Emails from parents of sick children

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E-MAILS FROM MOMS WITH SICK CHILDREN

Cc: fuchsmorrissey@...

Dear Dr. Krauss,

Should I send you each e-mail from women who have had

their Dr. say " your child's problem's aren't from the

implants " . They really are clueless so what am I to

say?

Do you really think it is fair to put this burden of

explaining how lame the studies are on me?? I have my

own health and family to deal with without this as

well. Why is it up to me, the consumer, to " prove " my

black fungi and bacteria filled implant is unsafe??

I really don't want to bother you with so many e-mails

but I need to know who it is at the FDA that I refer

these women to for answers. I know Sami is a

contact person but she is working part-time. I think

this is a full-time problem.

The IOM never even looked at the individual reports on

our children. THAT IS A CRIME.

Please help me.

Sincerely, PJ Brent

PS Remember if the FDA approves the " new and

improved " saline implant you really should do a recall

of " old " ones that grow bacteria and fungi and make

little babies sick.

===========================

Dear ,

My daughter looked like she had Cerebral Palsy but it

was finally diagnosed as CIDP.

The pediatric neurologist would have NEVER thought to

test for it because it is so rare.

Please have your friends ped-neuro speak to mine.

His number is 404 256 3535 Dr. Ed Goldstein.

Love,

PJ

===========================

At 09:22 PM 3/4/2000 EST, you wrote:

PJ,

I forgot one more thing, I wanted to thank you for the

information that you sent. I have some friends who

breast feed, and I am forwarding this email on to

them.

This is very important information.

Thank you for sending it to me I won't go on and on

again, but I appreciate the information.

Love, (Name Removed)

PS My best friends' daughter-in-law breast fed, and

she had implants, her child was born with Cerebral

Palsy, and several neurological problems, of course

the doctors see no connection to it, but we know

differently. I have sent your email to her, she has

already called me to thank me for it, she is sending

it right away to her daughter in law.

Thanks again.

*********************************************************

HERE IS ANOTHER E-MAIL

AT four, Connor has really funny skin. It is scaly and

very dry. Very sensitive to anything even chewing red

chewing gum irritates the skin around his mouth. I

have to keep his skin really moisturized and use

unscented products. I will keep an alert out for the

small patches if they start to appear.

Thank you for the information.

How old was she?

My child that lived 45 minutes looked like she had

been burned and had scar tissue from the waist down,

no genitals, Skin like you said shiny, just looked

like melted plastic over the little bones. From the

waist up she wasn't that bad, as far as skin.

Thank you for responding.

=============================

sey wrote:

Dear ******

PJ Brent just sent me an email about you and your son.

You questioned what are the first signs of

scleroderma. I know that others may have different

first signs, but for it was tissue that looked

like varnished tissue on her legs. They were very,

small patches of shiny tissue. Then with the first

winter of her life these patches began to merge

together.

She also had (still has) very, very dry, cracked

tissue that will wax and wane. Wherever the very dry

tissue went is where the very shiny, varnished skin

would go. It looks as though someone put spots of

clear fingernail polish on her skin. I had this

problem too with my skin my right hand on the last

knuckle, but mostly on my right ankle, was also

extremely dry-underneath the dry tissue was shiny

skin, but my problem reversed itself after I had the

mastectomy of both breasts in 1993.

I never got my problem documented as I did not know

what I was dealing with. As I saw experiencing

the same thing I knew like mother like daughter. I

have made a big issue out of 's tissue, her

small body, large head and her very tiny hands and

feet. Doctors at first dismissed my concerns, but I

kept questioning what I saw.

In 1996 at the age of 6 years old a skin punch biopsy

was done which speaks VOLUMES. Hypersilicemia has

never, ever been fully investigated in the first place

and still to date has not been FULLY investigated...if

the companies say that hypersilicemia has a

" acceptable risk " then they need to show us mothers

and the general public the studies...show us the

studies!

Because what I and my daughters are going through is

not " acceptable " . Neuro problems, growth problems,

diseases of autoimmunity like scleroderma in the

offspring of a child whose mother had silicone &

double lumen breast implants (3M/McGhan in my case) is

NOT AN ACCEPTABLE RISK.

Anyway, I made sure that I had a doctor who stayed

neutral/objective and kept that open-mind. I did not

want her (the physician) to side with me or against

me...I just wanted her to tell me what she observed.

Other doctors who also treat all of us see what has

happened. Just hang in there with everything. At some

point those in medicine will have to uphold medicine

in its greatest/grandest form of DO NO HARM and uphold

medicine, science, and research to a higher standard

of DO NO HARM...after all they were suppose to do this

in the first place and have failed greatly.

Shame on those who fail to listen to their patient

with an open mind, in a neutral/objective way which is

indeed vital in medicine, research and science.

Take care, Fuchs-sey

Fuchssey@...

http://www.sclerodermasupport.com/support/stories/scleroderma/diffuse/cindym.htm

(ALWAYS REMEMBER: since when is it an " acceptable

risk " in medicine, science and research to pull ones

trigger, IN ONES YOUTH, in one's old age OR VIA THE

PLACENTAL BARRIER IN THE OFFSPRING? ACCEPTABLE RISKS?

Hold on wait a minute, I would call this

negligence/self-serving/being medically stupid in its

greatest form! " ACCEPTABLE RISKS " , the companies need

to greatly define " acceptable risks " with a breast

implant of any kind to me and others.

What they (the breast implant companies) are doing to

the general public and to the INNOCENT children of

this earth is far worse than what did

with smoking: Aflatoxin/ Aspergillus flavus, Tobacco,

Ammonia, The p53 Tumor-Suppressor Gene, which is

cancer's missing link.

Silicone exerted the immune response in the animal

models many years ago way before it happened to any

one of us or via the placental barrier in our

children- process known as MICROCHIMERIMSM/GVHD fetal

cells in autoimmunity along with a possible " two hit "

theory meaning with OR without a genetic

predisposition and how many " hits " did it take to

cross the threshold to a chronic disease. What about

HERVs, ALUs and jumping genes?....as again allow me to

remind you, hypersilicemia was never, ever fully

investigated in the first place and has not been FULLY

investigated to date.

They are bushwhacking the general public...this is

sick medicine.

The human body is speaking volumes, is anyone

listening?

They should if they wish to uphold their oath of DO NO

HARM)