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Re:Joan in the UK:/ Short term disability and filling your time and days

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Joan and wll every one

 your feelings of  jealousy are normal or I am as crazy as you because I also

get them a lot still even tho I crossed a bridge called life with stills to get

to the side called living with stills and being okay with it. Now as far as it

being a morning for the lose of your old self that it is and just as you would

mourn the lose of some one you love you do for your self even tho you may think

you hate your self and what you have become if the truth be known we all do love

who we were when faced with losing that personality. What many of us do not see

at first is the new personality that is forming and how we are given the chance

to also change any thing in that personality that we did not like from before.

its just like a new beginning or at lest it was for my self.

As I have said many times given the option to live with out stills and go back

to who I was and that life or live with stills and know I will never have a

remission and it will only get worse I will take the life I have now with stills

and I would not have to even think about it as my life for the most part is a

better life now and more of the person I always believed I was but never allowed

to be both by my self and or by others . O I was way better off financially then

let me tell you but I would rather be poor in love and happy then rich miserable

and feeling caged by life.

 now how to fill a day let me tell you its wide open in what to do. there are

many thing just waiting for one to try or discover that do not take a lot of

energy or expense. I have found some my self such as scrimshawing and other old

school black powder shooting skills and tools such as fire starting with flint

and steel not only starting a fire that way but also in making all the things to

also do it including looking for just the right rocks in my few and short walks.

I loved to fish walking along a stream side but that is out of it for me now

days and for as far as I can see but I was given the chance to try trolling and

found I liked it also and what makes it better is I can be with my wife and

still fish trolling and enjoy in her success and her in mine instead of later

telling each other about it as the way we  or I used to fish was a solo

experience.

I have also used the time to teach my self a lot more about computers and doing

research for a few books I dream of writing some day about my father life and my

own  personal life with all its twist and turns. I have done a lot of research

on some family heirlooms / gifts that were given to my grandma by an Winnebago

now called Ho-Chunk Indian chef in Wisconsin back in the early 1940's to build a

Providence and proof it is pre American Indian arts and craft law changes. lots

of research on my dads landing ship from WW 2 and including hints that it looks

to be possibly one of the two LCI's used in the 1960's JFK bay of pigs mess. I

could go on and on but the idea is open your mind and start trying and looking .

before stills I could hardly turn a computer on then later I was building them

and then later still doing more and more with them including now restoring some

old negs and 35 mm slide for my family and my dream books. so needles to say I

can fill most days easily but I can stop any of what I am doing any time and

rest when needed and pick it up later be it that day or months down the line .

 so try writing drawing painting try your wildest dreams and experiment who

knows what you may discover in your new self .

hugs ya all 

The  Redneck  

Marty G     

 

  " I am having an out of money experience. "

" No man's life, liberty, or property is safe while the legislature is in

session. "

...............................Mark Twain (1866)

To learn more about Stills Disease or to make a tax deductible donation:

 http://www.stillsdisease.org/stills_info

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