Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 Mike wrote: > Re: Mitochondrial myopathies > [snip] > The recent talk re MM is why I believe that 'CFS' is > really several disorders that modern medicine can't > figure out and have lumped together as CFS. Personally, > I have few of the MM symptoms but I know many PWCs who > do. That is why I think that PWCs should be classified > into subsets so we can determine which treatments work > for which subsets. I first started this theory when the > first other PWC that I talked to didn't have any IBS > symptoms which are a big problem for me. Couldn't agree with you more, Mike. a Carnes testified eloquently at the most recent CFSCC meeting that testing for mitochondria should be added to the list of diagnostic procedures for CFS patients (along with Lyme testing, which surprisingly isn't in the CDC brochure, either). Schweitzer mailto:schweit2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2000 Report Share Posted July 11, 2000 In a message dated 7/11/00 8:28:43 AM Eastern Daylight Time, egroups writes: << Barbara: Can you double check this address? Thanks, Irene Wilkenfeld barbara herskovitz wrote: > http://dailynews./h/krfortworth/20000709/lo/invisible_invaders_mold > > _discoveries_and_ailments_on_texas_campuses_prompt_a_renewed_push_for_contro > >> here's another link. hope this helps. joanne <A HREF= " http://ads.realcities.com/html.ng/site=fortworth & size=468x60 & cat=home & po s=bottom & pt=0 " >Star-Telegram.Com | NewsLibrary Search Results</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2000 Report Share Posted July 12, 2000 Irene, Go to http://dailynews./h/krfortworth/20000709/lo/ open that page and it will be the top article. Earle > > Barbara: > > Can you double check this address? > Thanks, > Irene Wilkenfeld Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Ginger, I understand exactly what you are saying. I realized my son was medical about six years ago. My biggest regret is that it took me so long to find out about the infection part. I also didn't know that I had a child on the autism spectrum. Then things became really muddy at the age of 6-7 when his illness progressed into OCD. Between the handwashing increase in sensory problems and the severe oppositional behavior/mood swings/fear, that come from the dysfunction in that area of the brain, it was really hard to figure things out. What I did know was that it was " NOT " a mental illness, was " NOT " behavioral and I was " NOT " going to stop fighting for that wonderful little boy that I had glimpses of from time to time. It was heartbreaking to watch him disappear, year after year. Until last summer, I had no idea there was a form of highly verbal autism. I had never read anything on Asperger's. Once I started reading about it I knew that if you wanted a diagnosis to describe my son, that was it. I realize that his development is off from a medical problem, but without the diagnosis I lost a whole year of services that could have helped my son. I was dealing with a school psychologist that could not get his focus off of " behavior " , he refused to consider anything different, completely discounted all the evidence of developmental problems in their own records. I finally took my son for an evaluation at the Regional Center. I could not stand to watch so much critical time being lost. All the stress my son and I were dealing with because of this. With treatment my son is at a much higher level of awareness, he could now tell me how things were from his perspective. He now cared about the problems at school, which never would have happened with a little understanding and support. He then was at a point that the stress was overwhelming, which then would contribute to problems. I try to think of it as waking up sleeping beauty. Imagine having parts of your brain asleep for ten years and having no knowledge of all the things that have gone on, but everyone having the expectation that you do because you are awake now. I thought that having my son diagnosed with AS would finally clear up the confusion. Wrong!!!! Believe it or not, the school psych doesn't agree with it. The school then decided to push an evaluation with the Supt of Schools to try to discount the diagnosis. I have been attending school with my son since it started a month ago. I was absolutely not going to put either of us through that again. I decided that until this is settled I really have no choice. Thankfully there is a " light at the end of my tunnel. " The SOS psych agrees with the AS diag. He has spent alot of time with and watching my son at school. He said my son is really smart and has so much more going for him than alot of AS kids he has seen. His opinion is that my son is way too high functioning for anything but the regular classroom with an appropriate IEP. He feels that with the right support and help that my son has the potential to be a highly successful adult. My son is now being evaluated by the SOS specialists. They are doing a speech and language (school refused to follow any of Dr. Fosnots suggestions), OT/PT/SID, a behavioral specialist to look at the social skills, etc., they are looking at everything. I really didn't want to stick my son with a developmental label, but face it, his development is way off. Until this is documented and well-known as a true medical condition by the schools, the labels are what they use to provide or deny services. There is nothing more frustrating than watching the clock ticking on an older child (11) that you have watched coming out of the fog, developing emotions of true love, caring and so many changes, yet needing so much remedial help and therapy to reach his true potential. Cheryl > Dear Malibu 805: > > Until you really get into , most people in and around the autism > world continue to look at these children as > developmentally/behaviorally/mentally challenged. When you do the > bloodwork and start the meds you have agreed to cross that line. > Once you see the changes in your child (however slow) and see the > bloodwork improving and see the difference between what one anti- > viral versus another anti-viral (or other meds) can do for your > child - it is like seeing your child clearly for the first time. > Kind of like the sun breaking through the clouds. I will never > forget that feeling -- that I was NOT crazy and my child was NOT > mentally ill and that something could be done about it!! What a > release/relief. Once you see your child that way, you can never go > back. Her temper tantrums looked completely different to me then. > They were not just about lack of communication skills or sensory > issues (although those were present, too), it was also about her > interior system PHYSICALLY responding inappropriately and that > represented a negative domino effect on her entire world. I will > never think of my daughter in the same terms again. > Even though she is not totally healthy yet and people still question > what I am doing and shrug their shoulders when I tell them about Dr. > Goldberg, I will never go back across that line. If has not > crossed that line, how can she see her child in that light? > > Ginger > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 > Cheryl, > Hi! So what all are you doing for your child right now? Educational,Meds? > Thanks, Lois Hi Lois, He's a kid and is following the protocol now. Medically he has made tremendous progress. Having his educational needs met has been the problem. Before treatment for there was nothing that kept my son from disintegrating each year. Whatever doctor we were seeing at the time would end up excusing my son from school due to medical reasons. He kept getting such severe symptoms shortly into the school year that attendence became impossible. He would completely shut down and it would get to the point that he was in an out of control rage within 30-60 mins in the classroom, he would go into such severe OCD and the year before last year he had all the symptoms that the NIMH lists for PANDAS. Until last year I thought that the AS/OCD involved problems with about everything but strep and/or bacteria. Last year we were able to keep him from developing into full blown OCD by adding antibiotics to his regimen. Right now he is on the diet, antiviral, antifungal, antihistimine, Kutapressin, Intal, Nasalcrom, low dose SSRI. I know that you have been posting questions on the SSRI's. With my son there seems to be a very fine line between what is helpful and what causes problems. I think from what I remember your son is fairly small. My son probably is about 3 times bigger, yet we can only go as high as about 7.5mg of Paxil. Last year we had raised his dose to about 10mg. It seemed to be tolerated, but then we started on antibiotics and trying to find what form he would tolerate. To make a long story short, we found that some problems he was having with an increase in sensory issues, moods, went away when we reduced back to 7.5. We recently tried to switch to Prozac to see if it would help the school related anxiety. It was hard to figure out because in some ways there seemed to be improvements, but not the anxiety, it was actually worse. Since it was hard to tell if it was possibly too low of a dose, we increased. Not only did the anxiety get worse, but he was also having an increase in sensory problems like last year. He starts to refuse to touch certain types of paper because he says it makes him shake. Imagine how well that would go over with teachers when the school believes that there is nothing wrong except lack of school attendance) We switched back to the 7.5mg of Paxil. Our kids can certainly be called one big puzzle. I am waiting for the day that we have the immune modulators!!!!! But until then I will continue with what I know is giving my son a shot at a more normal life. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 > Hi Cheryl, could you also tell me what Pandas stands for? Thanks, It is one little piece of , but a focus of researchers at the NIMH. This is from the website below. She has the best collection of available info. Despite the title graphic, PANDAS has nothing to do with bears. PANDAS is an acronym for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. Another acronym that appears less frequently in the literature is PITANDS (Pediatric Infection-Triggered Autoimmune Neuropsychiatric Disorders). http://www.tourettesyndrome.net/pandas.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2000 Report Share Posted September 30, 2000 Would somebody please tell Michele Guppy that her son is not mentally ill. He is physically ill. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2000 Report Share Posted September 30, 2000 > Would somebody please tell Michele Guppy that her son is not mentally ill. He > is physically ill. Dear Malibu 805: Until you really get into , most people in and around the autism world continue to look at these children as developmentally/behaviorally/mentally challenged. When you do the bloodwork and start the meds you have agreed to cross that line. Once you see the changes in your child (however slow) and see the bloodwork improving and see the difference between what one anti- viral versus another anti-viral (or other meds) can do for your child - it is like seeing your child clearly for the first time. Kind of like the sun breaking through the clouds. I will never forget that feeling -- that I was NOT crazy and my child was NOT mentally ill and that something could be done about it!! What a release/relief. Once you see your child that way, you can never go back. Her temper tantrums looked completely different to me then. They were not just about lack of communication skills or sensory issues (although those were present, too), it was also about her interior system PHYSICALLY responding inappropriately and that represented a negative domino effect on her entire world. I will never think of my daughter in the same terms again. Even though she is not totally healthy yet and people still question what I am doing and shrug their shoulders when I tell them about Dr. Goldberg, I will never go back across that line. If has not crossed that line, how can she see her child in that light? Ginger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2000 Report Share Posted September 30, 2000 Cheryl, Hi! So what all are you doing for your child right now? Educational,Meds? Thanks, Lois 1raptor wrote: > Ginger, > I understand exactly what you are saying. I realized my son was medical > about six years ago. My biggest regret is that it took me so long to find > out about the infection part. I also didn't know that I had a child on the > autism spectrum. Then things became really muddy at the age of 6-7 when his > illness progressed into OCD. Between the handwashing increase in sensory > problems and the severe oppositional behavior/mood swings/fear, that come > from the dysfunction in that area of the brain, it was really hard to figure > things out. > > What I did know was that it was " NOT " a mental illness, was " NOT " behavioral > and I was " NOT " going to stop fighting for that wonderful little boy that I > had glimpses of from time to time. It was heartbreaking to watch him > disappear, year after year. > > Until last summer, I had no idea there was a form of highly verbal autism. > I had never read anything on Asperger's. Once I started reading about it I > knew that if you wanted a diagnosis to describe my son, that was it. I > realize that his development is off from a medical problem, but without the > diagnosis I lost a whole year of services that could have helped my son. I > was dealing with a school psychologist that could not get his focus off of > " behavior " , he refused to consider anything different, completely discounted > all the evidence of developmental problems in their own records. > > I finally took my son for an evaluation at the Regional Center. I could not > stand to watch so much critical time being lost. All the stress my son and > I were dealing with because of this. With treatment my son is at a much > higher level of awareness, he could now tell me how things were from his > perspective. He now cared about the problems at school, which never would > have happened with a little understanding and support. He then was at a > point that the stress was overwhelming, which then would contribute to > problems. I try to think of it as waking up sleeping beauty. Imagine > having parts of your brain asleep for ten years and having no knowledge of > all the things that have gone on, but everyone having the expectation that > you do because you are awake now. > > I thought that having my son diagnosed with AS would finally clear up the > confusion. Wrong!!!! Believe it or not, the school psych doesn't agree > with it. The school then decided to push an evaluation with the Supt of > Schools to try to discount the diagnosis. > > I have been attending school with my son since it started a month ago. I > was absolutely not going to put either of us through that again. I decided > that until this is settled I really have no choice. Thankfully there is a > " light at the end of my tunnel. " The SOS psych agrees with the AS diag. He > has spent alot of time with and watching my son at school. He said my son > is really smart and has so much more going for him than alot of AS kids he > has seen. His opinion is that my son is way too high functioning for > anything but the regular classroom with an appropriate IEP. He feels that > with the right support and help that my son has the potential to be a highly > successful adult. My son is now being evaluated by the SOS specialists. > They are doing a speech and language (school refused to follow any of Dr. > Fosnots suggestions), OT/PT/SID, a behavioral specialist to look at the > social skills, etc., they are looking at everything. > > I really didn't want to stick my son with a developmental label, but face > it, his development is way off. Until this is documented and well-known as > a true medical condition by the schools, the labels are what they use to > provide or deny services. There is nothing more frustrating than watching > the clock ticking on an older child (11) that you have watched coming out of > the fog, developing emotions of true love, caring and so many changes, yet > needing so much remedial help and therapy to reach his true potential. > Cheryl > > > Dear Malibu 805: > > > > Until you really get into , most people in and around the autism > > world continue to look at these children as > > developmentally/behaviorally/mentally challenged. When you do the > > bloodwork and start the meds you have agreed to cross that line. > > Once you see the changes in your child (however slow) and see the > > bloodwork improving and see the difference between what one anti- > > viral versus another anti-viral (or other meds) can do for your > > child - it is like seeing your child clearly for the first time. > > Kind of like the sun breaking through the clouds. I will never > > forget that feeling -- that I was NOT crazy and my child was NOT > > mentally ill and that something could be done about it!! What a > > release/relief. Once you see your child that way, you can never go > > back. Her temper tantrums looked completely different to me then. > > They were not just about lack of communication skills or sensory > > issues (although those were present, too), it was also about her > > interior system PHYSICALLY responding inappropriately and that > > represented a negative domino effect on her entire world. I will > > never think of my daughter in the same terms again. > > Even though she is not totally healthy yet and people still question > > what I am doing and shrug their shoulders when I tell them about Dr. > > Goldberg, I will never go back across that line. If has not > > crossed that line, how can she see her child in that light? > > > > Ginger > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > > > > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2000 Report Share Posted September 30, 2000 Hi Cheryl, could you also tell me what Pandas stands for? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2000 Report Share Posted September 30, 2000 Cheryl, thanks for getting back to me! Yes, i had JJ on a small dose of paxil for about 3 months (4cc's) It helped in the begining BUT his anxiety got real bad. Mostley at school. He was hitting, throwing and crying everyday at school. I just started him on risperdal (0.25mg) a week and a half ago and its like WOW!!! They said he had a grat week at school. No hitting, throwing or crying! The sp said he was like the old JJ she remenber before the anxiety took over. and at home he was his smiley self again. I hope we get those Immune modulators soon too. Lois(: 1raptor wrote: > > Cheryl, > > Hi! So what all are you doing for your child right now? Educational,Meds? > > Thanks, Lois > > Hi Lois, > > He's a kid and is following the protocol now. Medically he has > made tremendous progress. Having his educational needs met has been the > problem. Before treatment for there was nothing that kept my son from > disintegrating each year. Whatever doctor we were seeing at the time would > end up excusing my son from school due to medical reasons. He kept getting > such severe symptoms shortly into the school year that attendence became > impossible. He would completely shut down and it would get to the point > that he was in an out of control rage within 30-60 mins in the classroom, he > would go into such severe OCD and the year before last year he had all the > symptoms that the NIMH lists for PANDAS. Until last year I thought that the > AS/OCD involved problems with about everything but strep and/or bacteria. > Last year we were able to keep him from developing into full blown OCD by > adding antibiotics to his regimen. > > Right now he is on the diet, antiviral, antifungal, antihistimine, > Kutapressin, Intal, Nasalcrom, low dose SSRI. > > I know that you have been posting questions on the SSRI's. With my son > there seems to be a very fine line between what is helpful and what causes > problems. I think from what I remember your son is fairly small. My son > probably is about 3 times bigger, yet we can only go as high as about 7.5mg > of Paxil. Last year we had raised his dose to about 10mg. It seemed to be > tolerated, but then we started on antibiotics and trying to find what form > he would tolerate. To make a long story short, we found that some problems > he was having with an increase in sensory issues, moods, went away when we > reduced back to 7.5. We recently tried to switch to Prozac to see if it > would help the school related anxiety. It was hard to figure out because in > some ways there seemed to be improvements, but not the anxiety, it was > actually worse. Since it was hard to tell if it was possibly too low of a > dose, we increased. Not only did the anxiety get worse, but he was also > having an increase in sensory problems like last year. He starts to refuse > to touch certain types of paper because he says it makes him shake. > Imagine how well that would go over with teachers when the school believes > that there is nothing wrong except lack of school attendance) We switched > back to the 7.5mg of Paxil. Our kids can certainly be called one big > puzzle. I am waiting for the day that we have the immune modulators!!!!! > But until then I will continue with what I know is giving my son a shot at a > more normal life. > Cheryl > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2000 Report Share Posted October 1, 2000 you can contact the office of. Dr. Suedo, at the National Institute of Mental Health and they will send you for free copies of their studies, etc. It is Pediatric Autoimmune......something something. Re: Re: Digest Number 551 > Hi Cheryl, could you also tell me what Pandas stands for? Thanks, > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2000 Report Share Posted October 1, 2000 Excellent letter Ginger! Kathy R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 > Excellent letter Ginger! Kathy R Thank you Kathy R: It is so strange to have conversations with people who have AI kids and do Speech/OT/SI and some form of diet for their kids, but who have never really gotten into the medical side. It's almost as if I have suddenly grown green horns in my head - the looks I get. Then I remember, OH, you're not into this. OK. OK. Almost as if we are reading the same book and they are in Chapter 2 and I am in Chapter 7. Strange. Nothing snooty about this, just that I have SO accepted the part of " autism " that I can't see it any other way now and forget that everyone is not on MY track. Anyway, there is a Group of 5 of us here in Livonia (Detroit) that are with Dr. G. I have been with him the longest (16 mos) and am so glad to talk to/read about other families who are farther down the line or going through the same trials that we are. More questions: 1. Does anyone know anything about Ampligen? I have read some encouraging anecdotal reports from CFS patients that were on this. Is this drug FDA approved? Has it been tested on children? Is this one of the drugs that Dr. G. will have in his trials? 2. RE: HHV6. Has anyone tried the following to eradicate HHV6 - Foscarnet, Ganciclovir, Granulocyte Colony Stimulating Factor or Cidofovir? I don't even know if these are released for use with children. 3. Does anyone have any information re: transfer factor. Dr. VK Singh has posted an article entitled " Autism, Autoimmunity and Immunotherapy: a Commentary " on the web. Dr. Singh is now at Utah State University (E-mail: singhvk@...). The article is from The Autism Autoimmunity Project Newsletter, vol. 1, number 2, December 1999. He mentions this transfer factor in this newsletter. 4. I have read that HHV6 is probably the most neurotropic virus known (CDC website). What does neurotropic mean? That's it for now. Sorry for the length of post. Ginger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Hi, Was wondering if anyone could tell me about Dr. Jay Goldstein, of Anaheim, CA and his treatment of CFIDS, etc. and other forms? Have an opportunity to receive treatment, and I am on the east coast. Any info? Thanks! Margaret Holt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Neurotropic means whatever you are talking to has an affinity for nervous tissue. I am concerned about HHV 6 but it may be that we will be more concerned eventually about HHV 7. I have been looking at autistic spectrum disorders being organic for almost 8 years and I can't imagine how anyone can think differently because it is so logical. Of course I also don't understand how people can give their kids potent psych drugs or things from the health food store that little is known about but they can't take milk and wheat out of that same kids diet. Kathy R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Dr Goldberg will tell you a bad story about a good drug, namely Ampligen. Apparently it was a good drug, got into some bad trials or for some other reason was pulled off the market several years ago and was quite a disappointment- to the CFIDS patients. It is the kind of mistake are trying to avoid with- research. I would be interested for Dr. G to repond on the tranfer factor thing, I sort of remember he was put off by it. Just for the record I don't think Famvir, Diflucan, etc etc are approved for use in children technically. I think we are considered off label use.- Original Message ----- From: <rfenech@...> <egroups> Sent: Monday, October 02, 2000 11:45 AM Subject: Re: Digest Number 551 > > > Excellent letter Ginger! Kathy R > > Thank you Kathy R: > > It is so strange to have conversations with people who have AI kids > and do Speech/OT/SI and some form of diet for their kids, but who > have never really gotten into the medical side. It's almost as if I > have suddenly grown green horns in my head - the looks I get. Then I > remember, OH, you're not into this. OK. OK. Almost as if we are > reading the same book and they are in Chapter 2 and I am in Chapter > 7. Strange. Nothing snooty about this, just that I have SO accepted > the part of " autism " that I can't see it any other way now and > forget that everyone is not on MY track. Anyway, there is a Group of > 5 of us here in Livonia (Detroit) that are with Dr. G. I have been > with him the longest (16 mos) and am so glad to talk to/read about > other families who are farther down the line or going through the > same trials that we are. More questions: > > 1. Does anyone know anything about Ampligen? I have read some > encouraging anecdotal reports from CFS patients that were on this. > Is this drug FDA approved? Has it been tested on children? Is this > one of the drugs that Dr. G. will have in his trials? > > 2. RE: HHV6. Has anyone tried the following to eradicate HHV6 - > Foscarnet, Ganciclovir, Granulocyte Colony Stimulating Factor or > Cidofovir? I don't even know if these are released for use with > children. > > 3. Does anyone have any information re: transfer factor. Dr. VK > Singh has posted an article entitled " Autism, Autoimmunity and > Immunotherapy: a Commentary " on the web. Dr. Singh is now at Utah > State University (E-mail: singhvk@...). The article is > from The Autism Autoimmunity Project Newsletter, vol. 1, number 2, > December 1999. He mentions this transfer factor in this newsletter. > > 4. I have read that HHV6 is probably the most neurotropic virus > known (CDC website). What does neurotropic mean? > > That's it for now. Sorry for the length of post. > > Ginger > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 Where are they located so I can contact them? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 > > 1. VOTE NO ON Bill 602P!!!! Sorry this is off-topic, but this is a hoax. See http://www.urbanlegends.com/ulz/emailtax.html. -Todd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 mary beth, i am glad i was able to share. i think when we share positive things about our kids, it can help others get through the negative and rough times. i almost felt guilty for posting about her " wow streak " but i feel so invigorated by the past two weeks, i get tears when i think of all she has done. the most touching to me was her sitting on santa's lap signing to him what she wanted for christmas with no hesitation....... it was like almost for a moment she was a typical nineyear old child with no labels or stereotypes attached....... GREAT FEELING....... :-)although today she accidentally knocked a little girl in the nose and caused a nosebleed.lmao my little angel ashton. teacher said was accident though, they were twirling and dancing and ashton's hand accidentally hit alison-her peer buddy in nose.......lmao poor kid, what away to end the week. teacher said she thinks ashton was more upset than alison, and had the most tears....lmoa little ms. dramatic she is....... hope good! things are coming your way and you enjoy the holiday spirit...... take care, leah-spending so much money on myself.....heheheh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 Leah, Thank you for such wonderful news about Ashton. I am certainly tucking away all this info about seroquel! This is so hopeful. Also good to hear about her one teacher who is actually advocating for her. We need to hear about people who support our kids! Thanks for the lift. And last but not least, hats off to you for your stick-to-it-iveness. You have hopefully opened a lot of people's eyes about what needs to be done at ehr school. Hope you get to relax. I was particulalry struck by your comment about things being black and white but not they are in color. A great thing to ponder. MB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2001 Report Share Posted February 10, 2001 Liz, When I get congested, sinus and dripping and coughing, I do the life ift breathe. Believe it or not, it helps clean out the lungs..I cough lots but it clears it up faster. If I miss a day, then I can hear the gurgling in my chest and do it when I get home. It is gross and I can't breathe deep but it helps. Not sure if it would help with bronchitis or anything more serious. get better. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 For the woman who was requesting What's wrong with this picture info, I posted my friend who uses the following. I've seen it and it's great!: These are from the Dover Publication: What's Wrong With This Picture Coloring Book. Author is Pomanska, price is $2.50 US, ISBN is 0-486-24485-7. There are 36 B & W pictures in the book. I followed their suggestion and colored them to make it easier to start with. PS- I don't work for Dover Publications, but, they have many bargain priced books that my 7 1/2 year old likes (spontaneously!). regards Dyson and Carla Niemann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 In a message dated 12/6/2001 2:22:35 AM Central Standard Time, writes: Where was the last Place e said she was working at or planning to work when she got back to Denver? I think she mentioned it, but can't remember where it was. Date: Thu, 6 Dec 2001 00:31:31 -0600 (CST) From: lany25@... Subject: Re: e I also have a very bad feeling about g, and am extrememly worried about her. Do we have any sisters on the board whe are from Denver? I pray God is keeping her safe, and that she will soon be back with all of us. With love, Lany God Bless America & You! 'LINDA' If silicone was Water ... Would they Drink it? SILICONE SUCKERED! -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2001 Report Share Posted December 9, 2001 I did not get my package sent out yet...... I have lost track of time.... Is it Christmas already.......????? I will have it mailed out for sure on Tuesday..... I never knew how much work is was to tile a house... We are still working on it... Kim -- Digest Number 551 Quote Link to comment Share on other sites More sharing options...
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