New to Group

[Guest guest]

Hello everyone my name is . My son Brady (Who is 19) was just diagnosed

with Chiari 1 two weeks ago. After reading about Chiari I feel very fortunate to

have a diagnosis so quickly. We are now awaiting another MRI which is scheduled

for next Friday the 25th and right after that we go back to the neurosurgeon to

have the MRI read and schedule decompression surgery.

When we left the hospital with not much of an explaination of what Chiari 1

malformation is, the doctors said go look it up online. I did it was so over

whelming even the neurosurgeon did not tell us much of what to expect.

Brady graduated from High School last year and had taken a year off before

deciding what he wanted to do. He had just moved back home with us so that he

could start working out with his high school football coaches as he was going to

try out to play football for Snow College in Utah. We were told that needed to

be put on hold for this year and that possable next year he could do something

like that. From everything that I have read this seems to me that this is not a

good idea at all anymore? Maybe some of you could give us some advice on what to

expect. Bradys only symptoms have been numbness and tingling in his hand and

sometimes feet but mostly severe headaches for the last two year, Which at that

time were blames on a jammed neck from a football injury.

Also could you give us an idea of what kind of questions we should be asking his

doctor. Brady pretty much has dealt with this so far with not dealing with it at

all. I do not think he realizes that this is going to be life changing for him.

Oh yes and one more thing we live in rural Nevada after looking online there are

no Chiari specialist listed for Nevada however his Neurosurgeon said he has done

many of these surgery's before. Would you suggenst that we find a Neurosurgeon

that specializes in Chiari? There is one in Salt Lake about 3 hours from us.

Thank you everyone for listening and for any help you may be able to give us.

Jenn