Maree and

[Guest guest]

Maree,

 

What a task you have at hand!  What an amazing mother and friend to be on here

searching for answers.  I know you must question a lot, and, I cannot by any

means say that I know how you feel.  I can say that before I left my ex- I had

to make sure my stepson was taken care of, I was the only mother in his life. 

He too is autistic.  What he did communicate were his constant headaches and I

never gave up.  Later, we would find that he had a brain mass, benign but

nevertheless, unoperable.  Before leaving, I took him to California after

searching the best doctors for his issues.  Daily for six months I begged the

doctor to take him though the dr did not accept our insurance.  He finally did

and he is now controlled through meds to keep the mass from growing.

 

As mothers we have a natural fire in our gut that prevents us from stopping

until we know we are comfortable with the answers.  When you have a child that

cannot respond in a manner that prevents us from knowing how bad/painful a

situation is, it makes us work harder.  is a very lucky girl to have you,

as you are lucky to have her.  I look at every piece of my life that seemed

difficult and trying and I can say that I am glad it happend.  During the times,

I wished things were different but I always learned something.  I just want you

to know that you are amazing!  I also want you to know that just as needs

an advocate, so do you!  If you need anything or just to talk there are so many

here including me, that will be here for you.  Glad to hear you are vacationing

though we all know as mothers/fathers/grandparents, there is no such thing as a

vacation lol!  Please make sure to take mommy time.  I never did and wished I

had now!  I

know I would have loved some hot baths!  Keep me posted, I will keep you all in

my prayers.

Debbie