To Melly

[Guest guest]

I must say , I think your Post was spot right on. I will leave your post

as a refferance.

GARY

----- Forwarded Message ----

To: stillsdisease

Sent: Sat, May 14, 2011 12:31:27 PM

Subject: Still's and stomach invovlment

 

Goodness to all that replied is all I can say,

I was just passing on what I think is a respected doctor's opinion that was

interesting to me and my friends case. I didn't say that Still's didn't affect

any organs or the intestines.

I am surprised at the responses to just one doctor's opinion. Would everyone be

so defensive if I posted something else?'ve read so many emails the last couple

of days about how supportive and posative a group we are and then today read

nothing but negativity when I posted one doctors findings.

We all talk about how Still's is so different with everyone all the time. In my

opinion it may be somewhat different for many but there are particular markers

and symptoms that are used as criteria for diagnoses and course of the disease,

otherwise it would just be whatever someone has, well it must be Still's because

they have Still's, and because they have Still's it must be Still's related. I

don't think that is the case. JUST MY OPINION HERE

Should someone post anymore and be barraged for sharing by so many on the list?

I try and be upbeat. I post occasionally about how I'm doing personally because

I have many friends ask so I reply with one post. And yes, I moderate. And I

thought I was just sharing some interesting information that others might find

worth looking into.

I'm not looking for a long drawn out pat on the back or twenty responses or

perhaps anyone to agree but I guess I am surprised I didn't get at least one

post saying that's interesting or worth finding out more.