Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 I started Diamox a couple weeks ago because my headaches are back to being a constant daily struggle. They are accompanied by lots of pressure and fluid build up. Before the Diamox if I could get the fluid to drain I would get some relief. But the Diamox has been pretty consistent in keeping things at a very tolerable level. I'm on 1/2 of a 125mg tablet twice a day so it's a pretty low dosage. I immediately noticed about 2-3 hours after taking it that I would get very sleepy but it was manageable. Now at the end of my second week the side effects have pretty much taken over and am in bed sleeping or resting because I am so tired and then I get really bad body aches. I have a growing list of meds I can no longer take because of the side effects and am thinking this one will get added to that list also. It's a double edge sword. On one hand if I don't take it I'm spending most of my time in bed bacause of the headaches and fluid build up and all the symptoms that are aggravated by it. And on the other hand, while it is giving me about 60% relief, I am now sleeping all the time. I'm going to try just taking it in the evening and see if that can keep things under control enough during the day. My NL believes I may have a CSF leak and/blockage along with some other " structural " issues going on and is urging me to see my NS who I have been trying to get a hold of for over a month. I finally emailed his nurse and she says she hasn't gotten any of my messages and now the NS is on vacation. But she won't tell me when he will be back, only that my chart and letter from the NL is on his desk and he will review it as soon as he is back. Won't even let me schedule an appt at this point so I can get on the schedule as I know that I could have to wait a month or more for an appt since he is only at the chiari center one day a week to see patients. Does any one know of any alternatives to the Diamox? Something that will work the same way in keeping the amount of fluid down? Debbie R Quote Link to comment Share on other sites More sharing options...
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