Re: Blue feet, dry eyes and other stuff

[Guest guest]

Kim I started getting bad bouts of Raynauds so I started buying fun funky

colored socks and leg warmers as well. My students love them! I take amlodopin

aka norvasc and then nitro bid cream for my fingers. I hope that helps and I

hope you live somewhere warm I live in North Daktoa Burrr highest we have gotten

to is in the 50's

<3 aka Jalee ..<>..One in a Million <3

<3 Female 25yrs old ..<>.. Mandan, ND <3

<3 Diagnosed with AOSD on 10/20/10 <3

<3 www.stillsdisease.org <3

<3 Highest temperature 106 on 10/10/10 <3

<3 Positive RH Factor (no Rheumatoid Arthritis) <3

<3 Positive AMA M2 (no Primary Biliary Cirrhosis)<3

[Guest guest]

jenn,

 

thanks for the info on the meds I will look into those.... I live in Texas so

warm is usually not a problem,in fact give it another month and we will be in

triple didgets for 30 plus days at a time and even then a " cool day " is like 95

until September..... actually today I wanted some more " fuzzy " socks like I

bought this winter but it is flip flop weather here so no fuzzy socks to be

had but I did find some awesome,cute and funky warm knee socks and bought a

bunch before they disapear too..

 Leg warmers are a great idea, not sure where to find some around here other

than a dance store. Maybe I will have my daughter check at the store we used to

get her ballet stuff at. I already use gloves that have the tips cut out for my

hands so i keep them pretty toasty and I also bought my daughter some that plug

into the usb on her laptop because her dorm is so cold....since it has warmed up

i doubt she needs them, bet they would feel good.

 

thanks again,

  Kimberlee

 

Subject: Re: Blue feet, dry eyes and other stuff

To: Stillsdisease

Date: Thursday, April 28, 2011, 6:31 AM

 

Kim I started getting bad bouts of Raynauds so I started buying fun funky

colored socks and leg warmers as well. My students love them! I take amlodopin

aka norvasc and then nitro bid cream for my fingers. I hope that helps and I

hope you live somewhere warm I live in North Daktoa Burrr highest we have gotten

to is in the 50's

<3 aka Jalee ..<>..One in a Million <3

<3 Female 25yrs old ..<>.. Mandan, ND <3

<3 Diagnosed with AOSD on 10/20/10 <3

<3 www.stillsdisease.org <3

<3 Highest temperature 106 on 10/10/10 <3

<3 Positive RH Factor (no Rheumatoid Arthritis) <3

<3 Positive AMA M2 (no Primary Biliary Cirrhosis)<3

[Guest guest]

oh if you go to a Mall that has a store called teh Icing or Deb like little

jewelery shops but they also have accessories they usually have leg warmers I

got mine from are local drugstore...lol after they were discounted. I love them

and if you get to hot just take them off and put em back on when you need to.

<3 aka Jalee ..<>..One in a Million <3

<3 Female 25yrs old ..<>.. Mandan, ND <3

<3 Diagnosed with AOSD on 10/20/10 <3

<3 www.stillsdisease.org <3

<3 Highest temperature 106 on 10/10/10 <3

<3 Positive RH Factor (no Rheumatoid Arthritis) <3

<3 Positive AMA M2 (no Primary Biliary Cirrhosis)<3

[Guest guest]

 

 

Kimberlee

Stop trying to make blue berry wine the old fashion way and the blue feet will

go away. LOL

 I am sorry but it is kind of funny as I know you have weather a lot like I do

here in cali. Short so called winter all thou you do get a bit colder then we do

here and long very long hot summers. now my feet do not turn blue but more a

purple color especially if I am in a hot shower or any thing like that of if

there swelling. I have found that walking has seamed to help it a bit as mine is

more from bad blood circulation then any thing. Its sad how because were sick we

also do not move around as much as we should or at lest I do not. Any hoot my

walking more has helped and so has wearing my boot socks. Now I did read the

other post about leg warmers and stuff and if it’s any thing like here good

luck

finding any thing like that now as the stores all have summer out now. you do

have one thing going for you , you live in cowboy country and that being the

case you could try a mans boot sock being they run bigger they should also pull

up your leg more also .I know most of mine go above my knees . They make them

that way to stop any chafing of the boot shaft against the calf. They also tend

to be a bit thicker on the bottom and that helps in keeping warm. Another place

to try would be a hunting catalog like bass pro shops or cabalas as they carry

some very warm socks and things for cold weather hunting. I have even been known

to use a hand warmer pack in my socks and they warm things up really good for

hours!  Also wader socks would maybe work to again made to keep one warm when

fishing ice cold waters. Just some redneck thoughts for keeping warm when your

dressed LOL.

Hugs

 

 

The  Redneck  

Marty G     

 

I watch the sands of time run threw the hour glass of my life knowing I can not

change what has passed.

All I can do is live for today and hope for tomorrow and that it's a better day

then the one I am leavening here today

As I move into the one filled with hope that’s called tomorrow.

Marty G

3/29/2011 

To learn more about Stills Disease or to make a tax deductible donation:

 http://www.stillsdisease.org/stills_info

[Guest guest]

Marty,

 

funny you mention the boot socks, I told my hubby we needed to go to Cavendar's

so I could get some (im less than 15 min from the stockyards I have boot stores

everywhere)

 

The legwarmers were a no go unless I wanted to pay a bunch for some at a ballet

store and that wasnt hapening...I'm just sticking to sweats and myy knee socks

for now. It is pretty warm today but more storms are in the forcast so it will

cool off again by tomorrow night.

As far as stomping for wine, man I wish....my papa used to make the best

homemade wine in the world, There is 1 bottle left and we will open it in 6

weeks when my youngest graduates from High School.... I miss that wine almost as

much as I miss my granny and papa, not that I could drink it now with my

cocktail of meds but just to smell it....it was like purple moonshine....thanks

for bringing back one of my greatest memories and bringing a smile to my

face!!!!

 

Hugs,

 Kimberlee

Subject: Re: Blue feet, dry eyes and other stuff

To: Stillsdisease

Date: Thursday, April 28, 2011, 7:11 AM

 

 

 

Kimberlee

Stop trying to make blue berry wine the old fashion way and the blue feet will

go away. LOL

 I am sorry but it is kind of funny as I know you have weather a lot like I do

here in cali. Short so called winter all thou you do get a bit colder then we do

here and long very long hot summers. now my feet do not turn blue but more a

purple color especially if I am in a hot shower or any thing like that of if

there swelling. I have found that walking has seamed to help it a bit as mine is

more from bad blood circulation then any thing. Its sad how because were sick we

also do not move around as much as we should or at lest I do not. Any hoot my

walking more has helped and so has wearing my boot socks. Now I did read the

other post about leg warmers and stuff and if it’s any thing like here good

luck

finding any thing like that now as the stores all have summer out now. you do

have one thing going for you , you live in cowboy country and that being the

case you could try a mans boot sock being they run bigger they should also pull

up your leg more also .I know most of mine go above my knees . They make them

that way to stop any chafing of the boot shaft against the calf. They also tend

to be a bit thicker on the bottom and that helps in keeping warm. Another place

to try would be a hunting catalog like bass pro shops or cabalas as they carry

some very warm socks and things for cold weather hunting. I have even been known

to use a hand warmer pack in my socks and they warm things up really good for

hours!  Also wader socks would maybe work to again made to keep one warm when

fishing ice cold waters. Just some redneck thoughts for keeping warm when your

dressed LOL.

Hugs

 

 

The  Redneck  

Marty G     

 

I watch the sands of time run threw the hour glass of my life knowing I can not

change what has passed.

All I can do is live for today and hope for tomorrow and that it's a better day

then the one I am leavening here today

As I move into the one filled with hope that’s called tomorrow.

Marty G

3/29/2011 

To learn more about Stills Disease or to make a tax deductible donation:

 http://www.stillsdisease.org/stills_info

[Guest guest]

Glad to hear your doc decided to keep you off work for another month. What

most of us here have learned, that when we start to flare, we need to rest our

body... This can " sometimes " keep a flare at bay, and/or lessen the severi ty.

As I told you, I worked for 11 years with this disease. It was not easy at all.

I would not have done that to myself, if I knew what I know now, I think. lol...

Who knows which is worse really. That is why I said to you previously, only you

can make that decision. Hope all continues to improve for you.

K

Blue feet, dry eyes and other stuff

Hi all,

So today at my dr apt he commented on my blue feet.... I have been telling him

thet they are always really cold, hands too sometimes but I guess seeing is

beleving.

So he told me to just " keep my feet warm " and if it gets worse he will start me

on a calcium chanel blocker (i guess normal treatment for raynauds) so I had an

excuse to go by a bunch of fun and funky socks at least.

he also told me not to get the plugs in my eyes that the eye dr wanted to do and

is sending me to UT Southwestern to see a specalist that deals with eye problems

with autoimmune disorders....just what i need another doctor, but at least no

plugs in my eyes for now and that makes me pretty happy.

he also decided to keep me off for another month and it does not look like I

will be going back to work as long as I am on MTX.

Today was day 2 with no fever..... I LOVE kineret!!!!!!

Hope everyone is having a blessed week

hugs,

Kimberlee

[Guest guest]

Kathleen,

 

Thanks, it was very hard for me when he asked about work.... At first I kinda

just sat there, I have never asked for time off for my illness before... the

previous two months I was FORCED to stay home even though I was telling anyone

who would listen that I was perfectly capable of working, that a diagnosis

didn't change anything I had worked 3 yrs like this and could continue to do so

even if I did have to take chemo pills (no, i'm not a type A personality, why

would anyone think that ) So when I actually told him I thought it would be best

to not return to work at this time to say he was shocked would be an

understatement.

 

I have finally come to terms with my illness and my limitations and know that a

family practice office would not be the best place for me at this time. I am

feeling better than I have in years the last couple of weeks and I think alot of

that has to do with the Kineret but also because I have learned to balance

resting with getting the necessary things done around the house.

 

When I think about going back to work 12 hrs a day, planning my daughters grad

party, trying to get a new house built (much smaller and easier to take care

of), packing, moving,getting yet another munchkin off to college AND trying to

manage my disease all at the same time I have to admit it just is not possible.

 

As it is we have decided to start packing now (we don't plan to move for another

6 months) to do it alittle at a time, my hubby is pretty much handeling the

entire house buying thing, the Grad party is going to be at my parents house

(thank you mommy) and the munchkin and I will start asap on college stuff and do

a little at a time.

 

My HUGE family and movers will move us and do the unpacking for me (I have a

great support network) so that I can use my energy to continue to get better. I

don't know if I will ever return to work, at least not in family practice or

internal medicine which is what I truly love, but maybe someday.... when I am

not on MTX.... I have considered looking into teaching at nearby trade schools

for Medical assistants or at a nursing school and think that is a more realistic

option for my future.

 

Thanks for your advice, I took it to heart and realized that my health is more

important than my obligation to my doctors or to my patients and that this time

I needed to put myself first and take my own advice that I had given so many

patients over the years and realize that I can't do it all and be super woman...

I can be a mom and a wife, but I can't do the job I did before (at least not do

it well....and my patients deserve someone at 100%) and don't know if I ever

will be able to again but I will look into new oportunities like teaching the

next generation of nursing.

 

Thanks again for all of your support!!!

 

Hugs,

  Kimberlee

[Guest guest]

Kimberlee,

Good girl, proud of you.

K

realized that my health is more important than my obligation to my doctors or to

my patients and that this time I needed to put myself first and take my own

advice that I had given so many patients over the years and realize that I can't

do it all and be super woman... I can be a mom and a wife, but I can't do the

job I did before (at least not do it well....and my patients deserve someone at

100%) and don't know if I ever will be able to again but I will look into new

oportunities like teaching the next generation of nursing.

Re: Blue feet, dry eyes and other stuff

Kathleen,

Thanks, it was very hard for me when he asked about work.... At first I kinda

just sat there, I have never asked for time off for my illness before... the

previous two months I was FORCED to stay home even though I was telling anyone

who would listen that I was perfectly capable of working, that a diagnosis

didn't change anything I had worked 3 yrs like this and could continue to do so

even if I did have to take chemo pills (no, i'm not a type A personality, why

would anyone think that ) So when I actually told him I thought it would be best

to not return to work at this time to say he was shocked would be an

understatement.

I have finally come to terms with my illness and my limitations and know that a

family practice office would not be the best place for me at this time. I am

feeling better than I have in years the last couple of weeks and I think alot of

that has to do with the Kineret but also because I have learned to balance

resting with getting the necessary things done around the house.

When I think about going back to work 12 hrs a day, planning my daughters grad

party, trying to get a new house built (much smaller and easier to take care

of), packing, moving,getting yet another munchkin off to college AND trying to

manage my disease all at the same time I have to admit it just is not possible.

As it is we have decided to start packing now (we don't plan to move for another

6 months) to do it alittle at a time, my hubby is pretty much handeling the

entire house buying thing, the Grad party is going to be at my parents house

(thank you mommy) and the munchkin and I will start asap on college stuff and do

a little at a time.

My HUGE family and movers will move us and do the unpacking for me (I have a

great support network) so that I can use my energy to continue to get better. I

don't know if I will ever return to work, at least not in family practice or

internal medicine which is what I truly love, but maybe someday.... when I am

not on MTX.... I have considered looking into teaching at nearby trade schools

for Medical assistants or at a nursing school and think that is a more realistic

option for my future.

Thanks for your advice, I took it to heart and realized that my health is more

important than my obligation to my doctors or to my patients and that this time

I needed to put myself first and take my own advice that I had given so many

patients over the years and realize that I can't do it all and be super woman...

I can be a mom and a wife, but I can't do the job I did before (at least not do

it well....and my patients deserve someone at 100%) and don't know if I ever

will be able to again but I will look into new oportunities like teaching the

next generation of nursing.

Thanks again for all of your support!!!

Hugs,

Kimberlee