Hi All

[Guest guest]

Hi, Normi. Glad you checked in. I was getting a bit concerned about you.

So many of

us seem to be in bad shape right now. I am doing ok, and even had guests in

to dinner

last night. It was so warm outside we stayed out there talking until nearly

midnight.

Nice to see friends, and not be totally wiped out just semi wiped out. LOL

I spent

most of today just vegging out. The boys were a big help yesterday and the

two days

before that getting the house cleaned and everything, but I did the grilling

and other

cooking, so did get pretty tired, especially since the temperature was in the

triple

digits until after 6 p.m. last night. Thank God the guests weren't due until

7. I would

have been one big puddle of water if I'd had to greet them any earlier. As

it was, I

just stepped out of a cool shower about five minutes before they started

coming to

the door. Good dinner, tho. Even I enjoyed it, and I'm usually too tired of

cooking to

enjoy the food.

Hope you are doing ok. Miss your posts. Love, MM

[Guest guest]

Hiya, Kimi...I'm so sorry that you were sick again. Girl, when do you get a

break? HUH? Did you read where Normi is coming out to visit her parents,

and will come to

Santa to visit me for a little bit? I'm so happy about that. Wish you

all could

come, but she will probably write a book about it when she gets back home.

LOL

Glad you are better, sweetie. Love, MM

[Guest guest]

Kimi,

sorry to hear you've been sick, but glad you are better.

Take care,

W.

Hi All

Hi everyone sorry ihaven't written to the group here lately but i have had a very nasty virus for 2 weeks. I am doing better now. I just want to welcome all the new people and want to say Happy Birthday Annverisy to everyone that i have missed in the past 2 weeks. Angie and i am so sorry to hear about y'all's lost. Everyone is in my prayers and thoughts. I am back on now until i get sick again. Hopefully that will be a long time from now.

Love Always Kimi"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

[Guest guest]

Kimi,

Sorry to hear that you have been sick again. Here lately seems like everytime I turn around you are sick again. Hope you get all better real soon. Thank you for your support these past few months...means alot to me.

Angie

kimi wrote:

Hi everyone sorry ihaven't written to the group here lately but i have had a very nasty virus for 2 weeks. I am doing better now. I just want to welcome all the new people and want to say Happy Birthday Annverisy to everyone that i have missed in the past 2 weeks. Angie and i am so sorry to hear about y'all's lost. Everyone is in my prayers and thoughts. I am back on now until i get sick again. Hopefully that will be a long time from now.

Love Always Kimi"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

[Guest guest]

In a message dated 4/11/03 8:45:26 PM US Eastern Standard Time, circe@...

writes:

>

>

>

> the whole world is on the fast track to making supplements

> unavailable--it's a diabolical pharmaceutical plot.

> Gracia

>

Do any of you have any data on this so I can forward it to my congressman who

is already after the pharmaceutical companies?

[Guest guest]

I looked around the site but didn't find anything specifically about that

house bill. If you ever stumble across any articles, would you please

forward them to me?

> http://www.redflagsdaily.com

[Guest guest]

the whole world is on the fast track to making supplements unavailable--it's a

diabolical pharmaceutical plot.

Gracia

Hey all,

I just saw this on one of my other groups. Just thought I'd pass it

on.

<<THEY WANT TO OUTLAW OUR SUPPLEMENTS: House Bill H.R. 207 (The anti-

andro bill)

[Guest guest]

There is some good stuff on http://www.redflagsdaily.com It is almost all

healthcare related.

Gracia

>

>

>

> the whole world is on the fast track to making supplements

> unavailable--it's a diabolical pharmaceutical plot.

> Gracia

>

Do any of you have any data on this so I can forward it to my congressman who

is already after the pharmaceutical companies?

[Guest guest]

Hi Zina. There is a possibility that you won't need to add T4 to

your Armour. My T4, even on an optimal dose of Armour with a high

T3, is only 1.00 (range: .61 - 1.76.) And I don't seem to have any

problems because of that--as far as I can tell.

But if you do decide to supplement, you might want to wait until you

think you have reached your optimal dose of Armour, and your top-

level of free T3. Then you have better info to see whether you need

the extra T4, and/or what difference taking the T4 makes with your

already optimal amount of Armour.

Janie

[Guest guest]

Zina, I have never understood adding T4 to Armour, just seems like an

experiment and a hassle. Next time I see doc I am going to ask him if he ever

does this. I am learning that it is better to treat adrenal insufficiencies,

than manipulate T3 and T4.

IMHO Gracia

Hi All,

I think my dose of Armour is good, but since my

T4 went down on my last blood test (0.7 - 0.8 to 1.8), I'm wondering

if I should supplement my Armour with some T4. Has anybody in this

group done this? I read " Gail's Thyroid Tips " and that is what she

had to do. What do you all think?

Zina

[Guest guest]

Hi Janie,

I do feel so much better on 90mg (1 1/2 grains) of Armour. I think

I'm getting better as each day goes by. It sure is nice. I guess my

concern is that both my T4 and T3 are not in their upper ranges. My

T3 did go up on my last blood test (290 from 269; Range = 230 to

420), so that was a bonus. I can imagine now that I've upped my

dose, my T3 is getting even higher. I'd like something in the range

of 375 to 420. So, maybe I don't need to worry about the T4. I'm

obviously converting from T4 to T3 just fine. That is also a good

sign. So, do you know why my T4 is so low then? That seems so

strange to me.

Thanks Janie.

Zina

> Hi Zina. There is a possibility that you won't need to add T4 to

> your Armour. My T4, even on an optimal dose of Armour with a high

> T3, is only 1.00 (range: .61 - 1.76.) And I don't seem to have any

> problems because of that--as far as I can tell.

>

> But if you do decide to supplement, you might want to wait until

you

> think you have reached your optimal dose of Armour, and your top-

> level of free T3. Then you have better info to see whether you need

> the extra T4, and/or what difference taking the T4 makes with your

> already optimal amount of Armour.

>

> Janie

[Guest guest]

Hi Gracia,

Yah, that was what I thought too - what a hassle that would be, to

have to take yet another pill! Actually, as the days go by, I am

feeling better and better. So, I'm thinking I won't need to do

that. I need to stop looking at those stupid numbers and rely more

on how I am feeling. There are those days, though, where I don't

feel so good, and I wonder what I could do to fix that.

Zina

>

> Zina, I have never understood adding T4 to Armour, just seems

like an experiment and a hassle. Next time I see doc I am going to

ask him if he ever does this. I am learning that it is better to

treat adrenal insufficiencies, than manipulate T3 and T4.

> IMHO Gracia

>

> Hi All,

>

> I think my dose of Armour is good, but since my

> T4 went down on my last blood test (0.7 - 0.8 to 1.8), I'm

wondering

> if I should supplement my Armour with some T4. Has anybody in

this

> group done this? I read " Gail's Thyroid Tips " and that is what

she

> had to do. What do you all think?

>

> Zina

>

>

>

[Guest guest]

I'm

> obviously converting from T4 to T3 just fine. That is also a good

> sign. So, do you know why my T4 is so low then? That seems so

> strange to me.

>

> Thanks Janie.

>

> Zina

Zina, Its because you are converting it well, thank goodness. I would rather

have low t4 and good t3 than go back to high t4 and low t3...that was

terrible!!!! I read somewhere that this happens to some people on armour,

and some doctors don't use armour because of it. I think that is silly, and

they are placing too much emphasis on T4 levels. And again, your T4 levels

that you get as well as the T3 are based in Math rather than actual counts,

so it could be slightly higher or lower anyway. My thought is that as long

as you feel OK its alright. I guess part of it is me being SO done with

tests! But part is that I feel it is necessary to stop focusing on tests as

more than a guideline and just work on me.

[Guest guest]

< So, do you know why my T4 is so low then? That seems so

> strange to me.

Mine is too. It's because you are converting it, and the Armour just

isn't providing as much. The ratio of T4 to T3 in Armour is 80/20.

The ratio of T4 to T3 in the human thyroid is 93/7. But it hasn't

been a problem for me, and may not be for you. But I will always be

open to it, even if I don't use it for the time being.

Janie

[Guest guest]

> There are those days, though, where I don't

> feel so good, and I wonder what I could do to fix that.

> Zina

You will fix it as you find your optimal dose, which you don't seem

to be at yet.

I also had to supplement with testosterone, which did the final

trick for me.

Janie

[Guest guest]

> < So, do you know why my T4 is so low then? That seems so

> > strange to me.

>

.. The ratio of T4 to T3 in Armour is 80/20.

> The ratio of T4 to T3 in the human thyroid is 93/7.

I wish I remembered the link, but I have read about a zillion articles.

There was this doc who wrote about thyroid that said he always prescribes

either a synth t4 t3 combo, or synth and cytomel. His reasoning was that in

patients using armour the T4 gets too low, and that what works for pigs

doesn't work for humans. However...

You could hold me down and stick pins in me and tickel me with a feather and

use chinese water torture. You could stick bamboo shoots under my

fingernails and rusty fish hooks in my eyelids. But you can't make me take

synth thyroid. nooooooooooo......

In the end, there is more evidence of the PATIENTS preferring natural

thyroid over synthetic for relief once the right dosage is achieved. I don't

care what the docs think if I like it better.

And like Janie said, other hormones are going to play a role. And Zina, if

you lost weight right before getting dx'ed, get that cortisol checked. I

realize that you didn't want to do the 8 am only saliva test, HOWEVER, this

will test your morning free cortisol, it is different than an 8am blood

test. It will show how much cortisol you have as reserve at its highest

level. If it is low, they know for certain you need supplementation.

(who cannot wait to hear from doc about cortisol and dhea

levels...they better call today or my head is gonna spontaneously combust)

[Guest guest]

Hi Janie,

Okay. Well, I was just concerned. I want to make sure I'm doing all

I can to feel good. As I've stated in my other posts, I am feeling

so much better on 90mg of Armour. I'm still contemplating going to

this ND I found and, if I like him, I will ask him to run tests for

my sex hormones and adrenals, just to be sure. I might not be able

to do it all at once, since it will cost a lot of money, but I just

want to see how all my hormones are doing. Though, like said

earlier, I'm sick of being tested all the time.

Thanks Janie,

Zina

> < So, do you know why my T4 is so low then? That seems so

> > strange to me.

>

> Mine is too. It's because you are converting it, and the Armour

just

> isn't providing as much. The ratio of T4 to T3 in Armour is 80/20.

> The ratio of T4 to T3 in the human thyroid is 93/7. But it hasn't

> been a problem for me, and may not be for you. But I will always be

> open to it, even if I don't use it for the time being.

>

> Janie

[Guest guest]

Thanks Janie. I just might have to up my dose again. I'll keep

doing so (slowly, of course) until I get those palps you talk about.

Is that the best strategy?

Zina

> > There are those days, though, where I don't

> > feel so good, and I wonder what I could do to fix that.

> > Zina

>

> You will fix it as you find your optimal dose, which you don't seem

> to be at yet.

>

> I also had to supplement with testosterone, which did the final

> trick for me.

>

> Janie

[Guest guest]

Oh , you are too funny, girl! LOL No, I don't want to take

just synthetics . . . forget it. I'm totally there with you on that

issue. I will NEVER give up on my Armour.

Anywho, I hope your doc called you with your results today. I don't

want you spontaneously combusting!

Zina

>

>

> > < So, do you know why my T4 is so low then? That seems so

> > > strange to me.

> >

> . The ratio of T4 to T3 in Armour is 80/20.

> > The ratio of T4 to T3 in the human thyroid is 93/7.

>

> I wish I remembered the link, but I have read about a zillion

articles.

> There was this doc who wrote about thyroid that said he always

prescribes

> either a synth t4 t3 combo, or synth and cytomel. His reasoning was

that in

> patients using armour the T4 gets too low, and that what works for

pigs

> doesn't work for humans. However...

>

> You could hold me down and stick pins in me and tickel me with a

feather and

> use chinese water torture. You could stick bamboo shoots under my

> fingernails and rusty fish hooks in my eyelids. But you can't make

me take

> synth thyroid. nooooooooooo......

>

> In the end, there is more evidence of the PATIENTS preferring

natural

> thyroid over synthetic for relief once the right dosage is

achieved. I don't

> care what the docs think if I like it better.

>

> And like Janie said, other hormones are going to play a role. And

Zina, if

> you lost weight right before getting dx'ed, get that cortisol

checked. I

> realize that you didn't want to do the 8 am only saliva test,

HOWEVER, this

> will test your morning free cortisol, it is different than an 8am

blood

> test. It will show how much cortisol you have as reserve at its

highest

> level. If it is low, they know for certain you need supplementation.

>

> (who cannot wait to hear from doc about cortisol and dhea

> levels...they better call today or my head is gonna spontaneously

combust)

[Guest guest]

My name is Olive. I have ACM1. I was diagnosed in 10/2010 and decompressed May

23, 2011. Unsuccess =/ I am 37, I live in WA State, and have an amazing husband

and son. I am pretty quiet =) But am always here.

Olive

[Guest guest]

Olivia, here and always quite can some times do more damage than nothing at all!

Knowing the details is a better solution. What life side effects are you

feeling now days? You say unsexhful , but at what limit?

All my surgeries where know to help with the side effects. It's. Never a cure

but a way to take sharp edge off of the pain!

Sent from my iPhone

> My name is Olive. I have ACM1. I was diagnosed in 10/2010 and decompressed May

23, 2011. Unsuccess =/ I am 37, I live in WA State, and have an amazing husband

and son. I am pretty quiet =) But am always here.

>

> Olive

>

>

[Guest guest]

Yes. Within a week I was screaming so much from the pain they had to sedate me

in the parking lot and take me back to the hospital - this was almost a week

post decomp. Then, my symptoms got 3-4x as bad as they were pre decomp, and I

went back for another MRI. They took out too much whatever and my brain is

slumped down. I have high pressure in my head the vast majority of the time, and

feel like complete hell. I won't let the same surgeon touch me again. In fact, I

don't want anyone touching me again, for now. I also have some autoimmune and a

skin autoimmune disease that make further surgery a bad idea unless life just

gets unbearable.

ý~Olive~

" It's the soul afraid of dying that never learns to live. " ~ Bette Midler, The

Rose

To:

From: cindicleary@...

Date: Fri, 18 May 2012 19:54:55 -0700

Subject: Re: Hi All

Hi Olive ,

Was your decompression surgery unsuccessful ?

cindi in pa

________________________________

To:

Sent: Friday, May 18, 2012 8:14 PM

Subject: Hi All

My name is Olive. I have ACM1. I was diagnosed in 10/2010 and decompressed May

23, 2011. Unsuccess =/ I am 37, I live in WA State, and have an amazing husband

and son. I am pretty quiet =) But am always here.

Olive

------------------------------------

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