How is everyone doing??

[Guest guest]

Hello Everyone

I was getting worried I was no longer receiving the daily message digest but now

I see that there have been no new posts in the last week

I hope that is a good sign and everyone is doing well!! I myself have been

Super busy the last few weeks. Mostly with family things - some good and some

not so good. It still amazes me how my mind can take over my body when it comes

to be there and doing things with my kids and Grand daughter!!

But, things are starting to settle down and my body finally said " That's

Enough! " and I spent 3 days layed up in bed. Probably would of been out of bed

sooner but there was a screw up with my last pain med refill and I spent 36hrs

without them and in complete misery :/ I was seriously considering chopping off

my legs in hopes to make the pain go away. However, I learned a valuable lessen

and will never question how well my pain meds are helping me ever again!!

In a way it's a little sad to find out that life without all these meds would

not be tolerable.

I finally quit working a little over a month ago and sadly there hasn't been

much improvement. The only thing I've notice is that I don't have to take as

much Diamox as I did when I was working.

Just trying to take things one day at a time. And hopefully things with the

family will start to settle down a bit so I can start focusing more on mine and

my daughters health. It's really gotten pushed to the back burner and I still

haven't gotten our records sent off to NY!! But I did finally get the rest of

our records together to send there.

Time sure seems to be flying by, it seems I blink and at least 3 days go by!

Well I hope everyone is doing well and have been enjoying the summer months

Best Wishes

Debbie R