my update

[Guest guest]

Hi Stills Family,

Well, I wanted to update everyone since Wed Night when I actually got home,

but as it turns out. I got home, fell asleep and here is how the next few

days went in a Readers Digest Format J.

I wanted to get out on Wed. I was feeling so much better. The doc had put me

on Florinef and bp was doing good. Problem was… I was still on IV on Wed

when I saw the Doc (of course)… Still on Solumedrol… Eating a bit better,

getting around better, etc. So She sent me home. Straight from IV, to no

IV. With a new drug that I had been on for 2 whole days and changing my

Hydro-cortisone by Doubling it (which isn’t much because although it is a

steroid it is different than prednisone, a 5 mg pill is equal to less than

1mg of pred).. But Florinef is also a steroid that works differently and I

had only had it in my system for 2 days.

So I woke up Thursday morning (and by the Way, that is the day that I

decided regardless how bad I felt, How high my Temp, I would begin

exercising, and I did). Anyway. I had crashed big time. So I called my

Docs and they up’d the dose of Hydro-cortisone again a bit. By Friday, The

hydro-cortisone dose was probably OK, but the Florinef Dose was probably too

much!! I started to have symptoms that they warn you about on the drug. Of

course, I called my Docs office and left a message, they didn’t want me to

change the med and by 5pm when the docs close, my heart rate which had

stabilized at a resting rate of 55-60 was now staying at about 100 when

resting. I felt like I was exercising doing nothing. Of course none of my

Docs are on call this weekend.

Anyway, I called the Doc on call, and he literally said, “I don’t know what

to tell you to do, it sounds too complicated for me”, in a very southern

accent. Now don’t get me wrong. I don’t mind a southern accent. It was just

that he wasn’t willing to help or listen at all. But I asked him to contact

my Doctor and ask what She would want me to do and he said “We’ll I’ll See

whether I can do that or not” (Now you have to imagine that in the most

southern accent you could ever hear – It was on Speaker – My husband had to

walk out of the room to not laugh – or start to shout at the guy – or both I

think). I never did hear back from him.

After talking it out together, we decided to taper down on my

Hydro-cortisone and to cut the Florinef into ¼ pieces so I could taper that

to a ¾ dose and that seems to have helped. I guess sometimes we just have

to use our own best wisdom. I have a bp monitor here so that helps

determine what to do. I know the ER wouldn’t do much more. So Onward and

Upwards!

I do have an apt with my Doc on Monday, So I know I will get the right

answer then.

Thanks for all your support. Hang in there everyone.

Welcome to all the new members of the group.

Hugs,

Alli