update

[Guest guest]

In a message dated 5/2/2004 1:24:19 PM Eastern Standard Time,

AnneBFL@... writes:

can't seem to exercise unless Kelley makes me!!

Good luck!

Anne

Is that a cry for help???

Kelley

[Guest guest]

They are all so angry and yet it doesn't matter if he killed himself or

walked out on her, they'd all gang-up and be angry at him for what he did to

her- KWIM?

_______________________

Definitely. How I failed Yeti. Funny thing is, she's the infant and now I'm

the adult.

_______________________

I just feel sad for a life that is lost, can't be replaced, the utter

despair he must have felt not only living w/nada but probably for a long

time since he had a nada of his own.

________________________

We've all known that feeling. Awful isn't it. No wonder he wanted to flee.

He didn't see that fleeing that way was misguided, which is a bit tragic.

All he needed to do was just ... flee. Like the Pink Floyd song, just Run

Like Mad.

Send instant messages to your online friends http://au.messenger.yahoo.com

[Guest guest]

Kerrie, good luck with your family whatever you decide. Your

perspective on this sounds very stable and firm, although I know you

are very upset. It's good to see that your not allowing this to make

you vulnerable to the FOO.

I know what you mean about being the one to say, " there's something

wrong here, this is not healthy " and no one listens to you. My FOO

has started to just not tell me what their recent disasters are

because I've told them so many times, it's like why bother. If

something like this were to happen in my FOO, I'd be sad and angry

like you--and I'd be especially angry because I've seen something

about to hit the fan for a long time, but the FOO just keeps making

excuses. It's so frustrating isn't it.

It must be very hard to deal with. It seems unfair for BPD to effect

someone you care about enough to make them comit suicide. I think it

just goes to show how hard it is for anyone to handle this kind of

situation and how easy it is not to come out happy and healthy.

I'm glad that you have managed to do this for you and your family.

Trish

[Guest guest]

Hi Lyn,

I know that what you are going through is upsetting. My father gets

really out of whack when he goes to the hospital...something about

the unfamiliar environment... You will not be able to " rationally

talk some sense " into her...it is just the nature of the beast.

When I shifted gears to focus on compassionate care and safety

concerns, it helped me find some acceptance and peace of mind.

My heart goes out to you and your husband.

Take care,

Daughter of Bill, 91

>

>

>

> Hugs Lyn

> -- Update

>

> Hi people, Hope you all have a happy and safe 2007.

> Well and I went and sen his Mum on New Years Eve well I

don't know

> what to think any more.

> She says some nasty things, she has us looking for things and then

had me

> finding this bubble wrap and then I had to find this paper wrap

and then

> wrap the bubble wrap inside the paper wrap and place it back in

the cupboard

>

> She then had her daughter standing on a chair looking for these

things in

> the bag and they were her winter nighties and she argued with her

daughter

> to leave them down and we just couldn't get through to her.

> She is starting to touch her self in inappropriate places and she

got hold

> of this pen and was pushing it in the top of her leg really hard

we had to

> take it off of her.

> The psychiatrist has put her on Epilim now 2.5 mgs once a day.

> She is not singing out any more, but she is still not moving she

just sits

> in the chair and she doesn't even like she wants to get dressed.

> She says she doesn't want to be here she wants to be with her

husband who

> died 2and half years ago.

> Well people I will write again soon

> Hugs Lyn

>

>

[Guest guest]

I will be sending peaceful, healing and soothing thoughts out to

everyone.....I feel now that I as I let go of my fears and worries

about my step mom, I have a stronger outlook....or maybe it's easier

to focus on others. At any rate....I hope everyone is able to get

through all the trying times. Sara

[Guest guest]

Hi Meg,

Sorry to hear that the dreaded cdiff is back. What a nightmare. Is

the doctor prescribing antibiotics again?

My dad currently has the gastrointestinal virus which is going around.

It is amazing to see the decline from the slightest infection. I knew

he was coming down with it 24 hours before it started, just based on

how he was changing mentally. In addition to tiredness, he also is

weak, uncoordinated and has trouble swallowing when he is tired/weak.

Hopefully will improve (including the swallowing) if they can

get the cdiff under control.

Hang in there...I hope things improve for you both soon.

Daughter of Bill, 91

>

> my husband who had the C.Diff now has continuous diarrhea

> again.. I know that it has returned or was still active because of the

> distinct odor...he is so weak and confused..he has been hallucinating

> and I know that he is going to be dehydrated again...this stuff is

> real NASTY...I am pumping in fluids but it is hard..I am giving him

> lots of salt and bananas..also I have been giving him probiotics and

> the new yogurt drink...also feed him jello etc..we have ordered a

> swallow test because of his difficulty eating....meg

>

[Guest guest]

Meg -- I'm so sorry to hear that the diarrhea has returned. How

frustrating! I'll continue to keep you & in my thoughts and

prayers!

[Guest guest]

Dear Meg

I truly feel for you and your husband. I will keep you

in my thoughts and prayers.

Dena in So Cal

Mother (84) Living with LBD in NH

--- mimiartsy wrote:

> My husband Mike continues to have diarrhea and

> tested positive again

> for C.Diff ..he is back on Vacomycin ..He had low BP

> and is

> orthostatic but now has high BP when standing..we

> are having trouble

> getting his INR levels up..he has had several falls

> and

> hallucinations..I have noticed the return of some

> tremors..he is going

> to have a swallow test..the doctor told me that the

> curling toes could

> be lack of potassium...he has also had episodes of

> shortness of

> breath...Meg

>

>

________________________________________________________________________________\

____

Never miss an email again!

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[Guest guest]

Oh Meg! That's awful. I'm sorry that c-diff is back with again.

Here's hoping that it was caught on early with the Vacomycin so this

bout doesn't last as long... Lewy is difficult enough by itself, not to

have to deal with c-diff on top of it! Hope the added help has

helped you juggle your time better!

[Guest guest]

I am sorry, too, Meg, about your husband's C-Diff. I didn't even know the

name existed, until it was discussed a lot on this List.

It must be one awful time you are having. I sure am sorry. Thank you for

telling us about it.

I hope it doesn't linger any longer after the medication.

Love a bunch,

Imogene

In a message dated 3/2/2007 11:27:29 AM Central Standard Time,

octoryrose@... writes:

Oh Meg! That's awful. I'm sorry that c-diff is back with again.

Here's hoping that it was caught on early with the Vacomycin so this

bout doesn't last as long... Lewy is difficult enough by itself, not to

have to deal with c-diff on top of it! Hope the added help has

helped you juggle your time better!

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

[Guest guest]

meg, my goodness, my prayers for strenght and health are for you adn mike, i

cannot imagine how to get him thru this episode again, i assume he is on IV

vancomycin.

i dont know what ot think or what to offer, i hope they find the right

combination asap, tkae care and hugs, sharon a-m ps, if you want my phone

number to call me just so you can talk and vent, let me know i will email it to

you personally hugs, s

---- mimiartsy wrote:

My husband Mike continues to have diarrhea and tested positive again

for C.Diff ..he is back on Vacomycin ..He had low BP and is

orthostatic but now has high BP when standing..we are having trouble

getting his INR levels up..he has had several falls and

hallucinations..I have noticed the return of some tremors..he is going

to have a swallow test..the doctor told me that the curling toes could

be lack of potassium...he has also had episodes of shortness of

breath...Meg

--

I am daugher of Leonard, diagnosed May 2004, probably had lbd since 1993,.Dad

had a serious fall in 7/05 causing him to hav hip surgery .After that he

developed aspiration pneumonia 7/05 with pulmonary embolyis, which he almost

died from. He had a 2nd bout of aspiration pneumonia and uti 8/05. He died when

his blood pressure fluctuations started dropping without coming back up on

9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

[Guest guest]

Penny, I am sure the time hasn't gone as fast for you as it seems to have

gone for me. I remember when you were counting in the single digit weeks.

You should be done around Thanksgiving, right. You won't have to look too

far for something to be thankful for. I wonder if the earlier you don't

show a hepc in your body is an indication of it being less apt to return.

Hoping that is true for you. Jan H

On Mon, Aug 17, 2009 at 9:46 PM, preciouspenny3 wrote:

> I'm getting close to being done with the Peginterferon and Ribavirin

> treatment for the Hepatitis C. I have 14 weeks to go. As I've told you all

> before, I was undetectable after only 6 days on treatment. The lab has been

> doing the viral load test that only goes down to 50, though, so they weren't

> totally sure that I was completely undetectable. My post transplant

> coordinator has been trying to get my local lab to do a different test that

> can tell if there is any virus left in the blood or not, but they were

> always too confused and didn't understand that it was a different test.

> They finally took the test last Monday, and I got the results today. There

> isn't any Hep C virus detectable in my blood at all. Yay! Hopefully, it

> will stay that way when I stop treatment, and especially six months after I

> stop. The farther out from treatment being undetectable, the better chance

> there is that it won't come back.

>

> I still get the shot of Aranesp every week to keep my red blood cell counts

> up, and since they lowered my dose of Ribavirin, my counts have gradually

> gone up enough so I'm not as tired or out of breath. They are starting to

> fall a bit again, but we'll see how they are next week. At least I haven't

> had to get anymore blood transfusions, and I should be able to get through

> the last few weeks I have left without another one. In 14 weeks when I'm

> done, I will still have to take the Ribavirin for a while since I'm on such

> a low dose, and I will have to continue to get the shots of Aranesp until I

> stop taking the pills, but I'll be done with the Peginterferon injections.

> The injections I don't mind since they have never given me any trouble,

> except when the needles were hard to get through the skin there for a while.

> Actually, every time I give myself the shot, it makes me feel better,

> healthier, stronger.

>

> My new liver is doing great, thank goodness. It's been 1 year and 7-1/2

> months since my transplant. I'm amazed every time I see my AST and ALT in

> the normal range in the 20's, which it has been for a while now, but it just

> amazes me when I see it since mine were always so high for years before my

> transplant.

>

> I hope everyone is doing well.

>

> Penny

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Penny

 

I am so happy for you!!!!!!!!!!

Thanks be to God for he creates our tomorrows Love, Lyncia

 

 

Subject: Update

To: livercirrhosissupport

Date: Monday, August 17, 2009, 11:46 PM

 

I'm getting close to being done with the Peginterferon and Ribavirin treatment

for the Hepatitis C. I have 14 weeks to go. As I've told you all before, I was

undetectable after only 6 days on treatment. The lab has been doing the viral

load test that only goes down to 50, though, so they weren't totally sure that I

was completely undetectable. My post transplant coordinator has been trying to

get my local lab to do a different test that can tell if there is any virus left

in the blood or not, but they were always too confused and didn't understand

that it was a different test. They finally took the test last Monday, and I got

the results today. There isn't any Hep C virus detectable in my blood at all.

Yay! Hopefully, it will stay that way when I stop treatment, and especially six

months after I stop. The farther out from treatment being undetectable, the

better chance there is that it won't come back.

I still get the shot of Aranesp every week to keep my red blood cell counts up,

and since they lowered my dose of Ribavirin, my counts have gradually gone up

enough so I'm not as tired or out of breath. They are starting to fall a bit

again, but we'll see how they are next week. At least I haven't had to get

anymore blood transfusions, and I should be able to get through the last few

weeks I have left without another one. In 14 weeks when I'm done, I will still

have to take the Ribavirin for a while since I'm on such a low dose, and I will

have to continue to get the shots of Aranesp until I stop taking the pills, but

I'll be done with the Peginterferon injections. The injections I don't mind

since they have never given me any trouble, except when the needles were hard to

get through the skin there for a while. Actually, every time I give myself the

shot, it makes me feel better, healthier, stronger.

My new liver is doing great, thank goodness. It's been 1 year and 7-1/2 months

since my transplant. I'm amazed every time I see my AST and ALT in the normal

range in the 20's, which it has been for a while now, but it just amazes me when

I see it since mine were always so high for years before my transplant.

I hope everyone is doing well.

Penny

[Guest guest]

Yes, the earlier treatment shows no virus in the blood, the better chance of it

staying gone too, like you said. They didn't detect a viral count after only

six days on treatment, so that was a good sign right away.

The time actually has gone pretty fast, and it won't be much longer. My last

shot will be on November 24, I think.

Penny

>

> > I'm getting close to being done with the Peginterferon and Ribavirin

> > treatment for the Hepatitis C. I have 14 weeks to go. As I've told you all

> > before, I was undetectable after only 6 days on treatment. The lab has been

> > doing the viral load test that only goes down to 50, though, so they weren't

> > totally sure that I was completely undetectable. My post transplant

> > coordinator has been trying to get my local lab to do a different test that

> > can tell if there is any virus left in the blood or not, but they were

> > always too confused and didn't understand that it was a different test.

> > They finally took the test last Monday, and I got the results today. There

> > isn't any Hep C virus detectable in my blood at all. Yay! Hopefully, it

> > will stay that way when I stop treatment, and especially six months after I

> > stop. The farther out from treatment being undetectable, the better chance

> > there is that it won't come back.

> >

> > I still get the shot of Aranesp every week to keep my red blood cell counts

> > up, and since they lowered my dose of Ribavirin, my counts have gradually

> > gone up enough so I'm not as tired or out of breath. They are starting to

> > fall a bit again, but we'll see how they are next week. At least I haven't

> > had to get anymore blood transfusions, and I should be able to get through

> > the last few weeks I have left without another one. In 14 weeks when I'm

> > done, I will still have to take the Ribavirin for a while since I'm on such

> > a low dose, and I will have to continue to get the shots of Aranesp until I

> > stop taking the pills, but I'll be done with the Peginterferon injections.

> > The injections I don't mind since they have never given me any trouble,

> > except when the needles were hard to get through the skin there for a while.

> > Actually, every time I give myself the shot, it makes me feel better,

> > healthier, stronger.

> >

> > My new liver is doing great, thank goodness. It's been 1 year and 7-1/2

> > months since my transplant. I'm amazed every time I see my AST and ALT in

> > the normal range in the 20's, which it has been for a while now, but it just

> > amazes me when I see it since mine were always so high for years before my

> > transplant.

> >

> > I hope everyone is doing well.

> >

> > Penny

> >

> >

> >

> > ------------------------------------

> >

> > Group Email: livercirrhosissupport

> > web address:

> > http://groups.yahoo.com/group/livercirrhosissupport/

> >

[Guest guest]

Thanks, Lyncia. Now you just need to get your transplants soon so you can feel

better.

Penny

>

>

>

> Subject: Update

> To: livercirrhosissupport

> Date: Monday, August 17, 2009, 11:46 PM

>

>

>  

>

>

>

> I'm getting close to being done with the Peginterferon and Ribavirin treatment

for the Hepatitis C. I have 14 weeks to go. As I've told you all before, I was

undetectable after only 6 days on treatment. The lab has been doing the viral

load test that only goes down to 50, though, so they weren't totally sure that I

was completely undetectable. My post transplant coordinator has been trying to

get my local lab to do a different test that can tell if there is any virus left

in the blood or not, but they were always too confused and didn't understand

that it was a different test. They finally took the test last Monday, and I got

the results today. There isn't any Hep C virus detectable in my blood at all.

Yay! Hopefully, it will stay that way when I stop treatment, and especially six

months after I stop. The farther out from treatment being undetectable, the

better chance there is that it won't come back.

>

> I still get the shot of Aranesp every week to keep my red blood cell counts

up, and since they lowered my dose of Ribavirin, my counts have gradually gone

up enough so I'm not as tired or out of breath. They are starting to fall a bit

again, but we'll see how they are next week. At least I haven't had to get

anymore blood transfusions, and I should be able to get through the last few

weeks I have left without another one. In 14 weeks when I'm done, I will still

have to take the Ribavirin for a while since I'm on such a low dose, and I will

have to continue to get the shots of Aranesp until I stop taking the pills, but

I'll be done with the Peginterferon injections. The injections I don't mind

since they have never given me any trouble, except when the needles were hard to

get through the skin there for a while. Actually, every time I give myself the

shot, it makes me feel better, healthier, stronger.

>

> My new liver is doing great, thank goodness. It's been 1 year and 7-1/2 months

since my transplant. I'm amazed every time I see my AST and ALT in the normal

range in the 20's, which it has been for a while now, but it just amazes me when

I see it since mine were always so high for years before my transplant.

>

> I hope everyone is doing well.

>

> Penny

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Penny

 

This year has gone quicker than I thought it would.  Hugs and hugs to you!

Thanks be to God for he creates our tomorrows Love, Lyncia

 

 

Subject: Re: Update

To: livercirrhosissupport

Date: Tuesday, August 18, 2009, 10:57 PM

 

Yes, the earlier treatment shows no virus in the blood, the better chance of it

staying gone too, like you said. They didn't detect a viral count after only six

days on treatment, so that was a good sign right away.

The time actually has gone pretty fast, and it won't be much longer. My last

shot will be on November 24, I think.

Penny

>

> > I'm getting close to being done with the Peginterferon and Ribavirin

> > treatment for the Hepatitis C. I have 14 weeks to go. As I've told you all

> > before, I was undetectable after only 6 days on treatment. The lab has been

> > doing the viral load test that only goes down to 50, though, so they weren't

> > totally sure that I was completely undetectable. My post transplant

> > coordinator has been trying to get my local lab to do a different test that

> > can tell if there is any virus left in the blood or not, but they were

> > always too confused and didn't understand that it was a different test.

> > They finally took the test last Monday, and I got the results today. There

> > isn't any Hep C virus detectable in my blood at all. Yay! Hopefully, it

> > will stay that way when I stop treatment, and especially six months after I

> > stop. The farther out from treatment being undetectable, the better chance

> > there is that it won't come back.

> >

> > I still get the shot of Aranesp every week to keep my red blood cell counts

> > up, and since they lowered my dose of Ribavirin, my counts have gradually

> > gone up enough so I'm not as tired or out of breath. They are starting to

> > fall a bit again, but we'll see how they are next week. At least I haven't

> > had to get anymore blood transfusions, and I should be able to get through

> > the last few weeks I have left without another one. In 14 weeks when I'm

> > done, I will still have to take the Ribavirin for a while since I'm on such

> > a low dose, and I will have to continue to get the shots of Aranesp until I

> > stop taking the pills, but I'll be done with the Peginterferon injections.

> > The injections I don't mind since they have never given me any trouble,

> > except when the needles were hard to get through the skin there for a while.

> > Actually, every time I give myself the shot, it makes me feel better,

> > healthier, stronger.

> >

> > My new liver is doing great, thank goodness. It's been 1 year and 7-1/2

> > months since my transplant. I'm amazed every time I see my AST and ALT in

> > the normal range in the 20's, which it has been for a while now, but it just

> > amazes me when I see it since mine were always so high for years before my

> > transplant.

> >

> > I hope everyone is doing well.

> >

> > Penny

> >

> >

> >

> > ------------ --------- --------- ------

> >

> > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com

> > web address:

> > http://groups. yahoo.com/ group/livercirrh osissupport/

> >

[Guest guest]

Thanksgiving this year is the 26th, so you will be done by then if you have

calculated correctly. Remind me, and I will join you in the thanksgiving.

Jan H

On Tue, Aug 18, 2009 at 8:57 PM, preciouspenny3 wrote:

> Yes, the earlier treatment shows no virus in the blood, the better chance

> of it staying gone too, like you said. They didn't detect a viral count

> after only six days on treatment, so that was a good sign right away.

>

> The time actually has gone pretty fast, and it won't be much longer. My

> last shot will be on November 24, I think.

>

> Penny

>

>

> >

> > > I'm getting close to being done with the Peginterferon and Ribavirin

> > > treatment for the Hepatitis C. I have 14 weeks to go. As I've told

> you all

> > > before, I was undetectable after only 6 days on treatment. The lab has

> been

> > > doing the viral load test that only goes down to 50, though, so they

> weren't

> > > totally sure that I was completely undetectable. My post transplant

> > > coordinator has been trying to get my local lab to do a different test

> that

> > > can tell if there is any virus left in the blood or not, but they were

> > > always too confused and didn't understand that it was a different test.

> > > They finally took the test last Monday, and I got the results today.

> There

> > > isn't any Hep C virus detectable in my blood at all. Yay! Hopefully,

> it

> > > will stay that way when I stop treatment, and especially six months

> after I

> > > stop. The farther out from treatment being undetectable, the better

> chance

> > > there is that it won't come back.

> > >

> > > I still get the shot of Aranesp every week to keep my red blood cell

> counts

> > > up, and since they lowered my dose of Ribavirin, my counts have

> gradually

> > > gone up enough so I'm not as tired or out of breath. They are starting

> to

> > > fall a bit again, but we'll see how they are next week. At least I

> haven't

> > > had to get anymore blood transfusions, and I should be able to get

> through

> > > the last few weeks I have left without another one. In 14 weeks when

> I'm

> > > done, I will still have to take the Ribavirin for a while since I'm on

> such

> > > a low dose, and I will have to continue to get the shots of Aranesp

> until I

> > > stop taking the pills, but I'll be done with the Peginterferon

> injections.

> > > The injections I don't mind since they have never given me any

> trouble,

> > > except when the needles were hard to get through the skin there for a

> while.

> > > Actually, every time I give myself the shot, it makes me feel better,

> > > healthier, stronger.

> > >

> > > My new liver is doing great, thank goodness. It's been 1 year and

> 7-1/2

> > > months since my transplant. I'm amazed every time I see my AST and ALT

> in

> > > the normal range in the 20's, which it has been for a while now, but it

> just

> > > amazes me when I see it since mine were always so high for years before

> my

> > > transplant.

> > >

> > > I hope everyone is doing well.

> > >

> > > Penny

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > Group Email: livercirrhosissupport

> > > web address:

> > > http://groups.yahoo.com/group/livercirrhosissupport/

> > >

[Guest guest]

penny i am tickled pink for you my friend ,doing the happy dance for you!!!!!! i

pray this is the way it turns out for bobby glenn.keep up the good work

girl!!!much love barby

>

> I'm getting close to being done with the Peginterferon and Ribavirin treatment

for the Hepatitis C. I have 14 weeks to go. As I've told you all before, I was

undetectable after only 6 days on treatment. The lab has been doing the viral

load test that only goes down to 50, though, so they weren't totally sure that I

was completely undetectable. My post transplant coordinator has been trying to

get my local lab to do a different test that can tell if there is any virus left

in the blood or not, but they were always too confused and didn't understand

that it was a different test. They finally took the test last Monday, and I got

the results today. There isn't any Hep C virus detectable in my blood at all.

Yay! Hopefully, it will stay that way when I stop treatment, and especially six

months after I stop. The farther out from treatment being undetectable, the

better chance there is that it won't come back.

>

> I still get the shot of Aranesp every week to keep my red blood cell counts

up, and since they lowered my dose of Ribavirin, my counts have gradually gone

up enough so I'm not as tired or out of breath. They are starting to fall a bit

again, but we'll see how they are next week. At least I haven't had to get

anymore blood transfusions, and I should be able to get through the last few

weeks I have left without another one. In 14 weeks when I'm done, I will still

have to take the Ribavirin for a while since I'm on such a low dose, and I will

have to continue to get the shots of Aranesp until I stop taking the pills, but

I'll be done with the Peginterferon injections. The injections I don't mind

since they have never given me any trouble, except when the needles were hard to

get through the skin there for a while. Actually, every time I give myself the

shot, it makes me feel better, healthier, stronger.

>

> My new liver is doing great, thank goodness. It's been 1 year and 7-1/2

months since my transplant. I'm amazed every time I see my AST and ALT in the

normal range in the 20's, which it has been for a while now, but it just amazes

me when I see it since mine were always so high for years before my transplant.

>

> I hope everyone is doing well.

>

> Penny

>

[Guest guest]

Kimberlee

 All sounds like a good solid plan and one I kind of fallowed for a time that

seamed to work to get me some what feeling so called normal again just not back

to workable.

 

 now as for the race well I was going to say park the V on the drive surround

it

with flat panels and climb on up there you would almost have a better seat there

if you were there in person but you may get dizzy snapping your head to and fro

trying to get in every view from every channel surrounding you LOL

 but there is nothing like the roar of a motor and scream of tiers early in the

morning to get ones blood pumping well that is unless your the one behind the

wheel of say a few thousand horses and the willing spirit to cover a 1/4 mile in

under 5 seconds . but then again making nothing but mainly left turns can be fun

also as long as you keep the rest behind you so they stay out of your way and

the peddle is buried to the floor. O yes I am a gear head from long a go and yes

I did get to drive a top fuel funny car for a bit also talk about an adrenalin

rush waaa hooo! Never did the Roundy Roundy my self but had some friends that

did and enjoyed watching them but sadly our old track is long gone now. At one

time it was one of the best for setting records in the country. It was called

Baylands race way and before that Fremontdrag strip. They had drag

dirt motocross and for the none racing next door was a sail plane air port.

What

a place to grow up as a motor head. but the  two we had the old sears point

track not to far away also but when the big boys from NASCAR came there it was a

bit boring as not many places to do any passing there . Kind of still that way.

wish Bakersfield was still around as that’s not to far away but then to SSDI

kind of killed my racing both doing and going to watch so enjoy your day and

family as what there giving you is very special.

The  Redneck  

Marty G     

[Guest guest]

Hello everyone

Had my infusion of rituxan on april 21 been having problems it feels like im

running and going no where my heart is racing and i feel like im going nuts i

did call my dr about it and she said i would be ok but i can move a little

better but all the rain we had dont help me at all more rain is coming work is

killing me and so are the gas prices just wanted to let you all know im still

alive Amy

[Guest guest]

Amy

 hope things settle down for you and it all works out and that this med is you

wonder drug.

 as for gas prices and food well were all in the same boat as you. I just do

not

know how so many of you can deal with Stills and still work. tried it did not

like it and my stills hated it and let me know that so I gave it up but that

came with its own problems . so on one hand you have work and the problems of

doing that and on the other on you have giving up work and its problems nether

one is fun both are hard and both let you live just with changes and adjustments

each different from each other . I call it the balance act with the stills and

our health being the tool that we use to keep our balance.

hugs

 

The  Redneck  

Marty G     

 

I watch the sands of time run threw the hour glass of my life knowing I can not

change what has passed.

All I can do is live for today and hope for tomorrow and that it's a better day

then the one I am leavening here today

As I move into the one filled with hope that’s called tomorrow.

Marty G

3/29/2011 

To learn more about Stills Disease or to make a tax deductible donation:

 http://www.stillsdisease.org/stills_info

[Guest guest]

Hi Amy,

Thank you for letting us know how you're getting along these days. I'm glad you

got started on medication, now we'll just hope it works for you.

At one point my heart used to race terribly and my doctor told me to drink lots

of water. Maybe you could ask your doctor if that would help any?

I hope things get better soon for you. I will continue to think of you.

Smiles to you,

To: stillsdisease

From: blackbear109@...

Date: Thu, 28 Apr 2011 17:32:39 -0700

Subject: update

Hello everyone

Had my infusion of rituxan on april 21 been having problems it feels like im

running and going no where my heart is racing and i feel like im going nuts i

did call my dr about it and she said i would be ok but i can move a little

better but all the rain we had dont help me at all more rain is coming work is

killing me and so are the gas prices just wanted to let you all know im still

alive Amy