Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Dear Jayne, I have written a very comprehensive book for people who want to know what AOSD is and what it does. I am putting the finishing touches on it as we speak and as soon as I get back the proofs that are being read for content I will have this book ready for publishing. I am hoping to have all the proof reading done by next weekend at the latest. I have 4 people from the group proof reading for me and I hope they will complete it soon. Please!!! Once I have finalized the book I will send you a copy via email. I will allow you to give paper copy to your physician however I do ask that you do not give out digital copies. I want to get this booklet published and distributed via the International Still's Disease website and it's members. Once this booklet is in play I will be writing a book about my battle with the disease and I would like to include the stories from some of the people in the group including caregivers... I will also be including the more personal side of the disease that deals with intamcy and relationships. I Know this booklet will answer any questions you may have. Best regards, Hayduke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Hello , I read your comprehensive book and I thoroughly approve. I found several parts directly applicable to my own story of Stills discovery and loss. The only thing I would add is that it is such a personal account of your experiences adding other people's accounts would be beneficial. I believe everyone will benefit from your efforts and the final result will be even more productive the more others contribute. I hope to add my part also. Harry S. To: Stillsdisease From: haydukej@... Date: Sun, 3 Apr 2011 14:16:03 +0000 Subject: Still's Disease Pamphlet Dear Jayne, I have written a very comprehensive book for people who want to know what AOSD is and what it does. I am putting the finishing touches on it as we speak and as soon as I get back the proofs that are being read for content I will have this book ready for publishing. I am hoping to have all the proof reading done by next weekend at the latest. I have 4 people from the group proof reading for me and I hope they will complete it soon. Please!!! Once I have finalized the book I will send you a copy via email. I will allow you to give paper copy to your physician however I do ask that you do not give out digital copies. I want to get this booklet published and distributed via the International Still's Disease website and it's members. Once this booklet is in play I will be writing a book about my battle with the disease and I would like to include the stories from some of the people in the group including caregivers... I will also be including the more personal side of the disease that deals with intamcy and relationships. I Know this booklet will answer any questions you may have. Best regards, Hayduke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 hiya john that would be awesome thankyou so much and of course i will respect your wishes to not give out digital copies it would be nice to let my rheumy read it and maybe give him more insight into the disease !!! i await to recieve it and look very much forward to reading it !! you mention in your next book you want to deal with relationships that is a very hard topic stills has cost me very dearly not only in quality of life but it cost me my 10 year relationship as it was just too much for my boyfriend to take, and it sure as hell takes its toll on the relationship between me and my daughter !! thankyou so much for your response and i wish you every luck and success with your books :-) jayne xx > > Dear Jayne, > > I have written a very comprehensive book for people who want to know what AOSD is and what it does. I am putting the finishing touches on it as we speak and as soon as I get back the proofs that are being read for content I will have this book ready for publishing. I am hoping to have all the proof reading done by next weekend at the latest. I have 4 people from the group proof reading for me and I hope they will complete it soon. Please!!! > > Once I have finalized the book I will send you a copy via email. I will allow you to give paper copy to your physician however I do ask that you do not give out digital copies. I want to get this booklet published and distributed via the International Still's Disease website and it's members. Once this booklet is in play I will be writing a book about my battle with the disease and I would like to include the stories from some of the people in the group including caregivers... I will also be including the more personal side of the disease that deals with intamcy and relationships. > > I Know this booklet will answer any questions you may have. > > Best regards, > > Hayduke > Quote Link to comment Share on other sites More sharing options...
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