Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Joan and wll every one your feelings of jealousy are normal or I am as crazy as you because I also get them a lot still even tho I crossed a bridge called life with stills to get to the side called living with stills and being okay with it. Now as far as it being a morning for the lose of your old self that it is and just as you would mourn the lose of some one you love you do for your self even tho you may think you hate your self and what you have become if the truth be known we all do love who we were when faced with losing that personality. What many of us do not see at first is the new personality that is forming and how we are given the chance to also change any thing in that personality that we did not like from before. its just like a new beginning or at lest it was for my self. As I have said many times given the option to live with out stills and go back to who I was and that life or live with stills and know I will never have a remission and it will only get worse I will take the life I have now with stills and I would not have to even think about it as my life for the most part is a better life now and more of the person I always believed I was but never allowed to be both by my self and or by others . O I was way better off financially then let me tell you but I would rather be poor in love and happy then rich miserable and feeling caged by life. now how to fill a day let me tell you its wide open in what to do. there are many thing just waiting for one to try or discover that do not take a lot of energy or expense. I have found some my self such as scrimshawing and other old school black powder shooting skills and tools such as fire starting with flint and steel not only starting a fire that way but also in making all the things to also do it including looking for just the right rocks in my few and short walks. I loved to fish walking along a stream side but that is out of it for me now days and for as far as I can see but I was given the chance to try trolling and found I liked it also and what makes it better is I can be with my wife and still fish trolling and enjoy in her success and her in mine instead of later telling each other about it as the way we or I used to fish was a solo experience. I have also used the time to teach my self a lot more about computers and doing research for a few books I dream of writing some day about my father life and my own personal life with all its twist and turns. I have done a lot of research on some family heirlooms / gifts that were given to my grandma by an Winnebago now called Ho-Chunk Indian chef in Wisconsin back in the early 1940's to build a Providence and proof it is pre American Indian arts and craft law changes. lots of research on my dads landing ship from WW 2 and including hints that it looks to be possibly one of the two LCI's used in the 1960's JFK bay of pigs mess. I could go on and on but the idea is open your mind and start trying and looking . before stills I could hardly turn a computer on then later I was building them and then later still doing more and more with them including now restoring some old negs and 35 mm slide for my family and my dream books. so needles to say I can fill most days easily but I can stop any of what I am doing any time and rest when needed and pick it up later be it that day or months down the line . so try writing drawing painting try your wildest dreams and experiment who knows what you may discover in your new self . hugs ya all The Redneck Marty G " I am having an out of money experience. " " No man's life, liberty, or property is safe while the legislature is in session. " ...............................Mark Twain (1866) To learn more about Stills Disease or to make a tax deductible donation: http://www.stillsdisease.org/stills_info Quote Link to comment Share on other sites More sharing options...
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