Still's and stomach invovlment

[Guest guest]

Goodness to all that replied is all I can say,

I was just passing on what I think is a respected doctor's opinion that was

interesting to me and my friends case. I didn't say that Still's didn't affect

any organs or the intestines.

I am surprised at the responses to just one doctor's opinion. Would everyone be

so defensive if I posted something else?'ve read so many emails the last couple

of days about how supportive and posative a group we are and then today read

nothing but negativity when I posted one doctors findings.

We all talk about how Still's is so different with everyone all the time. In my

opinion it may be somewhat different for many but there are particular markers

and symptoms that are used as criteria for diagnoses and course of the disease,

otherwise it would just be whatever someone has, well it must be Still's because

they have Still's, and because they have Still's it must be Still's related. I

don't think that is the case. JUST MY OPINION HERE

Should someone post anymore and be barraged for sharing by so many on the list?

I try and be upbeat. I post occasionally about how I'm doing personally because

I have many friends ask so I reply with one post. And yes, I moderate. And I

thought I was just sharing some interesting information that others might find

worth looking into.

I'm not looking for a long drawn out pat on the back or twenty responses or

perhaps anyone to agree but I guess I am surprised I didn't get at least one

post saying that's interesting or worth finding out more.

[Guest guest]

Sorry ,

I did find it very interesting just like other things it made sense to me so I

didn't reply. We often take so many meds it's not to surprising to me that are

stomachs could have a problem yet not be related to Still's plus with my dx of

UCTD it does cause IBS and Acid Reflux issues....already. And you are right

there are specific requirements in order to get diagnosed with these diseases to

have  true diagnosis a doctor must have a checklist of requirements some doctors

like mine said oh yeah you have Still's but then when it came down to it she

said it was just most probable....lol Keep on sharing we appreciate it

even the ones of use who don't say anything.

 

aka Jalee

http://whoneedsdoctors.blogspot.com

[Guest guest]

,

Sorry I did not respond when I read the message earlier. I just took it to

mean that in your friends case it was not the Still's effecting her stomach.

I am suprised at the responses to your message. I want you to know that in

the 5 years I have been a member I have always found you to be helpful and

positive - even when you were facing major problems of your own.

Maybe the responses on the site the past few days are just a result of people

not feeling at their best.

Keeping you in my prayers,

kevin

>

>

> Goodness to all that replied is all I can say,

>

> I was just passing on what I think is a respected doctor's opinion that was

interesting to me and my friends case. I didn't say that Still's didn't affect

any organs or the intestines.