Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have. Thank you! Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Crystal: Give us some more information. What are some more symptoms? What have you done for testing and treatment so far? Love and prayers, Heidi N > > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have. > > Thank you! > Crystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Hi This was my son also. He was diagnosed with verbal and oral apraxia. Actually global. Part was also low tone in his facial muscles...not visible to the eye but ....contributed. We have done biomed for a little ove a year. I am just listening/learning in this group as of right now. Have not tested yet but will be soon. I can share a few things that helped my son ..non biomed to start. A good SLP knowledgable with apraxia. Until he has the motor planning ability to move his mouth and vocalize intentually..he wont be capable of speech. The words are in his head..but he cant make his body ( mouth ) get it out ( hope that makes sense. Waking up those nerves..lemon, vibrating toothbrush. Work on blowing bubbles, sucking through a straw, licking a lollipop..anything motivating that he will work hard to use his mouth in different ways. Does he use visuals like PECS? How is he communicating his wants and needs now? Visuals give " more info " to his brain to process the info, making it easier to make the motor planning happen. Thats what we found and this helped so so much. Kaufman praxis kit # 1..best investment we made for his speech. Music. We made simple picture boards of easy songs. Bingo, old mcDonals etc..he sings them all now. I can e-mail you a few if you'd like to try. Biomed...for us Andy Cutler chelation and GF/CF/SF and corn free... all organic. Good basic supplements and natural yeast and bacteria fighters. Once all this was going for about 6 months, and hard work ( therapy ) on top of biomed..he started using words. Articulation was pretty poor as his apraxia was rather severe. Another 6 months along and adding in the kaufman kit and MB12 shots, his articulation improved alot. now 1.5 yrs later he is using 3 to 4 word sentences. He still has articulation problems and sometimes its hard to understand all that he is saying..but we were looking at a child who probably would have been non-verbal. I am sorry I cant help in the lymes area of all this as others may be able to. Thats our next step..but I truly believe when dealing with apraxia no one thing is going to totally heal that. Therapy was and still is needed along with healing. His voice is in there..dont ever give up. 39 and Mom to threeTasha 22 ooops..new Mommy ( I'm a Grammy to Kyri 2 )Casey-Mae 14..sweet as pieElijah 3.. ASD and beautiful Subject: Re: Still no language - Would love your guidance!To: BorreliaMultipleInfectionsAndAutism Date: Monday, October 5, 2009, 11:50 PM Crystal:Give us some more information. What are some more symptoms? What have you done for testing and treatment so far? Love and prayers,Heidi N>> My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have.> > Thank you!> Crystal> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 That all you mention is what we are doing for my still non-verbal 5yo son....excepting the songs. Since we are spanish speaking, could you include me and send me a picture board for one of the songs you tought him, for me to use as an example and ellaborate my own in spanish? Do you know whether Kaufmann kits are available in spanish too?Thank you, congratulations on all you have achieved w yr little one.IsaEnviado desde mi oficina móvil BlackBerry® de TelcelDate: Mon, 5 Oct 2009 18:55:52 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >Subject: Re: Re: Still no language - Would love your guidance! Hi This was my son also. He was diagnosed with verbal and oral apraxia. Actually global.Part was also low tone in his facial muscles...not visible to the eye but ....contributed.We have done biomed for a little ove a year. I am just listening/learning in this groupas of right now. Have not tested yet but will be soon. I can share a few things that helped my son ..non biomed to start. A good SLP knowledgable with apraxia. Until he has the motor planning ability to move his mouth and vocalize intentually..he wont be capable of speech. The words are in his head..but he cant make his body ( mouth ) get it out ( hope that makes sense.Waking up those nerves..lemon, vibrating toothbrush. Work on blowing bubbles, sucking through a straw, licking a lollipop..anything motivating that he will work hard to use his mouth in different ways. Does he use visuals like PECS? How is he communicating his wants and needs now? Visuals give " more info " to his brain to process the info, making it easier to make the motor planning happen. Thats what we found and this helped so so much. Kaufman praxis kit # 1..best investment we made for his speech. Music. We made simple picture boards of easy songs. Bingo, old mcDonals etc..he sings them all now. I can e-mail you a fewif you'd like to try. Biomed...for us Andy Cutler chelation and GF/CF/SF and corn free... all organic.Good basic supplements and natural yeast and bacteria fighters. Once all this was going for about 6 months, and hard work ( therapy ) on top of biomed..he started using words. Articulation was pretty poor as his apraxia was rather severe. Another 6 months alongand adding in the kaufman kit and MB12 shots, his articulation improved alot. now 1.5 yrs later he is using 3 to 4 word sentences. He still has articulation problemsand sometimes its hard to understand all that he is saying..but we were looking at a child who probably would have been non-verbal. I am sorry I cant help in the lymes area of all thisas others may be able to. Thats our next step..but I truly believe when dealing with apraxiano one thing is going to totally heal that. Therapy was and still is needed along with healing. His voice is in there..dont ever give up. 39 and Mom to threeTasha 22 ooops..new Mommy ( I'm a Grammy to Kyri 2 )Casey-Mae 14..sweet as pieElijah 3.. ASD and beautifulFrom: ambitionn01 <Ambitionn01aol>Subject: Re: Still no language - Would love your guidance!To: BorreliaMultipleInfectionsAndAutism Date: Monday, October 5, 2009, 11:50 PM Crystal:Give us some more information. What are some more symptoms? What have you done for testing and treatment so far? Love and prayers,Heidi N>> My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have.> > Thankyou!> Crystal> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Isa Hi I hope I didn't sound like a know it all as that was not my intention. I just know how it feels and how hard apraxia is. For me, its the hardest part of my sons autism..for sure. Each child is so different and the reasons behind there apraxia I think varies also. I emphasize the therapy part because sometimes we get so overwhelmed with the biomed and finding the link to our childs underlying problems, we can lose track of the therapy. This happened to me..but this isn't saying we all do this.. My sons SLP is going to Kaufmans seminar in a week. I will have her ask about a spanish version..and will look into online as well. They should. I just got boardmaker which is how our SLP made my sons music boards. I am learning how to use it this week so I will make you some and scan to send as a file you can print out. I can also send you a short video of how we use them if you'd like. The ones I have are Old mc, BINGO, and The wheels on the bus. Are those ok? It was very exciting when my son started hummin ( and trying to use words) to the songs. That was our start. Music has magic. Wishing i could hold a tune myself..Am horrible singer..wonder when my son will realize. Also if you need any pecs let me know and i will make some up for you. > > > > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have. > > > > Thank you! > > Crystal > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Ooh !! to me you really sound like a mom who knows so much and has gained much, also like a mom who is ready to help and guide others, thank you so much for your kind words offering me to help w more info and guidance regarding how to work w my son, all help is welcome!!! you know, he recently turned 5 and that day l couldn't help it, l felt depressed..... Never thought he would turn that old and remain NV. I admmit he is a gift from heaven and l adore him, yet it is disappointing. You are right, he has a lot of trouble complying w instructions regarding his Oral Cavity, l see him struggle and sometimes l see in his face an almost painful expression...it is as if the whole was phisycally disconnected. You are also right about the importance of therapies and how sometimes we forget this is a healing/re-training journey. I have tried to keep the therapeutical side in privileged level, not much people understands apraxia as a whole here, (MX-City), after much looking, l finally found a person who is willing to work on rehab of the oro-facial cavity w him, so let's see how it goes. I hope yr SLP will bring good news about the Kaufmann existing in spanish, you are so kind. Of course l will be so happy to see yr video on how u work w yr songs and all guidance you can give me including how to use the boardmaker and music boards, as l told you, this we have never used.It is incredible how much help and hope can move through the cyberspace :-).....Thank you again.IsaEnviado desde mi oficina móvil BlackBerry® de TelcelDate: Tue, 06 Oct 2009 19:10:23 -0000To: <BorreliaMultipleInfectionsAndAutism >Subject: Re: Still no language - Would love your guidance! IsaHiI hope I didn't sound like a know it all as that was not my intention. I just know how it feels and how hard apraxia is.For me, its the hardest part of my sons autism..for sure. Each childis so different and the reasons behind there apraxia I think varies also. I emphasize the therapy part because sometimes we get so overwhelmed with the biomed and finding the link to our childs underlying problems, we can lose track of the therapy. This happened to me..but this isn't saying we all do this..My sons SLP is going to Kaufmans seminar in a week. I will have her ask about a spanish version..and will look into online as well. They should. I just got boardmaker which is how our SLP made my sonsmusic boards. I am learning how to use it this week so I will make you some and scan to send as a file you can print out. I can also send you a short video of how we use them if you'd like. The ones I have are Old mc, BINGO, and The wheels on the bus. Are those ok?It was very exciting when my son started hummin ( and trying to use words) to the songs. That was our start. Music has magic. Wishing i could hold a tune myself..Am horrible singer..wonder when my son will realize. Also if you need any pecs let me know and i will make some up for you.> >> > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have.> > > > Thank you!> > Crystal> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Speech therapy and a good OT come to mind, haven't read the other responses so sorry if redundant. My son didn't say a word until 30 months... well, he said some things at 8.5 months but lost it. Started speech at 27 months and he just graduated last month at age 5.5. They started him with signing, so he could at least get his point across, and then it went from there with words, scripting, real talk, etc. Also we're doing DAN! protocol so lots of supplements, etc. Having him begin a special day class at age 3 was integral to his real language and context. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Hi Crystal My son was verbal, but could not chew at all until 6 years of age. He used to just swallow mashed foods. His tongue could move in all sorts of directions, but just could not get the co ordination to chew. I did 1 week of intensive QN/LED detox with Dr E in WA. I cannot pinpoint what exercise really made things click cos the whole trip was a blur due to other stressors ! All I know is at the end of the week, at the airport on the way back, he started asking to eat all sorts of (junk) food. At that time, I was just so happy he was willing to chew that I got him whatever he asked - Cheetoes with orange coloring! Yuck ! But cant argue when a 6yo child is chewing for the first time. Sorry I am not able to give u specifics of what exercises to do cos I dont really know which exercise helped. For more info on QN, Rita (rchildbalance) has posted a lot of great info. If you need the name of the Chiropracter Dr E in WA, I can send it to ur personal email ID. Dr E presented about QN and Plant Stem Cells at the last LIA conference. You can also check http://quantumneurology.com/ for practitioners in your location. The LIA website also has info on QN from the last LIA conference. Hope that helps Shanthi To: BorreliaMultipleInfectionsAndAutism Sent: Mon, October 5, 2009 12:39:05 PMSubject: Still no language - Would love your guidance! My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have.Thank you!Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Tks a lot, good luck at the hospital.IsaEnviado desde mi oficina móvil BlackBerry® de TelcelDate: Wed, 07 Oct 2009 12:30:24 -0000To: <BorreliaMultipleInfectionsAndAutism >Subject: Re: Still no language - Would love your guidance! IsaI replied yesterday but it didn't go through. I have sent you an e-mail from my personal e-mail with photos of the music boards for you to see if you'd like some. We are off to childrens hospital today butI can make you some up tommorrow. > > >> > > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have.> > > > > > Thank you!> > > Crystal> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Heidi, I just realized I never responded... To try to get speech we have done the following: - Every speech therapy imaginable (still doing) - DAN! protocol (some DMPS/glut suppositories) - A/C protocol w/ ALA only (still doing this) - Cranial Sacral (still doing) - Just started HBOT - Just started Yasko Advanced Language RNA - Yasko genetics but have no idea what do to w/ any of it - NACD - Zyto (not specifically for speech) - Asayra (not specifically for speech - still doing) - I'm sure there is more but that is all I can think of now. He is still VERY sever apraxia/dyspraxia (mouth & body) & very toxic. Our current practitioner studied under Dr. K. We are starting HANDLE in November. If anyone has any additional thought, I would love to hear them. > > > > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have. > > > > Thank you! > > Crystal > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Here is an example of doing oral mouth exercises with your child, to help encourage more tongue control, chewing, and to bring language along. Really you need a speech therapist who is trained to instruct you and give guidance, as to where to start, and how long to do each exercise per day, etc... They are using a vibration tool that has different attachments. But you can start out using the Nuk's oral tools ( most ToysR US carries them - a set of three looks like of like a tooth brush). Here's a short video on You tube > > > > > > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have. > > > > > > Thank you! > > > Crystal > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Hi, My son has speech but it is slow in coming in. Recently we stopped the gluten free casein free diet for a few months and it got worse again. In desperation I restarted the diet and it has improved again. I am pretty sure this is the factor tha has helped. We are not giving him as much of the starchy gluten free foods as he had before on the diet and when he has rice it is not given again for at least 3-4 days. I feel that this is also helpful. The diet it is worth trying. Favorite quote; "When you've seen one child with autism, you've seen one child with autism," -Myles, ASA's chief program officer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 We personally added Quantum Neurology (QN) + a good laser at home when doing the excersizes...it put our therapies on a fast-track. A good QN will help facilitate both your current home excersizes and work toward further enhancing the next phase in rehab. For us this has included speech issues, eye tracking/vision issues, proper gait/step and things like spine, cranial, balance and nerve rehab. The vision & speech were noticible jumps as I shared at the last conference through documented progress at school. Rita > > > > > > > > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have. > > > > > > > > Thank you! > > > > Crystal > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 My kids all had different speech issues, and it all got better differently as well. I think cod liver oil and strong pathogen killers plus something to help them out to mop up toxins and aid in digestion. So, it was really a combination of things. Since you just started HBOT, it's good to see how that goes before adding in some strong pathogen killers, but definitely consider treating protozoa, Lyme, Bartonella and mycoplasma. I found that starting with one thing, low dose, and working up and then adding in more things, one at a time really works. We have to use various things at the same time. My girl was extremely clumsy, poor muscle coordination, poor speech. I am not sure what specifically helped her, but just the basic stuff, digestive aids, gf-cf, magnesium-sulphate, MB12, turmeric, Modifilan and other herbs for all pathogen types. She started improving right away. I think the poor muscle control has to do with poor digestion of fats. She likes to eat lots of chicken skin, and I think it helped her. Digestive enzymes gave her a big leap. It was one of the first things I did. Plus anti-worm medications and anti-virals help her alot. So, it's really a combination of things. She is in regular school, but she still has issues at home with anger. It could be some psych stuff going on with her, since she is adopted. But, her coordination is amazing comparably. She used to fall every 3 steps at age 4. It's kind of a time thing for her, where you have to give treatments, while waiting for things to slowly come around. Her coordination is pretty much normal now, at age 7. What a miracle! I even cried yesterday, just thinking about all I have been through with all of this. It just crazy all the work. Love and prayers, Heidi N > > > > > > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have. > > > > > > Thank you! > > > Crystal > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 My 3 yo son is still struggling with apraxia. Things that have brought about language and appeared to reduce numbness of the face have been vitamin E, resveratrol, Zhang HH and zithromax. Seemingly, treating bartonella helps, as does thinning the blood. > > > > > > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have. > > > > > > Thank you! > > > Crystal > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 - You mentioned picture boards for songs in your previous post regarding apraxia. Would you please send me a couple of those when you have a moment? No hurry! mrcamsmom@... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 , This is intriguing. I have heard of kiddos loosing language when SCD or more strict diets are implemented. My son has been so intolerant to everything since birth that we never had the opportunity to 'try' a special diet. Just be default and SEVERE intolerances he never eats most of the foods not allowed on the special diets. He is up to about 10 foods now and that is awesome for us. I do think he can tolerate Bobs Red Mill GF Oatmeal and org brown rice pasta. I have only tried a couple of times but since most people say these are so bad b/c of yeast, I have been afraid to implement them fully. I just had a consult w/ Dorfman and she encouraged me to add them in saying that he needs foods...any foods (of course within reason). Thanks so much! Crystal > > Hi, > > My son has speech but it is slow in coming in. Recently we stopped the gluten free casein free diet for a few months and it got worse again. In desperation I restarted the diet and it has improved again. I am pretty sure this is the factor tha has helped. We are not giving him as much of the starchy gluten free foods as he had before on the diet and when he has rice it is not given again for at least 3-4 days. I feel that this is also helpful. The diet it is worth trying. > > > > > Favorite quote; > > " When you've seen one child with autism, you've seen one child with autism, " -Myles, ASA's chief program officer. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 Hi I sure will. I hate yahoo mail sometimes. There was another Mom who wanted them and I couldn't find her original email or do a search for her..I need to lose some yahho groups or something lol..( so whoever the other Mom was please e-mail me again ) but yes to your request. I just need my brother to fix my scanner..probably this weekend. Please send me a private e-mail reminder : ) > > - You mentioned picture boards for songs in your previous post regarding apraxia. Would you please send me a couple of those when you have a moment? No hurry! > mrcamsmom@... > > Thank you! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 ...I am the other mom enthusiastically waiting for all the know-how you can share regarding ST :-)Did yr SP find the kaufmann cards in Spanish? TIAIsa Enviado desde mi oficina móvil BlackBerry® de TelcelDate: Thu, 22 Oct 2009 01:55:40 -0000To: <BorreliaMultipleInfectionsAndAutism >Subject: Re: Still no language - Would love your guidance! HiI sure will. I hate yahoo mail sometimes. There was another Mom who wanted them and I couldn't find her original email or do a search for her..I need to lose some yahho groups or something lol..( so whoever the other Mom was please e-mail me again ) but yes to your request. I just need my brother to fix my scanner..probably this weekend. Please send me a private e-mail reminder : )>> - You mentioned picture boards for songs in your previous post regarding apraxia. Would you please send me a couple of those when you have a moment? No hurry!> mrcamsmom@...> > Thank you!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 No she didn't. She did talk with one of the speakers about it and seemed a lightbulb went on in the lady's head..like " Thats a great idea! " Ya think? lol..so hopefully they will see its an obvious need..and should be made in many languages. I will e-mail you both the music boards this weekend for sure. And if there is an activity board you could use, let me know..like I have a great one for play doh Not sure if you've seen them or used them before but all the pecs photos are spread out on one piece of paper and the child just points to the photo/word..really helps give that extra visual input. And its in rows of verbs, nounds adjectives etc. I love them. > > > > - You mentioned picture boards for songs in your previous post regarding apraxia. Would you please send me a couple of those when you have a moment? No hurry! > > mrcamsmom@ > > > > Thank you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Caryn, I am glad to hear that you had a positive experience with vitamin E among others. I am trying to research high dose Vitamin E supplementation after the recent study that was published to show its impact on kids with apraxia, allergies and fat malabsorption. If you don't mind, could you please share your vitamin E dosage, your child's weight and which form/brand of Vitamin E you use? Thanks a lot, Sarika My 3 yo son is still struggling with apraxia. Things that have brought about language and appeared to reduce numbness of the face have been vitamin E, resveratrol, Zhang HH and zithromax. Seemingly, treating bartonella helps, as does thinning the blood. > > >> > > My little guy will be four this month. He still has NO words. He cannot lift his tongue to the roof of his mouth or move it from side to side. He never babbled. It is like his mouth just doesn't work. He only partially chews his food. We have done so many things but I feel like we are missing something. When we say the ABC's together, almost every letter sounds like a 'b'. I would LOVE to hear any guidance that you may have. > > > > > > Thank you!> > > Crystal> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 If I missed this, my apologies, but I'm not seeing any information on dietary habits regarding apraxia recovery. In addition to all these treatments and supplements to restore function and address infections we can also create an ecosystem where infections will not thrive. We can reduce inflammation and nourish organs with dietary work. We followed the Body Ecology Diet. We removed many foods causing inflammation, but just as important we loaded the body with healing foods. If diet hasn't been addressed and you are asking what next, my suggestion is to go in this direction. If a basic gfcf diet is in place, then it's time to go to the next level of cleansing/healing. I'm happy to share all I can. We have no signs of autism or apraxia lingering any longer. We've done many things, but BED I believe was key and foundational. I love that he's singing the abc's....even with the " B " sound, it's all there. > > > > >> > > > > My little guy will be four this month. He still has NO words. He> > cannot lift his tongue to the roof of his mouth or move it from side to> > side. He never babbled. It is like his mouth just doesn't work. He only> > partially chews his food. We have done so many things but I feel like we are> > missing something. When we say the ABC's together, almost every letter> > sounds like a 'b'. I would LOVE to hear any guidance that you may have.> > > > >> > > > > Thank you!> > > > > Crystal> > > > >> > > >> > >> >> > > >> Quote Link to comment Share on other sites More sharing options...
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