Guest guest Posted May 30, 2012 Report Share Posted May 30, 2012 Hi Everyone, I was reading someone's Facebook, we have mutual friends and I try to keep up with what is happening to them. Both have become very good friends. They started the battle of Chiari.... when they we very young. I found the video on one of their sites. Both are in need of more surgery, they both stay really strong through everything. They amaze me. This song and friends give me strength. Kathleen Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome, surgery for everything but EDS since 1998. http://chiariconnectioninternational.com/ Quote Link to comment Share on other sites More sharing options...
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