Re: I am back online

[Guest guest]

Dear Rogene,

I do feel better today more so as the day has gone on, its sunny and warm which makes all the difference. I also went to a meeting today my first for a couple of weeks so life is getting more back to normal.

Sorry to have caused the worry, what I should do is talk to you when I am feeling bad rather than withdraw but I think that's a mechanism I use in general, after all this time of being unwell I worry that people will get sick of me telling them how I feel so I just kind of go in myself - does that make sense? also I have got so adept at pretending everything is ok, when I have a really rough time I find it hard to pretend anymore.

I am really lucky with he understands me and loves me, this time he panicked as I can usually pull myself out of it but this time I just couldn't for a while.

I was so sad to read Jewel had passed away, I have spoken with her lots in the past but at least she can rest in peace now.

I am going to ring Myhill and book a phone appointment with her, I hope to be able to get to Wales to see her and more than anything I hope she can help the boys.

Speaking of my boys, saw the osteopath last week and he is thrilled with the mobility has back in his foot, he has reduced his appointments from weekly to three weekly, so that's good news.

Thank you for being there.

Love Sue.

[Guest guest]

Hello Lea,

Thank you for writing to me.

I hope you are ok, have you spoken to your dr about your arms yet? I am not cross with my hubby I understand he was just worried, I am surprised he wrote though as I do all the writing for him usually.

I read your last mail asking me where I live, well its KENT the garden of England but I live on the outskirts so I am very near to London to. We are having some lovely summer weather at the moment its wonderful its really cheered me up.

You are right about this group it really is wonderful with amazing women, its nice to feel cared about.

Bless you Lea

Love

Sue

[Guest guest]

Dear Sue, I'm glad you are feeling a little better. It is apparant that your husband loves you very, very much. I'm excited for you that you will be seeing Dr. Myhil. It's always so much easier to see a doctor who understands this issue. I pray that she will be able to help you. Sue, I think Rogene is right about you herxing from the sauna. It's a powerful detox and if you are feeling that badly when you do it then you are probably doing too much. But that also means it is working. I would suggest that you keep doing it but not stay in as long. Also, make sure yuu load up on water both before and after. I also read that one should lie down for ten or fifteen minutes after getting out. Love, Anita I am back online Hello ladies, I think I have to start this post with a thank you and a sorry, thankyou for replying to my hubby's post and sorry for worrying you. I have worried my poor hubby alot lately but I never thought he would contact you, he is very private and finds writing on the internet a nightmare, I feel bad for putting him in that position. I haven't felt too good for a while and I suppose have been fairly depressed, but I am sort of ok now. Thank you for the links to Dr Myhill I will be contacting her soon to get my blood tested at Bio Labs, maybe she can help I have been using the sauna everyday my hubby has insisted !! He sits outside the sauna and talks to me while I am in it, for some reason I am finding it difficult to do as I feel so rotten when I start to sweat and even worse when I get out, the other night I thought I would pass out or something it was awful, but I really did have a massive sweat going on dripping in fact. My family are going away on holiday on the 21/06 to Spain, my boys have not been on a plane yet to another country and I want them to see other things in life. My hubby has contacted my friend who lives in Norfolk and I may stay with her for a few days and with my best friend at home for the rest of the week. I will miss them as I have not been without my children for 21yrs, ( the age of my eldest) but I must think of them and let them enjoy themselves. I will catch up with my posts and write soon Thank you all again for caring. Love Sue Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

Sue,

I'm so glad you wrote. I've been so concerned about

you! I know your husband is overwhelmed with concern.

It's obvious he loves you very, very much and would be

lost without you!

Dr. Myhill's webpage looks excellent. She has so many

issues covered in a way the lay person can understand.

I'm sure she can help your doctors understand what

you're dealing with.

It's likely your electrolytes are off since your're

using the sauna regularly and sweating profusely. One

easy way to replace them is to drink Gatorade. It has

a mix of sodium and potassium. It's considered a

sports drink and is a favorite of athletes. Can you

find something like that? If you saw a doctor, they

would probably give you an IV solution to balance your

electrolytes.

Also, until you feel a little better, I would back off

the sauna and give your body time to settle. I

remember how terrible I felt after a couple months of

doing my first sweat detox program. When I looked back

on it, I realize how much difference it made in a

relatively short time. However, I reached a point

where I couldn't make sense of anything and stopped.

It's at that point where I really needed someone to

watch me and know when to pull me out, etc.

According to L.Ron Hubbard who wrote the book " Clear

Body, Clear Mind " , detoxing continues even after

backing off the program because the toxins are loosen

in the body and will continue to be passed.

Thank goodness you have someone with you while your

family is gone! . . . You're going to get through this

- even if you're miserable right now.

Something that will help with those swollen lymph

nodes is to jump on a rebounder (a tiny trampoline),

or any action that's the equivalent. That will turn

your muscles into pumps that help clear the gunk from

those swollen lymph nodes.

Please keep hanging in there! . . . Your family loves

you and needs you. You're going through the worst

right now . . . it's going to be better soon.

Love,

Rogene

[Guest guest]

Good Morning Dearest Sue:

We are all so glad to hear from you. I'm sorry that you were feeling depressed, but we will cheer you up. My has written many times to the group. Please do not think that your husband is trying to do things to hurt you, he sounds like an Angel. I think the first time that wrote to anyone was back in the early nineties, he wrote to Walt Monger. After that he wrote to many of the ladies and men to ask for help so many times. He was so worried about me, it is so hard on our families when they see us sick.

Thank you for letting us know how you feel because that is what this group is all about. I'm sure that when our Patty set up this group, she planned on having many sick women coming here for help. Bless her and the other support ladies for all that they do each day....we love them so much.

Stay close to us...love you....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

I am back online

Hello ladies,

I think I have to start this post with a thank you and a sorry, thankyou for replying to my hubby's post and sorry for worrying you.

I have worried my poor hubby alot lately but I never thought he would contact you, he is very private and finds writing on the internet a nightmare, I feel bad for putting him in that position.

I haven't felt too good for a while and I suppose have been fairly depressed, but I am sort of ok now.

Thank you for the links to Dr Myhill I will be contacting her soon to get my blood tested at Bio Labs, maybe she can help.

I have been using the sauna everyday my hubby has insisted !! He sits outside the sauna and talks to me while I am in it, for some reason I am finding it difficult to do as I feel so rotten when I start to sweat and even worse when I get out, the other night I thought I would pass out or something it was awful, but I really did have a massive sweat going on dripping in fact.

My family are going away on holiday on the 21/06 to Spain, my boys have not been on a plane yet to another country and I want them to see other things in life. My hubby has contacted my friend who lives in Norfolk and I may stay with her for a few days and with my best friend at home for the rest of the week. I will miss them as I have not been without my children for 21yrs, ( the age of my eldest) but I must think of them and let them enjoy themselves.

I will catch up with my posts and write soon

Thank you all again for caring.

Love Sue

Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

Good to hear from you sue! You husband is a real sweetheart. It is

obvious how much he loves you!! You know we are here for you

anytime. I know you will miss your kids when they leave, but

perhaps you can use that time to really kick back and concentrate on

getting relaxed and feeling less stress. Take care

love, kathy

> Hello ladies,

>

> I think I have to start this post with a thank you and a sorry,

thankyou for

> replying to my hubby's post and sorry for worrying you.

> I have worried my poor hubby alot lately but I never thought he

would

> contact you, he is very private and finds writing on the internet

a nightmare, I

> feel bad for putting him in that position.

> I haven't felt too good for a while and I suppose have been

fairly

> depressed, but I am sort of ok now.

> Thank you for the links to Dr Myhill I will be contacting her soon

to get my

> blood tested at Bio Labs, maybe she can help.

> I have been using the sauna everyday my hubby has insisted !! He

sits

> outside the sauna and talks to me while I am in it, for some

reason I am finding it

> difficult to do as I feel so rotten when I start to sweat and even

worse when

> I get out, the other night I thought I would pass out or

something it was

> awful, but I really did have a massive sweat going on dripping in

fact.

> My family are going away on holiday on the 21/06 to Spain, my boys

have not

> been on a plane yet to another country and I want them to see

other things in

> life. My hubby has contacted my friend who lives in Norfolk and I

may stay

> with her for a few days and with my best friend at home for the

rest of the

> week. I will miss them as I have not been without my children for

21yrs, ( the

> age of my eldest) but I must think of them and let them enjoy

themselves.

> I will catch up with my posts and write soon

> Thank you all again for caring.

>

> Love Sue

[Guest guest]

-

Dear Sue

I truly hope that Dr. Myhill is the answer that you have been

looking for. Sometimes we have to go through alot of things before

we can get on the best paths to healing. Please don't withdraw when

you get depressed. We are here for you and never get tired of

hearing how someone is feeling--physcially or emotionally. I would

say that we have all been there and support from your friends is

priceless. I tend to withdraw too when I am depressed but it is

actually not a good thing to do. I almost always feel better when I

talk to someone who cares. I understand how you feel about

thinking people get sick of hearing the same old story--not feeling

well! But these people are usually people who aren't sick and have

never experienced these kinds of illnesses. They just want you to

get better and get on with your life. They don't understand and you

don't look sick to them and they find it hard to relate to. But the

women on this site have all been through

these same things and most of us have our ups and downs. Some are

farther ahead than others in the healing department, but most of us

still have good and bad days and frustration that we don't even know

why and that we can't seem to find that one magic thing that makes

us

completely well again. And because we know what you are feeling we

have all kinds of understanding and compassion and also very good

advice about just about anything related to our situations! So

please continue to keep in touch--both when you have good news to

share, and when you are not having a good day.

Love, kathy

-- In , gibbense@a... wrote:

> Dear Rogene,

>

> I do feel better today more so as the day has gone on, its sunny

and warm

> which makes all the difference. I also went to a meeting today my

first for a

> couple of weeks so life is getting more back to normal.

> Sorry to have caused the worry, what I should do is talk to you

when I am

> feeling bad rather than withdraw but I think that's a mechanism I

use in

> general, after all this time of being unwell I worry that people

will get sick of

> me telling them how I feel so I just kind of go in myself - does

that make

> sense? also I have got so adept at pretending everything is ok,

when I have a

> really rough time I find it hard to pretend anymore.

> I am really lucky with he understands me and loves me, this

time he

> panicked as I can usually pull myself out of it but this time I

just couldn't

> for a while.

> I was so sad to read Jewel had passed away, I have spoken with

her lots in

> the past but at least she can rest in peace now.

> I am going to ring Myhill and book a phone appointment with

her, I

> hope to be able to get to Wales to see her and more than anything

I hope she can

> help the boys.

> Speaking of my boys, saw the osteopath last week and he is

thrilled

> with the mobility has back in his foot, he has reduced his

appointments

> from weekly to three weekly, so that's good news.

> Thank you for being there.

>

> Love Sue.

[Guest guest]

Dear Sue,

It's wonderful that your son is showing progress! Is

he still using the sauna? Does the doctor think it's

helping?

We really do understand how awful all this can feel.

We've been through it and we know what you're going

through. Just know that you are getting better,

despite how bad you feel right now! This herx is

temporary!

One of the worst parts is to think we're all alone, a

burden to our loved ones, and that doctors don't take

our very real problems seriously. You're not alone!

Your husband loves you! And, doctors are going to take

you seriously!

Please, NEVER, NEVER think you are imposing on us!

We're here for you and all the other women who are

going through this. It's not just me! . . . We have an

big group of women here who are here because they

really, really care! We're not going away!

Sometimes, when we feel so bad, we don't see things

too clearly. Priorities get out of line and we lose

perspective.

Your husband is very concerned about you and wants you

to get well desperately! . . . Keep talking to him

about how you feel. It's very important to him that he

knows what's going on with you. I know he will take

care of you through thick or thin!

Love and prayers,

Rogene

--- gibbense@... wrote:

> Dear Rogene,

>

> I do feel better today more so as the day has gone

> on, its sunny and warm

> which makes all the difference. I also went to a

> meeting today my first for a

> couple of weeks so life is getting more back to

> normal.

> Sorry to have caused the worry, what I should do is

> talk to you when I am

> feeling bad rather than withdraw but I think that's

> a mechanism I use in

> general, after all this time of being unwell I worry

> that people will get sick of

> me telling them how I feel so I just kind of go in

> myself - does that make

> sense? also I have got so adept at pretending

> everything is ok, when I have a

> really rough time I find it hard to pretend anymore.

> I am really lucky with he understands me and

> loves me, this time he

> panicked as I can usually pull myself out of it but

> this time I just couldn't

> for a while.

> I was so sad to read Jewel had passed away, I have

> spoken with her lots in

> the past but at least she can rest in peace now.

> I am going to ring Myhill and book a phone

> appointment with her, I

> hope to be able to get to Wales to see her and more

> than anything I hope she can

> help the boys.

> Speaking of my boys, saw the osteopath last

> week and he is thrilled

> with the mobility has back in his foot, he has

> reduced his appointments

> from weekly to three weekly, so that's good news.

> Thank you for being there.

>

> Love Sue.

>

[Guest guest]

Dearest Sue:

You are very welcome. I wish that you were well enough to go with your family. I'm not much of a traveler either, I like staying home. has to make me go out. I know that he wants me to start doing things on my own, but I'm not ready yet.

Tomorrow is convocation and I really do not want to go. Last year I was too sick and we did not go. has students graduating, it would be selfish of me not to go this year. I will send you some pictures of him in his robes, and some of me too.

Honey, just know that we are here for you always...love you....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```

Re: I am back online

Hello Lea,

Thank you for writing to me.

I hope you are ok, have you spoken to your dr about your arms yet? I am not cross with my hubby I understand he was just worried, I am surprised he wrote though as I do all the writing for him usually.

I read your last mail asking me where I live, well its KENT the garden of England but I live on the outskirts so I am very near to London to. We are having some lovely summer weather at the moment its wonderful its really cheered me up.

You are right about this group it really is wonderful with amazing women, its nice to feel cared about.

Bless you Lea

Love

SueOpinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)