Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 With regard to the National Institutes of Health, Bethesda MD Research Study 03-AR-0173 - on NOMID/CAPS,DIRA,CRMO, Still's Disease. Today (3/31/2011) I spoke to Ms. Joyal at (NIH) who informed me that subject study is in the very early states of development and that they are not looking for volunteers nor do they want anyone to contact them at this time. I asked if she would retain my name and anyone else with Still's from our group that would be interested and she said " NO - check back in a year " . NIH website is http://clinicalstudies.info.nih.gov in Philadelphia Quote Link to comment Share on other sites More sharing options...
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