Hi there, 1st time posting...

[Guest guest]

I never post anything on this group, because I'm the type of person who keeps

things bottled inside and once a week or so I will have a

breakdown. I always read posts people make and it makes me feel like I'm not

alone, because when I tell anyone about my problems, they don't understand.

Can anyone recommend me a good neurologist in the bay area of

California?

My neurologist told me last year around this time that I " might " have

Arnold Chiari malformation. I went to get a MRI of my brain and the

report says that my cerebellar tonsils project approx. 4 cm. below the

foramen magnum and they still have a more rounded appearance. My

neurologist gave me so many medicines to try out and see if it works. I thought

to myself, " what kind of system is this? " He asked me if I

wanted to take more meds. or go to a surgeon and see if I do need

surgery for my " might be " malformation. I said take more meds. the first time.

Second time came around and I said to be refer to a surgeon. I got another scan

but showing the flow of the brain, I forgot what it was called and it came out

normal. I really think they should have done a flexion/extension one. Why do

appointments take so long?

I know I'm not

dying, but I'm suffering. I went to the surgeon and he said it wasn't

bad enough to have surgery. The surgeon gave me steroids. I came back

after taking the steroids for two weeks or so. I'm horrible in

remembering things now. And the steroids didn't change anything for me

and the surgeon said it should and that I wasn't going to get surgery.

First time seeing him, he ask me twice if I was pregnant. This made me

mad, because why would I waste money and time to figure out what's wrong with me

if I was just pregnant. I think I would know. I still think I have Arnold Chiari

malformation. I have so many symptoms: headache (which is everyday all the time,

it never stops hurting on the back of my head), dizziness, body weakness, hard

time sleeping and staying asleep, nausea (right now its a 10 out of 10 and I can

never throw up), blurred vision, double vision (my vision is whack that objects

would slowly move up), my ears hurt, but rarely ring, my throat feels weird all

the time, etc.

I'm 17 and everything is getting worst. It's so hard to sit in class and try to

concentrate and remember what the teacher is teaching. It's hard to wake up in

the morning and be on time for class and my teacher locks you out if you're a

second late. The medicine I'm taking now is Tramadol(50 MG) and Gabapentin (800

MG). Without those two medicines, I wouldn't be able to function. The medicines

been working for me for two months so far with an increase in dosage. Now, I

feel the medicines are wearing off. I feel like I'm going to be need another

increase in dosage, but I don't want to be taking medicines all my life. I want

the problem to be solved. {Moderator Remove} I hate how forgetful I am, that I

forget to take my medicines and I'll just laid in bed trying to get up to take

my meds.

I going to college next year. I really want to leave high school,it's such a

pain XX. I hate learning things that I won't need course a year from now. This

year, I quit my cross country team. I have

been running since freshmen year and made the varsity team. I couldn't

run with the pain and weakness and everything else. I was so devastated. Running

was my thing, it made me happy. My doctor in on a trip right now and won't be

back till my next appointment next week. I have been wanting a higher dose in

medicines for weeks.

When I drive, I have such a difficult time moving my extremities. I just hope

all my symptoms goes away before college. I want to start fresh. I want to be

happy again. I want to remember how it felt without all my symptoms. I want to

wake up in the morning feeling refresh and a smile on my face.

[Guest guest]

Immediately get another doctor. You need to confirm or disproved chiari

diagnosis. Said doctor needs also to know what he's talking about and be

serious about treating YOU.

Lillian SantanaSan , Texas

Life is not about waiting for the storms to pass...it's about learning how to

Dance in the Rain.

To:

From: ngoctly@...

Date: Mon, 12 Mar 2012 11:49:34 +0000

Subject: Hi there, 1st time posting...

I never post anything on this group, because I'm the type of person who

keeps things bottled inside and once a week or so I will have a

breakdown. I always read posts people make and it makes me feel like I'm not

alone, because when I tell anyone about my problems, they don't understand.

Can anyone recommend me a good neurologist in the bay area of

California?

My neurologist told me last year around this time that I " might " have

Arnold Chiari malformation. I went to get a MRI of my brain and the

report says that my cerebellar tonsils project approx. 4 cm. below the

foramen magnum and they still have a more rounded appearance. My

neurologist gave me so many medicines to try out and see if it works. I thought

to myself, " what kind of system is this? " He asked me if I

wanted to take more meds. or go to a surgeon and see if I do need

surgery for my " might be " malformation. I said take more meds. the first time.

Second time came around and I said to be refer to a surgeon. I got another scan

but showing the flow of the brain, I forgot what it was called and it came out

normal. I really think they should have done a flexion/extension one. Why do

appointments take so long?

I know I'm not

dying, but I'm suffering. I went to the surgeon and he said it wasn't

bad enough to have surgery. The surgeon gave me steroids. I came back

after taking the steroids for two weeks or so. I'm horrible in

remembering things now. And the steroids didn't change anything for me

and the surgeon said it should and that I wasn't going to get surgery.

First time seeing him, he ask me twice if I was pregnant. This made me

mad, because why would I waste money and time to figure out what's wrong with me

if I was just pregnant. I think I would know. I still think I have Arnold Chiari

malformation. I have so many symptoms: headache (which is everyday all the time,

it never stops hurting on the back of my head), dizziness, body weakness, hard

time sleeping and staying asleep, nausea (right now its a 10 out of 10 and I can

never throw up), blurred vision, double vision (my vision is whack that objects

would slowly move up), my ears hurt, but rarely ring, my throat feels weird all

the time, etc.

I'm 17 and everything is getting worst. It's so hard to sit in class and try to

concentrate and remember what the teacher is teaching. It's hard to wake up in

the morning and be on time for class and my teacher locks you out if you're a

second late. The medicine I'm taking now is Tramadol(50 MG) and Gabapentin (800

MG). Without those two medicines, I wouldn't be able to function. The medicines

been working for me for two months so far with an increase in dosage. Now, I

feel the medicines are wearing off. I feel like I'm going to be need another

increase in dosage, but I don't want to be taking medicines all my life. I want

the problem to be solved. {Moderator Remove} I hate how forgetful I am, that I

forget to take my medicines and I'll just laid in bed trying to get up to take

my meds.

I going to college next year. I really want to leave high school,it's such a

pain XX. I hate learning things that I won't need course a year from now. This

year, I quit my cross country team. I have

been running since freshmen year and made the varsity team. I couldn't

run with the pain and weakness and everything else. I was so devastated. Running

was my thing, it made me happy. My doctor in on a trip right now and won't be

back till my next appointment next week. I have been wanting a higher dose in

medicines for weeks.

When I drive, I have such a difficult time moving my extremities. I just hope

all my symptoms goes away before college. I want to start fresh. I want to be

happy again. I want to remember how it felt without all my symptoms. I want to

wake up in the morning feeling refresh and a smile on my face.