Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 Hi Everyone. Im new to this and just wanted to introduce myself to you all. My name is and I have been diagnosed with Chiari 1 malformation. I have been to numerous neurologists and neurosurgeons and none of them want to do anything for me except pain management! This has been going on for years!! Im heading to the Chiari Institute on Monday the 21st(so happy to see someone that understands this problem). I suffer everyday with pain and pressure, and I have a 4 year old son, so being in pain makes it very hard to play and have fun with my son. The dizziness makes it near impossible to drive at times, and driving makes it worse anyway!! I love all the information I am getting from this group, and it just makes me wonder how these Doctors that aren't chiari specialists can just discount so many of us. It really upsets me that they don't even try to do anything or even refer you to someone who specializes in it. It's almost like they are making fun of you, and there is nothing wrong with you. I just don't get it. This last neurosurgeon I saw basically made fun of the institute like chiari isn't a real problem. I can't wait to see the doctors at the institute, I feel this is the answer to getting my life back pain free, or at least off of pain meds. I will post after my appt with the institute on monday. Can't wait. Quote Link to comment Share on other sites More sharing options...
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