lean a > symptom of LBD > or a side effect of medications? > > > > > ________________________________________________________________________________\ ____ Any questions? Get answers on any topic at www.Answers.yahoo.com. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Wow, , you sure have done a lot of research! Lady You are a worker. This letter is profound for me. I did not know this. I will know in the future to watch for it. Goodness what an education you are providing for us. Thank you, Imogene In a message dated 3/2/2007 5:52:51 AM Central Standard Time, octoryrose@... writes: Some of my thoughts on the " Lewy Lean " First I want to say that many with Lewy show Parkinsonism - here's the definition of the Parkinsonism Gait: " Parkinson's Gait – a common walk of somebody with Parkinson's disease. It includes shuffling, head down, shoulders drooped, lack of arm swing, and leaning backwards or forwards unnaturally. Initiating walking is difficult and freezing mid-stride is common. " But with Lewy Body - it's often that the lean is side to side. Why? First I wonder -- is it drug-induced. (I'd have to confidently say with my mom, she leaned forward when she was well enough to walk (shuffle) but the extreme leaning over to the side (w/in her wheelchair) was due to the anti-psychotics. She didn't have the lean when the anti-psychotics were removed.) So I found this: Pisa syndrome: A condition in which there is sustained involuntary flexion of the body and head to one side and slight rotation of the trunk so the person appears to lean like the Leaning Tower of Pisa. The Pisa syndrome is an adverse effect (a side-effect) of some medications. It occurs sometimes following the long-term use of narcoleptics (drugs used to treat schizophrenia) or cholinesterase inhibitors (a class of drugs used to treat Alzheimer disease). (In mom's case, I believe it was the anti-psychotics. She didn't have the Lewy Lean when she was given Exelon (cholinesterase inhibitor). Here's another article: http://ajp.psychiatryonline.org/cgi/content/full/161/2/373 So it bears to question -- does our LO's Lewy Lean a symptom of LBD or a side effect of medications? ------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 , I asked Dr. Carol Lippa, chair of LBDA's Scientific Advisory Council about your 'Lewy Lean'. (great name, by the way!) Dr. Lippa says: " The 1) forward flexed posture (forward bend) and 2) retropulsion (the tendency to step or fall backwards) are both part of the Lewy body disease process - a symptom of LBD. " " Leaning sideways is not as specific to the Lewy body disease process, and is sometimes a side effect of medication. Cholinesterase inhibitors are less likely to cause this sideways " Lewy lean " than narcoleptics or other sedating medications. " Hope that helps! > > > Some of my thoughts on the " Lewy Lean " > > > > First I want to say that many with Lewy show > > Parkinsonism - here's > > the definition of the Parkinsonism Gait: > > > > " Parkinson's Gait – a common walk of somebody with > > Parkinson's > > disease. It includes shuffling, head down, shoulders > > drooped, lack of > > arm swing, and leaning backwards or forwards > > unnaturally. Initiating > > walking is difficult and freezing mid-stride is > > common. " > > > > But with Lewy Body - it's often that the lean is > > side to side. Why? > > > > First I wonder -- is it drug-induced. (I'd have to > > confidently say > > with my mom, she leaned forward when she was well > > enough to walk > > (shuffle) but the extreme leaning over to the side > > (w/in her > > wheelchair) was due to the anti-psychotics. She > > didn't have the lean > > when the anti-psychotics were removed.) > > > > So I found this: > > > > Pisa syndrome: A condition in which there is > > sustained involuntary > > flexion of the body and head to one side and slight > > rotation of the > > trunk so the person appears to lean like the Leaning > > Tower of Pisa. > > > > The Pisa syndrome is an adverse effect (a > > side-effect) of some > > medications. It occurs sometimes following the > > long-term use of > > narcoleptics (drugs used to treat schizophrenia) or > > cholinesterase > > inhibitors (a class of drugs used to treat Alzheimer > > disease). > > > > (In mom's case, I believe it was the > > anti-psychotics. She didn't have > > the Lewy Lean when she was given Exelon > > (cholinesterase inhibitor). > > > > Here's another article: > > > http://ajp.psychiatryonline.org/cgi/content/full/161/2/373 > > > > So it bears to question -- does our LO's Lewy Lean a > > symptom of LBD > > or a side effect of medications? > > > > > > > > > > > > > > > _____________________________________________________________________ _______________ > Any questions? Get answers on any topic at www.Answers.yahoo.com. Try it now. > Quote Link to comment Share on other sites More sharing options...
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