Re: Emails from parents of sick children

[Guest guest]

Thank you Honey, I can always count on you. Today, I'm pretty low, but I

guess I have good reason...love you...Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``````````````

E-MAILS FROM MOMS WITH SICK CHILDREN

> Cc: fuchsmorrissey@...

>

> Dear Dr. Krauss,

>

> Should I send you each e-mail from women who have had

> their Dr. say " your child's problem's aren't from the

> implants " . They really are clueless so what am I to

> say?

>

> Do you really think it is fair to put this burden of

> explaining how lame the studies are on me?? I have my

> own health and family to deal with without this as

> well. Why is it up to me, the consumer, to " prove " my

> black fungi and bacteria filled implant is unsafe??

>

> I really don't want to bother you with so many e-mails

> but I need to know who it is at the FDA that I refer

> these women to for answers. I know Sami is a

> contact person but she is working part-time. I think

> this is a full-time problem.

>

> The IOM never even looked at the individual reports on

> our children. THAT IS A CRIME.

>

> Please help me.

>

> Sincerely, PJ Brent

>

> PS Remember if the FDA approves the " new and

> improved " saline implant you really should do a recall

> of " old " ones that grow bacteria and fungi and make

> little babies sick.

>

> ===========================

> Dear ,

>

> My daughter looked like she had Cerebral Palsy but it

> was finally diagnosed as CIDP.

>

> The pediatric neurologist would have NEVER thought to

> test for it because it is so rare.

>

> Please have your friends ped-neuro speak to mine.

>

> His number is 404 256 3535 Dr. Ed Goldstein.

>

> Love,

>

> PJ

> ===========================

>

> At 09:22 PM 3/4/2000 EST, you wrote:

>

> PJ,

>

> I forgot one more thing, I wanted to thank you for the

> information that you sent. I have some friends who

> breast feed, and I am forwarding this email on to

> them.

>

> This is very important information.

>

> Thank you for sending it to me I won't go on and on

> again, but I appreciate the information.

>

> Love, (Name Removed)

>

> PS My best friends' daughter-in-law breast fed, and

> she had implants, her child was born with Cerebral

> Palsy, and several neurological problems, of course

> the doctors see no connection to it, but we know

> differently. I have sent your email to her, she has

> already called me to thank me for it, she is sending

> it right away to her daughter in law.

>

> Thanks again.

>

> *********************************************************

>

>

> HERE IS ANOTHER E-MAIL

>

> AT four, Connor has really funny skin. It is scaly and

> very dry. Very sensitive to anything even chewing red

> chewing gum irritates the skin around his mouth. I

> have to keep his skin really moisturized and use

> unscented products. I will keep an alert out for the

> small patches if they start to appear.

>

> Thank you for the information.

>

> How old was she?

>

> My child that lived 45 minutes looked like she had

> been burned and had scar tissue from the waist down,

> no genitals, Skin like you said shiny, just looked

> like melted plastic over the little bones. From the

> waist up she wasn't that bad, as far as skin.

>

> Thank you for responding.

> =============================

>

> sey wrote:

>

> Dear ******

>

> PJ Brent just sent me an email about you and your son.

> You questioned what are the first signs of

> scleroderma. I know that others may have different

> first signs, but for it was tissue that looked

> like varnished tissue on her legs. They were very,

> small patches of shiny tissue. Then with the first

> winter of her life these patches began to merge

> together.

>

> She also had (still has) very, very dry, cracked

> tissue that will wax and wane. Wherever the very dry

> tissue went is where the very shiny, varnished skin

> would go. It looks as though someone put spots of

> clear fingernail polish on her skin. I had this

> problem too with my skin my right hand on the last

> knuckle, but mostly on my right ankle, was also

> extremely dry-underneath the dry tissue was shiny

> skin, but my problem reversed itself after I had the

> mastectomy of both breasts in 1993.

>

> I never got my problem documented as I did not know

> what I was dealing with. As I saw experiencing

> the same thing I knew like mother like daughter. I

> have made a big issue out of 's tissue, her

> small body, large head and her very tiny hands and

> feet. Doctors at first dismissed my concerns, but I

> kept questioning what I saw.

>

> In 1996 at the age of 6 years old a skin punch biopsy

> was done which speaks VOLUMES. Hypersilicemia has

> never, ever been fully investigated in the first place

> and still to date has not been FULLY investigated...if

> the companies say that hypersilicemia has a

> " acceptable risk " then they need to show us mothers

> and the general public the studies...show us the

> studies!

>

> Because what I and my daughters are going through is

> not " acceptable " . Neuro problems, growth problems,

> diseases of autoimmunity like scleroderma in the

> offspring of a child whose mother had silicone &

> double lumen breast implants (3M/McGhan in my case) is

> NOT AN ACCEPTABLE RISK.

>

> Anyway, I made sure that I had a doctor who stayed

> neutral/objective and kept that open-mind. I did not

> want her (the physician) to side with me or against

> me...I just wanted her to tell me what she observed.

> Other doctors who also treat all of us see what has

> happened. Just hang in there with everything. At some

> point those in medicine will have to uphold medicine

> in its greatest/grandest form of DO NO HARM and uphold

> medicine, science, and research to a higher standard

> of DO NO HARM...after all they were suppose to do this

> in the first place and have failed greatly.

>

> Shame on those who fail to listen to their patient

> with an open mind, in a neutral/objective way which is

> indeed vital in medicine, research and science.

>

> Take care, Fuchs-sey

> Fuchssey@...

>

>

http://www.sclerodermasupport.com/support/stories/scleroderma/diffuse/cindym.htm

>

>

> (ALWAYS REMEMBER: since when is it an " acceptable

> risk " in medicine, science and research to pull ones

> trigger, IN ONES YOUTH, in one's old age OR VIA THE

> PLACENTAL BARRIER IN THE OFFSPRING? ACCEPTABLE RISKS?

>

> Hold on wait a minute, I would call this

> negligence/self-serving/being medically stupid in its

> greatest form! " ACCEPTABLE RISKS " , the companies need

> to greatly define " acceptable risks " with a breast

> implant of any kind to me and others.

>

> What they (the breast implant companies) are doing to

> the general public and to the INNOCENT children of

> this earth is far worse than what did

> with smoking: Aflatoxin/ Aspergillus flavus, Tobacco,

> Ammonia, The p53 Tumor-Suppressor Gene, which is

> cancer's missing link.

>

> Silicone exerted the immune response in the animal

> models many years ago way before it happened to any

> one of us or via the placental barrier in our

> children- process known as MICROCHIMERIMSM/GVHD fetal

> cells in autoimmunity along with a possible " two hit "

> theory meaning with OR without a genetic

> predisposition and how many " hits " did it take to

> cross the threshold to a chronic disease. What about

> HERVs, ALUs and jumping genes?....as again allow me to

> remind you, hypersilicemia was never, ever fully

> investigated in the first place and has not been FULLY

> investigated to date.

>

> They are bushwhacking the general public...this is

> sick medicine.

>

> The human body is speaking volumes, is anyone

> listening?

>

> They should if they wish to uphold their oath of DO NO

> HARM)

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given by

> licensed health care professionals. Consult your physician or licensed

> health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

> Find out what the facts are, and make your own decisions about how to live

> a happy life and how to work for a better world. " - Linus ing,

> two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>